The Dino-Aspie Ex-Café (for Those 40+... or feeling creaky)

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Chuck
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Chuck
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02 Oct 2007, 9:43 am

cosmiccat wrote:
Very interesting, nice interview. I have UTube link of him and his brother. My family is beginning to take notice of this Asperger's thing because of all the media attention it's getting. I only told my husband & kids, my sister and my only RL friend. When I first told them that I believed I had AS they kind of acted like they weren't really listening, or like it was just one more crazy thing coming out of my mouth, and they would change the subject, or play it down. Now, six months later, when Aspies are coming out all over the place, they are sending me all kinds of articles and interviews and books. I appreciate it, but I just wish they would have taken it from me, from my mind, from my mouth. It's like they had to have approval from authorities and other outside sources before they could accept that it might be true, that I might know what I'm talking about. Oh well, that's life.


This is so true! :lol: And so frustrating. I like the "Oh well, that's life." part. You've grown into such a wise being, oh Cosmiccat! :lol:

I don't know why it is that the people who know you best, who are closest to you, just won't give you the validation you seek until they hear it from someone else's mouth. Or you can have a ton of knowledge on a given subject, but it means nothing if it isn't backed by a degree, stamped and approved by an "official" source. Or being smart means nothing unless they see the "official" IQ number. You don't really possess anything until the Wizard of Oz says you do. :wink: :D

(Therefore - the wisest course of all - don't seek validation. "Oh well, that's life.")



Last edited by Chuck on 02 Oct 2007, 9:56 am, edited 2 times in total.

blessedmom
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02 Oct 2007, 9:47 am

cosmiccat wrote:
Thanks Lauri,

Quite interesting. Here's another link about him. Has a UTube of him and his brother.

http://www.jerobison.blogspot.com/

I looked at that one before which prompted me to and get the book. I had seen Running with Scissors but didn't realize it was based on a true story. I didn't find it as odd as my friends did, which I suppose should tell me something about my life! :wink: :lol:



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02 Oct 2007, 10:00 am

blessedmom wrote:
...I had seen Running with Scissors but didn't realize it was based on a true story. I didn't find it as odd as my friends did, which I suppose should tell me something about my life! :wink: :lol:


Hi odd strange bizarro weird and wonderful Lauri! :lol: 'Tis the normal parts seem passing strange.



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02 Oct 2007, 10:03 am

Chuck wrote:
blessedmom wrote:
...I had seen Running with Scissors but didn't realize it was based on a true story. I didn't find it as odd as my friends did, which I suppose should tell me something about my life! :wink: :lol:


Hi odd strange bizarro weird and wonderful Lauri! :lol: 'Tis the normal parts seem passing strange.


Takes one to know one! :P And good thing for you that I'm just as strange bizarro weird and wonderful as you are!



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02 Oct 2007, 10:04 am

blessedmom wrote:
...I looked at that one before which prompted me to and get the book.


Did you like the book? My sister always got in trouble for not looking people in the eye. I caught on and learned how. I got in trouble for locking onto people's eyes and not letting go, and not blinking. :lol: Guess this comes across as aggressive. So many rules. Look at me, don't look at me. Talk to me, shut up. Louder, quieter. Make up your mind. :lol:



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02 Oct 2007, 10:15 am

Chuck wrote:
blessedmom wrote:
...I looked at that one before which prompted me to and get the book.


Did you like the book? My sister always got in trouble for not lookin people in the eye. I caught on and learned how. I got in trouble for locking onto people's eyes and not letting go, and not blinking. :lol:
Guess this comes across as aggressive. So many rules. Look at me, don't look at me. Talk to me, shut up. Make up your mind. :lol:


What I've read so far, I've liked. And I can relate very well to him. He reminds me of my father, my uncle and my sons. There's a little of me in there, as well.
I had to learn how to look people in the eye and I still just can't do it when the person is an authority figure or an adult male. I worry about the staring thing, as well so I have a 3 second rule and can emulate the flitting eye pattern most people have. I still find they look away more than I do and have been told that my eyes are intense. And it is just weird that I would be able to analyze something as simple as looking a person in the eye!! :oops: :roll: Yeesh!

The more I read and talk to people here, the more I realize that I really should go and get a diagnosis. I don't think I can deny it anymore. (I scored higher on the Aspie quiz than you did, by the way)



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02 Oct 2007, 10:17 am

sinsboldly wrote:
blessedmom wrote:
....The gravity of my situation hit me full in the face at 2 AM. I woke up with what I know to be the beginnings of a panic attack. I had the most horrid sense of doom and despair! It is the loneliest feeling that I have ever experienced, but I have learned to talk myself out of it before the panic starts. Last night was a little harder. My mind was running with thoughts of how I am going to do this, is it going to be worth it, should I change my mind, do I need to find a different job, how do I find out if my rent here can be subsidized and if not, where will we live, what will I do with the dogs, and can I keep them if I am working or going to school full time, how am I going to go to school and raise 4 kids, how are the 4 kids going to handle this, what am I doing wrong to keep ending up single, what do I do if my Crohn's comes out of remission.... and the list went on and on and on.............

