What does your AS kid sleep with?

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Sparrowrose
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21 May 2010, 10:56 pm

liloleme wrote:
8O What hospital were you in? They need to close that place down.


The only hospital in town. And, yeah, it sucked.

I briefly lost my medicaid and the gall bladder went bad during that period so I had no income and no insurance when I went in. Every time I got a dose of morphine, some woman came into my room and tried to get me to sign a piece of paper. Fortunately, my father had ingrained in me all my life to never sign something without reading and understanding it first and since I couldn't read two words while on morphine I kept apologizing that I couldn't sign it because I couldn't read it. She'd say it was just a formality but I'd insist that I would sign it later when I was able to read it.

It turned out that she was trying to get me to sign a lien on myself which would have allowed the hospital to take away anything and everything that I owned. Upon trying to complain about it, I found out that it was a standard practice and the hospital often took away elderly retired people's house, vehicle, and all their property, leaving them destitute and homeless over a hospital stay. I had thought that sort of thing was illegal in the United States any more but apparently it still goes on.

So lesson to anyone reading: NEVER sign anything you can't read and understand first! Especially if you're in the hospital! I get people impatient because since then I read things even more carefully before I sign them, but they can fret and fume and gripe all they want. I'm not about to sign away anything I didn't intend to!


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22 May 2010, 12:02 am

liloleme wrote:
Sparrowrose wrote:
I took Beefomet and the Turtle of Healing +3 (two important plush pals) with me to the hospital when I had my gall bladder out and I was distressed the whole week (there were complications) I was there because every time I fell asleep a nurse would come in and take the plushies from me and put them across the room on the windowsill. I couldn't get out of bed to get them and nurses wouldn't come when I rang the call button (even the time I rang it when I was lying on the bathroom floor and couldn't get up! I lay there for three hours before someone discovered me. But that's another story.) so I'd just lay there crying and looking at them across the room.


8O What hospital were you in? They need to close that place down.


I'd cut my gallbladder out myself before I'd go to a place like that.


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Sparrowrose
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22 May 2010, 12:04 am

PunkyKat wrote:
I'd cut my gallbladder out myself before I'd go to a place like that.


Well . . . if I'd known beforehand . . .. I *do* have a pocketknife, y'know.


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PunkyKat
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22 May 2010, 12:11 am

Sparrowrose wrote:
PunkyKat wrote:
I'd cut my gallbladder out myself before I'd go to a place like that.


Well . . . if I'd known beforehand . . .. I *do* have a pocketknife, y'know.


I think an exacto knife would be better. I've heard stories about people practicaly cutting their fingers off with them. I heard about some guy from the Victorian era who actualy did cut out his own gallblader....and made a special case for it. He lived so it's aparently possible.


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Sparrowrose
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22 May 2010, 12:17 am

PunkyKat wrote:
I think an exacto knife would be better. I've heard stories about people practicaly cutting their fingers off with them. I heard about some guy from the Victorian era who actualy did cut out his own gallblader....and made a special case for it. He lived so it's aparently possible.


Knowing how I am, if I'd decided not to go to the hospital, I'd have been more likely looking up alternative remedies, herbs, gall bladder cleanses, etc.

That's what I've done with my (former) diabetes since I no longer trust the medical profession at large to take care of me even vaguely properly and I'm not ready to go killing pigs to drain their pancreas (or whatever the proper plural of pancreas is) for insulin.

side note: apparently, I do not show pain the way other humans do. I was telling the emergency room folks that my pain was an 8 on their 0-10 scale and they started asking me questions that indicated to me that they thought I was engaging in drug-seeking behavior. Then they left me alone in a room (still in pain) for two hours before they finally came back and took me to some scanning machine and after they saw that my gall bladder really was quite ill and infected, they finally gave me an injection of something-or-other for the pain.


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PunkyKat
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22 May 2010, 1:05 am

Sparrowrose wrote:
PunkyKat wrote:
I think an exacto knife would be better. I've heard stories about people practicaly cutting their fingers off with them. I heard about some guy from the Victorian era who actualy did cut out his own gallblader....and made a special case for it. He lived so it's aparently possible.


