Page 2 of 3 [ 37 posts ]  Go to page Previous  1, 2, 3  Next

sinagua
Deinonychus
Deinonychus

User avatar

Joined: 28 Nov 2007
Age: 54
Gender: Female
Posts: 368
Location: Rhode Island

05 Dec 2007, 3:17 pm

inkastamp wrote:
Hi- I just discovered this site today, and was reading all the posts and replys to your initial question. First of all, I think you are doing a great job. We see a counselor every week, for my two daughters 10 and 12 yrs old. Both who are struggling. I was a complete wreck, because I felt I was at the end of my chain, and our counselor told me that it might take 6 months for them to get it, but to just be patient. She also said the only way for the kids to "get it" without manipulating them, is not to give them the chance to mess up. I noticed in your post, that you said you "told him to go brush his teeth" then when you went to check on him he was not using toothpaste.

Now I want to say we are in the midst of this ourselves, but our counselor told us that if you want your child to do something, you have to go and be with them, so they don't have the opportunity to mess around. I am wondering if you were to go with him to the bathroom, and stand in the door way- don't say anything to him, just be there, if he would not just make the right choice, and use the paste. If he proceeded to brush without paste- calmly remind him there isn't paste on the toothbrush. Don't tell him he forgot the paste, because he will say he didn't forget, which he probably did not forget. He is just making a choice not to use it. This will typically keep the meltdown at bay. Give them the power they think they have, but let him know you are on top of everything he is doing, and eventually he will think you are one step ahead of him, even if you aren't. The best way we have found, if a meltdown insues, ride it out. Let him know calmly that you understand his frustration, that he feels you don't give him any space, he may get really mad, but just stand there calmly, and wait for him to realize no matter how mad, defiant, beligerant, he gets, you are not going to back down. A rule is a rule.

As I read the posts, I knew there would be several say let him pick his toothpaste- if you are like us, we have had EVERY flavor ever made, and it doesn't matter- if he has it in his head that he doesn't want to use it, it could be his most favorite thing in the world, and he would still say he hates it. Let it slide off like water on a duck. That is definately an aspie.

Don't think you are a bad parent for having difficulty. You are doing the best you can. A bad parent wouldn't be out there looking for a way to help their child. They simply wouldn't care about the welfare and upbringing of the child. You are doing great. I too feel so overwhelmed about the little stuff that gets so blown out of proportion. I think it is just as hard to be the parent of an aspie as it is for the aspie themselves.

Hang in there you are doing a great job, don't give up- it is just an uphill battle that we have to face.


Thanks so much for the encouragement. Yes, we let him have whatever toothpaste he wants. ;) But no, we did not go into the bathroom and stand there and watch him brush, and I do see your point about this. I will say that I do sometimes go stand there to watch him brush, and when I do he gets defensive, demands to know what I'm doing, why I'm standing there, and when I tell him it's to watch him/make sure he does what he's supposed to, he acts so wounded like I don't trust him (of course I don't! haha). I usually interpret this to mean he'd planned to be sneaky in some way, and now he can't because I'm standing there. ;) But you're right, sometimes you do have to go practically hold their hand to make sure stuff gets done. He's not like this with EVERYTHING. Just the stuff he doesn't want to do.

We are also trying to "soften" our approach with him, discipline-wise. Some days I think if I hear the word "consistent" one more time I'll scream. (no offense ;)) I fear becoming too rigid (consistent), but if we say "Okay, you don't have to do whatever THIS ONE TIME," he begs and begs every single day to not have to do whatever (like teeth brushing). "BUT YOU LET ME NOT DO IT BEFORE!! !" Ugh. That's hard. And i know what you mean about asking the same question a zillion times, hoping somehow the answer will change. And honestly - sometimes, it DOES change, because it's a different day, or you have different things going on, different factors at work in that particular moment. So in a way, it makes "sense" for him to keep asking. ARGH! ;)

My husband will say the same things over and over again until I'm exhausted listening to him, and will also often ask me the same question over and over again (honestly I hadn't thought of it until you mentioned it). He says talking about something a lot, saying the same things over and over, make things "more real" for him. I understand that, pretty much, as I probably do a bit of that myself - but when you're the listener, it can be SO EXHAUSTING. And he doesn't seem to pick up the little nonverbal clues I'm giving off that say "Enough already, please, it's late and I'm so tired...." I have to actually just get up and start walking out of the room for him to notice.

