RE: Kids w/ Classic Autism, PDD-NOS & Speech Delays
I had another doozy last night. On call and I got called out, so I am trying to fix a hospitals phone system remotely on a small sluggish computer and my kids are playing merry hell (my wife was out at an Autism support meeting thing). My son runs past while I'm on the phone and his diaper falls off and he doesn't miss a beat and just keeps running around. Then he's trying to get into bed with me for a cuddle while I'm on the computer, pushing buttons and climbing over me and being noisy as usual..
I want to get one of those canister airhorns so when they won't wake up in the morning because they've stayed up rioting there is some payback to be had
I've had similar fantasies. My son is running around naked from the bottom down at this very moment. Every day all through out the day he's constantly undressing, this has been going on for months on end. He's chanting right now, "no more pants, no more pants" and I think he does it in part just to get a rise out of me.. It can take a ridiculous amount of time just to get him out of the house, it's a major problem. There's a new free Toca Boca app btw, "Toca Tailor Fairy Tales".
I've had similar fantasies. My son is running around naked from the bottom down at this very moment. Every day all through out the day he's constantly undressing, this has been going on for months on end. He's chanting right now, "no more pants, no more pants" and I think he does it in part just to get a rise out of me.. It can take a ridiculous amount of time just to get him out of the house, it's a major problem. There's a new free Toca Boca app btw, "Toca Tailor Fairy Tales".
My son has started doing this but it's related to feeling uncomfortable. If his diaper is dirty he goes up in his room and takes is pants and diaper off. He only does it up there, not in public. If he's really quiet up there we need to go check and make sure he won't make, um, a mess!
I've had similar fantasies. My son is running around naked from the bottom down at this very moment. Every day all through out the day he's constantly undressing, this has been going on for months on end. He's chanting right now, "no more pants, no more pants" and I think he does it in part just to get a rise out of me.. It can take a ridiculous amount of time just to get him out of the house, it's a major problem. There's a new free Toca Boca app btw, "Toca Tailor Fairy Tales".
My son has started doing this but it's related to feeling uncomfortable. If his diaper is dirty he goes up in his room and takes is pants and diaper off. He only does it up there, not in public. If he's really quiet up there we need to go check and make sure he won't make, um, a mess!
Mine doesn't take his clothes off when we're out in public but will anywhere in the house and try to answer and walk out the door that way even if it's freezing out. I'm constantly chasing him away from the front window.
btbnnyr
Veteran
Joined: 18 May 2011
Gender: Female
Posts: 7,359
Location: Lost Angleles Carmen Santiago
Yes, I was not fooled by that cat pic!
I spent a year in preschool from three to four, and all I did all year was walk around in a small circle doing nothing. The teachers thought that I was ret*d until they noticed that I knew how to read and write words and numbers. I used to do this similar behavior to your son of writing or drawing the same things all the time. It was fun and all about making the marks repetitively instead of comprehending or communicating anything. But it was really enjoyable. All of my reading and writing of single words was a giant repetitive sensory-seeking activity for about six years, but they also set the foundation for me learning to use these words later.
He is 4 1/2 and in a special needs preschool. They do have group activities but a lot of it is one-on-one. They bring him to a cubby hole to do the one-on-one stuff.
He loves writing numbers 1-100, over and over. He even makes his own fonts. If he has nothing to write on, he traces the numbers in the air with his finger. He likes letters (and sign language) too, lately he's been getting into the letters more. School wants him to do PECS but I am not convinced this is going to help. He had these at a previous school and they just ended up a big mess on the floor.
As for sensory stuff his big issue is tactile. He likes to be in motion. Loves cars, trains, etc. We got him a beanbag chair, rocking chair, yoga ball at the suggestion of the school and he loves these. Also loves jumping on the bed. Sometimes I wonder if his focus on all this sensory stuff is distracting him from learning communication. At least the school is not saying he is ret*d. They said that at this stage he can't be tested. Though honestly I have this fear of him being 35 years old and still doing nothing but writing #'s up to 100 over and over.
I actually used to teach English as a Second Langage, and we are showing him playlists on Youtube for ESL students. He seems to like these. Most kids would think they are totally boring.
I remember what you said about seeing characters talking in a book with the word balloons, comic book style. The Mrs and I are working on some vidoes based on this idea (idear). I will post them here once they are done.
Qoool, I hope these work well for him. It sounds like he likes videos.
I don't really like PECS as a long-term communication system. I prefer that autistic kids be taught real language. PECS seems even harder to learn from the perspective of an autistic kid than typing words and phrases. There are so many symbols of dubious communicative quality. The kind of PECS that I really don't like is where you have a sentence with like 10 words, and there is a picture for each word in the sentence, including words like "the" and "this" and "it". This is complicated and nonsensical. What is needed is a picture that shows the meaning of the whole sentence, so kids can get the meaning of the whole rather than processing at the single word level. Otherwise, there is no comprehension, just a bunch of ugly cluttered pictures that are not particularly good representations of the words. Who drew those pictures anyway? They are bad. IMO, PECS is OK for communicating basic needs, but it is not a good substitute for real language development, whether speaking or typing. I didn't have access to PECS when I was little, but I think that my use of PECS would have involved throwing them away because the pictures were ugly or melting down because the pictures were ugly. I don't think that I could have done my default activity with them (arranging the cards in lines and grids) because the pictures were too ugly for me to be able to do that. Turning hte cards over wouldn't have worked, because I would have known that the pictures were still there, being ugly on the other side.
