hi from canada, question regarding diagnosis in adulthood

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hyperlexian
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24 Jul 2010, 10:42 am

hello i am an aspie from canada.

had always known something was different (had trouble keeping friends and jobs, could not drive, ride a bike, or interview properly for a job).

at the age of 34, a boss suggested i look into what was 'different' about me. while awaiting referral, i happened to come across the diagnostic criteria for asperger syndome in a magazine and read it out to my husband as i thought it sounded like something a relative of mine has. my husband said (of 12 years at the time), 'oh no, that's you', which shocked me, but he was right!

i am wondering about whether to seek a more in-depth diagnosis. the initial referred psychiatrist said i definitely have a developmental disability, but would not look into it further as he said my problems were really my anxiety and depression. but then a subsequent my medical doctor confirmed the belief it is asperger syndrome. later on, another psychologist and psychiatrist offhandedly agreed that i have asperger syndrome, but i have always wondered if i should get more elaborate testing done.

here in canada, the testing through a psychologist costs money so i don't know whether i should go that route. but maybe it is something i should seek out eventually?



dyingofpoetry
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24 Jul 2010, 11:21 am

Have your difficulties been distressing and caused you life-long unhappiness? If your life would be greatly improved by merely having the formal diagnosis, then you really need to have it. It's not optional for you then.

Remember, however, that Asperger's is just something you will have to live with. The most you can do is learn to adapt better through the knowledge you gained; there is no cure. So, if you think you can continue to go on just fine without a diagnosis, don't waste the money. If you are currently happy with yourself, then it would be better to stick with the self-diagnosis and just use some self-improvement techniques.

So, yeah... that answer is in how disabled you are and how dysfunctional your life is.


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CockneyRebel
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24 Jul 2010, 11:24 am

Welcome to WrongPlanet.:)


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hyperlexian
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24 Jul 2010, 11:52 am

thanks cockneyrebel! iam ahppy to have discovered these forums.

i appreciate your perspective dyingofpoetry. i guess i always considered the diagnosis i already have to be official enough. i.e. if 3 various health professionals agree that my developmental disability is most likely asperger syndrome, then why on earth would i need to have official testing thrown on the pile?

to date, i've been able to get the help i need through the canadian mental health system, even without a more formal diagnosis. but now there is also a support group in my city that i hope to join, and they want some background, so i will be obviously be honest about the diagnosis... but i am worried that the diagnosis is not solid enough.

this support group could help me to meet and make friends, to keep a job, and to learn some important coping skills. i think i will just outright ask the intake people about it, because they will be able to best tell me how to proceed. the group starts in september.

but what rcently also gave me pause is that i have a family member publicly questioning my diagnosis on my blog (and on facebook, to a lesser degree). she is kind of a bully about other matters as well, but that's a topic for another day. her comments shocked me into wondering if it is something i need to get a firmer handle on.

i guess it never occurred to me that anybody would question it - why would they question the truth?



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24 Jul 2010, 12:01 pm

hyperlexian wrote:
thanks cockneyrebel! iam ahppy to have discovered these forums.

i appreciate your perspective dyingofpoetry. i guess i always considered the diagnosis i already have to be official enough. i.e. if 3 various health professionals agree that my developmental disability is most likely asperger syndrome, then why on earth would i need to have official testing thrown on the pile?

to date, i've been able to get the help i need through the canadian mental health system, even without a more formal diagnosis. but now there is also a support group in my city that i hope to join, and they want some background, so i will be obviously be honest about the diagnosis... but i am worried that the diagnosis is not solid enough.

this support group could help me to meet and make friends, to keep a job, and to learn some important coping skills. i think i will just outright ask the intake people about it, because they will be able to best tell me how to proceed. the group starts in september.

but what rcently also gave me pause is that i have a family member publicly questioning my diagnosis on my blog (and on facebook, to a lesser degree). she is kind of a bully about other matters as well, but that's a topic for another day. her comments shocked me into wondering if it is something i need to get a firmer handle on.

i guess it never occurred to me that anybody would question it - why would they question the truth?