Thanks again for the encouragement - it's kind of scary to discuss such personal, emotional things, even on a community like this. I'm always afraid of being judged (my problem I need to get over). Your warmth and compassion are greatly appreciated. :D



PersonalEnigma
Tufted Titmouse
Tufted Titmouse

User avatar

Joined: 2 Dec 2007
Gender: Female
Posts: 32

05 Dec 2007, 11:04 pm

I also struggle with feeling too strict and rigid. But I can't give in to L's demands. We tend to offer treats as a surprise rather than as something he asks for. If he asks for a treat most of the time we will say "no", but if he does not and we are out and about we will often stop somewhere for something special. That way he at least gets some nice extras, but he doesn't sit there are ask for it all the time (not that it really stops him some days, but at least wecan be consistant saying "no" without feeling too bad about it).

I found one thing that helped a bit was to make up a schedule of what we do each morning/evening so that L can look at it and know what he was expected to do and when he was expected to do it. It has fallen by the wayside at the moment thanks to the arrival of the new little one, but I hope to rework the schedule and get it going again. The hardest thing here is that we constantly have things come up that disturb the routine - we are just not an overly organized family to begin with...

I also really work on picking my battles with L. Some things must be done the way I want them, other things I tend to look past. For example, I expect L to speak to me in a decent tone of voice at all times - if he does not I ask him to repeat what he has said in a respectful way before I will acknowledge what he has said. On the other hand I will usually overlook non-verbal expressions of frustration (as long as they are not harmful) and will tolerate a wider range of expressive language than some (within reason of course).

It is a continuing game of give and take with L. He's not an easy kid and to be honest he really stretches my endurance at times. I am naturally a lenient and easy-going type of person, but with L I have had to learn to be far more strict and firm than ever expected to be. I still love him though, despite all his flaws - he can be the most wonderful, affectionate kid when he wants to be ;)



SweXtal
Deinonychus
Deinonychus

User avatar

Joined: 11 Nov 2006
Age: 54
Gender: Male
Posts: 304
Location: Mora, Sweden

07 Dec 2007, 8:57 am

i HATE brushing my teeth! It sends sensorical tensions like electricity all over my upper torso! So I understand my mid son hating showers. He just can't stand the feeling of drops tickling all over his body. It's simply short-circuiting the whole system. To take a shower for him is a "get ready to die, private"... It's a mix of giggle and crying. It's like he's turned inside out with every nerve ending outside.

Also the psychological aspect of it, I can tickle my daughter without even touching her. She hates it. But it's pure psychological. Her best friend has tended to learn how to do that on her too. It's a bit like somebody being hypnotized.

But the intricate way of tending to do things when things should not be done is a prime for my eldest and youngest. My youngest is allergic to a lot of common food, like egg, fish, all four seeds, soya proteine and corn, corn starch, etc... so we have all fridges locked.

One day when he was feeling sick, it just took a moment to find out why. He had stolen a bunch of frozen chocolate covered snacks with a bisquit bottom and eggwhite topping.... Like marsmallows.

He tasted one, after picking the darn lock. Thank you, Discovery Channel. He's 7.



gbollard
Veteran
Veteran

User avatar

Joined: 5 Oct 2007
Age: 57
Gender: Male
Posts: 4,009
Location: Sydney, Australia

10 Dec 2007, 4:59 am

Correct me if I'm wrong but the problem isn't brushing teeth, it's manipulative arguing.

Aspies argue for a number of reasons;

1. Attention Grabbing
2. Conversation and Fun
3. Because they are unhappy about something.

There's obviously more.

You need to figure out which reason.

Also... the worst thing you can do with an aspie (or any kid) in an arguement is shout. That way, you lose.

(ok these bits are about teeth but you can hopefully generalise to other arguement situations)

1. Sympathize, say you don't like brushing your teeth either but explain that it has to be done - maybe show a tooth decay picture on the internet. You need only do this once and can then refer to it... ie: remember that picture I showed you.

