Page 1 of 1 [ 16 posts ] 

EbenCooke
Yellow-bellied Woodpecker
Yellow-bellied Woodpecker

User avatar

Joined: 1 Jul 2016
Gender: Male
Posts: 64
Location: New York City

05 Jul 2016, 8:25 pm

58 year old male, from Noo Yawk. I'd heard the phrase Asperger's, but until recently I had no idea what it was.

I was hospitalized for depression about a year and a half ago. First time I had ever been hospitalized, and I can't say I liked it much. Was put on Zoloft and began to see a therapist/psychiatrist. I had had some analysis many years ago, and I couldn't believe how much things had changed.

Do I suffer from depression? Sure, everybody agrees about that one, but that's not my problem. I've had relationships with my family and with friends (not many, but some). I've destroyed every one of them. I've never had a romantic relationship. I feel I was born this way, and I have always been a mystery to myself. So now I'm in therapy, I want to try to unravel that mystery. I tell my therapist that I wonder if I have a touch of autism, and she tell's me about Asperger's. She also tells me that Asperger's has been removed from some of the diagnostic literature.

That's it. I've read about the symptoms of Asperger's and most of the symptoms fit me well, some don't. No one will discuss the idea of a diagnosis with me. I see no point in shopping for a diagnosis. If not Asperger's, then what? Again, no one will discuss the idea of a diagnosis with me. Basically, I have had zero support in trying to unravel these frustrating patterns that have destroyed my life. I'm supposed to accept everything as within normal boundaries. Never had a relationship with the opposite sex? Why, many people can say that! Really? That sounds like complete nonsense to me. Surely that statement holds for only a tiny percentage of humanity.

So, now what do I do? Continue therapy which seems to me to be nothing but a form of self-delusion? Continue to have faith, after 58 years of failure, that I can change?



AspieUtah
Veteran
Veteran

User avatar

Joined: 20 Jun 2014
Age: 62
Gender: Male
Posts: 6,118
Location: Brigham City, Utah

05 Jul 2016, 8:40 pm

Welcome to WrongPlanet.net, EbenCooke!

I received four separate diagnoses for depression between ages 16 and 20 years. I disagreed with every one of them. My diagnosticians asked "Do you have friends?" "One." "What do you do for fun?" "Read." "How many classmates do you talk with?" "Just my friend." Now, I believe that my diagnosticians were simply grabbing at something close to the then-nonexistent autism. Depression was close enough for them. I argued that, if they saw me with my family members or friend(s), they wouldn't see depression. It was my way of describing autism.

Asperger Syndrome is now part of Autism Spectrum Disorder (ASD) along with about four other spectrum conditions. It has gone away in name only. It still exists as a part of ASD. No single autist has all the behaviors, characteristics and comorbids; that is why it is called a spectrum. Each of us has a handful of random traits.

So, don't despair. There is still a place for you. Have you asked your therapist about getting an autism diagnosis?


_________________
Diagnosed in 2015 with ASD Level 1 by the University of Utah Health Care Autism Spectrum Disorder Clinic using the ADOS-2 Module 4 assessment instrument [11/30] -- Screened in 2014 with ASD by using the University of Cambridge Autism Research Centre AQ (Adult) [43/50]; EQ-60 for adults [11/80]; FQ [43/135]; SQ (Adult) [130/150] self-reported screening inventories -- Assessed since 1978 with an estimated IQ [≈145] by several clinicians -- Contact on WrongPlanet.net by private message (PM)


TheAP
Veteran
Veteran

User avatar

Joined: 28 Dec 2014
Age: 26
Gender: Female
Posts: 20,314
Location: Canada

05 Jul 2016, 8:48 pm

Hi, welcome! What are your interests?



EbenCooke
Yellow-bellied Woodpecker
Yellow-bellied Woodpecker

User avatar

Joined: 1 Jul 2016
Gender: Male
Posts: 64
Location: New York City

06 Jul 2016, 2:27 pm

AspieUtah wrote:
Welcome to WrongPlanet.net, EbenCooke!

I received four separate diagnoses for depression between ages 16 and 20 years. I disagreed with every one of them. My diagnosticians asked "Do you have friends?" "One." "What do you do for fun?" "Read." "How many classmates do you talk with?" "Just my friend." Now, I believe that my diagnosticians were simply grabbing at something close to the then-nonexistent autism. Depression was close enough for them. I argued that, if they saw me with my family members or friend(s), they wouldn't see depression. It was my way of describing autism.