Because human beings question art, science, and God, they have no trouble questioning truth.

You will go through the trouble of the diagnostics and they will still question it. Trust me on this one.


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hyperlexian
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24 Jul 2010, 12:05 pm

dyingofpoetry wrote:
hyperlexian wrote:
thanks cockneyrebel! iam ahppy to have discovered these forums.

i appreciate your perspective dyingofpoetry. i guess i always considered the diagnosis i already have to be official enough. i.e. if 3 various health professionals agree that my developmental disability is most likely asperger syndrome, then why on earth would i need to have official testing thrown on the pile?

to date, i've been able to get the help i need through the canadian mental health system, even without a more formal diagnosis. but now there is also a support group in my city that i hope to join, and they want some background, so i will be obviously be honest about the diagnosis... but i am worried that the diagnosis is not solid enough.

this support group could help me to meet and make friends, to keep a job, and to learn some important coping skills. i think i will just outright ask the intake people about it, because they will be able to best tell me how to proceed. the group starts in september.

but what rcently also gave me pause is that i have a family member publicly questioning my diagnosis on my blog (and on facebook, to a lesser degree). she is kind of a bully about other matters as well, but that's a topic for another day. her comments shocked me into wondering if it is something i need to get a firmer handle on.

i guess it never occurred to me that anybody would question it - why would they question the truth?


Because human beings question art, science, and God, they have no trouble questioning truth.

You will go through the trouble of the diagnostics and they will still question it. Trust me on this one.


hahahaa! was laughing out loud at how true this is! thank you, you are right. i will talk to the autism society intake workers about what diagnosis they require, because that is what is important to me. but family will never be satisfied so i'll let that part rest.



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24 Jul 2010, 3:01 pm

hyperlexian wrote:
hello i am an aspie from canada.

had always known something was different (had trouble keeping friends and jobs, could not drive, ride a bike, or interview properly for a job).

at the age of 34, a boss suggested i look into what was 'different' about me. while awaiting referral, i happened to come across the diagnostic criteria for asperger syndome in a magazine and read it out to my husband as i thought it sounded like something a relative of mine has. my husband said (of 12 years at the time), 'oh no, that's you', which shocked me, but he was right!

i am wondering about whether to seek a more in-depth diagnosis. the initial referred psychiatrist said i definitely have a developmental disability, but would not look into it further as he said my problems were really my anxiety and depression. but then a subsequent my medical doctor confirmed the belief it is asperger syndrome. later on, another psychologist and psychiatrist offhandedly agreed that i have asperger syndrome, but i have always wondered if i should get more elaborate testing done.

here in canada, the testing through a psychologist costs money so i don't know whether i should go that route. but maybe it is something i should seek out eventually?


CanAspie topic

Welcome to WP. If you go the psychiatric route, provincial healthcare can cover it. In my case I went the psychological route through Employment insurance and they paid because I was having trouble getting and keeping jobs without Employment Supports.

The psycholgical route is pricey for an individual: it can run into the thousands of dollars. 8O


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conundrum
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24 Jul 2010, 3:39 pm

hyperlexian wrote:
hahahaa! was laughing out loud at how true this is! thank you, you are right. i will talk to the autism society intake workers about what diagnosis they require, because that is what is important to me. but family will never be satisfied so i'll let that part rest.


Welcome to WP, hyperlexian.

People, family included, will either accept it or they won't--there's very little in-between.

Getting a diagnosis is for YOUR own sake, not anyone else's.