2. Ask him WHY - Why don't you like brushing your teeth: Is it the feeling? the taste? the wasted time? If there's a problem, you can try to find it and fix it.

3. Be a companion, brush your teeth together.



Deus_ex_machina
Veteran
Veteran

User avatar

Joined: 19 May 2006
Age: 36
Gender: Male
Posts: 1,342
Location: Australia

10 Dec 2007, 5:33 am

I remember when my dad used to brush my teeth for me and it hurt like hell. Same goes for when my mother used to use the nail scissors on me, except they were also extremely uncomfortable.


_________________
"They do, but what do you think is on the radio? Meat sounds. You know how when you slap or flap meat, it makes a noise? They talk by flapping their meat at each other. They can even sing by squirting air through their meat." - Terry Bisson


Pandora
Veteran
Veteran

User avatar

Joined: 17 Jun 2005
Age: 63
Gender: Female
Posts: 3,553
Location: Townsville

10 Dec 2007, 10:20 am

MelbMum wrote:
This is my first post on here. I've recently found out that my 13 1/2 year old son has AS. I found this site through surfing around as in Aus there is not much information on it yet.

Anyway, my son has always been very manipulative /argumentitive / arrogant / lying and can empathise with exactly what you are saying. He in the past used to just lie to our faces, but in recent times tends to just want to argue with me full stop and try and pick at me with little things ie.

I gave him a couple of keys the other days for our window locks as there are 2 different types of windows he needed 2 different keys. Of course son didn't want to see that there are 2 different types of windows and preceeded to tell me that I had given him the "wrong keys". Rather than just enquirying he comes out into full blown, you've done this or you've given me the wrong that....I don't know how I manage to keep my sanity sometimes! My husband is very supportive (he is not son's natural father) and also feels the pain of this.

Does it ever get any better?? The past two years he's forgotten both of our birthday's even though he was reminded the day before - I would love to just have some empathy from him occassionally.
We aspies often don't place as much significance upon birthdays and anniversaries as NTs so that might be why your son forgot. He probably has short term memory deficits and is not deliberately trying to make life hard.

I even now find I often have to be told twice and always find it easier to have instructions given to me in writing so I can keep looking at them to refresh my memory.


_________________
Break out you Western girls,
Someday soon you're gonna rule the world.
Break out you Western girls,
Hold your heads up high.
"Western Girls" - Dragon


sinagua
Deinonychus
Deinonychus

User avatar

Joined: 28 Nov 2007
Age: 54
Gender: Female
Posts: 368
Location: Rhode Island

10 Dec 2007, 1:03 pm

Deus_ex_machina wrote:
I remember when my dad used to brush my teeth for me and it hurt like hell. Same goes for when my mother used to use the nail scissors on me, except they were also extremely uncomfortable.


8O Interesting. Sometimes he asks me to brush his teeth for him, and sometimes when I do, he says I brush too hard and it hurts. He also will go around like an old man with long toenails and fingernails unless I come after him with nail clippers. I always try to be extremely careful not to cut him, AND I DON'T cut him, but he generally seems extremely uncomfortable with this and often claims I nip him, even when I don't. Hmmmm. I'll be more aware of this in the future. Thanks. 8O



Deus_ex_machina
Veteran
Veteran

User avatar

Joined: 19 May 2006
Age: 36
Gender: Male
Posts: 1,342
Location: Australia

11 Dec 2007, 2:46 am

sinagua wrote:
Deus_ex_machina wrote:
I remember when my dad used to brush my teeth for me and it hurt like hell. Same goes for when my mother used to use the nail scissors on me, except they were also extremely uncomfortable.


8O Interesting. Sometimes he asks me to brush his teeth for him, and sometimes when I do, he says I brush too hard and it hurts. He also will go around like an old man with long toenails and fingernails unless I come after him with nail clippers. I always try to be extremely careful not to cut him, AND I DON'T cut him, but he generally seems extremely uncomfortable with this and often claims I nip him, even when I don't. Hmmmm. I'll be more aware of this in the future. Thanks. 8O


No worries.


