Well I screwed up tonight
Yes, this could be the case for some people at some times. It could even be the case for the OP's son at some times. But it was NOT the case for the OP's son in the specific instance described. She said he looked at the shoes, started to reach for them, then smiled and pretended he couldn't find them. My son does things like this sometimes, too, so I understand what she's saying.
There are times when kids with ASD need a little extra/different help, and there are times when they (just like kids without ASD) want to push their parents' buttons. This was the latter.
So I'll do what I was taught to do: I'll pat your shoulder and say "there there, it'll get better, don't you worry, we all know you're trying your best". Even though that's really just skirts your issues, and I don't know why you'd post on here if you just wanted to be told something you already knew.
I'm removing myself from the conversation since I'm attempting to be constructive and your response makes it clear that that's not your goal.
I think the point you missed was that the OP already knows the things you pointed out, but was venting her frustration at always having to remember all those details, and at having everything blow up out of control the one time she forgot something minor. She KNOWS what you pointed out, she had already stated that. Look again at the TITLE of this thread.
Here is the thing: knowing doesn't make it any less aggravating to find yourself walking on eggshells and having to think out every single word that comes out of your mouth with extreme care, and every single action you take, least your child violently explode in front of you because you made a mistake. Knowing doesn't make it possible for you to perfectly intuit every time your child needs super detailed wording and reminding, v. times he can handle things on his own. And knowing does not change the child's responsibility to figure out how to control his explosions and behavior, and to start taking some responsibility for things that have to happen in his life. We only have until they are 18 to prepare them for life on their own, should they choose that once they are legally able, and that is serious responsibility. Knowing doesn't change the fact that the OP is living in a situation that is difficult and stressful for both mother and child, regardless of how much information she has. She can't be perfect, neither can the child, and in this situation their needs are often inherently at odds.
So this is where we get to share all the frustration that comes with traveling down a difficult road, and hopefully without judgment. Loving your child with all your heart doesn't magically make it easy to live with them. Advice and information are useful, but pay attention to figure out if there really is any needed.
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Mom to an amazing young adult AS son, plus an also amazing non-AS daughter. Most likely part of the "Broader Autism Phenotype" (some traits).
So I'll do what I was taught to do: I'll pat your shoulder and say "there there, it'll get better, don't you worry, we all know you're trying your best". Even though that's really just skirts your issues, and I don't know why you'd post on here if you just wanted to be told something you already knew.
I'm removing myself from the conversation since I'm attempting to be constructive and your response makes it clear that that's not your goal.
My bad. I guess I misunderstood your post that was filled with CAPTIAL LETTERS, bolded statements, and itallics (bold itallics even) that were designed to point out how stupid the OP is, in your view.
I also misunderstood what you meant by
I am also particularly thankful that you pointed out to me that all autistics are alike. Here, I was under the assumption that my kids were individuals and that general statements about autistics may or may not apply to my kids. I feel really silly right now. I actually thought that when my son told me that he could tell that I was mad because of the TONE of my voice, he actually knew what he was talking about. I also think he is pretty awesome when it comes to using humor. I guess it's all a coincidence and not a skill that he has worked very hard to hone to compensate for some of his deficits.
An "if this then that machine."
Wow. Talk about dehumanizing.
If any parent ever called their autistic child an "if this then that machine" there would be a call for a public lynching. If you were an NT parent saying that, I would be writing quite an extensive offline rant to you about the need to show respect to my kids. They are NOT robots. Or machines. They are kids. Who both, btw, can reason that "by the couch" may mean next to it, under it, behind it, or even on it. It is unfair of you to assume that the description may cause difficulty to you, that that is a universal experience.
Now. I am done with MY rant.
And I checked...my understanding of the word "rant" is correct.
_________________
Mom to 2 exceptional atypical kids
Long BAP lineage
So I'll do what I was taught to do: I'll pat your shoulder and say "there there, it'll get better, don't you worry, we all know you're trying your best". Even though that's really just skirts your issues, and I don't know why you'd post on here if you just wanted to be told something you already knew.
