RE: Kids w/ Classic Autism, PDD-NOS & Speech Delays

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Washi
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12 Mar 2012, 6:34 pm

Wreck-Gar wrote:
Hi everyone. Haven't posted in a while...haven't had time.

My son has been improving more. He will now sit and listen when I read him a book (instead of grabbing it out of my hands) and even pretends to read books by himself.

He also said "I love you" to the cat!

We are still in the process of getting him evaluated at school.


That's good to hear. My son can be very uncooperative when it comes to books if I want to read him something new, but if he picks the book out himself and I adhere to his micromanagement of the book reading (he wants to turn the pages or expects me to read in a certain voice etc.) it goes well.



Washi
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12 Mar 2012, 6:47 pm

blondeambition wrote:
On another note, my sister's baby son just turned 6 months old. He is not sitting up, talking, babbling, or crawling yet, so I'm a bit worried. The family history on her husband's side of the family also isn't too great. Her baby (who was born full-term and a healthy weight) was in the intensive care unit of the hospital for ten days after birth for failure to eat (couldn't figure out how to latch onto bottle or nipple and wouldn't eat enough). However, he has not been diagnosed with anything.


I recently reconnected with a childhood friend and found that she has a son close in age to my own who has a lot of my son's behaviors albeit to a lesser degree, but still profound enough to require special ed., I visited them and the similarities were unmistakable. She has another younger son who is starting to miss milestones too.



nostromo
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13 Mar 2012, 2:47 am

Couldn't help it, my son was going Waaaah waaah wah wah, about not getting something he wanted and so I started to imitate him, then our daughter joined in, and all three of us were going waaahh wahhhh, but he was alternating with giggling at us, then back to frowning and going waahh wahh again :lol:
Its a bit of a new thing, he's largely progressed to grizzling as a complaint instead of hitting himself in the head so I see it as a big positive.



Washi
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13 Mar 2012, 3:44 am

nostromo wrote:
Couldn't help it, my son was going Waaaah waaah wah wah, about not getting something he wanted and so I started to imitate him, then our daughter joined in, and all three of us were going waaahh wahhhh, but he was alternating with giggling at us, then back to frowning and going waahh wahh again :lol:
Its a bit of a new thing, he's largely progressed to grizzling as a complaint instead of hitting himself in the head so I see it as a big positive.


We do that too. :) Mine will also dramatically say "Bad day!" any time he's not happy with something as if any little thing could ruin his whole day. I have no idea where he got it from.



Wreck-Gar
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13 Mar 2012, 9:10 am

nostromo wrote:
Couldn't help it, my son was going Waaaah waaah wah wah, about not getting something he wanted and so I started to imitate him, then our daughter joined in, and all three of us were going waaahh wahhhh, but he was alternating with giggling at us, then back to frowning and going waahh wahh again :lol:
Its a bit of a new thing, he's largely progressed to grizzling as a complaint instead of hitting himself in the head so I see it as a big positive.


I've done this with my son too. At least it's a form of interaction.



Wreck-Gar
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13 Mar 2012, 9:20 am

Washi wrote:
We do that too. :) Mine will also dramatically say "Bad day!" any time he's not happy with something as if any little thing could ruin his whole day. I have no idea where he got it from.


Mine says "Number eight!" when he's upset. He's got his own code for a lot of things. "Number seven" means he wants to go out, and "E" (sometimes accompanied by a sign language letter e) means he's hungry.



Wreck-Gar
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13 Mar 2012, 9:25 am

blondeambition wrote:
On another note, my sister's baby son just turned 6 months old. He is not sitting up, talking, babbling, or crawling yet, so I'm a bit worried. The family history on her husband's side of the family also isn't too great. Her baby (who was born full-term and a healthy weight) was in the intensive care unit of the hospital for ten days after birth for failure to eat (couldn't figure out how to latch onto bottle or nipple and wouldn't eat enough). However, he has not been diagnosed with anything.


I have a cousing that was like this at that age. It turned out she had severe brain damage caused by oxygen deprivation at birth. She never learned to walk, talk, feed herself, etc. Very sad situation.



Washi
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13 Mar 2012, 11:55 am

Wreck-Gar wrote:
Washi wrote:
We do that too. :) Mine will also dramatically say "Bad day!" any time he's not happy with something as if any little thing could ruin his whole day. I have no idea where he got it from.


Mine says "Number eight!" when he's upset. He's got his own code for a lot of things. "Number seven" means he wants to go out, and "E" (sometimes accompanied by a sign language letter e) means he's hungry.


