The Dino-Aspie Ex-Café (for Those 40+... or feeling creaky)

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That would be cool. Wish I could watch it!

Thanks for the happy birthdays.

Chuck,those were some great links,very thought provoking as many of the things that it has been used to treat are issues I am having...whih means it either doesn't work or my symptoms would be much worse.Sounds absurd,but perhaps my bodies craving it has something to do with my body needing it.Then again,we often crave things we are alergic to...silly humans.It does make me wonder about the lower blood suger,as my family are all diabetic(also over weiight,which I am not"to much"at present).I wonder if the suger in the coughdrops balances out the lowering of the bloodsuger?It may not and that could account for the fatigue.Also interesting that it can slow down the CNS.....I go from hyper-over drive(coffe,cigs) to completly shut down after about 7 hours when I feel like I need a nap(normalfor someone who sits on-line all day and in their 40's)So many contridictions and possible "influencing factors"...no wonder DRs just want to write it all off to depression.


Here is my favorite DR advice...."you just need to lessen your stress levels".Short of death,I cant imagine being "not stressed".Isn't that the only thing that keeps humans moving?Except for my job,I have simplified my life more then 90% of Americans(no kids,no family,no friends irl,no morgage,no credit cards,no investments)Short of winning a lotto I dont play,I have no idea how to create any less stress in my life.


Reika,thanks for the offer of mind meld but believe me...you dont want to be in here.I hope your appointment went well.


Off to lesen some more stress with a book(I got the new Colbert book for my birthday ),soak in the eucaliptis oil and thrift-store bath salts(really good ones with algie and plankton and other exotic stuff in them... I bought them for myself(I always spoil myself on my B-day).No one else in my family remembered my B-day(I seldom remember theirs..but even my parents forgot this year )but I'm very happy I got to spend sometime with some folks who at least know I'm alive...


Thanks everybody

while hunting resource,I found something I thought parents of As kids might be interested in..(hope link works),

http://www.autism-society.org/site/Page ... lwa_future

Haven't looked at the article yet. SwampBlossom and I were discussing the fear aspect as a possible example of "hardwired", we ruled it out. I suppose we could be wrong on that. One might be predisposed to either run or fight, but the option to do either is there, through learned experiences. I'll get into what they're saying, maybe. I think I'd rather look at a new strat game tonight. I might like to build Rome and then burn it down. I know I can do the latter part. I can't play the fiddle, but I know how to play the stereo.

I should have added, fear is hardwired, as in fear response. You do have the choice to fight or run, sometimes, unless the response is over powering. We're still discussing it, fun stuff.

Thanks Deacon.

Last edited by postpaleo on 26 Oct 2007, 8:38 pm, edited 1 time in total.

Ok, you guys didn't hear me write this. When you're messin around with the system, if they say you aren't (insert label), but they might say you are (insert another label), take a hard look at that other label. The one you don't want. If the label works to get where you need to, take it and shut up. If that other label isn't going to work for you, get another, as much as this is suppose to be good medicine, how many misdiagnoses have been floating around here? Enough to let you know you can do a little shopping. If you think for a second you're lying to get something you shouldn't have, think again. Nobody I've seen here actually asked to be aspie and all the other little buddies that come along for this ride. Enough little buddies to get one of those tagged as the main. They did me and they won't change their minds, oh well, not my fault.

Just something to chew on when your back is against the proverbial wall.

I find the "Autism Society of America" a bit hard to take. I've just been perusing their site, after Krex posted the link there. They seem to do an awful lot of "sitting on the fence".

Their stance on immunization is just weird. They act as if there was evidence connecting immunization to autism. They want the American government to produce evidence that there is no connection. That just doesn't make sense. I suspect there is a connection between being born and being autistic, but that doesn't mean that I want all women sterilised until we can prove that there is no such connection.

The "ASA's Board of Directors is composed of dedicated volunteer representatives, many of who are parents of a person with autism." Curiously, the board do not want it know which of them have no connection to autism whatsoever.

Just four of the fourteen staff (but none of the eleven "Volunteers and Interns") are "individual with autism or parent/grandparent of individual with autism." (And there's that "with autism", that I can't say I like much.)

===============

Having just perused the website of the UK's equivalent to the ASA, the NAS, I haven't quite worked out their stance on immunization. I think it reads similarly to how I think... that there is no evidence of a link. However, they don't quite come out 100% against avoiding immunization. Our waters are a bit muddied, over here, because we no longer employ Thimeresol or similar.

I also couldn't find anywhere that revealed exactly who is/is not autistic individual/parent/etc. However, the NAS is 17,000 paid-up (£20/$40) members who elect the governing body. I imagine there are few members with no direct connection with autism.