Asperger Syndrome is now part of Autism Spectrum Disorder (ASD) along with about four other spectrum conditions. It has gone away in name only. It still exists as a part of ASD. No single autist has all the behaviors, characteristics and comorbids; that is why it is called a spectrum. Each of us has a handful of random traits.

So, don't despair. There is still a place for you. Have you asked your therapist about getting an autism diagnosis?

Hi Aspie, thanks for your reply. Your suggestion about getting an autism diagnosis is an excellent one. Thank you for that too. I had a therapist, who I really liked, but unfortunately she left the clinic I'm attending. She's the one who told me about Asperger's and this forum. She also said she was unqualified to make such a diagnosis.

My psychiatrist is useless for that purpose. He seems to feel his role is limited to writing prescriptions and lying abut their side effects. Diagnosis? What for? This therapist/psychiatrist tag team business is new to me. When last I was in therapy you got one or the other. I can probably find a diagnostic clinic and just make an appointment on my own. Hopefully I won't need a referral. I don't know if my psychiatrist will give me one.



AnonymousAnonymous
Veteran
Veteran

Joined: 23 Nov 2006
Age: 34
Gender: Male
Posts: 71,950
Location: Portland, Oregon

06 Jul 2016, 3:11 pm

Welcome to Wrong Planet! :D


_________________
Silly NTs, I have Aspergers, and having Aspergers is gr-r-reat!


RoadRatt
Veteran
Veteran

User avatar

Joined: 26 Aug 2014
Age: 59
Gender: Male
Posts: 57,541
Location: Oregon

06 Jul 2016, 3:28 pm

Hey EbenCooke welcome. :sunny:


_________________
No power in the 'verse can stop me. - River Tam (Firefly)


EbenCooke
Yellow-bellied Woodpecker
Yellow-bellied Woodpecker

User avatar

Joined: 1 Jul 2016
Gender: Male
Posts: 64
Location: New York City

06 Jul 2016, 3:35 pm

TheAP wrote:
Hi, welcome! What are your interests?

Hi TheAP. My main interests are music (listening and playing) and classic movies. I follow politics and like to discuss it, but I can't find any good forums for that.



TheAP
Veteran
Veteran

User avatar

Joined: 28 Dec 2014
Age: 26
Gender: Female
Posts: 20,314
Location: Canada

06 Jul 2016, 3:36 pm

Cool! Well, we have a politics forum on here, and a music forum.



AspieUtah
Veteran
Veteran

User avatar

Joined: 20 Jun 2014
Age: 62
Gender: Male
Posts: 6,118
Location: Brigham City, Utah

06 Jul 2016, 4:02 pm

EbenCooke wrote:
...This therapist/psychiatrist tag team business is new to me. When last I was in therapy you got one or the other. I can probably find a diagnostic clinic and just make an appointment on my own. Hopefully I won't need a referral. I don't know if my psychiatrist will give me one.

Oh, yes. The tag team abounds in today's clinics. At an autistic medical clinic I attended for all of two visits (I loathe being "managed") assigned a "care team" to me which included a case manager, a medical doctor (who was also a psychiatrist), a second psychiatrist for therapeutic reasons and a nurse practitioner. I am fairly sure that President Kennedy enjoyed fewer staffers after his assassination. I prefer to believe that such an abundance of clinicians these days is: 1) to "CYA" themselves and the clinic, and 2) to affirm each other's recommendations for all kinds of prescribed medications. And, what's up with these staffers who type every word said into a laptop during every visit?

Finding a diagnostic clinic which specializes in autistic adults is your best course of action, if you are still interested in a diagnosis. And, no, as I was told by one of my diagnostic clinics, you do not need a diagnostic referral in the United States unless your insurance requires it (doubtful).


_________________
Diagnosed in 2015 with ASD Level 1 by the University of Utah Health Care Autism Spectrum Disorder Clinic using the ADOS-2 Module 4 assessment instrument [11/30] -- Screened in 2014 with ASD by using the University of Cambridge Autism Research Centre AQ (Adult) [43/50]; EQ-60 for adults [11/80]; FQ [43/135]; SQ (Adult) [130/150] self-reported screening inventories -- Assessed since 1978 with an estimated IQ [≈145] by several clinicians -- Contact on WrongPlanet.net by private message (PM)


DancingCorpse
Veteran
Veteran

Joined: 12 Dec 2015
Gender: Male
Posts: 1,532

06 Jul 2016, 5:24 pm

Welcome to wrong planet :D



Redxk
Veteran
Veteran

User avatar

Joined: 28 Jun 2016
Age: 45
Gender: Male
Posts: 1,704
Location: Washington

06 Jul 2016, 6:32 pm

Yeah, anyone with an MD, including a psychiatrist, knows nothing about ASD. Sorry about all the hoops. Many of us have been through them all. I was left spinning my wheels after my diagnosing psychologist moved out of state. Even psychologists specialize or have just more experience with one population. So the one I moved to has a specialty in compulsive sexual behavior... Anyway, that one at least was able to address my anxiety/panic/depression, but my wife finally came across a clinic with people who specialize in adults with ASD. So relieved! I hope you can find one!