That's funny. It reminds me of a time when my son was about two, he'd pull every crayon out of the tin (hundreds of them) and yell "EIGHTEEN!" at me until I'd say what color it was. He doesn't do that anymore. He did have me worried a few months ago when he started saying "Brassiere!", he was very insistent ... I was afraid maybe he'd gotten on YouTube unsupervised and memorized a bra commercial or worse. It took about a week but I finally figured out that "Brassiere" is actually supposed to be "Buzz Lightyear" - all that time he'd been asking to watch Toy Story or for me to get his Buzz Lightyear toy for him, etc. He still calls him Brassiere.



Wreck-Gar
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13 Mar 2012, 12:28 pm

Washi wrote:
That's funny. It reminds me of a time when my son was about two, he'd pull every crayon out of the tin (hundreds of them) and yell "EIGHTEEN!" at me until I'd say what color it was. He doesn't do that anymore. He did have me worried a few months ago when he started saying "Brassiere!", he was very insistent ... I was afraid maybe he'd gotten on YouTube unsupervised and memorized a bra commercial or worse. It took about a week but I finally figured out that "Brassiere" is actually supposed to be "Buzz Lightyear" - all that time he'd been asking to watch Toy Story or for me to get his Buzz Lightyear toy for him, etc. He still calls him Brassiere.


Hmmm. Do you think you can get him to try to pronounce it correctly?

As for my son, with the books, I am glad he is finally getting interested in something besides numbers.



Washi
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13 Mar 2012, 1:38 pm

Wreck-Gar wrote:
Washi wrote:
That's funny. It reminds me of a time when my son was about two, he'd pull every crayon out of the tin (hundreds of them) and yell "EIGHTEEN!" at me until I'd say what color it was. He doesn't do that anymore. He did have me worried a few months ago when he started saying "Brassiere!", he was very insistent ... I was afraid maybe he'd gotten on YouTube unsupervised and memorized a bra commercial or worse. It took about a week but I finally figured out that "Brassiere" is actually supposed to be "Buzz Lightyear" - all that time he'd been asking to watch Toy Story or for me to get his Buzz Lightyear toy for him, etc. He still calls him Brassiere.


Hmmm. Do you think you can get him to try to pronounce it correctly?

As for my son, with the books, I am glad he is finally getting interested in something besides numbers.


I probably could get him to say it right with a little work. He usually has good pronunciation for individual words. When he's talking in sentences though it's mostly incomprehensible jargon.



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15 Mar 2012, 4:26 pm

Wreck-Gar wrote:
blondeambition wrote:
On another note, my sister's baby son just turned 6 months old. He is not sitting up, talking, babbling, or crawling yet, so I'm a bit worried. The family history on her husband's side of the family also isn't too great. Her baby (who was born full-term and a healthy weight) was in the intensive care unit of the hospital for ten days after birth for failure to eat (couldn't figure out how to latch onto bottle or nipple and wouldn't eat enough). However, he has not been diagnosed with anything.


I have a cousing that was like this at that age. It turned out she had severe brain damage caused by oxygen deprivation at birth. She never learned to walk, talk, feed herself, etc. Very sad situation.

This is interesting, my son 'failed to thrive' as they term it when he was born, we ended up seeing paediatricians and also going to the hospital, and looking back we realise he couldn't work out how to breast feed very well, so had to be taught what to do with a lot of help from midwives (my wife had breastfeed our other child before so no problems there).
Once he 'got it' he was good, and made the usual milestones pretty much normally until 2 when his lack of language, pointing and apparent deafness became worrying.
He had no particular problems during delivery, Apgar was good, weight good.

My wife had a bad pregnancy though, lost 10Kg, hospitalised for Hyperemesis, tube fed for 3 weeks etc. I often wonder if her starvation had anything to do with his outcome :(



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15 Mar 2012, 5:34 pm

nostromo wrote:
Wreck-Gar wrote:
blondeambition wrote:
On another note, my sister's baby son just turned 6 months old. He is not sitting up, talking, babbling, or crawling yet, so I'm a bit worried. The family history on her husband's side of the family also isn't too great. Her baby (who was born full-term and a healthy weight) was in the intensive care unit of the hospital for ten days after birth for failure to eat (couldn't figure out how to latch onto bottle or nipple and wouldn't eat enough). However, he has not been diagnosed with anything.