Knowing how I am, if I'd decided not to go to the hospital, I'd have been more likely looking up alternative remedies, herbs, gall bladder cleanses, etc.

That's what I've done with my (former) diabetes since I no longer trust the medical profession at large to take care of me even vaguely properly and I'm not ready to go killing pigs to drain their pancreas (or whatever the proper plural of pancreas is) for insulin.

side note: apparently, I do not show pain the way other humans do. I was telling the emergency room folks that my pain was an 8 on their 0-10 scale and they started asking me questions that indicated to me that they thought I was engaging in drug-seeking behavior. Then they left me alone in a room (still in pain) for two hours before they finally came back and took me to some scanning machine and after they saw that my gall bladder really was quite ill and infected, they finally gave me an injection of something-or-other for the pain.


I can't feel pain the way regualr people can either. I've nearly cut my fingers off and didn't notice until the room looked like the set of a CSI eppisode. I had to get stiches and I didn't want to wait forever for the numbing agent to take effect so I let them sew it up with no numbing agent whatsoever.

It's as if I can't feel pain but if something brushes up against me lightly or someone touches me I can't stand it. If someone were to touch my knees or elbows when they were unbent, I would probably faint. Doctors do not have a clue about AS or autism. It's SO frustrating.


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MsLeeLoo
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22 May 2010, 11:52 am

y-pod wrote:
My little guy loves all his stuffed animals, but they're not the only ones in his bed. He also sleeps with about a dozen books , a couple plastic coat hangers, an old plastic lamp shade, some flattened cardboard boxes, a wrapper of some sort that he picked out of a garbage can in school, and three lumps of rocks (neither smooth or nice looking, just regular rocks he picked up.). I can't toss any of them as he has named all of them, even the coat hangers and squished boxes and they're all his bedtime buddies. I just don't get it at all.

Does your kid have weird stuff he/she sleep with?


my daughter usually has about 6-10 stuffed animals in her bed, rolled up quilts, etc. It's almost like she's making a mini-womb to sleep in or something. She's supposed to have a "only five stuffed animals in the bed" rule, but the number increases exponentially if we don't keep our eyes on it. You just reminded me I need to wash some of them!



liloleme
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22 May 2010, 1:08 pm

PunkyKat wrote:
Sparrowrose wrote:
PunkyKat wrote:
I think an exacto knife would be better. I've heard stories about people practicaly cutting their fingers off with them. I heard about some guy from the Victorian era who actualy did cut out his own gallblader....and made a special case for it. He lived so it's aparently possible.


Knowing how I am, if I'd decided not to go to the hospital, I'd have been more likely looking up alternative remedies, herbs, gall bladder cleanses, etc.

That's what I've done with my (former) diabetes since I no longer trust the medical profession at large to take care of me even vaguely properly and I'm not ready to go killing pigs to drain their pancreas (or whatever the proper plural of pancreas is) for insulin.

side note: apparently, I do not show pain the way other humans do. I was telling the emergency room folks that my pain was an 8 on their 0-10 scale and they started asking me questions that indicated to me that they thought I was engaging in drug-seeking behavior. Then they left me alone in a room (still in pain) for two hours before they finally came back and took me to some scanning machine and after they saw that my gall bladder really was quite ill and infected, they finally gave me an injection of something-or-other for the pain.


I can't feel pain the way regualr people can either. I've nearly cut my fingers off and didn't notice until the room looked like the set of a CSI eppisode. I had to get stiches and I didn't want to wait forever for the numbing agent to take effect so I let them sew it up with no numbing agent whatsoever.

It's as if I can't feel pain but if something brushes up against me lightly or someone touches me I can't stand it. If someone were to touch my knees or elbows when they were unbent, I would probably faint. Doctors do not have a clue about AS or autism. It's SO frustrating.