_________________
"They do, but what do you think is on the radio? Meat sounds. You know how when you slap or flap meat, it makes a noise? They talk by flapping their meat at each other. They can even sing by squirting air through their meat." - Terry Bisson


cubedemon6073
Veteran
Veteran

User avatar

Joined: 7 Nov 2008
Age: 45
Gender: Male
Posts: 4,958

07 Sep 2011, 3:47 pm

Sometimes, the answer may be pride. This has been one of my problems. I've been the type who has always wanted to be right. Part of it may stem from that he may be trying to prove that he is as intelligent as everyone else.

What he needs to learn is:
1. A person is not always right.
2. Even if he is truly right sometimes it is better to just let it go and move on.
3. He is not entitled to the reasoning behind everything. I've had to learn this myself. For me I am still learning and it is hard pill to swallow. He can ask for it though. He needs to know how to ask and not demandng which is what he is doing. It has to be in a very polite and humble way. Even then, he has to learn he may still not get it. Another thing is learn when the appropriate time and place to asw for the reasoning.
4. Know how to be humble and be in the submissive spirit in everything he says and does and not be prideful and not be in the rebelious spirit.



XFilesGeek
Veteran
Veteran

User avatar

Joined: 24 Jul 2010
Age: 41
Gender: Non-binary
Posts: 6,031
Location: The Oort Cloud

07 Sep 2011, 7:24 pm

I don't have any insight on WHY he's doing it, but I do have a minor suggestion:

Make sure that, when you tell him to go "brush" his teeth, you specify that he needs to "brush" with toothpaste, both top and bottom, for a certain amount of time.

Technically, your son WAS "brushing" his teeth, he just wasn't using toothpaste. Personally, if people want me to do something, I require specifics. I obey the letter of the law, not the spirit. If he likes to "sneaky," try eliminating as much "wiggle room" as possible in your instructions.

Just a thought.

Take care.


_________________
"If we fail to anticipate the unforeseen or expect the unexpected in a universe of infinite possibilities, we may find ourselves at the mercy of anyone or anything that cannot be programmed, categorized or easily referenced."

-XFG (no longer a moderator)


DW_a_mom
Veteran
Veteran

User avatar

Joined: 22 Feb 2008
Gender: Female
Posts: 13,689
Location: Northern California

07 Sep 2011, 7:37 pm

REMINDER: the original post in this thread, and most of the discussion, is from 2007.

There is no point in advising the OP specifically since this person no longer posts here.

Which does not mean there cannot be value in the general discussion, of course.


_________________
Mom to an amazing young adult AS son, plus an also amazing non-AS daughter. Most likely part of the "Broader Autism Phenotype" (some traits).


t-bomb
Emu Egg
Emu Egg

User avatar

Joined: 6 Sep 2011
Age: 46
Gender: Female
Posts: 4

08 Sep 2011, 8:56 am

I like was Inkatype had to say. You've had some responses to your original post that said basically people with AS can't possibly be manipulative, they're working too hard. My son is extremely manipulative, argumentative and lies every chance he gets. You're not crazy. Hah, well you might be (I am!) but not for thinking your AS kiddo is manipulative.

One thing that helped with my kiddo is a visual schedule. "Here's what your bedtime routine looks like. It starts at 8PM. 1. (photo of the toilet). 2. (photo of clothes in the dirty laundry hamper). 3. (photo of a pullup and PJs). 4. (photo of toothbrush with toothpaste on it). You get the idea. For my son I have to sit in the room, but he doesn't want me to say anything to him. So I just sit and observe and if he misses a step, or does one incorrectly I get up and point to the chart, which is 3'x4' and taped to his wall. His reward at the end is that I read to him one chapter of his encyclopedia. If he lies or is manipulative ever during the day he starts losing privileges. The first thing to go is always his reading at the end of the day. The next thing I take away is the privilege to pick the TV show we watch. Again, you have to have consequences that are significant for your child. Control is a huge deal for my child, so taking away his ability to control which TV show we watch is big for him.

If I were you, I'd also tell him a consequence for not doing it correctly is that he loses the privilege of having his door closed.

Lastly, I know you think it isn't a sensory issue - but you might want to try buying a cheap-o mechanical toothbrush (one where the brush rotates or vibrates) and let him put it in his mouth and see what he thinks. If he likes it, you can teach him to brush with it and then when he's good at it you can put toothpaste on it.

