Is there anything to celebrate?
My aunt used that phrasing -- "do you want to take out the garbage for me?" and it drove me nuts! Because yeah, I was *willing* to, but I didn't *want* to. I find myself doing it occasionally and am so annoyed at myself.
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Sharing the spectrum with my awesome daughter.
My guys are definitely keeping score. They are coolly analytical of my and husband's parenting skills, often appreciative of the good things they notice, and very definitive about the areas in which they feel we can improve. I was the same way as a kid, just didn't get why a child's opinions about an adult's behavior weren't just as valid as an adult's opinions about a child's...and really, they are just as valid.
And I really like this celebration thread. From not losing cel phones to wanting to make a friend, it is all really good stuff! And so much fun to celebrate our kids!
Today my sons helped us run a garage sale, or rather we helped them, they ran the show. They made change, greeted customers, answered questions, and I actually got peopled out before they did! It was so cool. They were VERY focused on the end goal, which was making money to buy some things they want, and it was amazing to see how that determination carried them through doing all the things that were so far out of their comfort zones. I was just so impressed with them. They may have trouble making friends, riding bikes, yadda, yadda, yadda, BUT they are two of the most polite, intelligent, persistent children around (and I think I spend too much time worrying, and not enough time celebrating that, so I think this thread is very good for me).
That is awesome AnnotatedAlice! You have every reason to be very proud. Who cares if your sons can ride a bike? I knew how to ride a bike when I was a kid, but do I ever ride a bike now-----NO! I think it is great if a kid can ride a bike, if they enjoy it. It is great exercise and it can be fun. But if they can't do it, no big deal!
Thanks angelbear!
And I should be clear, that I couldn't personally care less whether they can ride a bike or not (I myself finally learned late and awkwardly, hated it the whole time and have never ridden once as an adult). It is just one more thing on the list of things that they would like to be able to do, but can't yet, and one more thing on the list that causes them frustration or embarrassment, and I just meant that sometimes I get so anxious about the areas where they struggle and figuring out how to help them, that maybe I miss out on sitting back and appreciating that they are doing GREAT. Sometimes I need to "stand down" and have confidence that they really are going to find their paths and be OK, and just enjoy them. Hard to do, especially at this time of year, when us parents are swamped with appointments with psychologists, OT's etc., IEP meetings, phone calls from the school, the back to school transitional meltdowns, the nights of broken sleep, and are putting so much energy into problem solving and overcoming struggles. But despite all that, I am finding so many reasons to celebrate lately, I may be on this thread every day!
I know what you mean Alice. I tend to sometimes focus more on the struggles than on the good things. My son is only 5, and we have a long way to go. But somedays I just look at him and feel so proud of how far he has come. He didn't walk until he was almost 2, and he still has balance issues, but every day he is getting so much stronger. He eats really well, and is not a picky eater. He is talking fairly well, and makes sense the majority of the time. He doesn't have meltdowns at school. He is sleeping SO much better. Most of the time, he is a pretty happy kid. But, I do have my worries. He has no friends, and he is making loud noises in class and has difficulties focusing and paying attention. I just get so caught up in the worries about his future, that I have to consciously make the effort to enjoy my son and look at where he was and where he is now. And then I realize that I have A LOT to be thankful for.
We went to a large, informal wedding reception on Saturday. There was tons of cool stuff for the kids to do...it was in an industrial area with lots of concrete to climb, a creek, etc... My son would not play with any of the kids and bugged me to go home from the second we got there. BUT - he did not have an anxiety attack, when people insisted he hug them, he did literally try to run away, but didn't freak out when they caught him and hugged him. Even though I asked people not to do these things to him, they did - he was even yelled at by someone to get up on the concrete and play - he did and didn't get upset or anything. He did a really good job.
for our house this week, these are the triumphs:
- my oldest declared he was liking school this year. all last year he hated his new school, so this turnaround is wonderful.
- my youngest, asd kiddo, played with a neighbor child yesterday. he didnt talk to her, but he followed her directions and they played catch. (later she was at our house to see my 6 yr old and the youngest tells me "i done playing, make her get out of here already!")
- all three boys started school and it went well. no major issues!
you know, i was trying to find something triumphant in my middle sons week, and really, theres not much there. he loves school, hes made tons of new friends, he starts flag football tomorrow and is really excited, he is riding the bus this year by his own request (thats a 45 min ride versus us picking him up when we only live 2 mins away from his school), we moved his bedtime earlier by half hour at his request because he was tired getting up in the morning. he doesnt seem to have lows so there are no contrasting highs. i guess the triumph is that despite being in our little freaky family, he is disgustingly typical. hes like "the one" in that picture game, "which one of these things is not like the others".