I'm removing myself from the conversation since I'm attempting to be constructive and your response makes it clear that that's not your goal.
My bad. I guess I misunderstood your post that was filled with CAPTIAL LETTERS, bolded statements, and itallics (bold itallics even) that were designed to point out how stupid the OP is, in your view.
I also misunderstood what you meant by
I am also particularly thankful that you pointed out to me that all autistics are alike. Here, I was under the assumption that my kids were individuals and that general statements about autistics may or may not apply to my kids. I feel really silly right now. I actually thought that when my son told me that he could tell that I was mad because of the TONE of my voice, he actually knew what he was talking about. I also think he is pretty awesome when it comes to using humor. I guess it's all a coincidence and not a skill that he has worked very hard to hone to compensate for some of his deficits.
An "if this then that machine."
Wow. Talk about dehumanizing.
If any parent ever called their autistic child an "if this then that machine" there would be a call for a public lynching. If you were an NT parent saying that, I would be writing quite an extensive offline rant to you about the need to show respect to my kids. They are NOT robots. Or machines. They are kids. Who both, btw, can reason that "by the couch" may mean next to it, under it, behind it, or even on it. It is unfair of you to assume that the description may cause difficulty to you, that that is a universal experience.
Now. I am done with MY rant.
And I checked...my understanding of the word "rant" is correct.
I thought you were serious until I got to the second part to realize you were being sarcastic.
"By the couch" yeah I would look right by it, under it, behind it until I see those shoes. My mom used to say "if they had teeth, it would bite" whenever I would miss something that is obviously in front of me in plain eyesight. I have no idea if this is an ASD thing or not but I have seen members here talk about missing things in plain site and I always assumed everyone did that but I never thought about asking an NT if they do it too.
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Son: Diagnosed w/anxiety and ADHD. Also academic delayed and ASD lv 1.
Daughter: NT, no diagnoses. Possibly OCD. Is very private about herself.
Yes, NTs can miss things in plain sight, too.
As for this whole couch and shoes discussion ...
If someone says, "by the couch," this would be how average NT thinking would go: "look at all floor spaces surrounding the couch." And then you would do just that, turn your eyes towards all the floor space "by" the couch.
Because they are shoes, and the floor is more logical than, say, the wall, and if they were ON or UNDER the couch, the person would have said ON or UNDER the couch. And, really, how many square feet are there "by" a couch, and what is so hard about using your eyes to scan all of those square feet for what is, after all, a relatively large object?
And because by the time someone gives me a more precise description of where the shoes are they may as well have walked over, picked them up, and handed them to me. "By the couch" is good enough to move me to the place I need to go, is it not? So why should there be more detail involved? Would the person in the other room saying, "by the couch" even KNOW exactly which spot by the couch the shoes were in? Would you expect their memory to be that wonderful they could provide so much detail? Why are they supposed to know so much more about your shoes than you do? I take the "by the couch" and am grateful for the lead.
If a young child needs more then, of course, as a parent you provide that. To help the child learn, you go with them and tell them how to look, so they know what all the steps involved are. But once you've done that enough times they should be able to flash through that logic on their own and initiate the simple step: walk over to the couch and scan the area (although they still might not see what is in front of them because, well, humans do that sometimes).
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Mom to an amazing young adult AS son, plus an also amazing non-AS daughter. Most likely part of the "Broader Autism Phenotype" (some traits).
I thought you were serious until I got to the second part to realize you were being sarcastic.
Sorry! That IS my bad! I usually try to indicate when I am being sarcastic, but I guess I was too busy ranting!
_________________
Mom to 2 exceptional atypical kids
Long BAP lineage
Funny you say that because I have had times where I would be at work at my old job and my office clerk would tell me where something is. I would go to that spot to get it and not see it so I would look for it and not see it. I would then think. "gee maybe he didn't mean it literally, maybe he meant around here" so I start looking around there only for him to get mad at me for "not listening."
