Newbie from Bristol UK

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sure but which part do you want me to explain in more detail ?


the similarities you mean or the different developmental differences?

Ok when you said" ...how little support there is...."
Do you mean in the UK or generally speaking?
Because personally I think in the UK is quite good, in some other countries is worse (Italy, for my experience)
Also I think psycologists and psych. and people NT they dont' know very well what means really to be Asspergian. One psycologist suggests me to read poetry to overcome literal interpretation sometimes I make, in particular moment that can happen suddenly, unconsciously.
This is silly suggestion, because I can understand very well poetry, I can write poetry actually
but still I make literal interpretation and I stuck in some words, and my brain stuck there for hours..
So, I mean, NT think I can't understand poetry because I do literal interpretation.
This is not true. It is a different mechanism.
Also because I am linguistic scholar, translator, I love languages and grammar. I love poetry.
Just I want to say probably it is no easy for NT people to understand Asperger's Syndrome.

ohh yes I mean that the type of support you get for Aspergers can vary depending on where you live in the UK budgets and postcodes

but the gp I have contacted thier partners trust and actually paid for me to go to a different NHS region for me to be assessed, unfortunately I have since managed to track down a few reports regarding the established care system inplace for people with ASD in my city, its a bit concerning but there are little to no funds made available for adults here it the section I found so far

"Current Service Issues
People with Asperger Syndrome without significant psychiatric co-morbidity are currently excluded from accessing mental health/learning disability services. This means that not only are people unable to access diagnostic assessment, if they do
experience problems, they are also unable to receive prompt, timely intervention. The consequence being that services are typically only available at the point of crisis, which is both unhelpful and expensive.

If people with ASC do manage to access mainstream health and social care provision, due to a widespread lack of specialist training and expertise with regard to autism amongst frontline staff, their needs are poorly understood, leading to them receiving services which can be ineffective, inappropriate, and potentially harmful.

Due to various recent policy initiatives (including the Autism Act, the National Autism Strategy and the statutory guidance), this situation is becoming increasingly untenable.

However, the lack of additional investment from central Government means that any solution will have to be low-cost and sustainable. This means that for the most part, the needs of adults with ASC should be met within existing services.

• However, two problems remain:
• Significant competency gap amongst frontline staff with regard to how to work effectively and efficiently with people with autism.
• Existing services will not be able to offer diagnostic assessment and preventative treatment, accessible from primary care
• This care pathway attempts to solve these problems by recommending the creation of small, multi-agency, jointly commissioned specialist ASC teams, with a remit to provide two broad areas of activity:

i) Workforce support to agencies across the care pathway (including health, social care and voluntary sector organisations) involved in providing services to people with ASC, via:
• Supervision clinic to enable professionals in secondary mental health/learning disability services to properly diagnose & manage people with ASC
• Provision of comprehensive, ongoing programme of training and awareness-raising to front-line staff across care pathway, targeted to meet the specific training needs of different organisations
• Consultation/liaison service to local social care & voluntary sector agencies working with people with ASC, to enable them to obtain:
• Ongoing, specialist advice about specific cases
• Support to adapt their services to enable them to be more appropriate and accessible to people with ASC
• Partnership working with relevant stakeholders to develop and implement a range of local initiatives to improve the quality of life of people with ASC, and reduce levels of social exclusion.

ii) Direct work with people with ASC who are not able to access existing provision due to the absence of significant psychiatric co-morbidity and/or learning disability, including:
• Diagnostic service, accessible from primary care
• Comprehensive package of post-diagnostic support for people with ASC and their
families/carers"

obviously since this full report on autism support was issued "only included ASC above" I have been able to be seen, and have just to wait for the paperwork to filter through re the contact from support workers and a few autism groups that are catering for people with Aspergers by trying to incorperate them into exsisting groups and programs

Yes I understand. I think it is no easy to get help or support from the national health service.
Unfortunately, just only if you pay you can get immediately good support, from private therapist.
But it is very expencive.
But as I understood, you are not looking for therapy, but more for support group, and first of all meeting others Aspies.
I live in Cambridgeshire, I don't know very well how is working here about it.
I have never been asking support group here.
But I know there is a lot of aknowledge about Asperger's.

hi.