I just registered and this is my first post.
I am a sixty year old man with a wife of 39 years, two sons and a grandson. I had a long career in the Engineering field and by most appearances, a normal and somewhat successful life. Unfortunately, it was never normal to me, not as long as my memories take me back. I could never understand why I had so much trouble "fitting in" anywhere or why I feared and dreaded even trying to do so. Everyone always called me the "loner" or the "shy guy".
As a child in the sixties, there was no such thing as an autism spectrum. I didn't fit the classical diagnosis for autism at that time nor did I see myself fitting that image, so I went through life trying to be "normal" and hating myself every time I failed at it. Like most people, I saw the movie "Rainman" a story about an autistic sevant. But I wasn't anything like that either. In the early 90s my neighbor had a son in pre-school with a lot of behavioral problems. He told me his boy had been diagnosed with a new thing called "aspergers" but he didn't relate that to autism so that didn't stick either.
At age 57 I started having strange medical symptoms that were making my job impossible. I saw three neurologists, a cardiologist and an ophthalmologist, but they couldn't figure out what was going on with me. So being a problem solver, I started my own research and after many weeks zeroed in on the subject of mastosytosis and mast cell activation syndrome. I joined several mast cell forums and kept noticing the subject of autism kept popping up with a lot of people. I checked that out and found that a person with mastosytosis is statistically ten times more likely to have an autism spectrum disorder. There are even some specialists whose research show a direct link between the two. That was the first time I had ever heard of autism referred to as a spectrum disorder.
With great reluctance, I started reading a few articles about this new term. After spending your entire like convincing yourself that you a just like everyone else, that is not the answer you want to find. But I just had to know more and very soon came across the subject of "high functioning autism". I was one of those rare moments in life when the "light bulb" comes on and immediately everything makes sense. I watched a few videos of men with this diagnosis and felt like I was seeing and listening to my own life's story.
That was three years ago. Since then, I have been overwhelmed with health issues, early retirement, and moving to a new home. Now, finally I have a little time to reflect on this issue that has orchestrated my whole life without even knowing of it's existence. I just wonder how many others my age are only now discovering they too have carried this load alone for a lifetime and how many have but don't yet know it.