28 May 2008, 7:18 pm
28 May 2008, 7:22 pm
hartzofspace
Supporting Member
Joined: 14 Apr 2005
Gender: Female
Posts: 7,138
Location: On the Road Less Traveled
28 May 2008, 7:48 pm
Hi, all. Am in hyper-sensitive mode, since Memorial Day weekend. My neighbor, who rarely plays music, started doing so. Since I was resting, I was forced to get up because the acoustics of these Florida cracker houses are appalling. Even though I could tell that the volume would be considered "reasonable" to a normal person, I felt a meltdown coming on because it's like I can feel the music touching me, especially if there's a lot of bass. So, it was like this guy had invaded my space. (I posted about this elsewhere.) And then, yesterday, I decided to deal with severe back and abdominal pain that started on the 18th. Even though I've seen a my chiropractor twice, and did the ice/heat treatments, took Advil, muscle relaxants, etc. it hasn't resolved.
My next step was the emergency room, which I could only tolerate for about two hours, because it was full, and people were buying food and eating it there. The onslaught of smells, noises, a loud television, etc. drove me nearly to tears. When I asked the nurse for a time frame in which I might be seen, she said 4 more hours! 
I left. The pain had extended down to my legs, and it was very painful walking. Since I was near my doctor's office, I impulsively stopped in, on the off chance that either my doctor or someone else could see me. The nurse took down all my symptoms, and urged me to return to the ER! She didn't understand AS, and at this point I was so overwhelmed, I couldn't explain that if I went back into that place, I would have hysterics. They made me an appointment to see my doctor for the following morning, after I'd explained that I can't do mornings. It takes me at least 3 hours to function after waking, and I usually can't wake until after 2pm. So I had to set the alarm to cancel my appointment, because I knew I wouldn't be able to make it.
Right now, from a noisy holiday weekend non stop pain (over and above my usual quota, and the stress of trying to deal with medical professionals, I feel like a huge, exposed nerve. I still haven't gone to brave the ER again. I know that something unusual is going on, and that I need to get it checked, but it takes so much out of me.
And my neighbor just had to be asked to turn the freaking music down. Now I am shaking all over. I hate going to strangers and having to speak to them, not knowing what they might do.
28 May 2008, 7:48 pm
rules?
rules?!?!
we don't need no stinkin rules!! !
28 May 2008, 7:50 pm
Sedate topics???? Rules???? AAHHHHHHHHHH!! !
The Ramones
[youtube]http://www.youtube.com/watch?v=wMD7Ezp3gWc[/youtube]
(Sorry, Lau! I'm a Youtube Boob! 
28 May 2008, 7:53 pm
My next step was the emergency room, which I could only tolerate for about two hours, because it was full, and people were buying food and eating it there. The onslaught of smells, noises, a loud television, etc. drove me nearly to tears. When I asked the nurse for a time frame in which I might be seen, she said 4 more hours!
I left. The pain had extended down to my legs, and it was very painful walking. Since I was near my doctor's office, I impulsively stopped in, on the off chance that either my doctor or someone else could see me. The nurse took down all my symptoms, and urged me to return to the ER! She didn't understand AS, and at this point I was so overwhelmed, I couldn't explain that if I went back into that place, I would have hysterics. They made me an appointment to see my doctor for the following morning, after I'd explained that I can't do mornings. It takes me at least 3 hours to function after waking, and I usually can't wake until after 2pm. So I had to set the alarm to cancel my appointment, because I knew I wouldn't be able to make it.Right now, from a noisy holiday weekend non stop pain (over and above my usual quota, and the stress of trying to deal with medical professionals, I feel like a huge, exposed nerve. I still haven't gone to brave the ER again. I know that something unusual is going on, and that I need to get it checked, but it takes so much out of me.
And my neighbor just had to be asked to turn the freaking music down. Now I am shaking all over. I hate going to strangers and having to speak to them, not knowing what they might do.
Sweetie, The pain you described sounds like it could be either a kidney infection or kidney stones. Either way, you really need to get in to see a doctor. Believe me, hysterics generally get you in a whole lot faster than being mellow and "nice".
28 May 2008, 7:55 pm
I miss The Other Half of My Brain. (Chuck) Has anyone heard from heard in the past couple weeks?
