kwilky wrote:
kwilky wrote:
peterd wrote:
Does whatever you've got get in the way of your life being the way you'd like it to be?
Yes it does.
I've had multiple doctors say they suspect aspergers but none of them have given that as a diagnosis.
Because they're not qualified to make the diagnosis and you'll have to seek out a specialist in that area.
The doctors leave it up to the person to do the referrals for themselves.
Or, you could ask one of those doctors to make a referral for you... they may seem put off a little ...expecting you to do it yourself. An NT might think to pick up the phone and make that phone call (if they have the information).
An Autistic person may stand there, in limbo and not quite sure what to do... its all about
inertia, waiting for the doc to say, in literal black and white, "we need to get you a referral to see an Autism specialist."
You'll have to take it on yourself to make that move and advocate for yourself, needs and treatment.
Seriously, I've ran into some incompetant doctors. (Educated idiots). One child psychologist/doctor who counseled both of my daughters had it on her records that she suspected Aspergers / PDD-NOS on the kids... but what good is it, if that is sitting idle, locked away in her medical records?
Heck, I don't have a clue how long she had it on her records. She knew the kids were having a very hard time at school, and socialization skills... but not once did she make me aware of it, until my daughter came home with a paper, that mentioned it and brought it to my attention. That particular counselor did NOT want me involved with the counseling, did NOT bother to share information with me... when I tried to sit in, and take part, she'd give the silent treatment, but did at least confide one evening (after seeing my oldest daughter's diagnosis), that she suspected my younger daughter.
ALL I WAS LEFT THINKING, SITTING THERE ON THE COUCH: The school went unaware and oblivious of any such speculation/diagnosis. My kids were struggling in school... why hadn't she brought this to my attention?
Why did it take so long to say anything?
While she was sitting on her suspicions, my kids were having a terrible time at school... and hey, can't blame the school. They're not going to do anything, until they have a hard-copy diagnosis in hand, to approve for that person to receive accomodations to meet the needs for their learning disability.
I began trying to advocate for myself and my kids needs at that point.
All those years... the kids were Autistic, and "normal expectations and environment" forced on them. It was easier for some school staff to blame my "bad parenting skills" for the failures... Autism never became a part of the equation,
until recently. A fight against bigotry, ignorance, intolerance and incompetance all the way to the bitter end.
Yup... sadly, some doctors feel its a "need to know" thing... won't share information unless you tell them you need to get DOCUMENTATION, -- the docs / counselors just can't seem to figure out why schools, employers, college, etc., NEED TO KNOW, you're Aspergers.
Doh... for starters, does
Developmental Learning Disability ring any bells?