momofteenaspie wrote:
At the moment his english isn't good enough.
We live in Spain. I speak to him in english and he responds in spanish. I wish there were such great resources in spanish. So right now I don't have anythibng from the web that is useful to him. If there were something in spanish this good, i would definitely have him start looking.
He is also a bit immature, or quite a bit immature. He only cares about sicence stuff, not about behavior stuff. He sees a therapist and I'll talk aobut it with her but I'm asking here because I figured aspies themselves are the best people to ask on how they would like to be told as a young teen.
Well, if he's into science, telling him could be a good thing. I like doing my own research.
I mentioned in the other thread I've got a neuromuscular disorder.
1. There's what the doctor told my mom (limited by his patient exposure or memory of medical school studies)
2. Then there's what my Mom understood and relayed to me (no offense, but, she's got terrible enunciation and can't spell so the words weren't really the words I needed to understand and look things up)
3. Then there's the information available on the internet
Once I finally had a name for my disorder written down for me, I could search. And, yes, I saw the doctor's information was based on older medical data (that most patients are middle aged men, when they're not, most of them are females of childbearing years, but, in the past women were dismissed as being depressive or attention seeking, rather than receiving a correct diagnosis), and then I found other patients, support groups (some more formal than others) and the resources THEY shared.
Basically, doing my own research meant I could read a ton of material and sift through to the bits that actually applied to me. It made me feel more in control to understand how it worked, and then I made the decisions about my medications and learned about other potential treatments, even if I didn't need them at the time.
I just dismissed the stuff that didn't sync with my experience and focused on the things that did.
It was the first time I obsessively researched anything, but, it certainly wasn't the last. lol.
Best of luck as you talk about this.