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16 Feb 2006, 5:06 pm
odeon
Toucan
Joined: 19 Jan 2006
Gender: Male
Posts: 296
Location: Banned for comparing WP to a daytime soap!
16 Feb 2006, 6:44 pm
17 Feb 2006, 7:00 am
17 Feb 2006, 4:15 pm
17 Feb 2006, 4:20 pm
17 Feb 2006, 4:49 pm
Quote:
What are IEP's? What is OT support? If my husband is diagnosed, will we have some sort of support offered to us and could I then use what we learn to better understand my son?
sorry for the "letter speak"....i was in quite a hurry, but felt i needed to respond. An IEP stands for an individualized educational plan~it's the plan teachers, professionals , and parents set up to meet the needs of the student. goals are set based on student needs. one goal on my son's iep is to be able to recognize when his anxiety is elevating, and inform a staff member. An OT is an occupational therapist ~ if you don't know what an OT does, they work with students to help them with fine motor and gross motor skills, and also work with students on relaxation techniques.
A diagnosis does NOT necessarily mean that you will be offered supports. Although diagnosed, my hubby does not receive any services.
Quote:
How can I find out what places require that I report ASD? As far as the education system is concerned I have no plans for him to go to public or private school for so many reasons, none of which concern autism. I don't think that will ever be an issue for us.
as far as i know, there are not that many places that require asd reporting~ i'm pretty certain that parts of Canada require this, as well as some Midwestern State. Shouldn't be an issue for you, though as i see you're from Georgia. i guess you should check into your local laws.now, as far as education goes, you just never know whether you will find yourself in a predicament and find that your son just might have to go to public school. Although you are not planning to do this, i would still make sure that you keep on top of things~ keep data, keep ALL dr reports, keep samples of his work.at least this way, you are prepared.....
best of luck...pm me if you wish
17 Feb 2006, 5:15 pm
odeon
Toucan
Joined: 19 Jan 2006
Gender: Male
Posts: 296
Location: Banned for comparing WP to a daytime soap!
17 Feb 2006, 6:26 pm
Glycerin19 wrote:
Quote:
The advantages/disadvantages with an official diagnosis are covered in many threads in the Members Forum and elsewhere
Thanks for the welcome odeon!
I've browsed through some of those threads but the ones I've seen seem to focus on adult diagnosis. I'm trying to determine what advantage my son might have. If he's not in the school system and doesn't seem to have issues with friends, are we better off not bothering?
If he doesn't have issues, maybe not. But will he stay off the school system? At some point, he might need to enter, at which point all those problems kept at bay could pop up. But I don't know your school system--here in Sweden, home schooling isn't an option--and so I'm perhaps not well suited to give you advise, only my opinions.
If he does have sensory issues, for example, I'd definitely go through a diagnosis. There's lots of help if you talk to specialists, and it is important to rule out other problems.
Glycerin19 wrote:
Quote:
On the other hand, it's a label, and some people will use that label against you. "You do or say that because you have AS, you simply don't understand what's going on in the minds of normal people." It's an argument-killer and an insult. You're reduced to a label, the implication being "we know better".
I know you weren't saying that I did that but I'm not sure that's how it's meant all the time. I can think of times where I might have said that to my husband but not in an "I'm right and you're wrong" sort of way. I think it helps me point out how I'm thinking differently than he is so that we can try to get on the same page. I try very hard to never say I'm better than he is because I'm "normal". I certainly don't want to ever do that to my son either.
I'm not saying that you do it, nor that you would do it, but it can happen. Somebody else can say it, someone else close to you. Which is what happened to me yesterday. And this person didn't want it to come out the way it did, but that's how I got it. All of a sudden, I was a label first, a human second, and my opinions were the regrettable result of DSM 299.80 rather than a rational, logical process.
And maybe I'm overly sensitive about this, but then, I do have problems in interpreting this kind of thing, and I have the paperwork to prove it
. Heck, maybe comments such as the one yesterday are right on the mark sometimes. I don't know.But it's a sensitive area, and a diagnosis that results in a life-long label is not something to be taken lightly.
Glycerin19 wrote:
Quote:
Sometimes, however, a dx's also necessary in order to get the help you're entitled to from the society; in that case, a dx is probably more useful for your son than your husband.
I'm still not sure how it might help my son at this point? Maybe later in life if he's having trouble but now I think most of the burden is on me to try to fulfill his needs. I guess I sort of answered my own question then. I don't see a benefit to finding out of my son is AS because it's not affecting his life.
Then maybe there is no benefit. Which is a good thing, BTW. If he's OK, there really is no need.
17 Feb 2006, 7:55 pm
First off, welcome to the board! And congrats on homeschooling. My family lives in McDonough, GA and my Mum HS my sister (she's now all grown up and at UGA) so I've seen the benefits of it and admire anyone who does it.
My son is 7 and we're just muddling our way through the diagnosis process now. My choice to get my son's dx was because he's not coping well in the school system and in order for them to offer any sort of assisstance to him, they need the official dx on paper. When he's at home, I don't have the same issues as they have with him at school so if I were HS him, I probably wouldn't got through the official channels. I would research it myself and apply what I felt was necessary.
Good luck.
