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mummymunt
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21 Mar 2016, 5:16 am

Just saying hello. I don't have an official diagnosis yet, but my GP is pretty sure I have Asperger's and SPD. I'll be getting a referral this Thursday to see a psychologist to get the diagnosis process started.

I have been experiencing massive sensory overload for most of the past month, since weaning off the anti-depressants we thought I no longer needed. It's doing my head in, to say the least :?



Noura4eva
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21 Mar 2016, 5:30 am

Hey

I am also waiting for a diagnosis, although I am not sure that I meet all of the criteria, as I don't have any major sensory issues, and tend to manage reasonably well in general.

I do know I have lots of traits, but does not mean I will receive an actual diagnosis.

I think here in the uk a minimum 6 month wait for diagnosis is considered within normal waiting times.

How long do you think you might have to wait ?

I hope not too long, as waiting really weighs you down.



Jozie
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21 Mar 2016, 3:29 pm

We don't really have to wait too long in Australia because a diagnostic assessment is not covered under Medicare so we don't wait but we do have to pay between $900 to $1400 according to my research.

Mummymunt, it sounds like you have a pretty good GP who is not so out of touch with autism like a lot of doctors in Australia.



RoadRatt
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21 Mar 2016, 4:22 pm

Hey mummymunt welcome. :sunny:


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TheAP
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21 Mar 2016, 5:56 pm

Welcome to WP! What are some of your interests?



mummymunt
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Location: Australia

21 Mar 2016, 8:21 pm

Noura4eva wrote:
Hey

I am also waiting for a diagnosis, although I am not sure that I meet all of the criteria, as I don't have any major sensory issues, and tend to manage reasonably well in general.

I do know I have lots of traits, but does not mean I will receive an actual diagnosis.

I think here in the uk a minimum 6 month wait for diagnosis is considered within normal waiting times.

How long do you think you might have to wait ?

I hope not too long, as waiting really weighs you down.


I was saying this exact thing to my husband last night! I just want to know what's wrong with me, whatever it is, and then I want to know what I can do about it. Waiting is so painful and so frustrating, and I'm really, REALLY tired of having to put my life on hold for this crap.

I have no idea what the waiting time for a diagnosis is here in Australia. What does that 6 month wait even mean? Do you have to wait six months to see someone, or does the diagnostic process take that long, or something else? Our son was diagnosed with Asperger's in about 45 minutes. We're told he's pretty mild, pretty high functioning, so it's not like you can just walk into a room and point at him and go, "Yep, he's an Aspie." I don't see how he could be diagnosed so quickly and someone where you live should have to wait months and months for the same thing :?

I'm reasonably confident I'll get the diagnosis, no matter how long it takes. When we were at the pediatrician getting our son diagnosed, the doctor asked pages and pages of questions. Obviously a pretty perceptive guy, when we had finished answering he looked at me, smiled, and said, "YOU answered 'yes' to a lot of those questions too, didn't you?" And yeah, I did. I'd always said our son was just a concentrated version of my own particular kind of crazy, so it stands to reason, I guess :)

But, I don't care what the diagnosis is. The only reason for even getting the diagnosis is to learn how to deal with whatever it is and how to work around it so I can actually have a life for a change.

If you want to stay in touch, that's fine by me. We can all use some support, and it'll be interesting to see how these things are handled in different countries!



mummymunt
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Joined: 21 Mar 2016
Age: 49
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Posts: 37
Location: Australia

21 Mar 2016, 8:35 pm

Jozie wrote:
We don't really have to wait too long in Australia because a diagnostic assessment is not covered under Medicare so we don't wait but we do have to pay between $900 to $1400 according to my research.

Mummymunt, it sounds like you have a pretty good GP who is not so out of touch with autism like a lot of doctors in Australia.


