Leaving the parent board for awhile
This response is completely unnecessary. She already said she was leaving. Why come here just to troll? She has been a long time contributor and many of us here are close with her. She has obviously been through a lot, why be mean when you can be understanding?
Don't throw the word "troll" around like you can use the term correctly alright?

Regardless, I don't really find anything wrong with my response in particular, especially when someone posts
Putting this story for all of us to read who are functioning fine on medication I found my response to be suitable.
It almost reads as more of a "horror story" of all the evils of medication.
I'll use the term troll whenever I want, particularly when it is so obviously applicable.
Putting this story for all of us to read who are functioning fine on medication I found my response to be suitable.
It almost reads as more of a "horror story" of all the evils of medication.
And parents trying to make such decisions for their kids NEED to know both sides, including all the horror stories so, no, your response is NOT appropriate.
I've been on WP long enough to know that for everyone who has been helped by medication, there is someone else who feels they were messed up. When you are old enough and verbal enough to communicate how the meds are affecting you, that is one thing, but parents often must decide for someone else who can do either of those things, which means they need every ounce of information they can get, good and bad, to figure out how it is uniquely affecting their child and decide wisely.
This board is filled with horror stories, because they happen. Plan to show all those parents the door?
I get that sometimes it works great, and for that I am glad. But you need to get that sometimes it doesn't, and sometimes it plain right wasn't needed in the first place. A parent's job is to sort through those possibilities and decide which is most likely to apply to their child. It is a very difficult job, and not one that anyone should be taking lightly. If you can't see that type of gravity, then don't post In conversations that require it.
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Mom to an amazing young adult AS son, plus an also amazing non-AS daughter. Most likely part of the "Broader Autism Phenotype" (some traits).
Putting this story for all of us to read who are functioning fine on medication I found my response to be suitable.
It almost reads as more of a "horror story" of all the evils of medication.
And parents trying to make such decisions for their kids NEED to know both sides, including all the horror stories so, no, your response is NOT appropriate.
I've been on WP long enough to know that for everyone who has been helped by medication, there is someone else who feels they were messed up. When you are old enough and verbal enough to communicate how the meds are affecting you, that is one thing, but parents often must decide for someone else who can do either of those things, which means they need every ounce of information they can get, good and bad, to figure out how it is uniquely affecting their child and decide wisely.
This board is filled with horror stories, because they happen. Plan to show all those parents the door?
I get that sometimes it works great, and for that I am glad. But you need to get that sometimes it doesn't, and sometimes it plain right wasn't needed in the first place. A parent's job is to sort through those possibilities and decide which is most likely to apply to their child. It is a very difficult job, and not one that anyone should be taking lightly. If you can't see that type of gravity, then don't post In conversations that require it.
I find this rather ridiculous to think that a comment such as "points to the door" has really resulted in this meaningless banter from such members. If I really wanted to post something offensive then I would, give me a break, she "ALREADY" said she was leaving, what would you rather have me say "oh no please stay?" Let's not all be too oversensitive for one thread now.
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All fantasy should have a solid base in reality.
I hate all the med references, too. I never know how to react to it, because on the one hand I feel strongly about trying to avoid meds, but I don't want to offend anyone who uses them. That and you never know what the future may bring, comorbid-wise and I feel like I should not really get into these conversations too much. Then again, if the non-med people don't get into it and express reservations, then it makes it look like this board is more pro-med than it is.
I think one one of these recent threads referenced (and I forgot who said it, so my apologies for not giving credit) the statement that, "When all you have is a hammer, everything looks like a nail." That is so true. Medical professionals are so quick to suggest meds, because that it what there is, and they really get frustrated/condescending/irritating when questioned on this.
I feel sorry that Lilomeme left WP for this reason. There are plenty of pro-med voices around everywhere else. WP should not be perceived as not being welcoming to non-medicating parents.
Again. it isn't that I necessarily think that in some cases it might not be needed. I am not a doctor. So, I am not being judgy about anyone who uses that as a tool. I don't live in anyone else's circumstances but my own. I really just wish society would not push it so hard, and so quickly. I wish our kids were given more room to be who they are, inconvenient, though it may be to the schools, etc.
I think part of the discomfort lies in this. When meds are recommended even on this board, I think it makes me feel sometimes, like I am some freakish, fringe. hold-out, even though I do feel like we are doing right by our son by not medicating. I don't think I am articulating this well, but I guess I agree that WP should not make anyone feel that way.
