Any experience with Zoloft/SSRI's?

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Helen36
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13 Apr 2007, 10:59 am

Thank you all for your replies, especially Esperanza, for taking the time and energy to respond. I was leaning more towards not having my son take this medication and that is what I have decided for now. I am not completely ruling it out though because I think that it can have its benefits depending on the person. Unlike some of the people that have posted that can't seem to find good professional people to help them with their situation and child, we are blessed to have found some good people. We all see a psychologist to help with school and home issues. My son sees an occupational therapist weekly and just got evaluated by a speech/language therapist and will be joining a social skills group of 3 other kids. He has a very suppportive staff/teacher at school and an IEP that I feel is giving him what he needs. We also see a psychiatrist to talk about medication. When this Dr. heard of all the different therapies we had going and would be starting in the future she was excited and gave us the option of waiting on medication and see how he did with the different therapies or to go ahead with medication. I was the one that wanted the medication because I am trying to do what's best for MY child. He is on a GF/Cf diet and takes multivitamins specifically formulated for autistic kids along with cod liver oil. I am trying to do everything "right" but still his anxiety persists which we all feel his anger is coming from. He is so obsessed with video games and computer time that it runs our life, this is literally what I feel he lives and breathes for. He has a nose picking obsession to the point where he makes it bleed and I tell him to stop (knowing that's not going to make it happen) and he cries and tells me "I want to stop but I just can't" he does this at school and in restaurants etc. not caring who is watching him etc. With his obsessions and anxiety which I believe is the root of other issues, I felt like medication was the next step. Believe me I have researched this and know the harmful side effects and what could happen, our psychiatrist was very up front about all this and left it up to my husband and I. I believe we have a good doctor who is not trying to force anything. I talked to my son and told him about possible side effects (suicidal thoughts etc.) and he freaked so that made up my mind. Like I said I am not ruling it out and think that it does help some people and maybe it can help my son someday. I will keep you all posted. Esperanza, I am wondering why you took the medication for 8 years if it was having negative effects on you? thanks again everyone!! !! :D :D



SeriousGirl
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13 Apr 2007, 12:34 pm

Zolft controls my anxiety, but at 1/4 the dose most people take. I believe that Temple Grandin also mentioned the extremely low doses which are effective. Proceed with caution with a child and SSRIs.

I would suggest not looking at his obsessions in a negative light. They are his anxiety relief as you probably know. As long as he does his required work and meets expectations in other areas, he should be allowed his interests.

As far as nose picking, my son also did the same and it became a stim of sorts. I had to get him to see the persepctive of others observing this behavior. What does your teacher think? What do the other kids think about it? And I tried not to do this in a negative light, but by simply saying that is the way people are and we can't change them. I also told him it was fine to pick his nose in the bathroom. I just moved the behavior to a private area and that worked. I don't know if he still picks his nose as it is his business in the bathroom.


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Helen36
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13 Apr 2007, 1:08 pm

Yes, defintely our Dr. was starting us out on an extremely low dose. The nose picking issue - everything you wrote serious girl, I have suggested and said the exact thing to my son but it doesn't help. I think its great that my son has something that he loves (video games)and is great at and can relate to other kids about but the INTENSITY and that he excludes all other activity, I just don't think it's healthy.



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13 Apr 2007, 1:28 pm

Helen36 wrote:
Yes, defintely our Dr. was starting us out on an extremely low dose. The nose picking issue - everything you wrote serious girl, I have suggested and said the exact thing to my son but it doesn't help. I think its great that my son has something that he loves (video games)and is great at and can relate to other kids about but the INTENSITY and that he excludes all other activity, I just don't think it's healthy.


We're like that and you have to accept the intensity. It can be channeled into something postive. The intensity is "natural" for a person with AS and it is not unhealthy, I'm sorry to disagree. It's called hyperfocus and it something we share with ADD and people like Bill Gates. It is the same intensity that allowed me to create a business and be financially secure. If you turn it around a look at it as a feature, instead of a bug, you can channel it into positive directions. If not, it will be a major source of contention in your relationship and will make your son feel worse about himself. Basically, your premise is his personality is unhealthy and whether your intent is good or not, that is the message that will be received. I am 50 years old and STILL like that, even with Zoloft. It is a personality trait, plain and simple, and you can't change it.

When he picks his nose, ask him to go to the bathroom in a matter of fact way. His teachers need to do the same.


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Esperanza
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13 Apr 2007, 1:33 pm

I took it for 8 years for two reasons.

First, the drug itself made me very apathetic. At first I simply didn't care that my life was falling apart. Nothing bothered me. It took me quite some time to decide that I had become very apathetic. After that it took me a long time to realize the Paxil was causing the apathy. Once I knew it was having negative effects on me and my life was passing me by, I still didn't care enough or feel motivated to do anything about it. I didn't care that I didn't care.

Second, Paxil is an extremely addictive drug. Even once I had decided that I ought to quit, I wasn't looking forward to being debilitatingly sick for an extended period of time. I had run out of the stuff by accident before and I knew what it felt like to go without it for so much as three days: Very unpleasant. So I put it off, and time kept marching on. When I finally did quit, I was too sick to leave my apartment at all for three weeks, and I couldn't work for a total of about two months. It was an overwhelming experience.



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13 Apr 2007, 2:12 pm

BTW, I've never taken SSRIs for longer than 6 weeks without taking a break from them. Sometimes, I can go for months until I need it again.


