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vethysnia
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02 Nov 2016, 6:02 pm

Hello, and best greetings to you all. I come to this site and community seeking insight and discussion regarding autism and asperger's mainly to aid my husband, who is currently undiagnosed but I have recently scheduled a visit for him with a specialist to find some answers.

We've been together for five years and we've been married for one, and so far it is becoming exceedingly difficult for us to cope with one another's disorders. We both have had extensive conversations about his behaviors and strongly believe it is linked to AS.

My previous boyfriend was also high functioning autistic, so I feel like I've at least dipped my toes in when it comes to this kind of territory.

I personally suffer from depression, bipolar disorder, anxiety, chronic auto immune disease, insulin resistance and mild hashimoto's. And...I'm honestly a little unclear on the exact definition of 'neurotypical' after coming here, so I'm not sure where I stand.

It truly is a pleasure to be here. <3



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02 Nov 2016, 6:31 pm

Welcome.

Unfortunately, the best advice I can give you is to stay away from some of the sites/reddit communities that aim to focus on the significant other's of autistic people. They tend to be more about women (mostly) blaiming everything wrong in their relationship on their husband being "disordered." It's truly frightening to listen to these people talk amonst themselves. They have utter disdain for their partners and that's no way to be in a healthy relationship.

I'm really glad your sweetie is going in for assessment. That's a good first step. If you live in a major city, there is likely to be a support group for adult autistics. That would be a wonderful place to start. If you live in NJ or NYC, I can refer you.

I'd like to give you the name of a book or something, but I can't come up with anything right now. If you go on the general section, and ask, you might get some really good answers. My current favorite autism book is Neurotribes, but its not on the subject of healthy relationships. There's a video that's really good. It's called Autism in Love.

But honestly, it's probably best to wait for diagnosis, and for your sweetheart to come around to understanding what it means before trying to fix his yet-undiagnosed-autistic features, right?



cathylynn
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02 Nov 2016, 6:58 pm

hi, vethysnia. welcome. i have autistic traits and bipolar, while my husband has schizophrenia and is also an introvert like me. my bipolar disorder has been completely controlled by meds for a number of years. my husband's main objection to my autism is that i don't smile enough. my logic helps him when he worries about "conspiracies."



vethysnia
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02 Nov 2016, 7:10 pm

Quote:
Welcome.

Unfortunately, the best advice I can give you is to stay away from some of the sites/reddit communities that aim to focus on the significant other's of autistic people. They tend to be more about women (mostly) blaiming everything wrong in their relationship on their husband being "disordered." It's truly frightening to listen to these people talk amonst themselves. They have utter disdain for their partners and that's no way to be in a healthy relationship.

I'm really glad your sweetie is going in for assessment. That's a good first step. If you live in a major city, there is likely to be a support group for adult autistics. That would be a wonderful place to start. If you live in NJ or NYC, I can refer you.

I'd like to give you the name of a book or something, but I can't come up with anything right now. If you go on the general section, and ask, you might get some really good answers. My current favorite autism book is Neurotribes, but its not on the subject of healthy relationships. There's a video that's really good. It's called Autism in Love.

But honestly, it's probably best to wait for diagnosis, and for your sweetheart to come around to understanding what it means before trying to fix his yet-undiagnosed-autistic features, right?


Hi there, I'm very grateful for your advice.

For the record I'm not trying to fix him, I'm trying to help him manage his condition in healthier ways than he has been, because not only are they harming his well being but mine as well. I truly love him, and he feels the same for me; what we have is too special, unique, and intimate for it to be jeopardized by admittedly both our intrinsic shortcomings.

These women you speak of sound like they have far more grave problems in the head than their AS spouses.

I've spent the last few hours reading a ton of posts and replies, and my eyes are becoming wide open at what he deals with every day.

We are waiting for the specialist results, but in all honesty I've read many ridiculously long research pdfs illustrating AS behaviors and motives, and the resemblance is kind of undeniable at this point.

Personally I'm just happy he's willing to take the help. The trusted adults in his life growing up convinced him that caring for his own well being was wrong, and so he's never extensively sought counsel or treatment for his issues. You should have heard him on the phone when I told him; he sounded truly grateful.

Thank you all who have posted so far. c:



TheAP
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02 Nov 2016, 7:20 pm

Welcome! Good luck with your relationship. :)



vethysnia
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02 Nov 2016, 7:33 pm

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Welcome! Good luck with your relationship. :)


Thank ya kindly. ^^



androbot01
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02 Nov 2016, 7:58 pm

Don't put too much hope in getting a diagnosis - late diagnosis is hard to come by. I'm not saying he's not autistic, I don't know if he is or not, but if he truly thinks he is he should do some research on his own. Should he be diagnosed this will not mean that his behaviour will change. For me, once I was diagnosed with autism I stopped trying to be neurotypical and my autisticness became more apparent (and frustrating) to people.

cathylynn wrote:
... i have autistic traits and bipolar, ...

I have been diagnosed with high functioning autism and recently with bipolar. My psychiatrist is adjusting my meds accordingly. I'm glad to hear you have had success.



leodfelion
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03 Nov 2016, 10:44 am

Greetings and Welcome!

