katt5220 wrote:
... Actually what I am here for is to learn from older people who have aspergers, I want to know what worked and what didn't. I want to know what you hated and what you loved about growing up with aspergers. ...
I think the first thing to say is that she is fortunate to be diagnosed young. I was only diagnosed this year at the age of 45. Not understanding why some things seem so much more difficult than for other people (e.g. developing social relationships, empathy, ...) can lead to low self esteem, depression and abuse of alcohol. Well that was my experience. With a diagnose comes the potential to understand what it means to have AS, and hence what support is out there that might help to cope better with any particular difficulties you may experience.
Even though I didn't know I had AS for 45 years, I can look back now with greater knowledge and self awareness on the things I did that did help me, and the things that did not.
Things that did not work
- Acting a false role to try to fit in with my NT peers (in my case acting the fool)
- Isolating myself from social interaction
- Developing obsessions that were damaging to my self esteem
- Self medication (e.g. abuse of alcohol)
Things that did work
- Developing my strengths (in my case mathematics and physics) and using these to find a suitable job that requires using this knowledge and logical thinking skills. This helped me to lead an independent life
- Learning how to function better in an NT world by reflecting on situations that did not go so well and changing behaviour, and not being afraid to ask others for feedback
The thing I hate most about having AS is not being able to experience NT love, because of poor empathy and understanding of emotions in self and others. I also do not like the daily high levels of fear, anxiety and stress that come from 'faking it' in an NT world, and my perfectionism
The things I love about my AS are my ability to concentrate on something for hours, and the enjoyment I get from acquiring new knowledge
I think the help that would have made most difference to me, if I'd known about my AS as a child, would be the ability to practice and develop communication and social skills in a supportive environment (e.g. through role play). This is something that you could do with your daughter, now you know.
I wish you and your daughter all the best.
Steve