I JUST WANT TO SCREAM!! !! !! !! !! !! !! !! !

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melodylynette
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23 May 2011, 10:01 pm

I hate knowing I have AS and I hate knowing my kids have AS. I am so overwhelmed that it is driving me crazy. Knowing my children are going through what I went through is killing me. Me and my 8 year old are pretty much sensory avoiders and my 5 year old is a sensory seeker. I don't know how to deal with him. It seems that everything he does aggravates me more now.

I have few friends, they have few friends. I have no one to call. No one to understand what I'm going through. I'm a single mom and can't seem to get a break (I also have a 5 month old at home). I just need some down time to take all this in and breathe for a minute. There is no one that will babysit or take my 5 year old overnight.

How do I cope? How do I become more tolerant? Can I save my children?



CockneyRebel
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23 May 2011, 11:35 pm

Acceptance is the best cure. I'm sorry, but it's true.


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aurea
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24 May 2011, 12:25 am

My heart goes out to. I'm not on the spectrum but i do know what it's like to never have any down time. If you lived closer I would offer to baby sit or at least give you my phone number to off load to. (((((( hugs for you )))))))


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DW_a_mom
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24 May 2011, 2:20 am

(((((hugs))))) 3 kids including an infant as a single mom would be stressful for anyone, much less someone with sensory issues!

I would talk to your doctor about it. I got overwhelmed when my 2nd was an infant and, well, I sorted it out with the help of some medical intervention. There just was nothing else for me to grab onto, I did not like the way I was responding to my older child, and there was stress all around. I took care of my family by taking care of me. For me, the medical intervention was the lifeline I needed. Maybe your lifeline is different. But ... you should talk and ask.


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Mom to an amazing young adult AS son, plus an also amazing non-AS daughter. Most likely part of the "Broader Autism Phenotype" (some traits).


nostromo
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24 May 2011, 3:18 am

CockneyRebel wrote:
Acceptance is the best cure. I'm sorry, but it's true.

Its not really the AS she's complaining about, its that the kids are driving her nuts and she is unable to get a break away from them, happens to me sometimes when I'm home alone with my ones. Having a baby on top of all that..Aaargghh!! !



Bauhauswife
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24 May 2011, 8:36 pm

You need respite care! Like ASAP. I have it available to me through the Board of Disabilities; 300 hours per year I believe. I've never used it, but it's there for those times just as you have described.



leejosepho
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24 May 2011, 8:57 pm

Bauhauswife wrote:
You need respite care! Like ASAP. I have it available to me through the Board of Disabilities; 300 hours per year I believe. I've never used it, but it's there for those times just as you have described.

I had never before now ever heard of that, but yes, most definitely.


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Bauhauswife
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24 May 2011, 10:01 pm

leejosepho wrote:
Bauhauswife wrote:
You need respite care! Like ASAP. I have it available to me through the Board of Disabilities; 300 hours per year I believe. I've never used it, but it's there for those times just as you have described.

I had never before now ever heard of that, but yes, most definitely.


It may not be available everywhere, but my district offers it to parents with special needs children. I'm lucky in that I haven't been at my wits end yet, but I know there are a lot of parents out there who aren't so lucky. Caring for a child with special needs can be stressful, and that stress can start to accumulate over time. I often wonder if the state doesn't offer this type of respite care in an effort to decrease the potential for child abuse. Some parents just snap.



leejosepho
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24 May 2011, 10:39 pm

Bauhauswife wrote:
leejosepho wrote:
Bauhauswife wrote:
You need respite care! Like ASAP. I have it available to me through the Board of Disabilities; 300 hours per year I believe. I've never used it, but it's there for those times just as you have described.

I had never before now ever heard of that, but yes, most definitely.

It may not be available everywhere, but my district offers it to parents with special needs children. I'm lucky in that I haven't been at my wits end yet, but I know there are a lot of parents out there who aren't so lucky. Caring for a child with special needs can be stressful, and that stress can start to accumulate over time. I often wonder if the state doesn't offer this type of respite care in an effort to decrease the potential for child abuse. Some parents just snap.

Yes, and I hope the OP finds something similar available somewhere.

Personal note: Your avatar always catches my eye and reminds me of one of my most-special grandchildren!


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keiko
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25 May 2011, 9:26 am

((((((((hugs)))))))))

It sounds like such a hard situation. I know some people don't cry in front of their children, and AS kids might not respond, but maybe if you let yourself go a little they would try a little harder to give you some quiet time while the baby is sleeping. Sometimes I try to get them to do stuff like Yoga or meditate with me. Sometimes it works. Deva Premal has some really hypnotic music. I listen to their song called "Aad Guray". It lasts a long time.



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25 May 2011, 11:47 am

I understand what you are going through. I only have one 11-years-old Aspie girl and sometimes I feel it's overwhelming (and I have a husband to rely on). You have three, are on your own, and with sensory issues on top of it!! ! I agree with "DW_a_mom". You should talk to your doctor and try to get some help ASAP. You said you have some friends. I think you should ask them for help. Just talking about your problem with someone is a great comfort sometimes. And maybe they could help you with the kids so you can have a time on your own.

I am still working on becoming more tolerant. There is no easy way. You just do it. Because there is no other way.



Nikki82
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26 May 2011, 9:37 pm

Hey i read your post and i could relate to you i have 2 kids with Autism and i have a bunch of diagnosis and sensory issues and struggle alot. I give you alot of credit because you have an infant too. You could PM me if you want to chat *hug*



Kaia
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27 May 2011, 12:13 am

Wow, that's tough! I really feel for you. I have an AS 14 yr old son, and another son 12, who has a host of other issues himself. I am also a single parent.
It is really hard, to be on the job 24/7. I do have my parents near by, and the boys have their dad too.
Respite care is a good idea. Also, if there is a good church around you, whether you are christian or not, or a synagogue, these places are usually really supportive of people, and may be able to help you out.
Is there a Autism Society division where you are? They could have some ideas too.
Do you have any family?
Keep trying, don't give up. Believe me that it does get better, it is really hard when the kids are still young, but in the end they are so wonderful.



liloleme
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27 May 2011, 4:02 am

I looked up the closest Regional Center to you http://www.mvserrc.esu.k12.oh.us/
If you call them and tell them your predicament they may get you in right away and they typically offer respite services. If you cant get help from them then call Easter Seals. Just tell them that you need a bit of assistance. If you tell them you cant take care of your kids you may get assistance you DONT want. We got a lot of help from our Regional Center in California, not only did they diagnose both my kids for free but we got in home ABA therapy, respite care and educational consults for IEP's. Your RC might offer more....please keep us updated and we are here to listen if you need an ear.