ksuther09 wrote:
It seems like sitting off to the side has helped you. What other strategies do you use to deal with the lights / noise? I find something as simple as closing my eyes during worship helps. I also have a 'stim cloth' that I knitted too that I just use in my hands.
Are you expected to meet a lot of people or can you work something out with your husband where he initiates the handshake & he introduces you later? Also, just telling people, "I'm not much of a hand-shaker, but it's nice to meet you." might help. If you are familiar with a lot of your congregation, they will probably understand. Do close friends there know about your dx? My friends on my Bible Study & a few others know about mine & that helps me as a support system.
I never thought about a "stim cloth" or anything like that. I think that would help a lot. I tear up my hands (literally) during service.
I also close my eyes during the service and during praise and worship. It does help.
Most of the people at church don't know exactly of my AS. Everyone wants to hug and they put their hands on my shoulder or arm. If I can see it coming, I can sort of prepare and I know it will be over quickly. It is hard, but I can get through it. It's when I don't know the contact is coming that i have a difficult time.
But they are all really nice. My husband is pretty much always there and he lets me know when people (the huggers) are coming my way. He said he would tell them to not touch me, but I said it is OK. I don't want to hurt anyone's feelings and they just don't understand. I can deal with it for the short time it happens.
I had an awesome day at church today. I gave my testimony (pastor asked me at the last minute). I don't like to be the center of attention, but I thought if it would help someone I could do it, so I did. I wrote my testimony on my blog and it is much better on there than the way I explained it (my husband said I did great - so did a lot of the others at church - but I felt awkward).
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I want all my senses engaged. Let me absorb the world's variety and uniqueness.
Maya Angelou