amom wrote:
STEVE....that's why I'm here!! !!
So many other sites...............BLAH BLAH BLAH
Some make you fell GREAT, like your kid is not so bad, and other's are just a place for people to whine and complain, which they are entitled. Being here is like a dream come true for me, actual people living and dealing with it!! !! Thank you so much for your responses!
Stacey
Hi Stacey,
I feel exactly the same way. My DS is 4 1/2 and has been diagnosed with AS. We picked up that there was something unusual going in his development when he was reading ANYTHING by age 3, but was still falling a lot, couldn't ride a trike, and was having trouble interacting. It took a year of testing...and lots of people saying that he was just a really bright little boy with some social difficulties, before all the tests were put together to lead us to AS.
I've had lots of people question whether the diagnosis is a good thing for us, because it's putting a label on our very young child. The truth, though, is that label or not...his brain is simply wired differently. Understanding that has made a world of difference to our ability to cope with his difficult behaviours. He is VERY high functioning, but there are clearly sensory issues, and difficulties with social behaviour that cause problems in relationships. Where I live (I'm assuming it's the case anywhere), you can't access resources without a dx. So, I'm happy about it. Denying it wouldn't change anything, and I'm very hopeful that early diagnosis and intervention will improve the long-term outlook for his happiness, independence, etc.
For me, the label is less about categorizing him...and more a really important reminder that each child is unique. And, although my son is 4 1/2 years old, developmentally each child is in a different place. So, he can do middle school math, and can read more and spell better than many adults I know, his 2 1/2 year old sister is soon going to be more socially than he is. It helps me adjust my expectations so that I am able to more consistently work with him from where he's at...to be more understanding. Also, I've learned that many conventional parenting tactics just do NOT work...and so I'm grateful for the dx pointing me to resources and strategies that can be more successful with him.
There really is nothing quite like finding a community of parents who are living the same life! No matter where our kids are on the spectrum, there is just a shared experience that parents of NT kids can't quite understand
Shauna