Strapples / Alin..

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I contacted http://www.cerebralpalsy.org/contact/ and asking if they know anything about a distributor of something similar in the United States. :-/ not sure how new the treatment is, if its available in the U.S. yet. I don't know the age of that video news report, but it appears to be from Moscow(???).

This is beginning to make sense about my peculiar Aspergers Syndrome... why I do not like being around people and end up in isolation. It is my own doing.



I had a Neurotypical friend tell me once that I was "hypersensitive" to his comments, and I took his comment to be offensive, because it was offensive. Even if he was being honest and making an observation, it was offensive. Actually, twice I was told by NT's that I was hypersensitive to their comments. Very critical, hypersensitive on grounds of ethical, moral, philosophical issues. I'm sure they were offended by my blunt observations of their immoral comments. Then accused I lack a sense of humor, and take things too literal, etc etc

Somebody can say some thing to a person with Schizophrenia, and the information is somehow (in contrast) mis-processed and distorted (as was explained to me) and taken in a way that the Schizophrenic person filters it -- they're paranoid(???) so it is misprocessed where they might perceive the words in a personal "paranoid" type way that equates to an attack on themselves.. somehow it ends being perceived very differently than the way it was actually intended.
The person I dealt with (my now very estranged ex-husband) knew exactly what he was doing, and had a psychopathic or sociopathic mentality. Because he was putting police through a wild-goose chase, and when my letter finally reached him I begged him, to please be honest... level with the investigators and stop the nonsense, and tell the truth -- who he had killed, so the investigation would be closed and media go away. Surprisingly, he levelled with investigators... and told precise details... no more games and gave them what they wanted. It was all the evidence needed -- he KNEW what he was doing. Even if it was disguised behind games and lies and a "wild goose chase".

I was working with a woman one time, and she frightened me. Our backs were turned to one another, and I said something to her... she turned around and asked me with a shocked look on her face, "What did you say?" I told her, and she said, "I thought you said you wanted to kill me." Wahoooooo... I always wondered if that woman was schizophrenic-paranoid. She creeped me out. I certainly didn't say anything like that, yet she heard it that way. Maybe she "wanted" to hear that... maybe she "expects" to hear that. My ex-husband was the same way... he heard what he "wanted" to hear. Everything, everyone, every person was taken personal as an attack on himself, and even his own crimes were somehow in his own mind, justified within himself as the "fault" of everyone, but himself. Nah, he CHOSE to do it and no matter how much a person lies to themself it won't change that. On moral grounds, when making a conscientious decision, everyone has the power of choice. Everyone knows "if it hurts me, it will hurt somebody else." But some people choose not to do, what they know is right.

In contrast, myself being Aspergers Syndrome, I often pay acute attention to what people say... and unlike Schizophrenic people... after awhile of being acquainted with people, I rehearse what a person says and do, their actions and I become very clear on their motives and under-tones... acute hypersensitivity to what they've said. I analyse what they say.

Like I sometimes do with music... looping it and playing it over and over and over... their annoying, illogical, absurd comments / actions are rehearsed over and over and over and over. I can't get away from that fact. I remember things those (few people I allow in contact with me) what they say and do. It's overwhelming and sometimes frustrating. To be in a social situation, faced with a lot of strangers... so many, many diverse "individuals" -- I feel overwhelmed and stressed out. I don't want to know a lot of people and prefer to avoid them. I prefer a quiet intimate relationship with a person who shares some of my own interests, but most of all, is kind and sweet, honest and good-hearted... even, moral. I don't like "surprises" and unpredictable behaviors... i.e., lying. I like stability and routine.

Hey, I'm not the only one who's observed this with Aspergers.


I guess Neurotypicals let most of what they hear people say, go in one ear and out the other. That includes, when they hear injust, corrupt, unethical comments coming from people's mouths... they play right along with it. But I capture those words, commence to memory... summarize the substance of a person's character. In the past, I helped in an investigation of that serial murderer, ex-husband, who probably was a Schizophrenic Paranoid. He's in prison today. I am thankful I never had children with him (don't need that kind of inborn mentality in the gene pool, thanks), and it was only a very brief marriage. Married only long enough to see him put behind bars, then I divorced him.

If it isn't criminal mentality... it's just "dumb" people I deal with... and they annoy me. Very few people are really of interest to me. That's precisely why I shun people. They're too much emotional liability. It's emotionally straining to me dealing with people. I am "hypersensitive" to people that are around me.

There's one person I find particularly annoying.
Often I've paid close acute hypersensitive attention to the bass ackward things that person says, and I swear, if I'm not mistaken, that person is a bonafide "Narcissist Personality Disorder". They rarely catch one alive. It should be called "Narcissist Character Disorder," from what I've read. Their brain is not "born" wired that way, but it is learned behavior. Those people are the worst kind of liars and dangerous to people in society.