I often felt I was getting punished for trying to be abstract and read between the lines only to screw up. But yet if I looked in that exact same spot, he would still get mad at me for "not using my common sense" because he meant the surrounding area. So I didn't know which one he would mean because it felt no matter what I did, either way was wrong.
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Son: Diagnosed w/anxiety and ADHD. Also academic delayed and ASD lv 1.
Daughter: NT, no diagnoses. Possibly OCD. Is very private about herself.
If someone says, "by the couch," this would be how average NT thinking would go: "look at all floor spaces surrounding the couch." And then you would do just that, turn your eyes towards all the floor space "by" the couch.
Honestly, to me "by the couch" means next to the couch, under the couch, behind the couch, or on the couch. All of those things are "by" the couch, if "by" means "near." But if you said "next to the couch" I would assume you meant adjacent to it on the floor.
_________________
Mom to 2 exceptional atypical kids
Long BAP lineage
Where's the facepalm icon when you need it?
Re. the little side conversation with livnah.
I'd like to salute the restraint of other posters - if I had felt livnah was attacking me, I might well have responded in a much harsher way.
However... I may be wrong about this but I get the feeling that livnah was misunderstood, and was truly not interested in attacking anyone at all, and also not interested in venting just for the sake of venting.
I'm gonna go out on a limb and suggest 2 ways to respond to people like livnah in situations like this, which I think may be more likely to result in an outcome that's pleasant for everyone, than the responses that livnah actually got.
First option:
Just quoting what YippySkippy said:
Just that. Not one word more. No appeals to emotion, no offense taken, just going right back to the OP. Nothing better for people who are (or aspire to be) purely rational thinkers.
Second option:
"livnah, how many autistic kids have you raised? If one or more, please provide specific examples of how you solved problems similar to what the OP described. This is not sarcasm. We seriously want to hear it. However if the answer is none, then please understand and accept that this subforum is called "Parents' Discussion" and as such, the prevailing perspective here is the parents'. I personally (and I assume others will agree) do want and need people here who can "explain" our kids to us by virtue of having been through similar experiences when they were young, BUT doing this effectively requires a certain amount of "translating" between the different perspectives, otherwise it can easily become counterproductive. Also, please check whether events described here really are comparable to your own experiences before diving in.
I'm posting this in the spirit of Greentea's (IMHO) insanely beautiful "NT/AS open hotline" because I feel like I understand both sides, in the hope that it may help "in cases like this", even if livnah never comes back here to read this. YMMV and I may be totally off-base.
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Father of 2 children diagnosed with ASD, and 2 more who have not been evaluated.
Funny you say that because I have had times where I would be at work at my old job and my office clerk would tell me where something is. I would go to that spot to get it and not see it so I would look for it and not see it. I would then think. "gee maybe he didn't mean it literally, maybe he meant around here" so I start looking around there only for him to get mad at me for "not listening."
I often felt I was getting punished for trying to be abstract and read between the lines only to screw up. But yet if I looked in that exact same spot, he would still get mad at me for "not using my common sense" because he meant the surrounding area. So I didn't know which one he would mean because it felt no matter what I did, either way was wrong.
Heh my wife does this to me, well she doesn't get angry at me but she will tell me to bring her the curling iron that is on the couch. I will go to said couch and look and look and not see it, tell her, and she will come and glance at it say look there it under the computer desk I MEANT near the couch as in the same room.
I am sorry if anybody is upset by this thread. I appreciate all the replies.
To the specific issue, I know my son has trouble seeing things that are right in front of him. I don't even think it's an AS issue as lots of kids, and adults, do it. I seem to revert back when I'm at my mom's house to a child who can't find anything that's right in front of her face. But as some of you noticed, my point with the shoes and the couch is that my son will deliberately misunderstand, from what I can tell so that he has a reason to continue to chastise me. He SAW the shoes, then said he hadn't seen him. I'm not mind reading, and I give him the benefit of the doubt for around 50% of these interactions, but most of the time it's very obvious, and it's not always about finding something, that was just an example.
