Page 2 of 2 [ 28 posts ]  Go to page Previous  1, 2

Mama_to_Grace
Veteran
Veteran

User avatar

Joined: 1 Aug 2009
Age: 54
Gender: Female
Posts: 951

16 Sep 2010, 4:53 pm

buryuntime wrote:
I think I'm done posting in the Parenting Forum. I'm tired of scaring people away from here without even meaning to. I don't think I do this in the other parts of the forum. I talk and treat everything relatively equally but I guess that's not how people work, even if people are supposed to be treated equally, because otherwise this wouldn't be happening. So I'm supposed to interact with this forum in a way that does not scare off people, but I don't know how to do that. I would try to explain my posts in this topic but I don't want to make things even worse if I end up saying something wrong again.


Please don't stop posting on the parenting site. We need the viewpoints of adults with AS to help us. It was just a simple misunderstanding.



DenvrDave
Veteran
Veteran

User avatar

Joined: 17 Sep 2009
Age: 59
Gender: Male
Posts: 790
Location: Where seldom is heard a discouraging word

16 Sep 2010, 5:24 pm

Mama_to_Grace wrote:
buryuntime wrote:
I think I'm done posting in the Parenting Forum. I'm tired of scaring people away from here without even meaning to. I don't think I do this in the other parts of the forum. I talk and treat everything relatively equally but I guess that's not how people work, even if people are supposed to be treated equally, because otherwise this wouldn't be happening. So I'm supposed to interact with this forum in a way that does not scare off people, but I don't know how to do that. I would try to explain my posts in this topic but I don't want to make things even worse if I end up saying something wrong again.


Please don't stop posting on the parenting site. We need the viewpoints of adults with AS to help us. It was just a simple misunderstanding.


Agree, buryuntime I appreciate your contributions as well.



Kailuamom
Veteran
Veteran

User avatar

Joined: 13 Jul 2010
Gender: Female
Posts: 660

16 Sep 2010, 6:11 pm

Here's the thing - The NTs need to appreciate the differences the adults with AS bring (and I mean APPRECIATE, because it is SOO important and one of the main reasons I'm here, I mean what good is talking to a bunch of parents just like me? I need an AS perspective!). It would be good if the folks with AS could appreciate those differences too. Like, where else can you actually see how communication can go wrong?

So, buryuntime - can you look at this as a specimin to examine instead of worrying how someone "took" what or how you said something? IMHO, there is no cause to abandon all of us who need adult AS perspective! Just look at it for what it is. Some NT parent didn't realize that, 1 - most anyone here is trying to be helpful, 2 - they may be AS and have a direct communication style, that may be more aburpt than they are accustomed.

BTW - I don't think your response was all that abrubt.



buryuntime
Veteran
Veteran

User avatar

Joined: 6 Dec 2008
Age: 86
Gender: Female
Posts: 3,662

16 Sep 2010, 10:36 pm

Okay. I think I misunderstood their reaction. I thought I said something really really bad and inappropriate somehow and that is why they were leaving, and it really puzzles me when I think I'm helping but they tell me because of my post they are leaving. I don't think it is very helpful if I end up scaring people off, so it seemed logical that I shouldn't post here anymore. I will try to exercise more caution when responding to newcomers here.



schleppenheimer
Veteran
Veteran

User avatar

Joined: 31 Aug 2006
Age: 64
Gender: Female
Posts: 1,584

16 Sep 2010, 10:59 pm

buryuntime, I agree that you shouldn't quit posting. I was just saying that sometimes us NT parents are already sad or upset about something, so we come to WrongPlanet for answers, and then when we get answers like yours (which are highly accurate) we are in a sensitive place and sometimes get upset. It's exactly the same problem ANYONE has when you text a response rather than SAY a response -- a text can come across as curt and harsh, whereas if the same words were spoken they seem much kinder. Add to that the fact that NT parents are struggling to understand something that they don't inherently understand, and things feel more hurtful than they were intended. I personally know that at certain times, I am super-sensitive, and I just can't take an accurate response, no matter how kindly it was intended. That's why I say that, if I really want answers from this forum, I have to STEEL myself so that I am strong enough to receive any type of response.



DW_a_mom
Veteran
Veteran

User avatar

Joined: 22 Feb 2008
Gender: Female
Posts: 13,689
Location: Northern California

17 Sep 2010, 7:47 pm

Maybe we should create a sticky "ATTN: PARENTS, PLEASE READ BEFORE POSTING" so that people know better what to expect? I'm a little busy for that right now, but maybe after my work deadline? Or would someone else consider drafting something? We have the best place in the world for parents to get information, and our members usually try very hard to be helpful, but the style is different from what they are used to in the NT world, and maybe it would help if new posters were better prepared up front?


