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MasonJar
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07 Sep 2007, 11:31 pm

Those who care, don't matter. Those who matter, don't care.



jaleb
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07 Sep 2007, 11:37 pm

I guess I am the exception then because other parents are very supportive to me, especially the parents of kids on his soccer team, they all give my son extra encouragment also.


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"Be kinder than necessary,
for everyone you meet is
fighting some kind of battle".


Smelena
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08 Sep 2007, 1:28 am

MasonJar wrote:
Those who care, don't matter. Those who matter, don't care.


I love this quote MasonJar! I'm going to write it in my journal.

Helen



schleppenheimer
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09 Sep 2007, 7:41 pm

Quote:
Those who care, don't matter. Those who matter, don't care.


I love this too -- I've got to remember this!

Kris



Corsarzs
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16 Sep 2007, 11:17 am

jaleb wrote:
I guess I am the exception then because other parents are very supportive to me, especially the parents of kids on his soccer team, they all give my son extra encouragment also.


Jaleb, this is great to hear. Makes me curious though.
Z's psychologist recommended that we not put him in teamsports because of his difficulty with interacting well with groups of people. How does this compare with your son and how does he handle being partly responcible for the team's "success or failure"?

Smelena, I just noticed your new rank since I got back, "Cure Neurotypicals Now". I LOVE IT!


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jaleb
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16 Sep 2007, 10:12 pm

Corsarzs wrote:
jaleb wrote:
I guess I am the exception then because other parents are very supportive to me, especially the parents of kids on his soccer team, they all give my son extra encouragment also.


Jaleb, this is great to hear. Makes me curious though.
Z's psychologist recommended that we not put him in teamsports because of his difficulty with interacting well with groups of people. How does this compare with your son and how does he handle being partly responcible for the team's "success or failure"?

Smelena, I just noticed your new rank since I got back, "Cure Neurotypicals Now". I LOVE IT!


well, we thought about that too, which is why we chose soccer as opposed to baseball where he would have to catch (can't do) throw (can't do) or hit (no way he can do). And the league he is on tries to assign kids that are in the same grade and school so that they are familiar with him. My son likes other kids, he just doesn't know how to socialize, so things like this are really good practice for him. There is one kid on his team who tells him Hi everytime they see each other at lunch at school. They don't really seem bothered that he isn't the best player on the team, they are just happy to play themselves. And all the parents encourage all the kids, I know a few know about his AS, I don't know if they all do, we don't keep it a secret, but we don't advertise it either. The coach and assistant coach knows, so whoever their wives told also knows!. My son doesn't see himself as a failure though, I also do things like I take lots and lots of pictures of him, and when I upload them I show him all his kicks and he loves this. But like I said before, we are really really lucky, we live in a good town with mostly good people, and we also have an autism program here at the local university so he gets lots of social skills training and gets to be with other kids that are like him.


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"Be kinder than necessary,
for everyone you meet is
fighting some kind of battle".


Lainie
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18 Sep 2007, 12:16 am

Hi, I have one child who has Austisic Disorder (on the high functioning side) and another who has Severe Tourettes.

I even have a 20 yr old who was dx-d with ADHD and Borderline Personality Disorder at the age of 5. With her thou I think she was mis dx-d and actually has Aspergers.

Anyway I have spent years with judgemental people. The only thing I can do is walk away and ignore ignore ignore. I stick close to the ones that understand. My neighbor is so great, she's an aide to more severly autistic children in an inclusion class, so when my boys acts up, she just ignores. Especially my Tourettes guy, who can often have a belching tic. Most people look at me in disgust because I just let him go with it. But not her, she's great!

It's hard, but you know you will be stronger if you realize your child comes first. (pls don't misunderstand what I said, because I know you do put your child first) but you have to stop and think that way, and then it won't bother you so much.

Big hugs! I know it's hard. It's the parent in us and is so natural because what other people think makes us feel like bad parents. You can't fall into that trap.

Lainie



Chammes
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25 Sep 2007, 1:38 am

Oh what I wouldn't have done to have had this "card" when Daniel was 5 through 8. Now that he's 11, his public outbursts are fewer...but here's a piece of advice for you.

Through MAAP Services (Serving families of More Advanced Individuals with Autism, Asperger Syndrome, and PDD/NOS), I ordered these cards that I can give to people witnessing a meltdown.

It says "You are observing the "meltdown" or tantrum of an individual with Autism or Asperger Syndrome. You may observe shouting, cursing, a repetitive verbal argument or phrase, or some other form of inappropriate behavior. We are doing our best to handle this situation in a manner we know will have the most chance at success. Please do not stare, comment, or interfere unless we request help. If you have further questions about Autism or Asperger Syndrome, please contact the agency printed on the other side of this card. Thank you for your cooperation." On the flip side, it gives the ph# and address of MAAP..

Cool, huh? :o) :D

Connie



siuan
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25 Sep 2007, 6:34 pm

BugsMom wrote:
ChristiansDad wrote:
Thanks for the words of encouragement. My son right now is going to regular Kindergarden. Our services here in PA are really good.

I have learned that to have a son with AS, us as parents, have to grow thick skin. They way I see it, my son is not different, he just thinks different. :D


I'm in PA too and I agree, we are a great state where autism/Asperger's is concerned :).


I disagree. PA locked me up as a teen because I missed school due to bullying. They labeled me truant and problematic and I came out of detention 6 months later with a case of PTSD that gives me nightmares to this day - 14 years later.


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ChristiansDad
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02 Oct 2007, 12:02 pm

That is real unfortunate of what happened to you siuan here in PA. But those were different times, 20 years ago, no one even know what AS was. Now, it is more common and school districts are taking a more proactive stance on kids and Bullying.