How the neurofeedback/EEG idea turned out....bogus!
PaintingDiva
Deinonychus
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I posted earlier that we were going to check this out, here is what I found out, $600.00 later and we are probably going to be getting some more bills too:
I want to let any other readers know, this is not science. I recently had the experience of being referred to a therapist where I live who is all about using EEG to treat everything under the sun, including Aspergers. The psychiatrist who referred me had NO idea that was what this therapist was into.
The psychiatrist did some research and could only find two studies on this, neither were conclusive. He apologized and said he had no idea she was so gung ho about this approach and he told me this (using EEGs to diagnose and neurofeedback therapy) is way outside main stream medicine and not recognized by the psychiatric community.
My son's assessment of this therapist on his first meeting with her? "She just wants to sell us stuff."...he has now decided he doesn't like her and no we will not being paying thousands of dollars for neurofeedback sessions that are unproven and offering fake hope to people who want help with their social issues.
If it sounds too good to be true, it usually is, posted below is a quote from a website that debunks fad treatments:
Usually marketed as neurofeedback, this is an alternative therapy that claims to treat a huge range of conditions through the use of EEG biofeedback. You've probably seen TV shows where people, often with some paralysis or other handicap, practice moving a cursor on a computer screen using only electrodes attached to their scalp. You can indeed train your brain to do this kind of thing, and based on this apparent legitimacy, a whole cottage industry has grown around the sales and marketing of such machines, and expensive training for alternative practitioners to learn how to use them.
What's lacking is evidence of efficacy, or plausible foundation for how or why this might treat medical conditions. Practitioners can be found who claim it treats just about anything: autism, ADHD, incontinence, migraines, chronic pain, depression, drug abuse, sleep disorders, you name it. These disorders all have different underlying causes, so it's implausible to expect a single treatment to target more than one of them, let alone all of them.
The theory, as it's offered, is based on the premise that there are healthy brainwaves and unhealthy brainwaves. What you do is put on the electrodes and practice with whatever's on the screen, usually some type of simple video game, until the practitioner declares your EEG to look "healthier". The idea is that you come back again and again, practicing to reach the "healthy" EEG sooner; and it's claimed that this trains your brain to normally reach an improved state on its own. All of this sounds perfectly reasonable, and impressively high-tech, which is why the treatment is so easy to sell to uninformed patients.
Dramatic conditions like epileptic seizures and brain injuries can indeed have obvious readings on an EEG, but healthy brains also have a wide range of possible EEG waveforms. The notion that some healthy EEG waves are "good" and some are "bad" is without any neurological foundation, and thus, so is neurofeedback. "Bad" EEGs are neither characteristic of, nor the cause of, the conditions neurofeedback pretends to treat, so save your money.
From:
Sorry I wasn't able to steer you clear of that, but it's just so hard to speak assertively about things you haven't tried yourself and that you haven't heard are outright dangerous.
_________________
Mom to an amazing young adult AS son, plus an also amazing non-AS daughter. Most likely part of the "Broader Autism Phenotype" (some traits).
aspie48
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my experience with EEGs is that my public school sent me to a doctor who did EEG diagnosis. they diagnosed me with childhood schizophrenia, which was totally out of the ball park. its interesting years later that this is confirmed as an absolutely quack threatment and diagnosis tool.
PaintingDiva
Deinonychus
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Well live and learn I guess. I should have spoken up at the first meeting with this lady, as in, we are here for an evaluation, not a EEG and a sales pitch on neurofeedback therapy. But she was very slick. My son thought she was a weird person. Which was pretty astute of him.
If I get myself worked up enough over it I may file a complaint against her with the California Psychology board of whatever. I wonder if they condone neurofeedback therapy? I don't think it would be worth it because I also think she is clever enough to use all the emails that were sent back and forth to claim that we knew what we were getting into and were willing participants in her shenanigans...
What a strange experience....what is that saying if someone is talking to you and you keep feeling that what they are telling you is not quite making sense, then you can assume are being manipulated or hustled? Because that is what it felt like, as in she is not answering my questions and she keeps directing the conversation to this other topic, neurofeedback therapy, which is not why I came here and not what I am interested in, why is this happening? Because I was being manipulated.
Ugh, well at least we came to our senses before we were hypnotized into signing up for 20 neurofeedback sessions. That would "rewire" my son's brain and suddenly he would be all comfortable and happy in the NT world? I don't think so, once again, if it sounds too good to be true, it usually is.
And we did not get a formal diagnosis for Aspergers. Just blew money on an EEG and are going to be billed for hours where she sat and pitched us on neurofeedback therapy and she never explained exactly what this would do for my son or how it worked....shudders, overall, what a creepy experience. And only adds fuel to my husband's fire that all psychologists, and therapists and psychiatrists are all charlatans and of no help and only there to take the money and run....feeling a little bleak tonight.
I'm sorry you had a bad experience with someone trying to sell you something when you expected an evaluation. But I just wanted to say that some people have indeed seen improvement with neurofeedback. My son, who has Asperger's and ADHD, has improved his ability to focus and keep himself calm. He feels that it's helped him a lot.
It's true that there is not much research to back it up at this point, but it has been helpful for some people.
Jane
Same here, my daughter is getting an EEG evaluation in a couple days.
Well, she would not let him put the sensors on her so we didn't get it done yet
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aspie48
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i would recommend against it. sure didn't work for me. and Zoloft meds didn't work either.
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