If they don't get things their way there's **** to pay. They go between happy stages of socializing to withdrawn "dark moods" behind closed doors, and inflict sadistic harm on everyone who really know them. What's so "evil" about it... is the NPD sits back plotting in secret... and might carry out their manipulation through "pouring crocodile tears" to manipulate everyone in their path... all the suckers they've won to their side... provoking sympathies and outpouring of affection. Set back enjoying all the hysteria they stirred up for themselves. Lots and lots of psychological abuse behind closed doors, and some of their victims, the most-hurt and closest to them, will never see it... or refuse to see it. The NPD does it because they love to be showered with attention, praise, glory. If they feel exposed, the next defense mechanism is almost always conveniently hiding behind the name of something moral and good and (the opposite of what the NPD really is) God, and will say things like "You're going to one day answer to God," because their control over people's lives... their social prestige and standing in the community is threatened, if their true character is revealed. They know if they're ever exposed, the whole house of cards they've built might come crashing down... their "Pristine Reputation" built on lies and deceit... they can't risk it.
I've seen children hurt around that "fine upstanding person" I speak of -- and the way they reacted instead of bringing the child, who had busted their head to the hospital, was "Theyre not hurt. They're fine." No practical concern for a child, because afteral that NPD felt no pain, so therefore, it didn't matter. NPD people completely lack in human empathy - although the injury to the child's head lead to severe headache and vomiting, which now, considering all the facts... lead me to believe there was a possible concussion involved.

It's always that way with that person. They feel nothing real for people around them, but put on a big show -- social displays -- beyond reproach in the community with their pristine, holier-than-thou put ons and fake behavior. They're "better than you and everyone else" ... a symptom of Narcissist Personality/Character Disorder.

One of the things that lead me to conclude (among a long line of hints and other suspicious evidence) was when my Ex was arrested for murder. It was in the media, and police investigation had my life upside down. I was attending college. I needed to drop some of the courses due to stress. When that particular person saw I was having a hard time -- they DID NOT CARE. I heavily suspect is an NPD... or NPCD (CHARACTER DISORDER), because they said, being critical of my inability to drive myself nuts to achieve success at any cost (lacking in empathy for others, as usual) to me about their own husband, "If it was ******** it wouldn't bother me."
I separated myself from them. Somebody else (that I suspect may be Aspergers) came up and told me, "Did you hear what she said?" (laughing under his breath) "If *********** murdered people, it wouldn't bother her. Ha ha ha ha ha ha.... ha ha ha ha ha..." (though he kept it at a snail's whisper, lest that woman overheard it and went into one of her conniption fit tantrums, we'd seen on occasion.

I sense a total lack of human empathy going on in that person... other people who are "Acquaintances" would never know or suspect the "fine upstanding saint" she portrays herself to be in public, has a very dark secretive side. I'm wondering when her house of cards is going to come falling down... like it did in Jim Jones' case. who spoke of "love" up to the bitter end, and all the other NPD's that have graced society. (again it's better termed a "Character Disorder" and learned behaviors from the little they know about Narcissist Personality Disorder). I went down the list of symptoms for NPD... and it was describing the woman I speak of, *perfectly*. Those people are "sane" in the sense that they are gifted socially, and read people, but with no empathy ... only cold, calculating manipulation through fake social behaviors. People are pawns to them. The only thing they do... all they do... is put on their very best act in public, win people over... to praise and glorify them in public -- in the community -- They know how to act/behave, to seduce people into worshipping them... enough so, that other people are catering to their every whim and desire. A cult following... when they pour crocodile tears, the hive jumps.
But there's no heart at home... just a cold, calculating stone... if you can even call it a "heart".

I see things in people, I don't want to be around, I don't like being around, it drains my psyche... I'm supersensitive... HYPERSENSITIVE to attitudes and behaviors in NT's. The things they say, the actions they make overwhelm me. My mind processes it in a way, that I conclude: "They're nuts!"

I like people to have at least some amount of logical, sensibilities and rational minds.. and people should have love in them. Down to earth... genuine... good-hearted people. I look for that in people. But we live in a society where people aren't genuine, they'll lie, they can't be trusted.

Only occasionally, do I ever acquaint anyone who really makes sense.

I know.


And, I'll continue to try to contact organizations, until somebody who actually knows something about this therapy and will offer some helpful advice.

(Images: http://rpkatlant.com/en/rps--atlant )

I received a response back from that one organization, and the response was WORSE than getting an answering machine. The person offered no knowledge at all, and didn't even seem to have a clue as to what time of day it was, and did not "speak" to me at all (as the email said) rather, read an email I sent.
It's people like this... that explain why people with disabilities are not getting the help they actually need. People who are working in the field, don't even know enough about the condition, much less available therapies... which explain why you were diagnosed Cerebral Palsy, and nobody thought *duh* to suggest "Massage Therapy" -- I put that together and I didn't even have the first indepth knowledge about the condition. I sure am Aspergers, and very HYPERSENSITIVE to ignorance and indifference.
Their response? What did any of this have to do with my question about availability of this "pressure suit" to people with Cerebral Palsy in the United States??? If the woman had a clue about C.P. (she supposedly represents) she'd given me some information.