It's great that you are getting more information concerning your husband pre-diagnosis. My experience is that most significant others don't "fully believe" until their spouse gets the full diagnosis. My wife, a fully neuro-typical gal with anxiety disorder, struggled a bit pre-diagnosis. She did start seeing the traits after I repeatedly asked her to look it up. :lol:

As an Aspie, it is very relieving to know that there is a name that coincides to how you act and experience the world. I'm still learning quite a bit about it. I'm currently reading Temple Grandine's "The Autistic Brain" which gives quite a bit of insight. My wife has read some books, can't recall the names, concerning being married to an Aspie and she seems to be more understanding.

In short, continue the research and don't give up. We are a handful, but a glorious handful most of the time. :wink:



vethysnia
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03 Nov 2016, 10:49 am

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Don't put too much hope in getting a diagnosis - late diagnosis is hard to come by. I'm not saying he's not autistic, I don't know if he is or not, but if he truly thinks he is he should do some research on his own. Should he be diagnosed this will not mean that his behaviour will change. For me, once I was diagnosed with autism I stopped trying to be neurotypical and my autisticness became more apparent (and frustrating) to people.


Well of course a mere diagnosis isn't going to change his behavior. It's going to take years of his own motivated conditioning to do that, and I'm prepared to help him through that.

A doctor telling him what's wrong with him isn't going to magically transform him, and I'd have to be a complete idiot to believe that.



vethysnia
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03 Nov 2016, 10:59 am

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Greetings and Welcome!

It's great that you are getting more information concerning your husband pre-diagnosis. My experience is that most significant others don't "fully believe" until their spouse gets the full diagnosis. My wife, a fully neuro-typical gal with anxiety disorder, struggled a bit pre-diagnosis. She did start seeing the traits after I repeatedly asked her to look it up. :lol:

As an Aspie, it is very relieving to know that there is a name that coincides to how you act and experience the world. I'm still learning quite a bit about it. I'm currently reading Temple Grandine's "The Autistic Brain" which gives quite a bit of insight. My wife has read some books, can't recall the names, concerning being married to an Aspie and she seems to be more understanding.

In short, continue the research and don't give up. We are a handful, but a glorious handful most of the time. :wink:


Thank ya kindly friend! :D

To be perfectly honest, I kind of knew there was 'something' up with him after we had been dating for only six months. He mentioned that he too had some sneaking suspicions that there was something more to his behaviors than just depression and anxiety. I wanted him to get tested or at least talk to someone about it for years but it took me a long time to understand that he's not really capable of getting his own help.

When I really thought about it, the concept of going back to the doctor over and over again for pills that don't even work probably seems completely illogical to him, so when he goes and doesn't get the relief he needs he just doesn't go back. Because doing the same thing to expect a different result is...well, insane.

For future posts, I am NOT trying to change him. I am NOT trying to make him normal. I am trying to be the best wife I possibly can to someone like him, and trust me it's going to take more than some high functioning autism to destroy the marriage we both worked so hard to solidify. :heart:



androbot01
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03 Nov 2016, 11:11 am

vethysnia wrote:
...t's going to take years of his own motivated conditioning to do that, and I'm prepared to help him through that.

vethysnia wrote:
...I am NOT trying to change him. I am NOT trying to make him normal. I am trying to be the best wife I possibly can to someone like him, and trust me it's going to take more than some high functioning autism to destroy the marriage we both worked so hard to solidify.

The above quotes are slightly contradictory; but, to be clear, I'm not questioning your motives, just that he may not be as enthusiastic about his conditioning as you expect. What does he say about all this?



vethysnia
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03 Nov 2016, 12:03 pm

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The above quotes are slightly contradictory; but, to be clear, I'm not questioning your motives, just that he may not be as enthusiastic about his conditioning as you expect. What does he say about all this?


How is helping him help himself contradictory?

And for the record his reaction was extremely grateful that anyone would go to such lengths for him.



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03 Nov 2016, 1:24 pm

Hey vethysnia welcome. :sunny:


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androbot01
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03 Nov 2016, 1:37 pm

vethysnia wrote:
How is helping him help himself contradictory?

And for the record his reaction was extremely grateful that anyone would go to such lengths for him.

I guess my question is in regards to how he is helping himself? You mention that he is motivated to undergo "conditioning." Words like that scare me. I'm not sure if you are familiar with the term "masking?" It is in reference to a person with autism acting in a manner that they have been taught or conditioned to. It is unnatural and will cause him stress.

I presume that your relationship is undergoing stress as you mention that you don't want autism to ruin your marriage. A lot of people have that problem. To blame his autism for the strain to you marriage is to blame him. You may have to become more used to his behaviour than you would like.



vethysnia
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03 Nov 2016, 3:56 pm

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I guess my question is in regards to how he is helping himself? You mention that he is motivated to undergo "conditioning." Words like that scare me. I'm not sure if you are familiar with the term "masking?" It is in reference to a person with autism acting in a manner that they have been taught or conditioned to. It is unnatural and will cause him stress.


Sorry if I used some buzzwords that you don't appreciate.

Allow me to be a little more specific. It's not his autism whatsoever that needs remedying; it's the symptoms that stem from it.

If going into counseling therapy, being evaluated for better medicines, learning how to manage his time, and being more proactive about picking up after himself is considered unnatural and stressful, then perhaps this isn't the place I thought it was to gain insight.

He can stay as awkward and weird and speech impediment-y as ever. That's the man I fell in love with.



Last edited by vethysnia on 03 Nov 2016, 3:58 pm, edited 1 time in total.

vethysnia
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03 Nov 2016, 3:57 pm

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Hey vethysnia welcome. :sunny:


Thanks bud. :D