I hope you find the answers you're looking for. :)


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hyperlexian
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24 Jul 2010, 3:54 pm

thanks for the welcome sartresue! i've heard that about the cost as well...

conundrum, i definitely struggle with remembering 'why' something is important. i am working so hard at making my life and surroundings stay as positive and optimistic as possible.

i am too fragile and can get discouraged by someone second-guessing me (naturally, my family member told me that if i am upset with her questioning my diagnosis, that *proves* i am not an aspie. she actually told me that my thought processes do not fit with what she knows about aspies. she gave me an opportunity to prove her otherwise, but the whole situation is just so weird now)



conundrum
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24 Jul 2010, 4:19 pm

hyperlexian wrote:
...(naturally, my family member told me that if i am upset with her questioning my diagnosis, that *proves* i am not an aspie. she actually told me that my thought processes do not fit with what she knows about aspies. she gave me an opportunity to prove her otherwise, but the whole situation is just so weird now)


:huh:

Not liking being second-guessed "proves" you're not an Aspie?

What does she know about Aspies and AS thought processes?

Yes, that does sound like a weird situation, and some very odd remarks.

I hope you do stay positive and optimistic. I strive for the same thing every day. :)


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hyperlexian
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24 Jul 2010, 4:45 pm

conundrum wrote:
hyperlexian wrote:
...(naturally, my family member told me that if i am upset with her questioning my diagnosis, that *proves* i am not an aspie. she actually told me that my thought processes do not fit with what she knows about aspies. she gave me an opportunity to prove her otherwise, but the whole situation is just so weird now)


:huh:

Not liking being second-guessed "proves" you're not an Aspie?

What does she know about Aspies and AS thought processes?

Yes, that does sound like a weird situation, and some very odd remarks.

I hope you do stay positive and optimistic. I strive for the same thing every day. :)


she mostly just knows what i've told her about AS. she has recently done some research because i pointed her to the WP forums (before i joined) to give her an idea of some of the divided viewpoints regarding treatments and cures. on facebook, i had been arguing with a pro-cure individual, and my family member started to throw curveballs that were neither pro nor con, but it was kind of out-of-place and confrontational.

i tried to talk to her off-site in an email, but she kept replying publicly. this was my hint that she was on a weird witch-hunt. she wanted to 'call me out', and eventually she did so - on my blog. she's done stuff like that before, to me and to other people. she has hurt a lot of people (other family, people on message boards) before, but she has multiple extremely serious medical problems, so people give her wide leeway.

i have deleted her as a friend on facebook and stopped following her blog because i just can't handle the stress of wondering what she will say or do next. i am actually a little afraid she will seek me out on here and make my life difficult. i feel bad because she is so sick, but for my own mental health i need some distance for now.



conundrum
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24 Jul 2010, 4:55 pm

hyperlexian wrote:

she mostly just knows what i've told her about AS. she has recently done some research because i pointed her to the WP forums (before i joined) to give her an idea of some of the divided viewpoints regarding treatments and cures. on facebook, i had been arguing with a pro-cure individual, and my family member started to throw curveballs that were neither pro nor con, but it was kind of out-of-place and confrontational.

i tried to talk to her off-site in an email, but she kept replying publicly. this was my hint that she was on a weird witch-hunt. she wanted to 'call me out', and eventually she did so - on my blog. she's done stuff like that before, to me and to other people. she has hurt a lot of people (other family, people on message boards) before, but she has multiple extremely serious medical problems, so people give her wide leeway.

i have deleted her as a friend on facebook and stopped following her blog because i just can't handle the stress of wondering what she will say or do next. i am actually a little afraid she will seek me out on here and make my life difficult. i feel bad because she is so sick, but for my own mental health i need some distance for now.


Having "multiple extremely serious medical problems" is NOT an excuse for causing trouble.

I agree that keeping your distance for the sake of your own sanity is a good idea.

If she does seek you out here, alert us/one of the moderators. WP does not tolerate harassment.

Anyway, welcome again, glad you're here. :)


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24 Jul 2010, 6:29 pm

Welcome aboard the Wrong Planet, hyperlexian.


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hyperlexian
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24 Jul 2010, 6:44 pm

JetLag wrote:
Welcome aboard the Wrong Planet, hyperlexian.


thanks JetLag!