I finally got back to sleep and proceeded to sleep in, which meant a rush to get everyone out the door this morning. They weren't late, but it was tight! I have no idea what kind of mood I'm in because I don't have time to think about it. If I stop for a minute I'll probably be really cranky! :x

Sorry for the negativity, just had to get it out!


I can't believe it, all these years and I always said "humph! I've never had a panic attack! what wussies these people are!" But Lauri wrote it all out and for the first time in my life I now realize I have had these things all my life! what a revelation! I am stunned!)


This is what I call "my mind won't shut up". I don't feel panicked though. I just ruminate. And it won't stop. That's when I start doing math in my head - hopefully not finding anything interesting. I try to bore myself to sleep. :lol:



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02 Oct 2007, 10:32 am

Chuck wrote:
sinsboldly wrote:
blessedmom wrote:
....The gravity of my situation hit me full in the face at 2 AM. I woke up with what I know to be the beginnings of a panic attack. I had the most horrid sense of doom and despair! It is the loneliest feeling that I have ever experienced, but I have learned to talk myself out of it before the panic starts. Last night was a little harder. My mind was running with thoughts of how I am going to do this, is it going to be worth it, should I change my mind, do I need to find a different job, how do I find out if my rent here can be subsidized and if not, where will we live, what will I do with the dogs, and can I keep them if I am working or going to school full time, how am I going to go to school and raise 4 kids, how are the 4 kids going to handle this, what am I doing wrong to keep ending up single, what do I do if my Crohn's comes out of remission.... and the list went on and on and on.............

I finally got back to sleep and proceeded to sleep in, which meant a rush to get everyone out the door this morning. They weren't late, but it was tight! I have no idea what kind of mood I'm in because I don't have time to think about it. If I stop for a minute I'll probably be really cranky! :x

Sorry for the negativity, just had to get it out!


I can't believe it, all these years and I always said "humph! I've never had a panic attack! what wussies these people are!" But Lauri wrote it all out and for the first time in my life I now realize I have had these things all my life! what a revelation! I am stunned!)


This is what I call "my mind won't shut up". I don't feel panicked though. I just ruminate. And it won't stop. That's when I start doing math in my head - hopefully not finding anything interesting. I try to bore myself to sleep. :lol:


:evil: MATH!! That would put me into a full-blown panic attack!! It would be high school all over again.

Merle, The thought of being a "wussy" is what gives me the will power to get control of them! :lol: I can't stand losing control!



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02 Oct 2007, 11:12 am

blessedmom wrote:
...What I've read so far, I've liked. And I can relate very well to him. He reminds me of my father, my uncle and my sons. There's a little of me in there, as well.
I had to learn how to look people in the eye and I still just can't do it when the person is an authority figure or an adult male. I worry about the staring thing, as well so I have a 3 second rule and can emulate the flitting eye pattern most people have. I still find they look away more than I do and have been told that my eyes are intense. And it is just weird that I would be able to analyze something as simple as looking a person in the eye!! :oops: :roll: Yeesh!

The more I read and talk to people here, the more I realize that I really should go and get a diagnosis. I don't think I can deny it anymore. (I scored higher on the Aspie quiz than you did, by the way)


Intense eyes hmmmmm? 8O :lol: More Aspie than me, eh? (dadgum "Aspier than thous") :lol: :

I thought I had learned how to make my face work right. Thought I had learned the correct timing on the eye movement thing. Thought I was was passing off as normal. :lol:

But this is what my psychiatrist writes:

"...tends to stare, somewhat unusual laugh, ...voice intonation (too intense)..."
Apparently, I'm a terrible mimic. Guess I'll not be able to replace the mime Marcel Marceau now that he's gone. :wink:

Guess I'll read the book and see if I can identify any of my family members in it as well.



Last edited by Chuck on 02 Oct 2007, 12:02 pm, edited 2 times in total.

cosmiccat
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02 Oct 2007, 11:16 am

Very nice SoundClash video, BlessedMom. And so appropriate. Especially for what you are experiencing right now. Thanks for posting it.

When The Night Feels My Song - Bedouin Soundclash

I'm on the rocky road
Heading down off the mountain slope
And as my steps echo echo,
louder than before
Another day is done,
say goodbye to the setting sun
See what i found,
Turn back to the ground
Just like before

*And Hey hey hey hey hey hey
Hey beautiful day, hey beautiful day
Hey hey hey hey
Hey beautiful day, hey beautiful day
When the night feels my song
I'll be home, I'll be home

Into the undergrowth,
Twist and turn on a lonely road
In the twighlight
the day turns to night
And i'm alone

And when the light has left
I'm not sure of my every step
Follow the wind that pushes me west
Back to my bed

[Repeat *]

When the night feels my song
I'll be home, I'll be home
When the night feels my song
I'll be home, I'll be home



Chuck
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02 Oct 2007, 11:36 am

cosmiccat wrote:
...*And Hey hey hey hey hey hey
Hey beautiful day, hey beautiful day
Hey hey hey hey
Hey beautiful day, hey beautiful day


I'm getting out to enjoy it some, before hittin' the bed again and going back to work. It really is beautiful
outside! :D



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02 Oct 2007, 11:39 am

Just for the heck of it I did a little research on where and how to get an official diagnosis in my area. Found:

For information regarding the Penn Autism Network contact:
Deirdre C. Wright
Special Projects Manager
Social Learning Disorders Program
Phone: 215-746-1967

Mission
Our mission is to maximize awareness about issues of importance for adults with autistic spectrum disorders and their families; to identify, develop and disseminate resources to promote successful adaptation and inclusion in the community; and to serve as a catalyst for positive programmatic and systemic changes.