Good luck!



Bombaloo
Veteran
Veteran

User avatar

Joined: 31 Mar 2010
Age: 53
Gender: Female
Posts: 1,483
Location: Big Sky Country

08 Sep 2011, 1:53 pm

cubedemon, I'm jsut kinda curious about what made you dig this post up from the depths?



cubedemon6073
Veteran
Veteran

User avatar

Joined: 7 Nov 2008
Age: 45
Gender: Male
Posts: 4,958

08 Sep 2011, 6:16 pm

Bombaloo wrote:
cubedemon, I'm jsut kinda curious about what made you dig this post up from the depths?


I meant to go to one post but accidently dug up this one.



Chronos
Veteran
Veteran

User avatar

Joined: 22 Apr 2010
Age: 44
Gender: Female
Posts: 8,698

08 Sep 2011, 10:14 pm

sinagua wrote:
Our son is almost nine and has Asperger's. One of our biggest issues is determining which behaviors are AS-related and really not much in his control, and which ones are him just being a bright, opportunistic kid. He seems "clever" enough to want to argue with us over every little household rule or responsibility and be extremely manipulative - but not socially adept enough to understand that people don't LIKE feeling manipulated, and in fact often get upset when they feel they're being manipulated. AND they don't forget about it in ten minutes, like he seems to. If you are rude to someone, for instance, they're likely not going to want to play with you ten minutes from now. He can't see how his behavior will look to others. For instance, last night he was supposed to brush his teeth before bed. He went into the bathroom and shut the door. Upon seeing this, his father immediately knew something was up - we don't shut the bathroom door just to brush our teeth. He waited outside the door for a few moments, then opened it quickly, and sure enough - caught the little guy with his toothbrush in his mouth, but no toothpaste, and the expression of a cat beside an empty fish bowl. When his dad instructed him to use toothpaste, he immediately started whining "But WHYYYYYYYYYYYYYYYY?" He KNOWS why. He just didn't want to do it.


Toothpaste BURNS. That is likely why he doesn't use it. It's painful and tastes horrible. It's a hypersensitivity issue. You need to work with him to find a toothpaste he can tolerate.

And what's the big deal about closing the bathroom door when he wants to anyway?

sinagua wrote:
Can any other parents here shed some light on this? We don't want to just gloss over/excuse his bad behaviors and say "Oh, he's got a disability" or something and not expect anything from him. I had a brother with a slight case of Tourrette's and our mother let him get away with bloody murder and would always say, "Well, he's just a sick little boy." And he grew up spoiled and selfish and now has spoiled, selfish, mean kids.

But we also don't want to try to force our son to do things he's simply not capable of.

It's so hard sometimes to tell which is which - what's AS-related stuff he can't really control or explain, and what's him just being a bit of a typical bratty, opportunistic, manipulative third grader?


Before declaring him manipulative, I think you need to try to understand why he might be opposed to something. You have to understand the perceptions and logic of someone with AS can differ from that of NTs.

For example, most NTs would not think toothpaste burns to a degree that is intolerable. They also might not think tomato sauce burns to such a degree, yet when I was a child, tomato sauce was as spicy as capasin peppers in a painful and irritating way.



Chronos
Veteran
Veteran

User avatar

Joined: 22 Apr 2010
Age: 44
Gender: Female
Posts: 8,698

08 Sep 2011, 10:27 pm

sinagua wrote:
Of course we (and his dentist) have explained to him why toothpaste is necessary. He actually hates brushing his teeth in general (what kid doesn't? I still hate it), and will do anything to get out of doing so. When we tell him it's to keep his teeth clean of tartar and food particles so they don't decay, he wails "BUT WHY can't I just have ONE NIGHT where I don't brush my teeth?" And if we do let him have one night without brushing (because true enough, one night won't kill him), he'll ask/insist/whine again for the same the next night, too. It seems like no matter how much we give in, it's never enough. So I admit, we've gotten a bit inflexible about certain things, because every time we try to "negotiate," it's a mess. He'll agree to do one thing, then do another thing entirely. He'll change his mind about the "deal" five minutes later - or an hour later, or a day later. If we fulfill our end of things first, he'll end up not doing his part in turn. That does feel manipulative.