As for writing 1 to 100 over and over and over, autistic RRBs can be useful sometimes. Next week, I get to make 720 pictures of clocks for each minute of the 12 hour cycle to teach autistic kids how to tell time. No one else could stand the idear of doing this, so I volunteered and eggspect it to be a verry merry berry fun activity. Repetitive activities are just so fun. I love them so much.
We use PECS and they are all either actual pictures of the objects or activities or they are representative drawings. But yeah moving from that stage (which is really useful for us and our son) to that whole sentence building thing..looks a long and painful road.
The number of pictures is bad enough now!
btbnnyr
Veteran
Joined: 18 May 2011
Gender: Female
Posts: 7,359
Location: Lost Angleles Carmen Santiago
The picture cards have words on them too, but the one-word-one-picture format keeps autistic kids stuck at the single word level instead of getting them to move up to one-sentence-one-picture for more advanced comprehension.
Some therapists stick to PECS and believe in PECS so much that they don't consider teaching kids to read and type words.
My daughter is verbal but one teacher used PECS anyway to help her identify emotions. I was shocked at how ambiguous the symbols are. They are poorly made and ambiguous cartoons of a man expressing different emotions.
One day my daughter pulled a packet of these cards out of her backpack and shuffled through them. She came to one card and stared at it very hard. She stared and stared and stared at it intently. I asked her what she was doing. She said she was trying to make steam come out of her ears like the man in the picture. She showed me the picture and it was of a man with steam coming out of his ears looking angry. I know that "steaming mad" is a metaphor often expressed in cartoon form as steam coming out of the ears. But it seems foolish and without real thought to hand a picture of a metaphor to an autistic child and expect them to understand what it means. Unsurprisingly, my daughter took it literally.
We make our own using pictures that we take of things or places or get off of online grocery shopping sites. We paste the images onto an MS Word table, print out using colour inkjet, cut out into individual squares, laminate, cut out again, then stick velcro on the back of all the little cards.
Posted: Sat Dec 15, 2012 8:43 am Post subject: My newly diagnosed 2 year old son
Hi. I'm new to this forum and also new to the world of Autism. I have 2 year old boy /girl twins, my daughter is typically developing (though she has a few mild sensory issues) and my son was just diagnosed with autism in November. The thing is, I'm having a hell of a time finding much information that seems to really relate to my son. What I mean is I find loads of accounts of children that are severely autistic, a good amount of info about aspergers, but not much about children diagnosed with autism on the mild end of the spectrum. I'll paint a quick picture of my son: he is nonverbal, he does babble a good deal and has various noises he makes for excitement or irritation but no real words. His stimming behaviors are some spinning and clapping, though he doesn't stim often. He is very social, and if someone new comes over he quickly warms up to them, but if we're out and someone corners him (like if he's in his stroller and buckled in) he doesn't like it and turns away. He has great eye contact and smiles a ton. His biggest challenges besides speech are calming down from a tantrum, and attention span. He has a very hard time sitting still. When we had him evaluated the therapists recommended 35 hours a week of ABA therapy. After speaking with them a bit more I learned that this would mean he'd be largely separated from his sister and me for much of the week. I can't even fathom how this would work, since as twins, he and his sister do everything together. Even his speech and occupational therapy, which he has once weekly, incorporate her. My husband and I want to do what's best for him but we're wondering if this amount of ABA might be overkill? We have found a preschool that is run by a speech pathologist and has a mix of typically developing and special needs kids, and we're thinking of enrolling both kids 3 days a week. Would that, coupled with speech and OT be enough or is the ABA really the best way to go? Are there any parents out there who have kids who sound similar to my son that might be able to give me some idea of what to expect? I'm just so confused, and the more I research, the more confused I get. Any help would be greatly appreciated!
Hi. I'm new to this forum and also new to the world of Autism. I have 2 year old boy /girl twins, my daughter is typically developing (though she has a few mild sensory issues) and my son was just diagnosed with autism in November. The thing is, I'm having a hell of a time finding much information that seems to really relate to my son. What I mean is I find loads of accounts of children that are severely autistic, a good amount of info about aspergers, but not much about children diagnosed with autism on the mild end of the spectrum. I'll paint a quick picture of my son: he is nonverbal, he does babble a good deal and has various noises he makes for excitement or irritation but no real words. His stimming behaviors are some spinning and clapping, though he doesn't stim often. He is very social, and if someone new comes over he quickly warms up to them, but if we're out and someone corners him (like if he's in his stroller and buckled in) he doesn't like it and turns away. He has great eye contact and smiles a ton. His biggest challenges besides speech are calming down from a tantrum, and attention span. He has a very hard time sitting still. When we had him evaluated the therapists recommended 35 hours a week of ABA therapy. After speaking with them a bit more I learned that this would mean he'd be largely separated from his sister and me for much of the week. I can't even fathom how this would work, since as twins, he and his sister do everything together. Even his speech and occupational therapy, which he has once weekly, incorporate her. My husband and I want to do what's best for him but we're wondering if this amount of ABA might be overkill? We have found a preschool that is run by a speech pathologist and has a mix of typically developing and special needs kids, and we're thinking of enrolling both kids 3 days a week. Would that, coupled with speech and OT be enough or is the ABA really the best way to go? Are there any parents out there who have kids who sound similar to my son that might be able to give me some idea of what to expect? I'm just so confused, and the more I research, the more confused I get. Any help would be greatly appreciated!