It's almost always related to when he did have some sincere confusion about something, but then he started to realize what I meant. For some reason that seems to piss him off/worry him/whatever, and he can't seem to just say "oh, OK, I get it now." He will backtrack and start to pick apart the whole conversation, finding places where maybe I said northwest but should have said west northwest, and if he can't find any real points at which I was unclear, he'll make some up, by claiming something like "well you never said after dinner" when not only had I for SURE said it, he'd even remarked on it a few times, but in that moment for whatever reason he tries to say I never said it. It's all about making me wrong - in these situations he needs for me to be the reason why he was confused. I guess it's stressful for him to admit he was confused (or couldn't find something, or whatever.) Or maybe he just finds it an excellent time to have a good reason to lecture me.
These last couple days I've been trying extra extra extra extra hard to not show any exasperation when he, for lack of a better word, acts like a toddler, and to be super helpful and sweet and accommodating. I am trying to see how he is when he's under less performance anxiety stress or whatever it is he feels on a daily basis. He's had a slightly better two days, and I'm hoping to keep at it for a while then ease into Zette's great examples of how to implement Greene's methods of collaboratively problem solving. In a week we're going to have a HUGE change, so I don't want to start anything different yet because I don't know how the change will affect the whole dynamic - maybe worse or maybe better.
The change - he's going back to regular school. He's been homeschooled since the end of 4th grade, and he's in 8th grade now. My hope is that the novelty and the excitement will engage him and exhaust him and when he gets home each day we'll have some unwinding time and then early bedtime. He loves change and novelty. But the actual school could wind up being stressful after the novelty wears off. He's been in somewhat small group classes only this whole time, with close supervision, and for going back to school they are putting him right into the full time mainstream schedule, where he'll have to go from class to class to class.
I don't think he'll do well academically with that - with me, at least, he can't seem to "get out your history book, turn to page 140, read the section, and then answer the questions at the end." He can't find the book, can't find the page, sees something else in the book he'd rather read, when directed to the page he starts reading from the bottom right instead of the top left, once he's reading he's good if it's interesting, but then for the questions, he won't read the directions and won't start writing any answers.
I give him only a tad bit of that in my homeschool environment, just to push him a bit, but mostly he answers orally, or I'll have him look up online more about whatever he just read and read it and explain to me if the two things he read were basically the same or different. When he does math or the tiny bit of writing, he still writes like a kindergartner and uses up 4 or 5 lines for 3 words. He has written very nicely a few times for supervising teachers in the homeschool program. He's pretty good typing - still slow but he prefers it to writing. And he does have the diagnosed learning disabilities in math and writing and the processing disorder, so he's been on an IEP even before this new autism diagnosis.
I have no idea how he'll do. I can assume he'll do poorly, but maybe he'll really knuckle down, I don't know. The school is adamant about starting him out in the full day program, changing classes each period like any other kid, but they are putting him in the badly behaving group, because the special day class has kids who look nothing like him - I know a lot of you have gone thru this, from what I've read of old threads here. The badly behaving group has a first period and a last period where their teacher drills them on their behavior and doles out rewards and punishments. They are doing this also because of the times he's been aggressive with my mom and I. Of course aggression of an autistic kid in a meltdown is nothing like what the kids in the badly behaving class have been doing - unless they are all like my son and either misdiagnosed or in the class because the school doesn't know what else to do with them.
I am trying to see it as a test, and hopefully a break for me. They will evaluate how it's going and make adjustments in the first month or so if needed. I don't think he'll learn anything, and I'm not sure he'll manage going from class to class - not to mention PE, where he'll have a locker and will have to learn to use a combination lock and will have to change clothes twice... I'm also not sure I'll even get him to school each day, from a compliance standpoint, however he's had online tutoring for a year and he is always in front of the computer ready for her and would never want to be late. He's much better under pressure, but he's never been under pressure every day for days on end, so maybe it'll all fall apart. But I'm hoping they will delve into him and figure out what he needs. I think in the long run he'll need an in home tutor for part of the day and classes for part of the day a couple times per week. But who knows.
