Postperson wrote:
well, when I got dx'ed some 10 years ago, there were no support groups for people with AS, only for their parents - people with AS were sometimes barely tolerated in those groups, but mainly as a 'freak show' and provided they never expressed opinions that might seem 'odd'. There's never been a shortage of parent support groups, so please don't play the 'pity the parent' card on that subject. The majority of parents here tend to have AS themselves and like having it in the family, so again, I don't think you have much of a point.
My point is hardly pity the parent. It's about looking at the long term goal. Do you REALLY want NT parents only hearing from other NT parents how to raise an AS child, or would you like them to understand, really understand, their AS kids, which is the asset allowing them some comfort here provides? Shouldn't the goal of this forum, as part of it's support function, be to make life better for all AS? Can that goal be met, with respect to the kids, by scaring off parents?
If you've read the parent forum, you know we leave a lot of leeway to those who are AS in responding to parents. But, at some point, there has to be some balance between what is lost v. what is gained.
This forum is also very public, and represents AS to people with little understanding of it. Shouldn't that image be a positive one, to the extent possible?
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Mom to an amazing young adult AS son, plus an also amazing non-AS daughter. Most likely part of the "Broader Autism Phenotype" (some traits).