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RE: Kids w/ Classic Autism, PDD-NOS & Speech Delays

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Washi
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17 May 2012, 1:12 pm

We have a Strider Running bike, I haven't worked on teaching my son how to use it in a long time he always runs off and leaves me with the bike too!



nostromo
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17 May 2012, 3:32 pm

When my son was 3 he hopped on it and became obsessed, and rode it around the house and I would take him out to the park and he would ride it down slopes and all over the place. Now hes not interested but it doesn't concern me because he developed very good balance in that time and as they say you never forget how to ride a bicycle..keen to get him riding a proper bike one day.



Washi
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17 May 2012, 3:50 pm

Me too, he doesn't have the attention span for it though. I've had little luck keeping him on a tricycle too.



Wreck-Gar
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17 May 2012, 6:52 pm

My son has never really been very interested in ride-on toys. He tries them but doesn't really understand how to make them go.



OliveOilMom
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17 May 2012, 6:57 pm

nostromo wrote:
When my son was 3 he hopped on it and became obsessed, and rode it around the house and I would take him out to the park and he would ride it down slopes and all over the place. Now hes not interested but it doesn't concern me because he developed very good balance in that time and as they say you never forget how to ride a bicycle..keen to get him riding a proper bike one day.


Oh yes you do forget how to ride one! I was about 16 or 17 when I learned to ride on two wheels. I rode one for fun for years, until I was about 22. I didn't try again until a few years ago and I couldn't do it for anything. I had to learn all over and I'm nowhere near as good on one as I used to be and my balance is still horrible. However, I'm also 48.


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Washi
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26 May 2012, 3:29 pm

Anyone else's kid sleepwalk and talk? My son used to have night terrors which were similar in a way but hasn't had one in a long time. He stayed up much too late last last night and was roused when his Dad went to use the bathroom after about 5 hours sleep ... he "woke up" and when his Dad went to check on him he wanted him to get out of his room (not in character for him) and wanted me, when I went in he started screaming for an iced tea so we went downstairs together and I poured him an iced tea (he didn't drink it) he then got upset because he saw "Jokey" "Jokey, Jokey, he's right there!" (apparently Jokey Smurf, I asked) and was very upset that I didn't see him too so I played along and said I saw him which calmed him down a little - then he said he wanted coffee (I tried to humor him by pouring a glass of water from the coffee pot) ... this went on for a while, I finally got him back to sleep and he's his usual self now.... I hope this was just a fluke and not a new "thing".



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26 May 2012, 7:53 pm

Washi wrote:
Anyone else's kid sleepwalk and talk? My son used to have night terrors which were similar in a way but hasn't had one in a long time. He stayed up much too late last last night and was roused when his Dad went to use the bathroom after about 5 hours sleep ... he "woke up" and when his Dad went to check on him he wanted him to get out of his room (not in character for him) and wanted me, when I went in he started screaming for an iced tea so we went downstairs together and I poured him an iced tea (he didn't drink it) he then got upset because he saw "Jokey" "Jokey, Jokey, he's right there!" (apparently Jokey Smurf, I asked) and was very upset that I didn't see him too so I played along and said I saw him which calmed him down a little - then he said he wanted coffee (I tried to humor him by pouring a glass of water from the coffee pot) ... this went on for a while, I finally got him back to sleep and he's his usual self now.... I hope this was just a fluke and not a new "thing".


My son doesn't sleepwalk but he's had night terrors a few times...it's like he is totally unaware of his surroundings or anyone around him at all when this happens.



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26 May 2012, 10:13 pm

Washi wrote:
Anyone else's kid sleepwalk and talk?


Just watched a video on autism and brain convulsion/discharge. Interestingly many children (autistic and non-autstic) experience brain discharge at night resulting in motor neuron firing and erratic movement out of bed. Bit of a stretch to connect it to sleepwalking but there may be a connection.

My sister was a compulsive sleepwalker and occasionally (at the age of 8-11) used to unlock the door and walk outside. We occasionally had to search for her in the park nearby.



Washi
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26 May 2012, 10:46 pm

cyberdad wrote:
My sister was a compulsive sleepwalker and occasionally (at the age of 8-11) used to unlock the door and walk outside. We occasionally had to search for her in the park nearby.


That's a terrifying thought. Come to think of it I've heard stories that one of my brothers was a sleep walker too. My partner sleep talks and will sit up and talk in his sleep but he thankfully doesn't get out of the bed and walk around.



Washi
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27 May 2012, 1:44 am

Wreck-Gar wrote:

My son doesn't sleepwalk but he's had night terrors a few times...it's like he is totally unaware of his surroundings or anyone around him at all when this happens.


When my son had his night terrors he would get up and stumble around, he'd look right through me and scream at things that weren't there ... but with this sleep walking thing he was a bit more conscious (although he was still irrational and seeing things from his dream. He had night terrors when he was a baby too, it was difficult but if I could get him to latch I could coax him out of it by nursing ... his Dad called 911 during one of those episodes, he didn't understand when I said it was a night terror and wanted a professional opinion, I of course had calmed him by the time they got there and they found nothing wrong. We also told the pediatrician who was completely dismissive of any problem we ever had.... From what I've read they're indistinguishable from nocturnal seizures.



Wreck-Gar
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27 May 2012, 6:47 am

Washi wrote:
Wreck-Gar wrote:

My son doesn't sleepwalk but he's had night terrors a few times...it's like he is totally unaware of his surroundings or anyone around him at all when this happens.