_________________
Mom to an amazing young adult AS son, plus an also amazing non-AS daughter. Most likely part of the "Broader Autism Phenotype" (some traits).


ominous
Veteran
Veteran

User avatar

Joined: 6 Jul 2010
Gender: Female
Posts: 962
Location: Victoria, Australia

17 Sep 2010, 9:10 pm

My son tells me good morning and expresses affection. I don't think that is or isn't indicative of ASD. I hear this parent's frustration and am sorry they appear to have left after one post that confused them. I don't think it was the questioning that was upsetting to the OP, I think probably just fed up generally.

ASD doesn't mean you don't have to be in the world.
ASD doesn't mean you can't brush your teeth.
Welcome to adulthood.

I don't wish to offend the OP but parents travel a fine line with ASD between care, compassion, assistance and codependency. There's no way in hell my 21 year old son is going to have me cleaning up after him like some kind of maidservant "because he can't" function due to ASD. I don't allow anyone to treat me like a maidservant, I'm his mum. I explained to him recently (he's almost eight) that my job is not just to take care of him but to teach him how to take care of himself.

(As an aside, is there a special section for parents of ASD kids who also have ASD themselves? I'm new here and haven't noticed it if there is one.)



buryuntime
Veteran
Veteran

User avatar

Joined: 6 Dec 2008
Age: 86
Gender: Female
Posts: 3,662

17 Sep 2010, 9:26 pm

ominous wrote:
My son tells me good morning and expresses affection. I don't think that is or isn't indicative of ASD. I hear this parent's frustration and am sorry they appear to have left after one post that confused them. I don't think it was the questioning that was upsetting to the OP, I think probably just fed up generally.

ASD doesn't mean you don't have to be in the world.
ASD doesn't mean you can't brush your teeth.
Welcome to adulthood.

I don't wish to offend the OP but parents travel a fine line with ASD between care, compassion, assistance and codependency. There's no way in hell my 21 year old son is going to have me cleaning up after him like some kind of maidservant "because he can't" function due to ASD. I don't allow anyone to treat me like a maidservant, I'm his mum. I explained to him recently (he's almost eight) that my job is not just to take care of him but to teach him how to take care of himself.

(As an aside, is there a special section for parents of ASD kids who also have ASD themselves? I'm new here and haven't noticed it if there is one.)

I agree with this. I have difficulties keeping up with things sometimes, but an ASD isn't an excuse to do nothing. And I have my own ways of expressing things-- it doesn't have to be a big fake smile and a "good morning!" What makes that so special anyways?

Quote:
Maybe we should create a sticky "ATTN: PARENTS, PLEASE READ BEFORE POSTING" so that people know better what to expect? I'm a little busy for that right now, but maybe after my work deadline? Or would someone else consider drafting something? We have the best place in the world for parents to get information, and our members usually try very hard to be helpful, but the style is different from what they are used to in the NT world, and maybe it would help if new posters were better prepared up front?

I think this is a good idea. The only question is if people would actually read it.



bjtao
Velociraptor
Velociraptor

User avatar

Joined: 29 Jun 2010
Age: 45
Gender: Female
Posts: 449

17 Sep 2010, 11:04 pm

HereToday wrote:
After I posted this, I just knew that someone would challenge me about my son's asperger's "qualifications." And sure enough, that was the first post.

I came here and found this place because I have no one to talk to that knows anything about aspergers. But here I figured I could find people who understood what I was going through.

The problems I wrote about were on top of the behaviors that go along with aspergers. I didn't even include them as problems. The fact that my son doesn't smile because he can't. He doesn't have conversations with me because he can't. He would never greet me in the morning with a cheery "Good Morning" because he can't. I don't ask him to do more than one thing at a time because he can't and if I do give him something to do, it has to be detailed and specific because otherwise he will not understand what I mean. He would never go to counseling because he would never talk to someone about himself. It was pretty huge that he even went and got himself medication.

Forget it. I don't feel like justifying his behaviors to you. Sorry I asked.


When I am posting issues that may or may not be directly related to my son's ASD diagnosis, I usually write at the top something like 'My son is 10 years old and diagnosed PDD-NOS' so that I don't get those types of responses. Otherwise, I know I will get those responses, and I fully understand why, so I don't take them personally. You know the history but others don't, and if you specifically state that your son is undiagnosed, then continue with stuff that is seemingly unrelated to a disorder, leading us to believe that you believe it is related to the disorder, you may get questions like that. Just a tip. You should keep posting because it will help both you and your son for you to get as much information and opinions as possible.