EbenCooke
Yellow-bellied Woodpecker
Yellow-bellied Woodpecker

User avatar

Joined: 1 Jul 2016
Gender: Male
Posts: 64
Location: New York City

06 Jul 2016, 7:02 pm

TheAP wrote:
Cool! Well, we have a politics forum on here, and a music forum.

Thanks, I've just been checking them out.



LyraLuthTinu
Veteran
Veteran

User avatar

Joined: 1 Jul 2014
Age: 56
Gender: Female
Posts: 631
Location: Tacoma

06 Jul 2016, 7:48 pm

I read the title of this thread and caught myself waving at the monitor :oops:


_________________
Your neurodiverse (Aspie) score: 141 of 200
Your neurotypical (non-autistic) score: 71 of 200
You are very likely neurodiverse (Aspie)
Official diagnosis: Austism Spectrum Disorder Level One, without learning disability, without speech/language delay; Requiring Support


EbenCooke
Yellow-bellied Woodpecker
Yellow-bellied Woodpecker

User avatar

Joined: 1 Jul 2016
Gender: Male
Posts: 64
Location: New York City

06 Jul 2016, 10:32 pm

AspieUtah wrote:
Finding a diagnostic clinic which specializes in autistic adults is your best course of action, if you are still interested in a diagnosis. And, no, as I was told by one of my diagnostic clinics, you do not need a diagnostic referral in the United States unless your insurance requires it (doubtful).


I've started to research the diagnosis of adult autism and clinics which specialize in that diagnosis, and it looks like it is going to be complicated. Adult autism is apparently not an easy diagnosis, and it helps me understand the strange "I refuse to say yes, and I refuse to say no", attitude of my psychiatrist. CYA, as you say. I gotta start making lists and checking them twice.



AspieUtah
Veteran
Veteran

User avatar

Joined: 20 Jun 2014
Age: 62
Gender: Male
Posts: 6,118
Location: Brigham City, Utah

07 Jul 2016, 7:36 am

EbenCooke wrote:
AspieUtah wrote:
Finding a diagnostic clinic which specializes in autistic adults is your best course of action, if you are still interested in a diagnosis. And, no, as I was told by one of my diagnostic clinics, you do not need a diagnostic referral in the United States unless your insurance requires it (doubtful).

I've started to research the diagnosis of adult autism and clinics which specialize in that diagnosis, and it looks like it is going to be complicated. Adult autism is apparently not an easy diagnosis, and it helps me understand the strange "I refuse to say yes, and I refuse to say no", attitude of my psychiatrist. CYA, as you say. I gotta start making lists and checking them twice.

Yes. And, don't forget your written list of behaviors, characteristics and comorbids. Clinicians usually enjoy such lists because it helps them stay focused, ask questions about the list, and determine things that they would otherwise have forgotten to ask or notice. Autistic adults are notoriously good at masking, and too many diagnosticians fail to realize that.


_________________
Diagnosed in 2015 with ASD Level 1 by the University of Utah Health Care Autism Spectrum Disorder Clinic using the ADOS-2 Module 4 assessment instrument [11/30] -- Screened in 2014 with ASD by using the University of Cambridge Autism Research Centre AQ (Adult) [43/50]; EQ-60 for adults [11/80]; FQ [43/135]; SQ (Adult) [130/150] self-reported screening inventories -- Assessed since 1978 with an estimated IQ [≈145] by several clinicians -- Contact on WrongPlanet.net by private message (PM)


EbenCooke
Yellow-bellied Woodpecker
Yellow-bellied Woodpecker

User avatar

Joined: 1 Jul 2016
Gender: Male
Posts: 64
Location: New York City

15 Jul 2016, 9:54 am

Wow, I expected difficulties, but so far this is looking impossible. I've called hospitals and agencies and they all keep sending me elsewhere. This is NYC. Does anyone know where to go? Everyone keeps passing the buck. Where's the first rung of the ladder?