undiagnosed AS/HFA adult (mom), and diagnosed chd AS/HF

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krex
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10 Sep 2007, 9:37 pm

Boutique wrote:
whatamess wrote:
Sorry for the long post, but bottom line is...HOW DO I MAKE THEM UNDERSTAND? How do I make others understand that this does not mean that I'm saying my son is stupid (that's their response every single time)...so that they better understand his needs...and while I'm at it, mine...


I waited until my mom came for a visit this last weekend, then I handed her an article to look at while I was trying to explain it to her. She had no idea previously what AS was or that I have it, but she really started to see things crystal clear by reading the article and with me recalling different things that were odd about me as a child and the different things that I still struggle with at age 33. There are signs that I'm aware of that she didn't see and vise versa. She recalls totally screaming her head off at me when I was a child trying to get me to clean my room. It is still nearly impossilbe for me to clean a room. I can usually only do it by dealing with one object at a time, and it's a painfully slow and challenging process.




Can you post a link to the article?I havent found very many to share with my mom that dont make it sound like.....All people with AS "flap" or memorize train schedules.In her mind,I dont do eother of those things,so must not be AS.(Inspite of a DX by someone trained in DX of adult AS)She isnt exactly "bright"(sorry mom),needs something simple and not full of over generalizations.


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Boutique
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10 Sep 2007, 10:10 pm

krex wrote:
Can you post a link to the article?I havent found very many to share with my mom that dont make it sound like.....All people with AS "flap" or memorize train schedules.In her mind,I dont do eother of those things,so must not be AS.(Inspite of a DX by someone trained in DX of adult AS)She isnt exactly "bright"(sorry mom),needs something simple and not full of over generalizations.


It was this one:

http://pathfindersforautism.org/ArticlePrint.aspx?id=26



krex
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11 Sep 2007, 12:52 am

Thank you :D


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11 Sep 2007, 1:09 am

You're very welcome.

The first thing in that article that jumped out to me and my mom is that I was hyperlexic (could read fluently from age 3).



reika
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13 Sep 2007, 10:40 pm

Reading all of your posts makes me feel really grateful that I had the parents I had. We were never "close" but they were accepting and encouraging (my mom anyway, I haven't spoken to my dad in years, except once recently, when I told him my daughter was autistic he just said"I know" and left it at that. Of course he's as AS as they get...wow 3 "as's" in a row, trippy) My mother kept dropping hints that I NEVER got about MY AS symptoms all the time (like spinning around on this little "waist reducing" board she had for HOURS at a time, I'd forgotton all about it, sure did love that thing, I could read fluently by 4 years of age. NOT always a good thing, when I got to first grade I spent a lot of time in the hall for correcting, everyone elses reading, ect. ect)Both of my parents are (were, my mother died a couple years ago) extreamly intelligent and I think my mom had done her homework before even breaching the subject w/ me. My daughter was DX'd 2 years ago in Dec. as Autistic, and went into early intervention classes which I must say have REALLY helped A LOT. I had never even heard of AS until all of my daughters therapists and teachers independtly of each other all told me I exhibited a lot of the symptoms. Really did't believe them at the time (was in self-denial) but it's just too glaring to ignore any longer.
I emphatically agree that you need to "make a stand for your sons emotional well-being" and tell your parents to knock it off. I know it can be hard to stand up to them, they are your parents after all, but you have to do it for your son. Does your son hear the conversations that are had about him? I think that may be detrimental also. Can he FEEL the tension when they visit? Kids are a lot more perceptive than adults tend to give them credit for. How horriable for you to be put in the middle of this conflict w/ people you love. They need to find ways to support you and him instead of tearing you down with their backwards views. I'm a single parent now and while it is hard at least I don't have the negative aspects of "Family" to deal w/. My heart truly goes out to you and good luck. Have to go "Shop-vac" the bathroom floor now, my little angel is "swimming in the tub". Sorry so long, I do that every time.


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