I also have a really high pain tolerance but if Im in pain Im not rolling around screaming as most people would. I do feel pain just not as acutely as most. I had all my kids without drugs (did have an epidural with my 4th because he was coming out face up and my doctor said it was a good idea, since I worked for her I went ahead and did it). I had my first son at the hospital and the only thing that really bothered me and caused me to cry out is the fact that idiots kept touching me and wouldnt let me hold my own legs (late 80's in the midwest). I had my next two at home with a midwife....she told me that I could have my babies standing on my head if I wanted LOL!.....Anyway, I try to tell doctors that if I say Im in pain than I am REALLY in pain...and its frustrating because Ive been on pain pills for over a year now. They thought they were fixing me when they replaced my ruptured disk but obviously I have another problem, that probably caused the disk ruptures. So Im up for a CT scan next week.....Im just hoping for something they can fix.



Sparrowrose
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22 May 2010, 6:03 pm

MsLeeLoo wrote:
my daughter usually has about 6-10 stuffed animals in her bed, rolled up quilts, etc. It's almost like she's making a mini-womb to sleep in or something.


Yes, I do that and it's very comforting. I have to have plush pals and thick blankets and pillows supporting me all around or I wake up with bone and joint aches from sleeping all wrong. It's so nice to climb into my little "nest" at night. I can identify with what your daughter is doing. It's always made me feel more secure to be "enclosed" like that when I sleep.


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Vivienne
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25 May 2010, 11:14 pm

My son has "Bee", an aptly named bee baby toy meant to tie to a crib rail. Pull the string and he sings a lullaby.
I got it for him when he was a newborn. Packed it away with his "baby things" years ago, then discovered it again last year when I went through all his old baby things as I was pregnant. Found the bee. He snatched it up and hasn't left it since.

Confuses the hell out of people when he sleeps over at relatives and asks for his "B".
lol

Also a few airplanes, nic naks he's attached himself to, Mr. Floppy. Beenie Bear. Superdog. The odd train. Occasionally a nightgown of mine. A few hot wheels. And couch pillows that "smell like Grammas".


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Liza3
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28 May 2010, 3:00 am

My son tries to snatch my pillow or my teddy bear ( yes I'm 36 and sleep with a teal green teddy bear named teddy) he says it smells like me. He's 11 and has been doing this since he was a toddler, he REALLY wants my bear if he has had a bad/hard day at school or home, plus he has his tiger family of plushes and a very soft Cars blanket he got for his B-day a few years back. Does anyone elses child smell them :?:



Sparrowrose
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28 May 2010, 3:35 am

Liza3 wrote:
Does anyone elses child smell them :?:


I don't have a child but I could DEFINITELY smell my parents when I was little and I loved their smells. Very comforting.


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PenguinMom
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28 May 2010, 5:16 am

My aspie girl must suck her thumb and rub her elbow to sleep. My NT girl sleeps with 3 poblankets (pink blanies) 1 full size quilted comforter, one 6 foot long plush rainbow boa snake, 1 purple water bottle, and her star night light on. Before going to bed she must have exactly 5 kisses planted in a particular order on her face.



NathansMommy
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28 May 2010, 9:27 am

My son only sleeps with his mommy. That's going to be a hard habit to break!



tenzinsmom
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28 May 2010, 2:31 pm

My 6 year old still sleeps with us--his parents.

Recently, he asked to sleep in his tent. It got too cold, but come summer we're going to set up his tent permanently. I guess that's how he's going to transistion to sleeping on his own.

Occasionally, he'll bring whatever he's really into to bed with him. We police it though and make him put hard things like blocks or legos on the table next to the bed. Sometimes he wants to sleep with one of his Dad's shirts. That brings him comfort. Since it's soft, we don't mind.

Those things you mentioned, I guess they bring comfort and pleasure to your child.


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SteveBorg
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28 May 2010, 8:48 pm

My son sleeps with "Mr. Bunny", who has been with him since pre-school. And he will not go to bed without bringing Mojo, one of our three very patient cats with him :)


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