Lau...your cynicism about ASA is well founded,they are liked with DAN/CAN,that said......Just because I am in a junkyard full of broken stuff doesnt mean therre might not be a something of value on the junk heap.Sometimes it's worth sorting through,so I try and keep this in mind when researching.I'm not interested in their "ideology" just their information on resources.It is similiar to my approach to getting sober.I didnt "drink the coolaid" but I did find some helpful things(even for people who aren't trying to get sober).I try and "not through the baby out with the bath water...but that could change if the baby starts crying

I also think it is "good to know your enemy",so I don't avoid all "curbie information" sites...I want to know what they are up to.I did think the specific link might have some good reminders for parents who are justifiably concerned about their kids needing a good support system if something should happen to them(parents)....I dont want to see anyones kids in the kind of institutions I have worked in.

Off topic....I live in central US...what time is the book meeting for someone in my time zone?

Sounds like an ambulatory mood ring! Haven't seen it, too busy trying to get mine under control; it's ricocheting off the walls like a little green bouncy-ball.

Krex, documenting your day-to-day changes sounds like a perfect spreadsheet application. And as for pain, I agree, how on earth do you quantify it, or explain it to someone else? I remember a conversation I had with my knee surgeon. I was, I suppose, trying to seek reassurance that I wasn't just a pathetic whiner for troubling him with such a minor structural fault. His response: he's seen x-rays and scans of conditions so horrible that the person should not have been able to walk, yet they got about just fine and never complained of pain. In other words: everyone is different.

The ASA and the NAS: no doubt their intentions are good, but it seems unlikely that we can look to them for authoritative advice and scientific rigour.

Games of the future: contestants are hooked up to an fMRI scanner and the object is to see who can make the display light up like a frickin' Christmas tree. Aspies would sooo kick butt at this.

And because I'm still in a random mood:

Possible responses to "I'd love to have your babies" --

"Forget it, pal, nobody gets to eat 'em except me."

"Don't have any to give you, but if I ever do, would you consider babysitting them now and then?"

the kid watched my brain lighting up as they were having me think about things, and then read, and then move my fingers. said it was way cool. i used to work for a brain lab and they always seemed to need someone to "test" the calibration on. 'sa wonder it doesn't glow in the dark!

The thing it took me years to sort out: when they were asking for my pain levels, whether they used their 1 to 10 or happy-neutral-sad face scale - it had nothing to do with the pain as it related to them. It was supposed to be how I felt about the pain on my own scale. So, to answer them, I had to create my own internal pain scale and denote at what points it became noticable, when it was annoying, when it was definitely impacting my functioning, and when it was intolerable. THEN I could answer their scale questions, by overlaying theirs with mine. Mine didn't overlap neatly with theirs, one-to-one ratios, but it got close enough.

But really, that's also like quantifying happiness or sadness. It's all an internal referent.

Nan...I didnt recognise you in your Halloween costume...very nice.

Thenk Yew. My Daughter Person made it specially for me.

I think the Charlie Brown Halloween Special is supposed to be on this Tuesday night. I've seen that show almost every year since I was 9 years old. Halloween. Tonight would have been a good night to have been Halloween. The moon rose full tonight, the biggest I've seen it in years. And because of all the smoke between it and us it was blood red. We were out for a bit - I wished I'd had a camera with me, it was just so striking.

The porch light on our condo has gone out. We're going to wait until after Halloween to report it to management, so we can hang fake cobwebs and put a jack-o-lantern with a candle in it up here, so it's spooky (we get a lot of little ones at the door for candy). They'll just love that - daring each other to see who'll come up the stairs first.

So strange. Total chaos for a week, and "get ready to run or you fry" for days and now it's "ok, forget all that, go back to knitting, everything's fine now". How the hell do you just turn that off? I'm kind of hanging here like a car thrown into neutral out on the freeway.

HOLEY!! Nan, you rock!

Yeah, 3 hours of endless knitting is not always a good thing!

lol, that's good SD, a bit of local colour from the land down under.

Here is a filk of my national anthem.

Oh, say can you see, any bed bugs on me?
If you can, take a few, and I'll cook them for your. . .
oh, say does that star specked banana still wave
or the land of the free and the home of the Milwaukee Braves.. .

Merle

Last edited by sinsboldly on 26 Oct 2007, 10:54 pm, edited 1 time in total.

Kind of like post-holiday letdown, except that that was no freakin' holiday! I'd suggest strenuous physical activity of some kind, but you've already been doing that with the cat cleanup work.

I'm predicting that SoCal is going to go nutcase this Halloween. Take care, Nan!

uhhh, WAY too late for that threat, Dragon! This place is insane on the best days!