28 May 2008, 7:57 pm
Hartz...sorry this is happening to you...very frustrating and over whelming. I have been in similiar situations(especially having to make appointments I knew I couldn't keep because I dont "do" mornings. I don't know what to tell you other then that I understand 
The worst part is the added stress of the ER and noisy neighbor and frustration trying to get the receptionist to understand why you can't just take any old appointment(well, surely you would if ou were really in pain )...is just exasterbating the pain with stress.
Have you ever had your cortizal (?) levels checked (is this the right word for the chemical that is released when we are under stress related to adrynilin release. I am wondering if it is higher then normal in aspies and if there is any thing we can do about it.
28 May 2008, 8:04 pm
28 May 2008, 8:26 pm
In that case, I hope he's having a relaxing time. 
28 May 2008, 8:30 pm
tetras <3 one of my favorite fishes. my pandas said that it's good that your daughter has 2 pandas with her, because my pandas always sleep with me. (and disturb me in the morning
)(yeah this is a month ago but i'm slow)
in 2 month time i move there. to a aspie-apartment-complex in the town i live in (: (notice the sounds from my neighbour, he don't know who moves in next to him... )
I like your new apartment! It is definitely bigger than an aquarium but the right size to be cozy. Will you have it to yourself or will you share it with someone?
That noisy neighbor is in for a surprise, I think.
hartzofspace
Supporting Member
Joined: 14 Apr 2005
Gender: Female
Posts: 7,138
Location: On the Road Less Traveled
28 May 2008, 10:15 pm
hartzofspace
Supporting Member
Joined: 14 Apr 2005
Gender: Female
Posts: 7,138
Location: On the Road Less Traveled
28 May 2008, 10:23 pm
(Sigh of relief) Thanks for that! You should have seen that woman's face, when I tried to explain that I couldn't do mornings. Total incomprehension and even impatience!
)...is just exasterbating the pain with stress.Quite. And I hadn't the time, energy or inclination to educate her on PTSD, CFIDS, and AS in 5 minutes or less.
Not sure if it was checked on one of the many times I've had blood work drawn. Despite all this hassle, my doctor, (to give proper credit) is very nice and will answer questions, explain, etc. It's just that lately he has gone to mornings only, and I refuse to go to another doctor. The pain actually seems less, today.
Last edited by hartzofspace on 29 May 2008, 6:06 pm, edited 1 time in total.
sinsboldly
Veteran
Joined: 21 Nov 2006
Gender: Female
Posts: 13,488
Location: Bandon-by-the-Sea, Oregon
28 May 2008, 11:42 pm
29 May 2008, 10:10 am
29 May 2008, 10:33 am
My next step was the emergency room, which I could only tolerate for about two hours, because it was full, and people were buying food and eating it there. The onslaught of smells, noises, a loud television, etc. drove me nearly to tears. When I asked the nurse for a time frame in which I might be seen, she said 4 more hours!
I left. The pain had extended down to my legs, and it was very painful walking. Since I was near my doctor's office, I impulsively stopped in, on the off chance that either my doctor or someone else could see me. The nurse took down all my symptoms, and urged me to return to the ER! She didn't understand AS, and at this point I was so overwhelmed, I couldn't explain that if I went back into that place, I would have hysterics. They made me an appointment to see my doctor for the following morning, after I'd explained that I can't do mornings. It takes me at least 3 hours to function after waking, and I usually can't wake until after 2pm. So I had to set the alarm to cancel my appointment, because I knew I wouldn't be able to make it.Right now, from a noisy holiday weekend non stop pain (over and above my usual quota, and the stress of trying to deal with medical professionals, I feel like a huge, exposed nerve. I still haven't gone to brave the ER again. I know that something unusual is going on, and that I need to get it checked, but it takes so much out of me.
And my neighbor just had to be asked to turn the freaking music down. Now I am shaking all over. I hate going to strangers and having to speak to them, not knowing what they might do.
I used to hate that, too. It's like "why can't they just be considerate of other people" instead. But they're not, so you have to. I learned how to be at least semi-confrontational after the kid came along, because then I was doing it for both of us, not just me. I was raised to be retiring, to just take whatever was dished out. Maternal hormones short-circuited that. And yes, as someone else has said, hysterics will get you a long way in a hospital setting. At least into a quiet, solitary exam room. Which is the purpose of the exercise.... Hard as it is, you're going to have to tell them you're in severe pain and then put on a show, if necessary, to get what you need.
Hope you feel better by the time you read this. Maybe siatica? (SP?)It could be a lot of things, some serious, some not, but pain is pain. Please have it checked out?
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