Last edited by ASDMommyASDKid on 30 Apr 2012, 11:43 am, edited 1 time in total.
let's settle down a bit. no need to call anyone a troll or dramatically show them the door. medication is a hot button issue (heck AUTISM is a hot button issue), but let's try to keep the thread as respectful and cool as possible please.
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on a break, so if you need assistance please contact another moderator from this list:
viewtopic.php?t=391105
YES we certainy do need to show both sides. It is important to put her story out there becaseu if it happens to 1 child, that is ONE child too many. Again, I medicate my son. I know what meds I WONT put him on, and of coure I know that all might change as he gets older. I will not judge anyone for their decision to medicate or not., or what meds to use. As the saying goes, "if you met one child with autism, you know one child with autism" what works for one might not necessarily work for others.
Again, I AGONIZE about giving my son his SSRI. EVERY TIME I give it to him, I think...what is this doing to his brain, liver, kidneys, etc...but without them he is miserable, his quality of life stinks. What does a parent do? Watch their child suffer severe anxiety attacks, ridgid OCD rituals where they cant leave the house without performing....watch thier child suffer when on outings out with family, at a birthday party...what is the point? So, I wont medicate him now, and his anxiety and OCD can cause him to kill himself in the future. Heck I know I wanted to die when I was depressed due to my severe anxiety. Honestly, the closest I ever came to suicide was in the throngs of my severe anxiety. I honestly would have rather been gone then live one more day like that. And meds helped me. And I overcame, and I no longer need meds. THIS is the exact hope for my son.
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Dara, mom to my beautiful kids:
J- 8, diagnosed Aspergers and ADHD possible learning disability due to porcessing speed, born with a cleft lip and palate.
M- 5
M-, who would be 6 1/2, my forever angel baby
E- 1 year old!! !
And in the posts above you find some of the times that I've come to agree medication is indicated: extreme anxiety and OCD, for example. Those are co-morbid to the AS, and it is in the co-morbids that you can find the need to medicate. But if there is nothing else, only the AS, then I'm not convinced. I've been lucky to have a child without those types of co-morbids, the hand issues are more physical, so I get to see what is possible when it is "just ASD"
I just wanted to add ADHD to the list of co-morbids that can be severe enough to warrant medication. My son's ADHD sympotoms are much more problematic than his AS. Without them he'd just be quirky and a bit inflexible. The ADHD adds emotional reactivity, impulsivity, and lack of focus to the point where he can't benefit from OT, social stories, and other interventions.
I am one if the posters who has recently asked if ADHD meds had been considered. I want to be respectful of those who oppose medication, but feel that those of us whose children have seen great benefit from it should be free to share our experience here, and to present it as a tool to be considered and used with care rather than a very last resort to be used under only the most dire of circumstances.
My heart goes out to lilolme, and I'm sorry if the conversations here have caused her pain. I will miss her posts.
I am also upset by posts that talk about medicating a child-espcially when I read about a small child (6-7 years old) who is put on risperdol. But, I understand each parent has their own evolution in understanding and everyone is walking their own path. I see it much more often on other boards and will write out a long response only to delete it, because really people are going to come to their own conclusions.
I medicated my daughter because I thought Drs knew best. We had our own "horror story". (though not near as bad) I think if that (what happened to liloleme) happened to my child I would feel as disgusted as liloleme. I don't begrudge her that she can't just watch as people continue to listen to the Drs who don't understand our children one bit.
This is a very touchy subject for me because I have been on both sides of the issue,
And my first point is it's not up to a bunch of anonomyous forum posters to decide what is and is not appropriate medication usage. I felt very judged when I was in the midst of it, and I think that is unfortunate. I can't possibly decide what is right or wrong for you - but I can share our story.
The research I did (Harvard study) showed that kids that need medication are 50% more likely to self medicate if not provided the medication they need.
Great - so what that means is if my kid doesn't need meds, and I introduce them, he will most likely become an addict (my belief). BUT, if he needs them and I don't medicate him, he will become an addict.
Just frikkin teriffic!
Then you go the the Dr and don't know what's wrong with your child - there's no diagnosis, just a bunch of symptoms that no one knows what to do with. They tell you that if you don't try meds, the symptoms will develop neural pathways and become much more fixed, and difficult to change.