Yeah on liking school!!
FYI, do you ever check your private message box? Look at the link on the upper right corner of your screen. You have a message you should read.
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Mom to an amazing young adult AS son, plus an also amazing non-AS daughter. Most likely part of the "Broader Autism Phenotype" (some traits).
Big accomplishment: My daughter's teacher asked her to join the school math team AND she agreed. So she's going to be doing that every week.
Small accomplishments that were probably more difficult for her:
She didn't freak out when her Mom (who she hates) used her favorite cup. Six months ago this would have been armageddon. Today she was annoyed, but she just kept it to herself.
She played nicely with her sister for hours and let her sister win some games and generally let her feel good about it.
She didn't freak out when her Mom put new sheets on her bed.
Today was the one year anniversary of her diagnosis and I gave her a present because I'm so proud of how much she's accomplished since then.
According to my husband, twice when my daughter got off the bus the other children cried "Don't go, don't go, we love you!"
I don't think she notices, but she appears to be making friends.
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I am not an expert on anything. Any advice given is with the best of intentions; a small way for me to repay a community that helps me when I need it.
So great to hear everyone is having so many things to celebrate!! !
This week has been AWESOME (besides the little one being sick). I started my son on inositol on Monday. I am not convinced it is the inositol, could just be a fluke, but here is our week (from my inositol log, that is 600mg of inositol 2x a day):
9/25 / Saturday / 600mgx2 (1 dose so far today) - Woke up in good mood. Did not use DSi. Up and playing with brother/watching TV for about 1 hr before playing computer, still has not touched DSi after being up for couple hours (he has woken up in a bad mood every morning and gone straight for the DSi, like I go for coffee, first time in 2 yrs he has not gone for the DSi first thing).
9/24 / Friday / 600mgx2 - no mood swings or anxiety, sat in high winds with no complaint. Back to abnormal hug. Said he had to go out on recess when it was raining, but the water on his glasses dried and is OK.
9/23 / Thursday / 600mgx2 - super good mood, no swings, no anxiety at all. Changed clothes before bed without issue, wore pants. Back to abnormal hug. Did not use umbrella during drizzle.
9/22 / Wednesday / 600mgx2 - Good mood from pick up, agitation before bed (foot hurt)
9/21 / Tuesday / 600mgx2 - Good mood from pick up, hugged Aunt Jan, normal hug, one mood swing
9/20 / Monday / 600mgx2 - Good mood from pick up, hugged Aunt Jan, normal hug. Little mood (normal) before bed
Yesterday my husband had to do a bit of a road trip. Because he'd been away all week, we decided to make a family trip out of it.
It was an absolutely lovely day. My son cheerfully ate a weird looking whole-wheat bagel. He played in a water park with much smaller kids and didn't do anything to hurt or scare them. He played on the playground with no issues. He let his dad take some pictures at the place his grandfather's ashes were scattered without insisting on making silly faces. Nobody got mad at anyone else. The worst part of the day was passing a really bad motorcycle accident and my son actually commented that he hoped the hurt man would be okay.
It felt so wonderful to be able to have fun as a family together. It helped that having long conversations about math in the car are fun for all of us. But being able to just sit with my husband and relax while my son plays is nice too.
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Sharing the spectrum with my awesome daughter.
Well, I just had to post a success that we had with our son! We signed him up for the little kids choir at church since he has such a beautiful singing voice. We asked him if he wanted to do it, just to make sure it wasn't too stressful for him. He said he did, so we have been going to practices the last 3 weeks, and he sang today in the church!
For those of you who have read my posts, this is HUGE for my 5 yr old son. He was actually able to sit with all of the other kids (29 other 4 and 5 yr olds) He followed directions for sitting and standing, and kept his hands to himself the whole time. He never got upset, and he didn't make any inappropriate noises! I could not believe it. I had tears in my eyes at church, I was SO proud of him. He sang along with most of the songs, and even did the hand motions for some of them (which is hard for him since he has motor planning difficulties) We are just thrilled, because he is not into any types of sports, so we are hoping that he can do this so that he has something he is interested in.
Just thought I would share! Hope everyone is having a great weekend!