Thanks everybody.
Pizzagal3000
Snowy Owl
Joined: 25 Dec 2014
Gender: Female
Posts: 152
Location: In The Land Of Quality Music
If I say look, you just looked right at them, then of course it's no I didn't and he's super mad, telling me I'm accusing him of being a liar, etc. So I don't do much of that anymore, a testament to the fact that I'm not an entire imbecile... But even if I say look honey, right here, he'll still scream his head off at me that he could have found them himself if I'd have given him better directions, and sometimes by this point in the scene he'll even say I didn't tell him they were by the couch, although of course I had. If I say well I see them, do you want me to show you or do you want to keep looking, he'll still get mad and say things like why would I want to keep looking if you've already found them, that would be really dumb, are you trying to say I'm dumb. He's just obviously very stressed out as he's doing this sort of thing many times per day now when it was previously a once per day or less thing.
So tonight. Every night I put out his vitamins and whatever meds he's on inside a plastic bracelet that my daughter left here when she moved out on the bathroom counter. Every night. Months ago I just put them on the counter but they would roll around and such so I started putting them in the bracelet. He thinks it's pretty cool. Some nights he'll say are my meds in the bracelet, some nights I'll tell him and he'll take them as we go that way. Maybe one night per week he'll just go to bed and I'll bring them in to him because he's so tired he couldn't stop off in the bathroom.
Anyway tonight he was having some computer time and I said when you get off, let's not forget your meds in the bracelet. OK, he said. Then he was off, and sitting on the couch with me, and I said let's not let you get too tired to stop off in the bathroom and take the meds. He asked are they in the bracelet and I said yes. Then he wound up in bed without taking them. I said oh it's fine you can take them in the morning. He started to get mad saying that I should have reminded him again. Then he said "and you needed to tell me exactly where the bracelet is!"
Well, shoot, the bracelet is where it always is. And that's pretty much what I said, in a nice tone at least. He said I have no clue what you mean by bracelet. I said yes, you know, the thing it's in every night. No, you need to explain it to me. OK well it's in the bathroom. He's really yelling now and saying he has no clue, doesn't know what a bracelet is, doesn't know where in the bathroom it would be. I try humor: let's think, meds, in the bracelet, near where you get the water in the cup for them, but not the toilet water! Ugh, humor not working this time. He starts lecturing me and being really upset. When I ask you something you need to answer me right then in a way that I can understand! You are not allowed to not answer me!
OK, so, what should I have done? I should have said I'm sorry, I didn't realize you didn't know where the bracelet is, it's right by the sink. Do you want me to show you? Do you want me to bring you them since you're already laying down? Or you can wait for the morning.
But no, that's not what I said. I said I think this is like other times you feel the need to be in control or you feel anxious and you aren't able to just ask for help or tell me so instead you get mad and get controlling. Because of course you know where the bracelet is, you go to it pretty much every night. And I'm super tired, so can we talk more about this tomorrow, if you want. And of course then he had a huge meltdown. I'm a terrible person, I lie to him on purpose, I need to do what he says, finger and spit flying in my face, I go to my room and say please stop yelling at me or I'm going to lock myself in until you are calmer, and he breaks my door coming in after me.
So two points at which I made mistakes - I should have just told him where the bracelet is even though I know he knows. For whatever reason he needed to hear it in that moment. But I get so resentful of his need to control what I say (and where I sit, and when I get up to leave a room, and who turns off the light, and who leaves first.) It happens so many times per day. And it's not like when I spell things out the way he wants me to that things go swimmingly. If so, I'd be super inclined to do it. They don't - there is always something wrong with what I'm saying, how I'm saying it, what facial expression I have at the time. So sometimes I don't. Is there ever a time that I explain to him that he's being too loud, too mean, too aggressive, and irrational, and it actually makes a difference? NO. So why do I even try? Dumb. We all know at that point all I should be doing is whatever it takes to calm him down.