Sounds like a similar situation with our child. We opted to learn ABA training and teach our daughter ourselves. One main issue with having outsiders do ABA is you can't control people who have specific noises (coughing/sneezing), clothing or rasping voice or annoying habits that will distract your son. If your son is on the higher end of the autism spectrum I strongly encourage you to put him in mainstream school with an integration aide rather than a "special school" (I'm happy to explain the reasons if you want to know). I'm sure you know your own child better than anyone else and will do what's in their best interest
Hi! I'm new here.
I have two boys, 12 and 15. The 12-year-old is PDD-NOS. He was originally diagnosed with HFA at 2 1/2, went to sped preschool, had a one-on-one para in kg and 1st grade, etc etc... His last eval they changed him to PDD-NOS because he no longer has a significant enough language delay to be autism. He was more like Aspie but couldn't be Aspie b/c of the history of speech delay. Not that it's going to make a difference here shortly, I guess, everyone will just be ASD.
I have been divorced from the boys' father for two years now. No need to do a re-hash at this point, but he did say under oath that he thinks there's "nothing wrong" with our son, so you see where there might have been a problem. My oldest lives with his dad most of the time, odd dynamic with all of us combined with the attitude of a typical 15-year-old.
Anyway. DS is in regular classes at school, except for one hour of social skills class. The school has an autism person, real nice guy, and DS has sort of a peer group now, a group of a half dozen or so boys all kinda HFA/ Aspie, in social skills with him. He has a para in one class, for now, only because he so detests writing (and subbing a keyboard, he didn't fall for that at all, he still won't write, even though he can navigate a computer like nobody's business) so she is there only to scribe for him. It freaks me out still, to think of him navigating junior high.
I seem to have come to a crossroads where I'm not sure what to do. He's come such a very long way. I still remember speech therapists sitting on my living room floor teaching him to say "mama", and then roughly 8 years later, a long 8 years but still, having a diagnosis change because he no longer has enough speech delay. That was huge for us, and I left the evaluation doing a happy dance from the "upgrade". The things he needs to work on now are more social and "growing up". Self-sufficiency and life skill things. I realize I have pretty much the next 8 years to get those things put into place. But I'm not sure how, really.
As an added side note, I'm having a heck of a time finding a date. Suggestions welcome.
I have two boys, 12 and 15. The 12-year-old is PDD-NOS. He was originally diagnosed with HFA at 2 1/2, went to sped preschool, had a one-on-one para in kg and 1st grade, etc etc... His last eval they changed him to PDD-NOS because he no longer has a significant enough language delay to be autism. He was more like Aspie but couldn't be Aspie b/c of the history of speech delay. Not that it's going to make a difference here shortly, I guess, everyone will just be ASD.
I have been divorced from the boys' father for two years now. No need to do a re-hash at this point, but he did say under oath that he thinks there's "nothing wrong" with our son, so you see where there might have been a problem. My oldest lives with his dad most of the time, odd dynamic with all of us combined with the attitude of a typical 15-year-old.
Anyway. DS is in regular classes at school, except for one hour of social skills class. The school has an autism person, real nice guy, and DS has sort of a peer group now, a group of a half dozen or so boys all kinda HFA/ Aspie, in social skills with him. He has a para in one class, for now, only because he so detests writing (and subbing a keyboard, he didn't fall for that at all, he still won't write, even though he can navigate a computer like nobody's business) so she is there only to scribe for him. It freaks me out still, to think of him navigating junior high.
I seem to have come to a crossroads where I'm not sure what to do. He's come such a very long way. I still remember speech therapists sitting on my living room floor teaching him to say "mama", and then roughly 8 years later, a long 8 years but still, having a diagnosis change because he no longer has enough speech delay. That was huge for us, and I left the evaluation doing a happy dance from the "upgrade". The things he needs to work on now are more social and "growing up". Self-sufficiency and life skill things. I realize I have pretty much the next 8 years to get those things put into place. But I'm not sure how, really.
As an added side note, I'm having a heck of a time finding a date. Suggestions welcome.
Hi there, welcome! Personally I can't really answer your questions about older kids, mine is 4 right now and still not communicating much...
Similar Topics | |
---|---|
Medicaid autism figures 1 in 20 kids autistic |
03 Jan 2025, 4:54 am |
Harris concession speech and call to Trump |
06 Nov 2024, 7:06 pm |
My exp getting a dog, have 6 kids |
17 Oct 2024, 9:56 am |
Autistic kids and glasses |
04 Dec 2024, 11:04 am |