Ummm, its morning and I wrote her this morning.

It was no help at all. Just lots and lots of web URL's to other agencies and further information to Cerebral Palsy.

I'll keep trying until I can get in touch with a HUMAN with a working brain.

I looked up the Mayo Clinic online. I hope they are more helpful than that other organization.


Let's see how far I get with that request... like all those Aspergers people who are victims of malpractice and misdiagnosis, because people in the medical field are so ignorant of what a disorder is, much less how to properly treat a person with it. I hope the Mayo Clinic is more professional.

hope u get a reply

Aspieforty if you have three children with ASD how can you be so surprised by Strapples?

ASD is totally different from Kanners / Classic autism. I have classic with PROFOUND sensory integration disorder. most ASDers dont have profound sensory integration disorder

Easy. There's a big difference. He explained his hypersensitivity to pressure (it appears to be abnormally heightened physical pleasure... first, and foremost) No, I don't experience that. Neither do my children.

Simple pressure doesn't give me the "deep physical pleasure" like he describes in correspondence that "wearing straps" and other things give him. Then, he should really deeply *enjoy* massage therapy and hopefully receiving that specialized "pressure suit," if one can be located in the United States.

My children do NOT have those kind of unique *physical* pleasure-hypersensitivity issues... at all.

NAMELY THIS:

hyposensitivity: Definition from Answers.com
hyposensitivity n. , pl. , -ties . Less than the normal ability to respond to stimuli. hyposensitive hy ' posen ' sitive.
www.answers.com/topic/hyposensitivity

Hyposensitivity and Autism | autisable
Hyposensitivity is when a child is “under-sensitive” to stimuli and has trouble processing information through their senses. ...
www.autisable.com/705690054/hyposensitivity-and-autism

You have to understand, my children only received diagnosis in 2009/2010. Therefore, I am still learning all the details of Aspergers Syndrome. I am quite amazed with this subject. It explains a lot of things... for instance, why I am so "hypersensitive" to things people say, and other things, perhaps hyposensitive.

Sure, my son likes me to stroke his back, gently... anybody would. But Strapples was explicitly describing something that is out of the ordinary... he doesn't like it soft...he likes HARD INTENSE PRESSURE on his body... and it triggers wonderful feelings of pleasure... I understand it is a "uniquely pleasurable" experience, NT's don't experience and I sure don't relate to.

In contrast, if anything my PDD-NOS daughter appears to be "hyposensitive" to shots... I found that odd, she receives shots and doesn't cry or react much at all. Sometimes she falls, and gets physically hurt, but doesn't react very sensitively to it. She's the one who climbs trees, not afraid of heights and other things that sometimes are ... dangerous or careless behaviors.
My son, who is Aspergers he never complains, until he is in really really bad pain.

I'm the same way for the most part. I must be knocking on death's door, before I'll willingly go to a physician. It's got to be pretty severe.

I did get "a reply" -- but its still a far cry from hearing from a specialist on Cerebral Palsy

wow what a nasty person replied!

http://www.grandin.com/inc/squeeze.html

This links to information on the commonality of this.

Perhaps common in some of the people who have the condition, but the treatment being provided (mainstream) doesn't appear to be common knowledge. Thanks for the link.
From what I gathered, Alin feels the same they concluded.. for him its like an alternative form of natural medicine. Extremely soothing and relaxing.

Excellent article that really explains where he's coming from...


It's amazing... I had never heard of this subject until now. Of course, I'd never thought of "Autism" either, until only a few years ago... live and learn.

problem with grandins machine. lateral pressure only. i want it all over me... as in a g-suit type thing.

Well, I meant to post last night... I'll keep on trying to contact somebody until I can locate an expert who might can identify that suit (from Russia/Czech) and identify the therapy. I had appointments / etc going on today.

Botti's page has provided names of several qualified specialists. Often, those names can be typed into Google, and sometimes located at a University, and sometimes contacted directly.



etc etc etc...

Some specialist in the United States is aware of what the therapy with the orange, "pressure suit" and probably research related to it.

thats exactly what i want is a full body pressure suit.

on a side note i like wrapping blood pressure cuffs around my neck

That's funny.

But seriously, I'd contact the guy who has the RUSSIAN video, but he hasn't logged in since a year.
and everything is in Russian which translates on Google as "Reporting program's "Segond" NTV channel on the neuro-orthopedic rehabilitation pressure suit PKK "Atlant"

I don't even know what Television Channel in Russia to contact for information on the news segment.

But there is email addresses and maybe they have information on some distributor in the United States. (Not directly, but somebody who markets some similar "pressure suit"), if it even exists in the U.S. yet. It depends how old the therapy is, and if research / FDA has approved it... and that can sometimes take years

I just don't know.



I hope this "pressure suit" is even available in the United States.

I will try to write them too. My children have begged me to take them out for dinner right now, but I'll be back.

pressure suits DO exist. they are called G-Suits and are worn by fighter pilots not specifically designed for autism one would need an air compressor to fill it nd a good seal over the valve.