"Take what you want and leave the rest" is the attitude you need to have when it comes to online forums. There are great contributors, jerks, crazies, nicies, Aspies, NT's, dumb, smart, etc....types on forums. You don't need to tell them they are any of these, but if you think a response is rude or uneducated, just ignore it, read the rest, and take the information that is of value to you.



DW_a_mom
Veteran
Veteran

User avatar

Joined: 22 Feb 2008
Gender: Female
Posts: 13,689
Location: Northern California

18 Sep 2010, 1:58 am

ominous wrote:

(As an aside, is there a special section for parents of ASD kids who also have ASD themselves? I'm new here and haven't noticed it if there is one.)


No, all the discussions get mixed in together. Our regular posters seem to run about half and half, with being on the spectrum themselves or not. Most of the threads involve issues with the kids, so those answers are pretty universal. Sometimes we get threads that are specific to the unique issues that come from being a parent on the spectrum, and there are always really good discussions. One big issue is mixing sensory sensitivities and needs; that has come up quite a bit. The overall perspective is the same as it is for any family: mom and dad have needs, too, and they count. The specific strategies, though, tend to be unique to the ASD parents.


_________________
Mom to an amazing young adult AS son, plus an also amazing non-AS daughter. Most likely part of the "Broader Autism Phenotype" (some traits).


LilaAutism
Hummingbird
Hummingbird

User avatar

Joined: 3 Dec 2009
Gender: Female
Posts: 21

21 Sep 2010, 12:00 pm

Your son sounds just like my daughter. She has majored in Japanese and when she is home she lives on the computer in her anime world, sleeps all day and up all night. Her life is online and all over the world. Now I actually join her in some of it so I can understand the attraction.

I have only scanned the other responses because I caught a few lines I did not like and stopped reading. There is research that shows that those with ADHD are 3 years immature for their age. Well ADD is a piece of my daughter or is it her depression that keeps her down? So treat them at the maturity level they are showing and teach them the skills they are lacking. Any way they are still young and they will mature. If he is taking his classes and happy in his classes give him some time to grow up. Instead of nagging, teach and give a reason why they should be doing what you would like so they understand.

In depression part of the issues is that they do not care what they look like. I found with my yonger son I need to leave him little notes instead of nagging him..such as remember to clean the tooth paste out of the sink.

Have a sit down with him and ask what you can do to help him, the problem as he sees it and what steps he hopes to do to help the program. Hopefully he will not be like my daughter and say, "I don't know". Help him understand your feelings without lecturing and write out a road map for him. I think there are many more kids who do this than we realize.
Things are different for this generation then when we were young so it is hard to relate or know how to best help. Have you considered talking to a therapist to see how to best help him? Wishing you all the best.



KissOfMarmaladeSky
Veteran
Veteran

User avatar

Joined: 24 Aug 2010
Gender: Female
Posts: 532

22 Sep 2010, 2:21 pm

HereToday wrote:
Hello,

I am new here.

I have a 21 year old son who has aspergers, although he was never formally diagnosed. When he graduated high school he went to a very small private (expensive) college specializing in digital animation. He was OK for two years. Third year he became depressed and stopped going. He came home and went to see a dr. and got a prescription for celaxa (sp?) and now he says he is better. He says he is not happy but he is not depressed. He is now at the local junior college for a semester and is living with me.

I have been trying to be accepting of my son exactly the way he is, but I am having trouble and would especially welcome advice from people his age. He goes to his three classes a week, but the rest of the time is spent at home on his computer. He spends all his time wallowing in the cesspools of the internet--mainly 4chan if you know about that. He has 2 close friends that practically live at my house. I feed them and do much cleaning up after them.

My son will do things if I ask, but very minimally and only if I ask and it always feels like nagging. He does not do the things he should, like reading or responding to emails related to his college or the bank or anything like that. He barely gets by at school because he does only what he wants.

He likes staying up all night and sleeping all day. He showers every few days and doesn't even brush his teeth every day.

I don't know if he will ever have a job. He lived independently at college but only because I was paying. He was a slob and his apt. was a disaster. He doesn't care if there is dirt and filth and dirty clothes.

I don't want to nag every day to take a shower or put away all the dishes piling up in his room or tell him to go to sleep or return the call to his college because he hasn't filled out whatever form he is supposed to have filled out. His is 21.

I love him and want to accept him as he is, but what does that really mean? I don't think I can live with him like this for the rest of my life, but that is what I see ahead of me. I wouldn't accept these behaviors from his brothers. They would have to sink or swim. But because of his depression, I would never do that to him. He has told me he thinks he was born in the wrong time. I told him lots of people his age think that and we all have deficiencies. but that doesn't mean we can't try and do better.

I feel sad and depressed.


This sounds like me, although I am slightly younger than him. It seems more like depression to me, and if you actually suspect Asperger's, get him formally tested.

I hope this helps!