jackinblack wrote:
Hi @Wave Tossed,
Welcome home! Can you tell us a little bit more how it was for you to live most of your life without diagnosis? I mean, I guess you have tried to fit in and live normal life like everyone else. Any challenges or parts that you never got right?
NOTE: I wrote a long response, but most of it got wiped out by computer security measures. At any rate, the first paragraph is the part that got saved. I'll try and fill in the rest.
I spent 65 years trying to be "normal." However, I was coddled a bit by my mother because I was "emotionally disturbed." She sent me to a small private school where I felt as though I were in a fish bowl where everyone could see me. I experienced melt downs and anxiousness and I didn't know why. Which contributed to the bullying, which resulted in more melt downs. The school recommended to my parents that I go see a psychiatrist because of my "disturbance." This good doctor tried his best, but no one knew then what they know now about autism; because I was talking, they thought that I had been "cured" of autism. This was when all the "experts" believed all the Bruno Bettelheim stuff about how autism was a form of childhood schizophrenia and was psychological.
After I graduated from high school, I got active in political causes. This was the Sixties and everyone was up in arms over various issues. So I got involved in demonstrations for civil rights. I ended up getting involved in booze and drugs. The drugs and booze seemed to cover up my symptoms and made me more "normal," though there weren't a lot of normal people around during the Sixties.
I spent around 2 decades being drunk and stoned. I had problems holding a job. Finally, I got tired of being drunk/stoned so I sought recovery in AA and NA. This changed my life. I now have 34 years sober/clean time and I feel so much better without booze and drugs. I was treated for PTSD over some childhood issues. I was able to hold a job, establish a career in computer programming.
Later on, I read Temple Grandin's book. I felt as if I were reading about my own life. That's when I wondered if I might still be autistic. By this time, I knew that autism was a neurological condition and not an "emotional disturbance." I read some other books about autism and finally contacted the Autism Society of America. They referred me to a local psychiatrist who specialized in autism. She is a lovely person, made me feel at east. She diagnosed me as high-functioning autistic. Surprise! I'm just as autistic now as I was when I was 3 years old. This doctor is giving me some therapy to help me adjust to the fact that I'm truly, really am autistic. I also, at her suggestion, joined an organized social group of autistic adults.