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cyberdad
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14 Jan 2013, 10:20 pm

whirlingmind wrote:
My seven year old (almost eight) daughter was just diagnosed this week with HFA. She did have language regression but she was younger than the age at which they class it as regression/delayed language. So technically she could be Asperger's or HFA but they went with HFA. As we are in the UK the DSM is not relevant as to losing the title of Asperger's and calling it autism, as they use the IDC-10 here.

She is extremely oppositional and difficult!

Sounds like my 7 yr old. As you live in the UK I wish you good luck finding other parents with HFA kids. I've never met another HFA child or adult in my life. Only come across Aspies or severely autistic individuals here.



cyberdad
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14 Jan 2013, 10:21 pm

ConfusedNewb wrote:
whirlingmind wrote:
As we are in the UK the DSM is not relevant as to losing the title of Asperger's and calling it autism, as they use the IDC-10 here.


Thats something Ive been wondering myself, hoping to get a formal diagnosis of AS for my little girl this year and wasnt sure if it would be changing. Thanks :)

I wouldn't worry too much about the label.



Mama_to_Grace
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20 Jan 2013, 8:34 pm

I am mama to a 9.5 year old Aspergirl. :)



Giggley
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25 Jan 2013, 8:49 am

Thanks! She was diagnosed with Aspergers in September, but diagnosis labels are now changing from Apergers to HFA here. She was never verbally delayed, and actually is quite bright like most of our Asperger Children.

Everything we are dealing with is behavior. She has sensory issues and is very bothered by certain things and will have a complete meltdown. We started seeing a behavior therapist and an OT out of school, and she gets social therapy in school.

The one thing that has been really helpful at home to calm her down is drums. She has been taking lessons since October and whenever she gets frustrated at home she goes in her room and practices.

I get so excited when she gets invited to a birthday party, but she rarely does playdates. She really, really, really wants to have a sleepover, but we really don't have any "good friends" to have sleepover.



Mummy_of_Peanut
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25 Jan 2013, 9:06 am

Giggley wrote:
She really, really, really wants to have a sleepover, but we really don't have any "good friends" to have sleepover.
My daughter really wants to have a sleepover too. But, the only people I know and trust enough are my best friend and my next door neighbour. The only problem is that their kids are boys. My daughter would gladly go for a sleepover with them, but us Mums are in agreement that it would be odd, especially as she's apparently 'engaged' to one of them. :lol:


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BuyerBeware
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25 Jan 2013, 9:58 am

I'm not sure about my DD3 yet, but I'm a 35-year-old aspie girl (will always be a girl despite having a hubby and a house to keep and 4 kids and grown-up worries).

Bit of advice on the sleepover thing-- I had lots of them even though I had few friends. At my height I think there were four girls I talked to, two that were close enough to sleep over, and it seemed like every other Friday night one of us was at the other one's house.

Cousins are a good bet. Kids of friends are a good bet too-- you can blow up an air mattress or make up the couch (or let the kids camp on the couch) and have the child's parent sleep over too. Grownups enjoy sleepovers sometimes as much as the kids-- I know a friend of mine and I do it about four times a year and I do it once or twice a year with my cousins and their kids and everyone always has a blast. The kids fight-- but kids fight. Fighting is part of learning social skills really.

Then there's another adult around if things go sour, kids have an escape route as last resort, there is no who-said-what-to-whom. It has been a great learning experience for my kids and the friends' and relatives' kids involved.

Even if one of the things they've learned is that sleepovers are good, and the end of a sleepover is also good. Fish and houseguests both start to stink in short order!


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Mama_to_Grace
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25 Jan 2013, 11:54 am

My best friend has a daughter 2.5 months younger than my daughter (they are 9). When they come to visit it is sort of a "sleepover". My daughter gets excited about sleeping with someone but then at bedtime she's "had enough" and goes off alone to sleep and leaves the other girl by herself. :lol:



InThisTogether
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26 Jan 2013, 10:06 pm

I am a mom to a 7 year old girl who...huh...I guess we're back to high functioning autism now? She was originally diagnosed with autism, was then considered HFA, which eventually changed to PDD-NOS, and now I think we are back to high functioning autism??? At any rate, she is definitely a girl on the spectrum and I would say she looks more like a mild aspie than anything else.

Welcome!


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