I have a cousing that was like this at that age. It turned out she had severe brain damage caused by oxygen deprivation at birth. She never learned to walk, talk, feed herself, etc. Very sad situation.

This is interesting, my son 'failed to thrive' as they term it when he was born, we ended up seeing paediatricians and also going to the hospital, and looking back we realise he couldn't work out how to breast feed very well, so had to be taught what to do with a lot of help from midwives (my wife had breastfeed our other child before so no problems there).
Once he 'got it' he was good, and made the usual milestones pretty much normally until 2 when his lack of language, pointing and apparent deafness became worrying.
He had no particular problems during delivery, Apgar was good, weight good.

My wife had a bad pregnancy though, lost 10Kg, hospitalised for Hyperemesis, tube fed for 3 weeks etc. I often wonder if her starvation had anything to do with his outcome :(


My own kids didn't have any problems feeding, so I was super surprised about my nephew. After reading about it, I learned that his feeding problems could be associated with classic autism, mental retardation, other serious neurological issues, or something wrong with his tongue. I've been worried for a while about him.


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Washi
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15 Mar 2012, 6:42 pm

blondeambition wrote:
I learned that his feeding problems could be associated with classic autism, mental retardation, other serious neurological issues, or something wrong with his tongue. I've been worried for a while about him.


I was "tongue-tied", so was my son and his paternal grandfather. It definitely made breast feeding my son difficult, in spite of the condition being obvious none of the doctors or lactation consultants recognized it in the hospital where it should have been fixed. But since I identified it myself after we got home it was up to me to find an ENT specialist to fix it, and none of them wanted to do it. It took me months to find one willing to do it. Breastfeeding him was blindingly painful so I had to pump for months before I found a doctor willing to fix his tongue (most of them would rather I fed him formula than make a baby cry for 5 minutes, the procedure is about as complicated as piercing an ear). I was very stubborn and diligent about feeding him or else he may have had failure to thrive problems as well, I don't think he could keep down most formula very well.



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21 Mar 2012, 7:04 am

http://www.babybumblebee.com/I_landings/Austim_PDD.cfm

I just ordered some new Vocabulary Builder DVDs for my nephew from BabyBumbleBee.com. (Actually, I got them off of Amazon.com, but they were made by BabyBumbleBee.com). I had used the video tapes with my older son with classic autism with success, but I don't have all of them anymore, and I can't get my family to hook up a VCR to their TV anyway.

The new ones now offer Spanish, French, German, Japanese, and sign language options. Just buy a newer copy that is described as "multilingual" if you want languages other than English. I thought that the additional language options were great and that some people out there with kids with classic autism might want to know about this.


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22 Mar 2012, 12:43 pm

Washi wrote:
That's funny. It reminds me of a time when my son was about two, he'd pull every crayon out of the tin (hundreds of them) and yell "EIGHTEEN!" at me until I'd say what color it was. He doesn't do that anymore. He did have me worried a few months ago when he started saying "Brassiere!", he was very insistent ... I was afraid maybe he'd gotten on YouTube unsupervised and memorized a bra commercial or worse. It took about a week but I finally figured out that "Brassiere" is actually supposed to be "Buzz Lightyear" - all that time he'd been asking to watch Toy Story or for me to get his Buzz Lightyear toy for him, etc. He still calls him Brassiere.


My X's nephew could not say T and he would say something that sounded more like an F and his parents thought it was funny to make him say "truck" or "trucker" 8O
My daughters new thing is to scream that her leg hurts whenever she is upset about anything.



Washi
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22 Mar 2012, 12:48 pm

liloleme wrote:
Washi wrote:
That's funny. It reminds me of a time when my son was about two, he'd pull every crayon out of the tin (hundreds of them) and yell "EIGHTEEN!" at me until I'd say what color it was. He doesn't do that anymore. He did have me worried a few months ago when he started saying "Brassiere!", he was very insistent ... I was afraid maybe he'd gotten on YouTube unsupervised and memorized a bra commercial or worse. It took about a week but I finally figured out that "Brassiere" is actually supposed to be "Buzz Lightyear" - all that time he'd been asking to watch Toy Story or for me to get his Buzz Lightyear toy for him, etc. He still calls him Brassiere.


My X's nephew could not say T and he would say something that sounded more like an F and his parents thought it was funny to make him say "truck" or "trucker" 8O
My daughters new thing is to scream that her leg hurts whenever she is upset about anything.


My son likes the kid's show the Electric Company and his new random thing is to yell "HEY YOU GUYS!" (from the them song) when he is upset.