The Dino-Aspie Ex-Café (for Those 40+... or feeling creaky)

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I voted on that poll; I voted "no" like 82% of people who have paticipated so
far.

Adults with ASD: If there were a cure, would you take it?
(total votes: 300)
Yes : 8%
No: 82%
Wait and see what happened to others: 5%
Don't know: 4%

(Survey data acccurate at time of posting only)

(fragment)

Thanks, Chuck. I will be watching for clinical trials on this, in my area. If they pay, even better!

Hartz, have you ever looked into taking guafenisin for your Fibro? My friend has fibro and her doctor has her taking it everyday. She swears it works. I can't remember why it works but it is supposed to keep phosphates (??) from building up in the body. I'm sure Chuck would have an idea what I'm talking about. I'll see if I can find the information.

HAPPY BIRTHDAY HARTZ!



at least I am in early for next year

For a while, I was taking Guaifenesin every day. In order for it to have therapeutic benefit, I have heard, one must take it in increasingly high doses, while eliminating all salicylates. That is really difficult to do, since many hygiene products contain salicylates in some form. If it is attempted without doing so, toxins will circulate in the system and be hard to eliminate. I know that there is much more to it, but that's all I can remember now.

Thank you. Better late than never!

Starting to feel more-or-less human again, yippee!

Walking sticks: I still have mine from when I had knee surgery. It's collapsible, height-adjustable, and very sturdy, made from black metal tubing. I paid about $25 for it at a pharmacy. It needed minor repair at one point, and it still has the blue electrical tape wrapped around the join. The coolest thing about it is that you can fold it up, then with a casual flick of the wrist, snap it back together to the amazement of any nearby children. Number2Son thought it a marvelous toy. I'd wake up in the morning, fumble for the cane, then yell for him to bring the #%$&* thing back so I could get out of bed!

I just asked the wife if she had tried it. She said no, that it's a bit on the expensive side.

Guaifenesin can be on the expensive side. I saw a few sites online where it is cheaper than what they charge in the pharmacy, but still a bit high for my budget on a long term basis.

Sometimes my little brain doesn't work too well. I meant to post my second post about the adult aspies poll in the General forum, and idiotically posted it in here instead. What a dumbo I am. Ho hum.

With 307 votes, the Nays still have it with 81%.

Thank you, Chuck and Zanne, and everyone else, for the ideas and especially the links on canes.

I was so beat yesterday, I dosed up on Xanax and Oxycodone, which just took the edge off the pain, and I got a bit of sleep, but whoa, I had crazy dreams. Reading some of those links was fun...the pimp cane cracked me up.

Postie, I am so sorry you're wife is suffering so. I can't believe what some drugs cost, but I hope something comes along that will help.

And everyone else, I hope you're perking up, too.

R.

Thanks. Actually we found a specialist near by that not only actually believes that fibro exists, he was interested in it. He did minor magic with some of it, not all, but anything is a help. She has just adopted the attitude it isn't going to beat her down and does what she likes when she can. It's just good to see that it is more and more being looked at as a real thing, which believe me it wasn't too long ago they just tossed it off as all in the head. Yeah that's the hell of it, they see these all powerful pain killers and think that will do it and all it does most times is just what you said, takes the edge off.

I told her about the possible trials and she looked it up. No way in hell, at this point, would she consider the spinal tap thing as part of it. I can't blame her.

Spinal Taps? Scary!

Twice in my life, I've had spinal things done. Once it was for a severe, 7 day migraine. They were testing for something, forgot what. My original headache felt minor, compared to after the spinal tap. The second was to administer epidural pain killer, while in labor. Id' prefer not to repeat any of that again.

I found the heading "anatomically correct canes" gave me an even stranger mental image, but they turn out to be orthopedic canes. I wonder why they didn't say so straight away? What could possibly be the reason?

Ya know what? You're really good, no, you're better then good. Of all the links I've ever seen on WP I just can't bring myself to touch that one. It is going to haunt me, keep me awake at night. I may loose huge amounts of sleep and be very tired. So tired I might trip and do serious damage and need a cane. Actually I might better buy one now, so I can use it to touch that link, so I won't get less sleep, fall down, hurt myself and need a cane, so I can touch that...... I wonder if they make 10 foot canes? I'm not that tall that it would fit correctly. No, it just seems to be about the correct size to push that link, so I won't get less sleep and fall and get a cane to touch that.... I was told last night bigger is better, so maybe 10 foot is a good size, as long as it's anatomically correct. These are seriously harmful mental images floating around in my head now. Sleep less? I may never close my eyes again. I think I've developed cane phobia or would that be a fetish? Both perhaps? I wonder if it's on the spectrum trait list? Have you ever considered doing your own spectrum trait list? Obviously you've stumbled on to something here.

Thanks Gromit for bringing this to attention. I'm going to be a better man for this knowledge, I can just feel it coming. But I still ain't touchin' your link.
You're good, you're really really good. And to think I never thought there would be a link I'd never touch. Is there a doctor in the Cafe'?
[youtube]http://youtube.com/watch?v=LZMmV6xXYFw[/youtube]
(Had to listen to this about 3 times to make sure that word was funky and not...uhuh, it is. Bad sound to a classic, it's too bad.)