They are listed as Penn Autism Project and that would be PAP. And that is exactly what it is. Runny, unappetizing, distasteful but oh yeah, easily digestible pap. I wouldn't feed it to my kids and I wouldn't feed it to myself. So they must have realized PAP would never go down, so they call themselves PAN. It's costly and they seem to focus a lot of attention on sexual appropriateness. Like they want to teach Aspies how to have appropriate sexual relationships. Maybe they lack interesting and gratifying sexual experiences themselves. Actually, it's the doctor who heads the program, if I understand what I read correctly, that is steering the emphasis in that direction. They offer nothing that I would be interested in, because I am not going to pay 800.00 to attend a workshop to learn how to have appropriate sex, among other issues. There is a fee to be assessed and I would imagine that would be costly too. In all fairness, I should re-read and re-evaluate their site information before giving them the thumbs down. I think they would be better to do a research project and offer free assessments. They could then still make themselves a nice profit by providing treatment. As it stands, only the Society Hill people and upper income families could afford their "services". I am going to write them a letter and tell them exactly how I feel about their need for much improvement on their site and in their services. 8O



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02 Oct 2007, 11:46 am

cosmiccat wrote:
So they must have realized PAP would never go down, so they call themselves PAN. It's costly and they seem to focus a lot of attention on sexual appropriateness. Like they want to teach Aspies how to have appropriate sexual relationships. Maybe they lack interesting and gratifying sexual experiences themselves. Actually, it's the doctor who heads the program, if I understand what I read correctly, that is steering the emphasis in that direction. They offer nothing that I would be interested in, because I am not going to pay 800.00 to attend a workshop to learn how to have appropriate sex, among other issues. There is a fee to be assessed and I would imagine that would be costly too. In all fairness, I should re-read and re-evaluate their site information before giving them the thumbs down. I think they would be better to do a research project and offer free assessments. They could then still make themselves a nice profit by providing treatment. As it stands, only the Society Hill people and upper income families could afford their "services". I am going to write them a letter and tell them exactly how I feel about their need for much improvement on their site and in their services. 8O


:lol: :lol: That was too funny, CC! I don't get the whole need for that. It was brought up once (only once) that my boys needed extra "coaching" in this area. We've been talking about sex and dating since they were all little so in our house it isn't a huge issue. And they have all been raised to know what is appropriate and what isn't. I gave the therapist an earful and suggested that "relationship" counselling would get them a heck of a lot further.



Last edited by blessedmom on 02 Oct 2007, 11:49 am, edited 1 time in total.

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02 Oct 2007, 11:48 am

Chuck wrote:
cosmiccat wrote:
...*And Hey hey hey hey hey hey
Hey beautiful day, hey beautiful day
Hey hey hey hey
Hey beautiful day, hey beautiful day


I'm getting out to enjoy it some, before hittin' the bed again and going back to work. It really is beautiful.
outside! :D

Good idea! You are going to need all the relaxation you can get this month!



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02 Oct 2007, 11:56 am

cosmiccat wrote:
J...They are listed as Penn Autism Project and that would be PAP. And that is exactly what it is. Runny, unappetizing, distasteful but oh yeah, easily digestible pap. I wouldn't feed it to my kids and I wouldn't feed it to myself. So they must have realized PAP would never go down, so they call themselves PAN. It's costly and they seem to focus a lot of attention on sexual appropriateness. Like they want to teach Aspies how to have appropriate sexual relationships. Maybe they lack interesting and gratifying sexual experiences themselves. Actually, it's the doctor who heads the program, if I understand what I read correctly, that is steering the emphasis in that direction. They offer nothing that I would be interested in, because I am not going to pay 800.00 to attend a workshop to learn how to have appropriate sex, among other issues. There is a fee to be assessed and I would imagine that would be costly too. In all fairness, I should re-read and re-evaluate their site information before giving them the thumbs down. I think they would be better to do a research project and offer free assessments. They could then still make themselves a nice profit by providing treatment. As it stands, only the Society Hill people and upper income families could afford their "services". I am going to write them a letter and tell them exactly how I feel about their need for much improvement on their site and in their services. 8O


This may be a hilarious workshop opportunity that's not to be missed! Maybe marionettes are involved. Something like the Muppet Show. :?: (A lot of the Muppets have Aspie eyes).

Fozzy Bear and Miss Piggy would take the stage, a man in a white coat would run up and exclaim, "Stop!! ! No bears and pigs! It's just wrong. WRONG I say!! !!" :lol:

(Now, pigs and frogs of course, are no problemo).