When my son had his night terrors he would get up and stumble around, he'd look right through me and scream at things that weren't there ... but with this sleep walking thing he was a bit more conscious (although he was still irrational and seeing things from his dream. He had night terrors when he was a baby too, it was difficult but if I could get him to latch I could coax him out of it by nursing ... his Dad called 911 during one of those episodes, he didn't understand when I said it was a night terror and wanted a professional opinion, I of course had calmed him by the time they got there and they found nothing wrong. We also told the pediatrician who was completely dismissive of any problem we ever had.... From what I've read they're indistinguishable from nocturnal seizures.


Sounds like the night terrors my son was having. He had them a lot around the time kid #2 was born. I don't think he's had one for a while.



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28 May 2012, 9:02 am

My son is saying "Ipad is awesome" now (they use it at his school) so I guess I have to get one...I've been avoiding Ipad because I'm not a huge apple fan...are the apps people use for autistic kids available for any other tablet platforms or will I have to cave to the late Steve Jobs?



Washi
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28 May 2012, 3:12 pm

Wreck-Gar wrote:
My son is saying "Ipad is awesome" now (they use it at his school) so I guess I have to get one...I've been avoiding Ipad because I'm not a huge apple fan...are the apps people use for autistic kids available for any other tablet platforms or will I have to cave to the late Steve Jobs?


I think some are and some aren't and either way you go there's going to be be pluses and minuses that leave you wishing for features of one or the other. I love the ipad but I wish the parental controls were better. Last night I disconnected the internet on the ipad and locked YouTube ... my son would need to know a four digit pin to unlock the youtube but I sat and watched him go into settings, turn the wireless back on and connect to our wi-fi signal, he then proceeded to bring up another window and tried to search for "yoo,,,,,,,tob" .... he was trying to spell out YouTube! And apparently he tried so many failed log-ins that our account got locked. Given the choice I'd still want the ipad though.



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28 May 2012, 4:16 pm

Washi wrote:
Wreck-Gar wrote:
My son is saying "Ipad is awesome" now (they use it at his school) so I guess I have to get one...I've been avoiding Ipad because I'm not a huge apple fan...are the apps people use for autistic kids available for any other tablet platforms or will I have to cave to the late Steve Jobs?


I think some are and some aren't and either way you go there's going to be be pluses and minuses that leave you wishing for features of one or the other. I love the ipad but I wish the parental controls were better. Last night I disconnected the internet on the ipad and locked YouTube ... my son would need to know a four digit pin to unlock the youtube but I sat and watched him go into settings, turn the wireless back on and connect to our wi-fi signal, he then proceeded to bring up another window and tried to search for "yoo,,,,,,,tob" .... he was trying to spell out YouTube! And apparently he tried so many failed log-ins that our account got locked. Given the choice I'd still want the ipad though.


Hmm. My son at this point can only use the power button and the space bar...still probably won't get anything for a while because we are putting a lot of money into the house we just bought. Ended up getting the cheapest house in a "good" school district which means lots of work needs to be done!



Washi
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28 May 2012, 7:56 pm

Wreck-Gar wrote:
Washi wrote:
Wreck-Gar wrote:
My son is saying "Ipad is awesome" now (they use it at his school) so I guess I have to get one...I've been avoiding Ipad because I'm not a huge apple fan...are the apps people use for autistic kids available for any other tablet platforms or will I have to cave to the late Steve Jobs?


I think some are and some aren't and either way you go there's going to be be pluses and minuses that leave you wishing for features of one or the other. I love the ipad but I wish the parental controls were better. Last night I disconnected the internet on the ipad and locked YouTube ... my son would need to know a four digit pin to unlock the youtube but I sat and watched him go into settings, turn the wireless back on and connect to our wi-fi signal, he then proceeded to bring up another window and tried to search for "yoo,,,,,,,tob" .... he was trying to spell out YouTube! And apparently he tried so many failed log-ins that our account got locked. Given the choice I'd still want the ipad though.


Hmm. My son at this point can only use the power button and the space bar...still probably won't get anything for a while because we are putting a lot of money into the house we just bought. Ended up getting the cheapest house in a "good" school district which means lots of work needs to be done!


Now that you're back in the US you may want to see if he qualifies for SSDI, that's how we were able to pay for ours.



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28 May 2012, 10:51 pm

Washi wrote:
Wreck-Gar wrote:
Washi wrote:
Wreck-Gar wrote:
My son is saying "Ipad is awesome" now (they use it at his school) so I guess I have to get one...I've been avoiding Ipad because I'm not a huge apple fan...are the apps people use for autistic kids available for any other tablet platforms or will I have to cave to the late Steve Jobs?


I think some are and some aren't and either way you go there's going to be be pluses and minuses that leave you wishing for features of one or the other. I love the ipad but I wish the parental controls were better. Last night I disconnected the internet on the ipad and locked YouTube ... my son would need to know a four digit pin to unlock the youtube but I sat and watched him go into settings, turn the wireless back on and connect to our wi-fi signal, he then proceeded to bring up another window and tried to search for "yoo,,,,,,,tob" .... he was trying to spell out YouTube! And apparently he tried so many failed log-ins that our account got locked. Given the choice I'd still want the ipad though.


Hmm. My son at this point can only use the power button and the space bar...still probably won't get anything for a while because we are putting a lot of money into the house we just bought. Ended up getting the cheapest house in a "good" school district which means lots of work needs to be done!


Now that you're back in the US you may want to see if he qualifies for SSDI, that's how we were able to pay for ours.


Thanks, I will look into it. Might not need it because we are in MA and we have Mass Health here.

Right now I am looking into IPAD grants for kids with autism. His ABA instructor recommended it.