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What is your biggest fear for your child with Autism?

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Wreck-Gar
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22 May 2012, 2:17 pm

Washi wrote:
Wreck-Gar wrote:
That he will eventually get diagnosed with "The big R."


I don't think you need to worry about that one now. Mine won't sit at the table either and his reading is taking off too. He's a lot of things but that isn't one of them.


Another thing I am honestly worried about is that people (including teachers and classmates) will think he doesn't talk because he can't speak Enlish because he's Asian. There will be some serious parental intervention if this ever happens!



Washi
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22 May 2012, 2:46 pm

Wreck-Gar wrote:
Washi wrote:
Wreck-Gar wrote:
That he will eventually get diagnosed with "The big R."


I don't think you need to worry about that one now. Mine won't sit at the table either and his reading is taking off too. He's a lot of things but that isn't one of them.


Another thing I am honestly worried about is that people (including teachers and classmates) will think he doesn't talk because he can't speak Enlish because he's Asian. There will be some serious parental intervention if this ever happens!


Hopefully the teachers will know better. That just reminded me of something though, when I was in high school there was an Asian girl who I'm pretty sure was special ed/special needs who would I would occasionally see sitting all alone at a completely empty table in a corner of the cafeteria. Whenever she was there I always sat across from her, the first time I did I could tell it freaked her out because she apparently did not know how to communicate with me. So I never said anything, when she realized I was content to sit there everyday without saying anything she seemed happy and relieved. I never did find out her name or what was going on with her - she may have been deaf, autistic or had mild downs and I did wonder if she also didn't speak English.



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22 May 2012, 3:08 pm

Just for the record, the word ret*d is completely unacceptable in countries other than America, it seems. It's just so politically incorrect, it falls off the scale. Just saying.



Wreck-Gar
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22 May 2012, 3:16 pm

Washi wrote:
Hopefully the teachers will know better. That just reminded me of something though, when I was in high school there was an Asian girl who I'm pretty sure was special ed/special needs who would I would occasionally see sitting all alone at a completely empty table in a corner of the cafeteria. Whenever she was there I always sat across from her, the first time I did I could tell it freaked her out because she apparently did not know how to communicate with me. So I never said anything, when she realized I was content to sit there everyday without saying anything she seemed happy and relieved. I never did find out her name or what was going on with her - she may have been deaf, autistic or had mild downs and I did wonder if she also didn't speak English.


Gah. *Adds to list of fears of what will happen to my kid.*



Washi
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22 May 2012, 3:20 pm

Wreck-Gar wrote:
Washi wrote:
Hopefully the teachers will know better. That just reminded me of something though, when I was in high school there was an Asian girl who I'm pretty sure was special ed/special needs who would I would occasionally see sitting all alone at a completely empty table in a corner of the cafeteria. Whenever she was there I always sat across from her, the first time I did I could tell it freaked her out because she apparently did not know how to communicate with me. So I never said anything, when she realized I was content to sit there everyday without saying anything she seemed happy and relieved. I never did find out her name or what was going on with her - she may have been deaf, autistic or had mild downs and I did wonder if she also didn't speak English.


Gah. *Adds to list of fears of what will happen to my kid.*


I didn't mean it like that, sorry!



League_Girl
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22 May 2012, 4:00 pm

catbalou wrote:
Just for the record, the word ret*d is completely unacceptable in countries other than America, it seems. It's just so politically incorrect, it falls off the scale. Just saying.



Actually they are getting rid of that word here in the USA and making it intellectual disability?

Lot of people are getting offended by that word now even though it means low intelligence and I am not even used to that because I grew up with it. Now I am accepting that word has become the new stupid, idiot, moron, imbecile, and back then those were also medical words before they got phased out and became ret*d. Now I think people are hypocrites when they take offense to that word but don't take offense when other words are used that once meant low intelligence. Since the definition of ret*d is changing, people can either not be offended by that word when it gets used as an insult and it's obvious they do not mean people with mental retardation or stop using all those all those other words, they can't have it both ways.



Wreck-Gar
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22 May 2012, 10:08 pm

League_Girl wrote:
catbalou wrote:
Just for the record, the word ret*d is completely unacceptable in countries other than America, it seems. It's just so politically incorrect, it falls off the scale. Just saying.



Actually they are getting rid of that word here in the USA and making it intellectual disability?

Lot of people are getting offended by that word now even though it means low intelligence and I am not even used to that because I grew up with it. Now I am accepting that word has become the new stupid, idiot, moron, imbecile, and back then those were also medical words before they got phased out and became ret*d. Now I think people are hypocrites when they take offense to that word but don't take offense when other words are used that once meant low intelligence. Since the definition of ret*d is changing, people can either not be offended by that word when it gets used as an insult and it's obvious they do not mean people with mental retardation or stop using all those all those other words, they can't have it both ways.


