Will I ever qualify for interesting work?

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K_Kelly
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13 Jan 2016, 10:13 pm

I have a rare disorder called Joubert Syndrome (I'm trying to get people to click on the link), I am 24 and I was forced to only focus on studies my whole life in school, so a part-time job was completely off-the-table because of my issues concerning my academic focus. I hate my family for not letting me pursue a part-time job when my peers were. As part of my JS, I have some physical challenges and weakness. I also believe that I have lower energy levels than anyone else.

Will this disorder doom me by having me never be able to get the life I dream of (love life, dream job, etc.). It seems today that jobs either seem exciting but really demanding, or low-demanding and less challenging, but really dull and boring.

Will this disability prevent me at all from doing something exciting and worthwile? Even if it's just a mild case.

It seems that everything I desire isn't realistic for me now and it's too late to change everything. It's lowering my self-worth as a human being. I really hate being honestly told "you have to accept your challenges" and pretty much saying that I won't be as successful as everyone else.



AJisHere
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15 Jan 2016, 1:08 pm

I don't see why you couldn't. However, most everyone has to "pay their dues" doing boring, stressful work first. It's rare for anybody to start in a position that's desirable. You work up to those.

What kind of work interests you?


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Edenthiel
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15 Jan 2016, 1:12 pm

What area has been the focus of your academic studies? Most people who focus on schooling tend to get their first job at the lowest rung of their area of study, even for their first part time position. Might this be possible for you?


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BTDT
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15 Jan 2016, 3:12 pm

You may be able to do interesting work on a volunteer basis--perhaps at a museum or non-profit associated with one of your special interests.



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Deinonychus
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16 Jan 2016, 1:03 pm

I think it is OK that you can't manage a job while studying. I have a job today and I didn't work at all during college. Only some small-time volunteering.

You could probably manage a bit of volunteering. Or set up some sort of internship in college.

Get ready for unemployment. I have to say that. But if you study hard, you will get that dream job. Best wishes.



SocOfAutism
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19 Jan 2016, 2:01 pm

I have a disease called spinocerebellar ataxia. The onset of my disease wasn't until my late-20s, but I always knew I had a 50/50 chance of having it. So I have experienced some of what you're talking about, but some of it I haven't.

When you have a serious neurological disease, you just can't do as much stuff as other people. You have to rest, sleep more, give yourself more time to do stuff, and so on. You shouldn't hate your family for trying to manage your expectations. My son now has the same 50/50 chance of having my disease. I'm going to let him mostly do what he wants, but not everything. I'm not going to let him play (american) football or hockey for example. No reason to risk head injuries. Life is different when you are a person with a significant risk of serious neurological problems. You can't have the same expectations as a regular healthy person.

Not having a part-time work history is fairly common with Millenials. I think when people see your intelligence, drive, and commitment, you won't have a problem. Yeah, there will be lots of interesting stuff. Start looking around now and see what kind of career plan you can make for yourself.