That may very well be, but all of this couldn't be happening at a worse time! The man I consider to be 'my doctor' moved away recently when the clinic he worked at closed. All the doctors there scattered, and he went somewhere too far away for me to follow :( This guy has helped me through years of mental health issues, and both our sons - who are the same age - were diagnosed with Asperger's around the same time.

A couple of months after the old clinic closed I had to go to the new one nearby to get a script renewal, and I've yet to find someone there I'm really comfortable with. I was seeing one guy, and he thought perhaps I was suffering a rare type of migraine. He gave me a couple of samples of Maxalt and said if these work, you have migraine. He also said, during that particular consultation, that I probably have Asperger's and SPD, especially since our son has it. So next time my symptoms flared I took one, and the worst of the symptoms went away, or at least were less horrible, for an hour or two. I took another one later that night with the same result. So I went back to the clinic a couple of days later to report what had happened, but that GP was fully booked for like a week so I saw another guy. He read through my file, listened to what I had to say and said, "No way is that migraine." He really wasn't happy with the previous doctor's evaluation of things, so he ordered a bunch more tests be done and I went back to him last Friday to get the results. On that second visit it seemed like he'd forgotten everything we discussed the week before, didn't seem to be listening to anything I said, and then tried to give me medication for migraines.

After a very long discussion, he prescribed me new anti-depressant. I have to go back in 3 weeks for my first blood test, coz this med is metabolised by the liver. But, now I'm not so sure this guy is as 'with it' as I need him to be. So, this Thursday I have an appointment with ANOTHER GP there, a young woman I saw once at the old clinic who was very nice to me. She's the one I'll be asking for the referral from, and if we have what I consider to be a halfway intelligent discussion on the day, I'll do my best to get in to see her whenever I have need of a doctor.

I ramble a lot, don't I? Sorry! I'm kind of isolated at the moment, though, so it's hard not to let it all just blurt out when someone is willing to talk about it!



mummymunt
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21 Mar 2016, 8:36 pm

RoadRatt wrote:
Hey mummymunt welcome. :sunny:


Thanks, RoadRatt :D



mummymunt
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21 Mar 2016, 8:43 pm

TheAP wrote:
Welcome to WP! What are some of your interests?


I'm all about stories, sweetheart. Reading them, watching them, and, when my damned brain will let me, writing them. Apart from that I also love cross stitch, but my brain has control over when I can do that, too.

I also run a little support group on Facebook for people living with mental illness. It can get a little intense at times, but they're worth it :)

My life is pretty 'small' these days. I don't deal with the outside world terribly well - which is something I'm sure I have in common with a lot of people on this forum - so I've learned to live happily without needing much from others. I have my family and a couple of close friends, and they're enough to keep me going. It's only since weaning off Pristiq recently that the true extent of my current symptoms has become clear. I'm at a bit of a standstill at the moment, but hopefully in the next couple of weeks I'll have some direction again :)



TheAP
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22 Mar 2016, 9:04 am

I like writing too. What do you write about?



mummymunt
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23 Mar 2016, 5:49 am

TheAP wrote:
I like writing too. What do you write about?


Whatever comes into my head, usually :) I'd describe my genre as 'weird'. My favourite reading material is horror, sometimes with a blend of sci-fi or fantasy, and that's usually how my writing ends up, too.

I don't write as often as I'd like to, but I'm not sure if it's purely because of ongoing health issues or because I'm scared of sucking at it (even though I've been told plenty of times that I don't), or a combination of the two.

How about you? What do you write?



Noura4eva
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23 Mar 2016, 6:25 am

I like reading zombie apocalypse books, not for the zombies but the way people behave in such dire circumstances ( I do know its not real ) :lol:



TheAP
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23 Mar 2016, 9:01 am

Right now I'm writing a book about a girl with Asperger's. I also like to write Choose Your Own Adventure books.



AnonymousAnonymous
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23 Mar 2016, 7:17 pm

Welcome to Wrong Planet! :)

I like to read mystery novels.


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