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donnamite
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13 Apr 2007, 9:50 pm

I have a nineteen-year-old son who has taken 50mg of Zoloft daily since he was eight years old with positive effects. The best thing to do is have your son tell you how he feels while taking it; nobody knows better than he does. It may take a week or two to fully take effect. Some psychiatrists tend to over medicate (my opinion) so the internet is a wonderful tool if he is prescribed multiple medications. Do not be afraid to say no to a medication you feel is harmful. It was very hard as a parent to put my child on medication but in retrospect, it has been the best thing for my son. By the way, the Zoloft made him sleepy at school so we started giving it to him after school and that worked much better.



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14 Apr 2007, 9:06 am

donnamite wrote:
I have a nineteen-year-old son who has taken 50mg of Zoloft daily since he was eight years old with positive effects. The best thing to do is have your son tell you how he feels while taking it; nobody knows better than he does. It may take a week or two to fully take effect. Some psychiatrists tend to over medicate (my opinion) so the internet is a wonderful tool if he is prescribed multiple medications. Do not be afraid to say no to a medication you feel is harmful. It was very hard as a parent to put my child on medication but in retrospect, it has been the best thing for my son. By the way, the Zoloft made him sleepy at school so we started giving it to him after school and that worked much better.


I agree, your son will know, I may start with a three week blind trial (a pharmacy can arrange that) first though, just to see if your son or the school notice any "changes" prior to him even starting.

My son hated every minute of being on Ritalin when he was younger. When I told him that we where going to try a drug again, he got very very upset, all these years later. I told him it was a different type, and to just give it a try. He did, and he loves it. He actually is recommending it to family with ADHD cousins! He for the most part, seeks out the meds in the evening as part of his routine.

I still think Strattera may help with the anxiety... It is used very widely with children, with very minimal side effects. The only thing is, it is very expensive, so if you don't have a drug plan, it is probably a no go...



rk36
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15 Apr 2007, 4:28 pm

My daughter is ADHD and mild Bi-polar. When we found out about the bi-polar the doctor prescribed Zoloft. I only thought I had problems before. She went from not wanting to do home work and chores to skipping school and not even wanting to get out of bed. That was the worst month of my life. We went back to the doctor and we finally have her stable on Concerta and Lithium. Wow what a change. The moods are now typical 13 year old and we are now finally getting along. She is so sweet and doing so much better all the way around.

Rose



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15 Apr 2007, 4:35 pm

rk36 wrote:
My daughter is ADHD and mild Bi-polar. When we found out about the bi-polar the doctor prescribed Zoloft. I only thought I had problems before. She went from not wanting to do home work and chores to skipping school and not even wanting to get out of bed. That was the worst month of my life. We went back to the doctor and we finally have her stable on Concerta and Lithium. Wow what a change. The moods are now typical 13 year old and we are now finally getting along. She is so sweet and doing so much better all the way around.

Rose


Geeze that's awful. I thought doctors were supposed to know that SSRI's can make bipolar disorder a WHOLE lot worse. A mood stabilizer, like what you have her on now, is what's SUPPOSED to be done, which i'm sure you can tell now from the huge difference you saw.


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spyder774
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16 Apr 2007, 11:43 am

Esperanza wrote:
no no no no NO! I was on Paxil for eight years, it RUINED MY LIFE! They don't even really know what exactly the stuff does to people's brains- I know it did HORRIBLE things to mine in the long run. Giving it to a child is a HORRIBLE idea!

At first it seemed like a godsend. I didn't mind being miserable anymore. Eventually I realized I didn't really have emotions anymore- ANY kind of emotions. But, I didn't care that I didn't care. I stopped going out. I stopped doing ANYTHING. I stopped going to work and school. I flunked out of university. I gained fifty pounds. I slept 12-15 hours a day. I didn't get nervous in front of crowds anymore, I didn't feel bad about hurting people, I didn't love anyone, I didn't feel any kind of fear or desire or joy or misery.

I won't even go into all the awful things that happened. I can't begin to give you all the information here.

When I finally decided to quit, I found the drug was so addictive that I was actually incapable of working for two months. I was INCREDIBLY sick, and my withdrawal went very very well compared to most. My brain will never fully recover. Worst of all, I am actually less intelligent than I was before I started taking the pills. That might sound extreme, but if you look into it you will find that a lot of people have experienced this problem. I don't learn as easily anymore; I can't juggle concepts in my mind the way I used to. I forget things more often- my memory is shot. Everything is just a little bit blurry.

For more accounts of what it's like to be on (and get off) SSRIs like Paxil, take a look at http://www.paxilprogress.org/ . Beware the information sites and forums that are run by the companies that produce the drugs!! !

Drugs should ONLY be used as an absolute LAST resort, like if you really believe the only other option is letting the person KILL HIMSELF. And even then they should be used as sparingly as possible and for as short a period of time as possible. It looks innocent. It looks like a nice helpful little pill, like Tylenol, and it's given to you by a doctor- how can it be bad? Don't underestimate what it can do to you! Don't overestimate what doctors know about it!

Do NOT make the same mistake I did. DEPRESSION, OCD AND ANXIETY ARE NOT THAT SIMPLE. A PILL WILL NOT SOLVE YOUR PROBLEM.


Couldn't agree more! Iwas put on this drug for anxiety problems (it's called seroxat here in the UK), it might have helped the anxiety a tiny bit the negative effects far outweighed any positives. I had some nasty side effects and when I decided to stop taking it I had the devils own job weaning myself off. I found Eye-Q capsules far more effective than any prescription meds.