For the record, I personally didn't want to use the word here because some people find it offensive.



cyberdad
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22 May 2012, 11:06 pm

daclark5 wrote:
I work with students with autism and I would like to hear what a parent's biggest fear is?
\

Our biggest fear is if both my wife and I were to pass away or get really sick or incapacitated. There is nobody I would trust to look after my daughter.



cyberdad
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22 May 2012, 11:09 pm

Wreck-Gar wrote:
That he will eventually get diagnosed with "The big R."

To me that's the least of my worries.



claudia
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23 May 2012, 4:00 am

cyberdad wrote:
daclark5 wrote:
I work with students with autism and I would like to hear what a parent's biggest fear is?
\

Our biggest fear is if both my wife and I were to pass away or get really sick or incapacitated. There is nobody I would trust to look after my daughter.


This is my biggest fear too, but I have so many fears that I'm not going to list. I take care of my son for all my days when I don't work and I'm exhausted, but, as I said, I don't trust others. To tell the truth, there's no one who can't wait to care for him as well.



cyberdad
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23 May 2012, 6:31 am

claudia wrote:
cyberdad wrote:
daclark5 wrote:
I work with students with autism and I would like to hear what a parent's biggest fear is?
\

Our biggest fear is if both my wife and I were to pass away or get really sick or incapacitated. There is nobody I would trust to look after my daughter.


This is my biggest fear too, but I have so many fears that I'm not going to list. I take care of my son for all my days when I don't work and I'm exhausted, but, as I said, I don't trust others. To tell the truth, there's no one who can't wait to care for him as well.


It is sad but this generation are too "busy" to worry about their extended family. It doesn't help I live interstate.



Wenmic
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23 May 2012, 10:13 am

I was ready to say "ditto" to many of the replies submitted as worse fears for our children. But then it struck me that what we all might be dealing with is an insensitive world. We know the beautiful aspects of our children, but because some of their behaviors are off the spectrum of what is considered normal, they are shunned by many. How much potential is lost because the world is ignorant?
As an educator or someone who works with autism, educate the rest of the world to accept differences, and many of our fears many be lessened.



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23 May 2012, 2:15 pm

Wenmic wrote:
I was ready to say "ditto" to many of the replies submitted as worse fears for our children. But then it struck me that what we all might be dealing with is an insensitive world. We know the beautiful aspects of our children, but because some of their behaviors are off the spectrum of what is considered normal, they are shunned by many. How much potential is lost because the world is ignorant?
As an educator or someone who works with autism, educate the rest of the world to accept differences, and many of our fears many be lessened.


AMEN!! !

Also, we wold have to get rid of people who take advantage of others, casue that is a HUGE fear of mine for my gullible all trusting son. He believes every word everyone says. He can easily be swayed, scarey in this big bad world...


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Wreck-Gar
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23 May 2012, 2:41 pm

Washi wrote:
Wreck-Gar wrote:
Washi wrote:
Hopefully the teachers will know better. That just reminded me of something though, when I was in high school there was an Asian girl who I'm pretty sure was special ed/special needs who would I would occasionally see sitting all alone at a completely empty table in a corner of the cafeteria. Whenever she was there I always sat across from her, the first time I did I could tell it freaked her out because she apparently did not know how to communicate with me. So I never said anything, when she realized I was content to sit there everyday without saying anything she seemed happy and relieved. I never did find out her name or what was going on with her - she may have been deaf, autistic or had mild downs and I did wonder if she also didn't speak English.


Gah. *Adds to list of fears of what will happen to my kid.*


I didn't mean it like that, sorry!


It's ok, my son is not exactly the "sitting in the corner with his head hanging down" type anyway.



Washi
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23 May 2012, 3:11 pm

Wreck-Gar wrote:
Washi wrote:
Wreck-Gar wrote:
Washi wrote:
Hopefully the teachers will know better. That just reminded me of something though, when I was in high school there was an Asian girl who I'm pretty sure was special ed/special needs who would I would occasionally see sitting all alone at a completely empty table in a corner of the cafeteria. Whenever she was there I always sat across from her, the first time I did I could tell it freaked her out because she apparently did not know how to communicate with me. So I never said anything, when she realized I was content to sit there everyday without saying anything she seemed happy and relieved. I never did find out her name or what was going on with her - she may have been deaf, autistic or had mild downs and I did wonder if she also didn't speak English.


Gah. *Adds to list of fears of what will happen to my kid.*


I didn't mean it like that, sorry!


It's ok, my son is not exactly the "sitting in the corner with his head hanging down" type anyway.


Mine either, what I meant was that if your son won't talk under some circumstances people are likely to innocently suspect that he doesn't speak English.



Washi
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23 May 2012, 3:26 pm

That was 20 years ago. 8O