18 Feb 2006, 6:11 pm
18 Feb 2006, 6:46 pm
18 Feb 2006, 9:42 pm
19 Feb 2006, 8:50 am
20 Feb 2006, 4:48 pm
Glycerin19 wrote:
What is SID? I do notice that sometimes leaving the house is difficult. I usually associate it with my son just not listening to me and my directions but I'm not entirely sure that's the case. What kind of assistance might we need? Is it not something I can do myself? I'm not trying to be difficult, I promise. I'm just trying to determine what exactly I might be depriving my son of if I don't have him diagnosed.
SID is Sensory Integration Disorder. The books listed previously are excellent resources. Most AS children I have come into contact with suffer from this to one degree or another, even if they don't have the SID dx, as our son does not.
We learned a long time ago (and way before ever hearing of AS) that transitions were difficult for our son, as was anything outside of his "schedule". If we have to do something outside of the routine we try to give him as much forward notice as possible, almost in a countdown style, giving reminders closer and closer together (i.e. if it's two days away I'd mention it two or three times the first day, same the next, and then maybe six hours out, 4 hours, 2 hours, 1 hour, half hour, etc. until about 5 mins) in order to him to "reorder" his thinking to how it would be that day. Emergencies however *completely* put him off his mood and take up to a week to get back on track from.
I would check with www.asaga.com they may be able to help guide you in the direction of other agencies that can help provide services, if they are needed. You haven't really mentioned the specific issues (aside from leaving the house) that you are having, but they may be able to give you direction.
SID is Sensory Integration Disorder. The books listed previously are excellent resources. Most AS children I have come into contact with suffer from this to one degree or another, even if they don't have the SID dx, as our son does not.
We learned a long time ago (and way before ever hearing of AS) that transitions were difficult for our son, as was anything outside of his "schedule". If we have to do something outside of the routine we try to give him as much forward notice as possible, almost in a countdown style, giving reminders closer and closer together (i.e. if it's two days away I'd mention it two or three times the first day, same the next, and then maybe six hours out, 4 hours, 2 hours, 1 hour, half hour, etc. until about 5 mins) in order to him to "reorder" his thinking to how it would be that day. Emergencies however *completely* put him off his mood and take up to a week to get back on track from.
Quote:
Where we live, the school system is terrible. There is just no way I'd put him into any part of it. There has to be another way.
I would check with www.asaga.com they may be able to help guide you in the direction of other agencies that can help provide services, if they are needed. You haven't really mentioned the specific issues (aside from leaving the house) that you are having, but they may be able to give you direction.
Quote:
Again, I'm not sure I understand what therapies he might need. I find myself reading books and webpages that make sense to me and make me wonder about AS and my son but for some reason when compared to other children actually diagnosed, he doesn't fit. I don't really know how to describe it. I also have felt this way about my husband. He seems to fit all the descriptions that I have read but when I've talked to other wives of AS men, their husbands seem much "worse" (for lack of a better word) than mine. I'm so confused.
Again it all depends on his needs. It appears he suffers from rigidity or scheduling issues, does he perseverate on a particular item/topic? He is also still quite young. At his age we still weren't sure there was anything going on except typical boy behavior going on with our son. Keep in mind that every one with AS is so different, since it is basically a group of behaviors that are then expressed and are obviously affected by environment, experience and genetics.
Our son could ride a 2 wheeler with ease at 4, yet when he got off the bike you'd wonder how he could walk to the house his gait was so odd and off kilter. Those are the kinds of things we've needed ongoing therapy with. He can now walk in a straight line, keep his hands within his "personal space" and doesn't try and touch everyone he sees. His eye contact has improved greatly, and he tries to keep his stimming to a minimum on his own.
My husband is also an unofficial Aspie. I'm the one who dx'd him! After all I'd read and done with our son, suddenly one day I had an aha moment. (During the 500th conversation he was having *at* me about trans am's!). I've made some ground rules for my sanity (1 out of 10 conversations can't involve cars) and it's worked so far. lol (I think. Don't tell me if it hasn't!)
Sorry so long
22 Feb 2006, 2:08 am
Quote:
Again, I'm not sure I understand what therapies he might need. I find myself reading books and webpages that make sense to me and make me wonder about AS and my son but for some reason when compared to other children actually diagnosed, he doesn't fit. I don't really know how to describe it. I also have felt this way about my husband. He seems to fit all the descriptions that I have read but when I've talked to other wives of AS men, their husbands seem much "worse" (for lack of a better word) than mine. I'm so confused
i remember going through the same process last year when we first started to think something was wrong other than "normal pre-teen behavior"(whatever that is
). i spent what seemed like weeks poring over websites and books looking for a definitive answer ~ was i insane? was i making too much of the situation? was i downplaying the situation? ultimately, we decided to seek an official diagnosis to relieve son's "school diagnosis"~ they labeled him as willfully defiant and obstructionistic. once we started the process of having son tested, we came to realize that my hubby probably was an aspie too.....consequently, he went for testing and was revealed to have aspergers. don't forget that it is all a spectrum. the adult asperger support group my hubby goes to has people both on the higher end ( hubby) and the lower end ( one of my students).when compared, their behaviors couldn't [/i]be more far apart, and yet they share the commonalities of CAPD and Aspergers...hubby just copes with the effects better~that's not to say he doesn't still have temper tantrums
17 Mar 2006, 5:33 pm
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