So now you're telling me that if I don't medicate my kid, he will more likely become an addict, and he will contimnue having raging, violent meltdowns.. Basically, saying that if we dont try the meds he's doomed.
So we try the meds....and they don't work.
So we stop the meds and try other things, and they kinda work.
The journey sucked, and every family here is doing the best they can for their kids.
Lilome is grieving her son, I can see how this issue would hurt, and I understand her need for a break. I'm not going to personalize it.
I think that if we stick to our experiences and stay away from telling each other what is or isn't right for them, we should be fine.
And my first point is it's not up to a bunch of anonomyous forum posters to decide what is and is not appropriate medication usage. I felt very judged when I was in the midst of it, and I think that is unfortunate. I can't possibly decide what is right or wrong for you - but I can share our story.
The research I did (Harvard study) showed that kids that need medication are 50% more likely to self medicate if not provided the medication they need.
Great - so what that means is if my kid doesn't need meds, and I introduce them, he will most likely become an addict (my belief). BUT, if he needs them and I don't medicate him, he will become an addict.
Just frikkin teriffic!
Then you go the the Dr and don't know what's wrong with your child - there's no diagnosis, just a bunch of symptoms that no one knows what to do with. They tell you that if you don't try meds, the symptoms will develop neural pathways and become much more fixed, and difficult to change.
So now you're telling me that if I don't medicate my kid, he will more likely become an addict, and he will contimnue having raging, violent meltdowns.. Basically, saying that if we dont try the meds he's doomed.
So we try the meds....and they don't work.
So we stop the meds and try other things, and they kinda work.
The journey sucked, and every family here is doing the best they can for their kids.
Lilome is grieving her son, I can see how this issue would hurt, and I understand her need for a break. I'm not going to personalize it.
I think that if we stick to our experiences and stay away from telling each other what is or isn't right for them, we should be fine.
AMEN!! !
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Dara, mom to my beautiful kids:
J- 8, diagnosed Aspergers and ADHD possible learning disability due to porcessing speed, born with a cleft lip and palate.
M- 5
M-, who would be 6 1/2, my forever angel baby
E- 1 year old!! !
I just want to say something specifically addressing Liloeme's son. He had Bipolar disorder which has something like a 25% mortality rate. It is a serious and life threatening condition. It is really, really unfortunate that until recently they were not treating children for this disorder and were prescribing incorrect medications.
Even now, diagnosing is hard with children and the wrong meds are often prescribed.
If someone has bipolar disorder, medication is life saving and important, like insulin to a diabetic. We must not confuse people medicating mental illnesses with "drugging their asd kids into submission". Often, in children, the symptoms of bipolar and ASD look alike, and often a child with an ASD is given a BP diagnosis. It is very tricky diagnostically, and again, I feel something we should stay away from making judgements on.
I have known more people with bipolar that fell into the 25%, than in the 75%, so I strongly encourage all who have this diagnosis to be appropriately medicated. The folks I knew who died almost always were either off their meds or were practicing addicts.
I haven't known a single BP fatality who was taking their meds as prescribed and nothing else.
Is there really a need to leave a board in such a dramatic way? I've seen this sort of exit many times on various boards dedicated to various topics and they always degrade into flame wars like this.

_________________
All fantasy should have a solid base in reality.
Theres a lot of different medications that do completely different things, so I think its hard to say medication is bad. My son takes no medication (other than Becotide for Asthma) because we haven't had a requirement yet, but I reserve the right to seek medication out if I felt it became necessary - for him. I have thought about it. Medicine is undoubtedly of benefit when used correctly and where there is a genuine need.
As an aside my son is more classic autism, he is non-verbal and not toilet trained at 5..I wonder is it more common for people to medicate AS children than children with classic autism? Just wondering.
As an aside my son is more classic autism, he is non-verbal and not toilet trained at 5..I wonder is it more common for people to medicate AS children than children with classic autism? Just wondering.
I think it all depends on the comorbids ... typically someone who is just Aspie and nothing else probably doesn't need medication, I've never needed medication for anything. However, I can think of 4 people in my family who are bi-polar (two of which are also diagnosed as having Asperger's) and they all need medication to deal with day to day life - one of them became a heroine addict before being diagnosed and receiving help. With classic autism I think medication would be used for uncontrollable violence towards self or others, seizures, debilitating OCD etc. Lilolme wasn't against medication, but was upset by it's misuse and overuse.
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