RE: Kids w/ Classic Autism, PDD-NOS & Speech Delays

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Washi
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22 Mar 2013, 4:57 pm

I just figured it out, "Ko kai ja" = "Gokaiger", one of the series is called "Kaizoku Sentai Gokaiger".



Washi
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22 Mar 2013, 5:12 pm

claudia wrote:
He started speaking in sentences just a week ago, he is now 5.5.


Glad to hear you're making progress in spite of having less than ideal support!



Wreck-Gar
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22 Mar 2013, 8:16 pm

Washi wrote:
I just figured it out, "Ko kai ja" = "Gokaiger", one of the series is called "Kaizoku Sentai Gokaiger".


Yeah I figured it was something like that.



cyberdad
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23 Mar 2013, 4:13 am

claudia wrote:
cyberdad wrote:
claudia wrote:
Hello everybody...
I've been away some months, fighting my battles to help my son improve his speech.
In my country I don't have any considerable professional advice so I kept studying through the nights. I got acquainted with the only ABA research group in Italy, in Parma University, but they only do research, they can't do early intervention. They gave me an huge help giving me research material I can use to help my son, so he only has 6 hours of intervention weekly, he has some speech therapy and the remaining time Stefano is with me and I just apply things I studied in the "natural" enviroinment.
He started speaking in sentences just a week ago, he is now 5.5.
I'm really proud of him. In Italy kindergarden is for 6 year old children, but special needs kids can delay an year, so I will do this to give him time to start kindergarden with the right skills.
I got acquaintance with some other parents too, and I have the challenging goal to introduce in italian schools the right education methods for autistic children. They are sadly underestimated here in my country, and even if we have an inclusive school, teachers don't know what to do with tis children and they give up early, also because they are told by professionals that there is not so much to do.
I learnt on WP that your children reached many goals, so I thought, why can't we do this also?

I'm updating because I read what you wrote about mainstream school. I agree that inclusive school is better and they have to interact with nt peers to progress properly. It's like I have the other half of your problem: inclusive school but improper teaching (but it's not teacher's fault).


Claudia your son is doing really well if he is speaking in sentences at 5.5 yrs. Once the children start then there is a cascade of words and sentences that will come. I started doing ABA training in Febraury but had to stop because I restarted work.


Maybe I can do something for autistic children in Italy, I wish I will do something. I read about Alex Plank documentary about France. Well, it's not like that in Italy, but refrigerator mum theory is not dead here. I don't care of what neuropsichiatrists think of me, the problem is that they focus on me and not on how to help my son. He's considered hopeless or, if he progresses, I'm told that it's not because of my beloved early intervention.

It is good that you want to help other children, but as the mother you must spend as much time as possible with your son during his formative years.



cyberdad
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23 Mar 2013, 4:17 am

Wreck-Gar wrote:
And the reason I have not been posting is because I'm too depressed about my son's progress over the past year since we returned from the US.

We were expecting he'd flourish once he was in an English-only environment. He also goes to the special-needs preschool full time.

We are trying to get home services set up but all we are doing so far is fighting with the school system and the insurance companies.

Aside from a few small things here and there he really seems the same as he did a year ago. He still rarely speaks except to ask for preferred food items.

Still in diapers.

A neighbor reported us to DCF because my son got out of the yard.

My wife is stuck at home and cannot work because there is no one to watch the kids. We cannot afford daycare and my parents refuse to babysit.

We had a neuropsych test done. It came out inconclusive as he didn't really participate in the testing...the doc realized this but said at face value the results could mean ID/global developmental delay.

He is getting bigger and stronger now and it's hard when he resists things like getting off the school bus.

He turns 5 in a couple of weeks.

I have no idea what to do.

Those of us who have watched our children progress can only say that our kids develop at their own pace. It's important not to lose hope. The fact he catches the school bus on his own at the age of 5 is tremendous. The speech will come with time, it's still early days for your son.



Wreck-Gar
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23 Mar 2013, 8:48 am

cyberdad wrote:
Wreck-Gar wrote:
And the reason I have not been posting is because I'm too depressed about my son's progress over the past year since we returned from the US.

We were expecting he'd flourish once he was in an English-only environment. He also goes to the special-needs preschool full time.

We are trying to get home services set up but all we are doing so far is fighting with the school system and the insurance companies.

Aside from a few small things here and there he really seems the same as he did a year ago. He still rarely speaks except to ask for preferred food items.

Still in diapers.

A neighbor reported us to DCF because my son got out of the yard.

My wife is stuck at home and cannot work because there is no one to watch the kids. We cannot afford daycare and my parents refuse to babysit.

We had a neuropsych test done. It came out inconclusive as he didn't really participate in the testing...the doc realized this but said at face value the results could mean ID/global developmental delay.

He is getting bigger and stronger now and it's hard when he resists things like getting off the school bus.

He turns 5 in a couple of weeks.

I have no idea what to do.

Those of us who have watched our children progress can only say that our kids develop at their own pace. It's important not to lose hope. The fact he catches the school bus on his own at the age of 5 is tremendous. The speech will come with time, it's still early days for your son.


Sorry if I was unclear. We bring him out to the bus and have to take him off when he gets home. He often resists getting off the bus as he likes to ride around.