Second point, trying to lock myself in my room. I should have said hey, I'm sorry you're upset, what can I do? I've done that before and after a ten minute lecture he'll calm down. I guess that's part of why I wanted to just lock my door, so I didn't have to sit thru that lecture. But I made it worse.
When he was on the meds (atypical anti-psychotics and anti-depressant he was on for the last 8 years but just had to stop due to developing akathisia) he would do the same things but usually not get so upset and it wouldn't happen so often. He'd try to tell me he didn't know where the bracelet was but if I rolled my eyes at him he'd laugh and say just kidding. And if I said you're being too mean and yelling some really not nice things at me really loudly, he'd still say no I'm not, but he'd stop right then. Now that he's off the meds he's more intense in all those respects. It's hard for me to start treating him like he needs something other than a straight up answer and a seriously? But I have to try harder.
Its very likely someone brought this up already, but, suppose he(your 13 year old son) is hypersensitive to sight?
For alot of Autsies, our visual senses are so darn sensitive that things could be right in our face and we might not really see it.
I get my behind kicked playing games like Call Of Duty because a person can be in my radar as I aim to shoot and I get blasted before I even smash the shooting button. And I get wasted by freakin 9 year olds. So embarrassed....
But I suggest perhaps to be just as patient as you can with your child.
And if its like certain items he cannot notice, like his shoes, put it in places where you know where they are and give them to him instead of having him try to look for them. I think somebody recommended th is already. But yeah, its a totally great idea and kudos to the person who said this first!
I used to do things similar to your son. I would "act" or "pretend"(and still do it sometimes) I cannot hear someone because I am so absorbed in my thoughts, my music, or anything I may be doing when someone tries to call my name. But I don't do the whole smirking, "gotcha" thing. Maybe when I was like 10 and younger I did stuff like that. I think its an attention thing. Not trying to say that I know for a fact he has ADD/ADHD. I cannot diagnose anyone since I have no PHD in psychology. But it may be likely.
There are probably ways to work around these situations, I'm sure.
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I dress anyway want I to, do anything I want to, be anything I want to, cause I got the right to! I is talkin to you(ppl who "oppress" us), boo!----PizzA TimE!! !
Funny you say that because I have had times where I would be at work at my old job and my office clerk would tell me where something is. I would go to that spot to get it and not see it so I would look for it and not see it. I would then think. "gee maybe he didn't mean it literally, maybe he meant around here" so I start looking around there only for him to get mad at me for "not listening."
I often felt I was getting punished for trying to be abstract and read between the lines only to screw up. But yet if I looked in that exact same spot, he would still get mad at me for "not using my common sense" because he meant the surrounding area. So I didn't know which one he would mean because it felt no matter what I did, either way was wrong.
Heh my wife does this to me, well she doesn't get angry at me but she will tell me to bring her the curling iron that is on the couch. I will go to said couch and look and look and not see it, tell her, and she will come and glance at it say look there it under the computer desk I MEANT near the couch as in the same room.
I wonder if NTs automatically know which one and I wonder if there are social cues they read to know the difference but we don't see that so it's a guessing game for us and people who are not understanding get mad at us about it because they assume we didn't use our common sense.
_________________
Son: Diagnosed w/anxiety and ADHD. Also academic delayed and ASD lv 1.
Daughter: NT, no diagnoses. Possibly OCD. Is very private about herself.
No, I don't think there's any kind of NT subtext for this and I think it will vary from person to person how large the 'by the couch' area is from hand's width to that half of the room. But there are also memory issues at play, I think I saw them by the couch, but maybe I actually saw them by the couch yesterday. What I find really annoying (as an NT) is to be told, no they weren't by the couch, they were actually closer to the coffee table.