Hello! I'm new here....just diagnosed

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I also have a son with Aspergers. I was just very recently diagnosed with Aspergers. I also just found out I have Prosopagnosia...it's pretty crazy to think I've gone my whole life not knowing this. It explains a lot though

I've lurked on this board in the past but thought I'd join in the fun.

Is this forum on tapatalk by any chance?

Last edited by Pyxis on 03 Apr 2013, 1:35 pm, edited 1 time in total.

Greetings and salutations!

Welcome to Wrong Planet!

Welcome to WP!

Same here. Have a son who got diagnosed which in turn lead to me getting diagnosed. Welcome. Don't know what tapatalk is.

Greetings and welcome to the Wrong Planet.

Welcome to Wrong Planet!

Welcome!

tapatalk?

Welcome

Sweet greetings to WPea



Mick and Peahawk

Thanks everyone

Tapatalk (for those that were asking) is an iPad/iPhone app that makes it really easy to view/use forums. Only some forums work with it.

Hi, welcome

Did you get tested for prosopagnosia? I believe I have a mild case of it but have not been formally diagnosed. I also am pretty sure I have a mild to moderate case of topographic agnosia but don't know if a professional does any test for that. Did the same doctor dx you with both?

The doctor did test for prosopagnosia, possibly because I mentioned I have trouble with faces in the questionnaire I completed before hand. I thought I was mild too before I was tested and found I was actually pretty bad. I had done online tests with celebrities before I scored a little less than average. This test the doctor did was harder. I wasn't tested for topographic agnosia...but I'm positive I have that too. I can't even get to the corner store without getting disoriented! I haven't got my report back yet, when I do I will ask about that. I came across a research website that has a bunch of tests for that. I haven't done them yet but it seemed legit. It's "getting lost dot ca" (I can't post links because I'm new).

For the prosopagnosia, the doctor also explained that people develop amazing coping abilities. Without realizing, you are memorizing other details about a person. Their body shape, hair, mannerisms, walk, clothing etc. Now that I think about it, I can't really picture someone's face in my head...I can only see their eyes or mouth...sort of wisps of their face but not the whole thing. (I have no idea how others see faces in their mind). Yesterday for example I went to a lecture and the speaker was talking for over an hour so I was looking at her face for an hour straight. After the lecture, she changed her clothing and I couldn't recognize her anymore. The more I think about it the more it blows my mind! I can recognize myself In a mirror and my family/friends but now I don't know if I know their face or I've memorized other features. The brain is so amazing! I wonder if both conditions are related? I would guess they might be!

I find that the tests for TopAg and Prosop are not so good for me. I'm very good at memorizing, so if I know I'm being tested I can put things into short-term memory, and the tests let you study people's faces for longer than if I were in real life, where they are constantly moving and get out of context. I also don't see faces in my dreams. In elementary school it would take me half the school year to figure out who the kids in my classes were and I couldn't differentiate them on the playground. If they changed their hair or clothes I would be thrown off. I would go up to kids and ask "Are you in my class?" and they wouldn't like that.

I was in my 20s or 30s before I finally got Left and Right down pat into being reflexive response. I got lost for 2 hours going around the block when I was 11 years old. I took that TopAg test online and was good with half of the tests since I could use short term memory on them and they weren't very similar to real life where there is much more superfluous visual stimuli to sort through. I could not for the life of me figure out where the stinking buildings were to go on the Cognitive Map test. They put down 21 tries since the maximum was 20. On the other part of the Cognitive Map (V2) I just guessed at the answers because I couldn't figure any of them out, so I lucked out. Here are the results:

Object Recognition: 100% correct
Identity Recognition: 70% correct
Expression Recognition: 90% correct
Landmark Recognition: 90% correct
Heading Orientation: 60% correct
Sequence Matching: 100% correct
Path Integration: 50% correct
Cognitive Map Test V1 completed in 21 trials
Cognitive Map Test V1 part 2: 50% correct

Do you know how to interpret these results?

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