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Message |
Forum: Parents' Discussion Topic: I dont like the mother my son requires me to be |
| piratecaptainloo |
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Posted: 20 Jul 2012, 8:44 am
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Replies: 107
Views: 29,336
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| Ok. Let me say first that yelling usually makes situations worse. Taking away a "focus" makes it worse. What I have started to do with my brother is, after having given him a time to be finished with his focus and finally "making" him get off of the game or whatever... and he starts to throw a fit, ... |
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Forum: Parents' Discussion Topic: i am a kid asking parents this question |
| piratecaptainloo |
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Posted: 20 Jul 2012, 8:33 am
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Replies: 9
Views: 1,808
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| This is my brother, but he seems to trust us less than he did our Mom, at least he doesn't have as strong a relationship. It doesn't effect talking at dinner, and TAylor doesn't seem to care if we're talking unless it's something he specifically CARES about, too. This is common for people with AS, t... |
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Forum: Parents' Discussion Topic: Is my son mentally ill? |
| piratecaptainloo |
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Posted: 18 Jul 2012, 8:29 am
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Replies: 14
Views: 2,590
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| I have worked with a lot of people with disabilities, ranging from dementia to schyzophrenia, and what I've found more often than not the changes in mood/symptoms varies with home situation. Even subtle changes can upset people with all types of disabilities. That and the medication itself. I am ver... |
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Forum: Parents' Discussion Topic: I feel current services for children with AS are misguided |
| piratecaptainloo |
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Posted: 17 Jul 2012, 8:35 am
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Replies: 36
Views: 4,426
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| I don't have suffient time right now to make a reply I'd like to, but I will say that I agree with you and other people who have replied to this post. There's no reason for AS kids to sit 100% of the time sitting at a desk at school. On the other hand, life, sometimes, is about doing things you don'... |
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Forum: Parents' Discussion Topic: No DX still searching for what's going on. |
| piratecaptainloo |
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Posted: 17 Jul 2012, 8:25 am
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Replies: 7
Views: 1,247
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| Thank you for all of your replies!! I really appreciate it. I do believe that we have a referal for a neuro at Children's hospital. Calling today, hopefully it goes well. IDK about this psych. He acts like we're just insane and again he said that it seems like he doesn't have a PDD. MR is mental ret... |
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Forum: Parents' Discussion Topic: No DX still searching for what's going on. |
| piratecaptainloo |
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Posted: 16 Jul 2012, 10:51 am
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Replies: 7
Views: 1,247
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| Thanks for your reply. It helps to know we're not alone... and people are wrong in thinking we're completely off our rockers here. Of course people think we're insane because when he's in the view of professionals he's an angel, he knows the right things to say... ugh. |
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Forum: Parents' Discussion Topic: 5 year old not watching tv |
| piratecaptainloo |
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Posted: 16 Jul 2012, 10:43 am
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Replies: 24
Views: 6,114
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| Brother isn't like that, but my godson is. He's almost 4 and if you put on a movie for him, even something he loves and will put in himself, he will pay attention for a few minutes then off he goes to do something else. He will come back to it a minute or two at a time, but always moving around and ... |
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Forum: Parents' Discussion Topic: I hate my mother, do you think that's justified? |
| piratecaptainloo |
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Posted: 16 Jul 2012, 10:41 am
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Replies: 9
Views: 2,407
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| From the sounds of her, I'd likely hate her, too. The problem with that is that it takes a lot of energy to hate someone. It wastes energy you could use in loving someone else. I prefer to despise people instead of hate them. Completely forget that I have have feeling toward them instead of using my... |
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Forum: Parents' Discussion Topic: Sex Ed |
| piratecaptainloo |
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Posted: 16 Jul 2012, 10:36 am
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Replies: 18
Views: 3,495
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| This is kind of a strange topic for us. We took total guardianship of my brother when he was 12, and he was in private schooling since grade 3, so we didn't have the issue of sex ed, but teaching him that ourselves. Mom never had this discussion with him and that was kinda scary because he was start... |
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Forum: Parents' Discussion Topic: Role playing games (RPG) for social skill development? |
| piratecaptainloo |
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Posted: 16 Jul 2012, 10:28 am
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Replies: 26
Views: 6,213
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| I would love if my brother would try D&D. He'd much rather play a one player shoot 'um up game, which I'm NOT a fan of because then he runs around saying thing from gangster games which is actually sometimes an appropriate response to a question, just a strange way to say something... if that ma... |
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Forum: Parents' Discussion Topic: Public School Paranoia (I hope I'm doing this right)... |
| piratecaptainloo |
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Posted: 16 Jul 2012, 10:21 am
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Replies: 13
Views: 1,537
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I think all your concerns are completely valid. Have you checked for private schools in your area specifically for children with special needs, or even charter schools?
I am not a fan of public schools, despite their availability to offer specific therapies and "special education" classes. |
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Forum: Parents' Discussion Topic: Guardianship of our daughter. |
| piratecaptainloo |
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Posted: 16 Jul 2012, 10:17 am
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Replies: 6
Views: 1,289
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| I understand completely!! ! My Mom, before she passed, said she wanted me to care for my brother no matter what. I knew his father was incapable of caring for another person as he was/is barely capable of caring for himself (dx AS, not saying everyone with AS is, but in this case). There was nothing... |
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Forum: Parents' Discussion Topic: won't touch his penis |
| piratecaptainloo |
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Posted: 15 Jul 2012, 9:07 am
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Replies: 37
Views: 16,614
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| Sensory. Heh. 15 year old brother won't wash his hair, face, or certain areas of his skin appropriately because he "washes" them too gently. He also won't touch his penis when he urinates. I only know this because when he goes to the restroom and I go in afterwards, the back of the toilet will have ... |
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Forum: Parents' Discussion Topic: No DX still searching for what's going on. |
| piratecaptainloo |
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Posted: 15 Jul 2012, 9:03 am
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Replies: 7
Views: 1,247
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| Posted this before, but here goes again.............I know there's something different about my brother, Taylor, but no one else seems to see it. He acts 100% different in public than at home. He knows what he should do in social situations, but doesn't. I know that he has sensory integration dysfun... |
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Forum: Parents' Discussion Topic: 14 yo brother-"son"... help... |
| piratecaptainloo |
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Posted: 25 Aug 2011, 5:59 am
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Replies: 10
Views: 1,685
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| Thanks everyone, I truely feel not alone right now! :) Not only that, but I'm truely learning more and more about how tweak things to make everyone in our home happier and the days a little more easy-going. Postcards57, per Taylor's request, we are considering getting him a cell phone for Christmas.... |
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Forum: Parents' Discussion Topic: 14 yo brother-"son"... help... |
| piratecaptainloo |
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Posted: 22 Aug 2011, 12:43 pm
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Replies: 10
Views: 1,685
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| Thank you both for all of your suggestions, it has been very helpful. Ettina, I am young, 25, and DH is 26. Boo still does need some hand over hand instruction, but not with his personal cares. We started off with the "let me do it" approach, then "let me show you", then hand over hand at times. He ... |
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