That's not really manipulative. That's really just a kid being a kid. They are not able to perceive temporal events with as wide of a radius as adults. What happened yesterday, or what will happen tomorrow, can seem disjointed. This ties in to why children and teenagers can't fully perceive the results of their actions even if you tell them the consequences. They live in one moment and cannot place themselves in the next.

When he promises to brush his teeth tomorrow night if you let him skip tonight, he isn't trying to be manipulative because he's likely not thinking "Ha ha ha, I'll just do this again tomorrow night." The only thing he's thinking is "Please just let me skip tonight and I PROMISE I'll do it tomorrow night." The problem is, he actually can't put himself in the moment of tomorrow night. He doesn't understand that it's going to feel the same way and he isn't going to want to do it just as much, and he only understands that when tomorrow night comes and he is faced with brushing his teeth.

Your son hates brushing his teeth, probably more so than you realize, due to sensory issues, and very likely transition issues as well. Most NTs wouldn't understand but moving from one task to another can be very difficult for those on the spectrum. Put this in perspective; brushing his teeth is such an unpleasant task for him that he pleads with you to let him skip doing it even though it shouldn't take more than 2 minutes of his time. It really is THAT unpleasant.

Of course he does have to brush his teeth so as I said, just try to find a toothpaste he can tolerate.


sinagua wrote:
For the record, we HATE having to say "Because I said so" and avoid it as much as possible. It only tends to come out when we've gone through the same argument/fight every night, and we've repeated ourselves a thousand times, and he's still whining "BUT WHYYY???" and honestly we are exhausted and just want compliance.

I've bought him whatever special flavor of toothpaste he asks for - the blue kind, bubblegum flavor, with the sparkles in it, even. Doesn't matter. I am willing to believe that he does find the taste a bit off-putting. He basically won't eat at home unless it's PB&J on "regular" bread, or a hot dog with ketchup on a CERTAIN kind of bun, or Kraft mac & cheese (god help the person who presents this child with home-made macaroni and cheese, lol), that kind of thing. His dad and I are both good cooks, but don't always have the time to do so. But when we do have sit-down meals, he basically hangs his head, has "one bite" of whatever, and says "I'm done." Then half an hour later, he's asking for PB&J.

Is this just a kid being a picky eater, or does he have some AS-related sensitivity to strong tastes? (Heck, when he was a little guy, he'd eat medium-heat salsa and still LOVES salt & vinegar potato chips - he'll eat those until his lips turn white if we let him.) It's a wonder he's healthy, but he's a skinny kid who is VERY active and has the energy of three kids sometimes. He seems quite healthy.

My point is, he may not love everything about his toothpaste (his FAVORITE, that he picked out), but he still has to brush his teeth. We just don't want a awful row over it every night.

Is it an Aspie trait to ask a question of vital importance, hear the answer, then (seemingly) forget it thirty seconds later? Or is that just "kids being kids"?

We're not trying to be mean parents, or clueless NTs (we're not), and we love our son all to little pieces. We think he's an amazing kid. But we're under incredible stress and anxiety ourselves and it's extremely difficult to relate to him sometimes, and apparently his teachers are unable to keep him "under control" and so for years now they've been breathing down our necks to "fix" him. Which makes us feel like horrible parents. We don't want him to feel labeled or different, but he is different and if we have to embrace a label (diagnosis) to get him accommodations at school or explain it to other parents, then so be it.

We just want less frustration in our house, for us and for him, as I know it's got to be frustrating for him, too. But honestly, for the most part, he seems unaffected by other people's emotions/needs. He could sit inside an emotional hurricane and just play with his little cars, oblivious. When he actually sees me crying, he MIGHT stop and ask if I'm okay. But I've also had times where I was being violently ill, and he still came up a minute after I wiped my mouth and told me to fetch him a sandwich. I wanted to KILL him, even though part of me tried to remember "he has trouble with empathy."

What we're trying to find here is some kind of happy medium. We don't want him to be spoiled, but we don't want to be hard-ass parents who aren't sympathetic, either. I guess that's a challenge all parents share.



Last edited by Chronos on 09 Sep 2011, 7:58 pm, edited 1 time in total.