OMG Autism Is SO Horrible, Never Speak of It!
Ignore your mother. You are the mother now.
I agree. I think you should ask your mother would she rather her know she has Autism, or go through life thinking she's responsible for the problems that occur related to Autism. Like, would it be better for her to think she's dumb, that she somehow brought this on herself. Nan is right, if she doesn't know she has Autism, she will fill in what is wrong with her. Chances would most likely be she'd belive it's her own fault she isn't smart.
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"Sprinkle, sprinkle, little bar, what I wonder is a cat" - Cheese from Foster's Home for Imaginary Friends
For years, I thought any problems were because I was "too stupid", "too lazy" and "too hopeless". Having an official diagnosis means I can begin to challenge those ideas - still got a long way to go but have made a start.
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Break out you Western girls,
Someday soon you're gonna rule the world.
Break out you Western girls,
Hold your heads up high.
"Western Girls" - Dragon
I agree, always tell the child the truth at a level they can understand. Z is comfortable with his dx. He says it helps him understand why NTs are so wierd.
Your mother is just going to have to learn to live with the facts, denying them won't change them!
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Aspies, the next step in evolution?
I've lived most of my life with AS (and I'm not young). The kid (thank God) doesn't have a life-threatening disease. Wait until she a little older, and then explain it calmly. Some people with AS are, by the way, brilliant. It goes with the condition. Some of us are just average.
Don't get discouraged yourself. Do something to ensure you survive with your sanity. You're not alone. When I was growing up, they didn't have meds for it, and I came this close (holding two fingers very close together) to being shipped off to an institution. My parents put a stop to that right quick.
You might just have a gifted child there. Treat her as one. And won't your parents be proud of their grand-daughter if she turns out to contribute something major to society? That's the way you HAVE to think of it.
Sorry about my cat comment. I'm a cat person.
Good luck.
Btdt
Information helps, ignorance hurts. This should absolutely be an open discussion. I was not diagnosed until I reached adulthood, and- had I known what the issue was as early as possible, I would have avoided many, many ugly experiences. I would have greatly benefited from knowing WHY I can't "just fit in" and "act normal". I probably wouldn't have forced the issue upon myself (of trying to fit in), making the situation worse. More likely, instead of doing something futile and pointless, I would have instead put all my energy into constructive endeavors that would ultimately pay off.
When the subject is brought up with your children, just tell them that there is NOTHING wrong with them! My parents told me recently, I don't have a disease. I have something about the way my mind works that makes me unique and special, and that it can actually be a real edge in life. That was the best advice anyone has ever given me, because before (even before I was diagnosed) all I did was fixate on "something being wrong with me".
Honesty is the best policy. Adults assume that children are incompetent. I'm constantly told how good I am around children, and how well-behaved they are around me. I know why. Because I don't patronize them and when they ask me a question, I tell them the truth. Parents would have (in my opinion) much better relationships with their kids if they would have better communication, and not treat their children like feeble-minded sheep and hide information. Kids are a lot more perceptive than adults believe, and I've noticed- smarter.
When the subject is brought up with your children, just tell them that there is NOTHING wrong with them! My parents told me recently, I don't have a disease. I have something about the way my mind works that makes me unique and special, and that it can actually be a real edge in life. That was the best advice anyone has ever given me, because before (even before I was diagnosed) all I did was fixate on "something being wrong with me".
Honesty is the best policy. Adults assume that children are incompetent. I'm constantly told how good I am around children, and how well-behaved they are around me. I know why. Because I don't patronize them and when they ask me a question, I tell them the truth. Parents would have (in my opinion) much better relationships with their kids if they would have better communication, and not treat their children like feeble-minded sheep and hide information. Kids are a lot more perceptive than adults believe, and I've noticed- smarter.
I agree with and appreciate everyone's commentary - this one struck me especially. I echo your feelings on this, having gone through my entire pre-adult life having no clue why I was so painfully different, socially awkward and unaware of norms...and living in sensory hell besides. Had I known, I wouldn't have hated myself as a kid.
And kids are bright, yes. I think it is well within my daughter's capacity to understand some of the things about ASDs. When she has struggles, I explain why. I really believe that it helps.
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They tell me I think too much. I tell them they don't think enough.
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