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Dmans-mom
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Joined: 18 Dec 2005
Gender: Female
Posts: 7
Location: Maryland

20 Dec 2005, 6:29 pm

First I have to say WOW! What a great place this is! I've been reading posts here for a couple of days now and I'm in aw.

Hi, My name is Terrie and I live in Maryland. I believe my son has AS. I don't get a dx until the 7th of February but his doctor and I are sure that's what it is. I've always known my son was special.. Everyone who knows him would say so.. especially my sister.. she would say.. "oh that's just D... he's so sensitive".

He was a very good baby.. hardly ever cried and was very independent. To this day he has NEVER given me a hug(which pains me to no end!) But I'm hopeful! He met all his milestones and actually walked at 8 months of age. He's not too clumsy.. he is a boy so he does get the occasional bumps and bruises. He has 3 siblings.. all sisters.. I always thought maybe he's so detached because he's the only boy.

At about age four I noticed he starting rolling his eyes.. I took him to see a nuerologist and she dx'd him with nervous tics and prognosed him to develop tourettes.. I have yet to see any development of that. He does still have the tics though.. Eye blinking, eye rolling and throat clearing. He also is always fiddling with his hair absently..


I took him to the doctor this year because he started to get aggressive. ie.. took a baseball bat to a door in the house and can be very destructive. Since I've learned he possibly has AS I've toned down the way we speak to him and try to sort things out so he doesnt' get aggitated. He's been better since. not so many outbursts.

He doesn't get slang very well. ie.. we'll tell him he has to clean his room or he can't go outside. I'll then go into his room and he'll just be sitting on his bed stareing.. I'll ask him why he hasn't cleaned that his friend is waiting outside for him. He'll tell me that I said he couldn't go outside all day, which is not what I said.. but forget arguing with him.. he's always right and I'm always wrong.

He does not like to be touched AT ALL. I've had a couple occassions where his sister has hugged him and he's yelled "Get off me!" and he did the same thing to one of his teachers when he put his hand on his back... He use to do very well in school up until the end of last year. All A's, but now he's slipping. He doesn't do his school work and most of the time he doesnt' bring his homework home. I cleaned out his backpack lastnight and it was a mess.. he had every subject mixed with every subject..

I can't get him in to the doctor to give him an official dx until Feb 7th.. so I'll have to wait. I'm trying to see if the school needs this in order to start getting him some help because I don't think I can do it on my own.

My son is something else though I will say that.. he can be most comical at times and I do find his little habits amuzing. Like he loves to sit in the papason chair and surround himself with pillows. Or he'll hide under it. He's very creative and can make anything from spare parts around that house and actually make them work!. He loves to read Harry Potter.. usually finishes a book in a few days.

I'm sure there is more but I don't want to make this boring for anyone.. I do have some questions though. The main thing is.. how do I tell my son what he has. When I take him to see his 'doctor' he'll cry and say he doesn't understand why he is there and he doesnt' wanna go anymore. I've tried to tell him that I love him and wouldn't do anything to hurt him and there is nothing wrong with him but he thinks differently than I do and until I can figure it out we have to go.. How do I tell him about AS without making him feel there's something wrong with him and that he's going to be somebody very successful and happy?

Anyways... I appreciate this site! I'm sure I'll have more questions for ya'll.

Thanks guys.



alex
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20 Dec 2005, 6:35 pm

Welcome! Thanks for saying such great things about the site. We really have a great community here. We will also soon be introducing the new design, which also has a refined set of features.


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oatwillie
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Joined: 4 Mar 2005
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20 Dec 2005, 6:49 pm

Hmmmm....sounds a bit like me, thirty-some-odd-years-ago. Right down to the three sisters. Welcome to WP! I am not sure how you can convey to your son that he will be happy and successful, but I am. I am married with a son, too. Good luck with the hugs and don't give up on love.

Best wishes!


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Dmans-mom
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Joined: 18 Dec 2005
Gender: Female
Posts: 7
Location: Maryland

20 Dec 2005, 7:05 pm

Thanks for the warm welcome.

Just wanted to add that I see in some posts that there is a history of AS in families.. I don't know of anyone on my side of the family with AS or my x-husbands for that matter. all though he does have 2 aunts institutionalized for what I don't know.

Is there a section on this site that my son can visit and maybe meet some people his own age? he does have a few friends in the neighborhood but somedays he'll play with them.. some days he won't. I thought maybe he could connect with someone out there like him. :D



larsenjw92286
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20 Dec 2005, 7:06 pm

Welcome! I see another positive influence for us here!


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