We have an IEP review meeting in about a week. I think the discussion will turn to placement in an autism school because honestly I don't feel he's progressing much in the public school system.



claudia
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24 Mar 2013, 4:55 am

cyberdad wrote:
It is good that you want to help other children, but as the mother you must spend as much time as possible with your son during his formative years.


I have no choice because I have my job also. I have no extra time even for my needs...



cyberdad
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28 Mar 2013, 5:49 am

Wreck-Gar wrote:
cyberdad wrote:
Wreck-Gar wrote:
And the reason I have not been posting is because I'm too depressed about my son's progress over the past year since we returned from the US.

We were expecting he'd flourish once he was in an English-only environment. He also goes to the special-needs preschool full time.

We are trying to get home services set up but all we are doing so far is fighting with the school system and the insurance companies.

Aside from a few small things here and there he really seems the same as he did a year ago. He still rarely speaks except to ask for preferred food items.

Still in diapers.

A neighbor reported us to DCF because my son got out of the yard.

My wife is stuck at home and cannot work because there is no one to watch the kids. We cannot afford daycare and my parents refuse to babysit.

We had a neuropsych test done. It came out inconclusive as he didn't really participate in the testing...the doc realized this but said at face value the results could mean ID/global developmental delay.

He is getting bigger and stronger now and it's hard when he resists things like getting off the school bus.

He turns 5 in a couple of weeks.

I have no idea what to do.

Those of us who have watched our children progress can only say that our kids develop at their own pace. It's important not to lose hope. The fact he catches the school bus on his own at the age of 5 is tremendous. The speech will come with time, it's still early days for your son.


Sorry if I was unclear. We bring him out to the bus and have to take him off when he gets home. He often resists getting off the bus as he likes to ride around.

We have an IEP review meeting in about a week. I think the discussion will turn to placement in an autism school because honestly I don't feel he's progressing much in the public school system.

Everyone's situation is relative. My daughter would refuse to get on a bus, let alone ride in one on her own. We drive her to school and back. Have you considered other public schools? Some mainstream schools may be more geared to take on special needs than the one your son is in currently.



cyberdad
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28 Mar 2013, 5:50 am

claudia wrote:
cyberdad wrote:
It is good that you want to help other children, but as the mother you must spend as much time as possible with your son during his formative years.


I have no choice because I have my job also. I have no extra time even for my needs...

Does your job involve working with special needs children Claudia?



claudia
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30 Mar 2013, 3:14 am

cyberdad wrote:
claudia wrote:
cyberdad wrote:
It is good that you want to help other children, but as the mother you must spend as much time as possible with your son during his formative years.


I have no choice because I have my job also. I have no extra time even for my needs...

Does your job involve working with special needs children Claudia?


No, it's an IT job. I should be ablenow to work with autistic children... 2 years experience with my son!



cyberdad
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30 Mar 2013, 5:07 am

claudia wrote:
cyberdad wrote:
claudia wrote:
cyberdad wrote:
It is good that you want to help other children, but as the mother you must spend as much time as possible with your son during his formative years.


I have no choice because I have my job also. I have no extra time even for my needs...

Does your job involve working with special needs children Claudia?


No, it's an IT job. I should be ablenow to work with autistic children... 2 years experience with my son!

Yes I'm in a similar boat. I want to finish my ABA training and I'll switch jobs down the track and work with autistic kids.



Wreck-Gar
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02 Apr 2013, 5:12 pm

Hi everyone. The Mrs and I finally got our Youtube channel started. It's called The Kids' Picture Show.

The Mrs does the drawings and I am the audio guy.

We are not specifically targeting autistic kids only but we are hoping this will help autistic kids and visual learners.

http://www.youtube.com/user/TheKidsPictureShow

We don't have much content now but since we started we have uploaded one video per day.

If you like these videos please subscribe to the channel and share!



Washi
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02 Apr 2013, 6:22 pm

Those are nice, I love the style of her stick figure people!



Wreck-Gar
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02 Apr 2013, 6:24 pm

Washi wrote:
Those are nice, I love the style of her stick figure people!


Thanks! We just got a Bamboo tablet. Ideally the videos would be animated but we don't have the time...

Can you show these to your son and see if he likes them?

Any feedback appreciated!



Washi
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02 Apr 2013, 6:39 pm

I'm afraid if I show them to him now it will turn into him demanding to wander off onto less appropriate areas of YouTube. He's been insisting on me showing him vintage Mr.Bubble commercials when he's in the tub since I showed them to him after getting him his first bottle of bubble bath a few weeks ago. I'll try to remember to add some of yours to the mix the next time he's in the tub. Which reminds me I really need to find a video that demonstrates hair washing in a way he'll want to emulate. He won't let me wash his hair.



Wreck-Gar
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02 Apr 2013, 7:24 pm

Washi wrote:
I'm afraid if I show them to him now it will turn into him demanding to wander off onto less appropriate areas of YouTube. He's been insisting on me showing him vintage Mr.Bubble commercials when he's in the tub since I showed them to him after getting him his first bottle of bubble bath a few weeks ago. I'll try to remember to add some of yours to the mix the next time he's in the tub. Which reminds me I really need to find a video that demonstrates hair washing in a way he'll want to emulate. He won't let me wash his hair.


Thanks, we will put "how to wash your hair" on the to-do list. What are the issues your son has with it? Where do you wash his hair? The shower?

I understand what you mean about Youtube, my younger son has the same problem...always wanting to watch Super Mario and ending up watching stuff full of swearing etc...