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katrine
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31 Jan 2008, 5:12 pm

I am in no way wanting to banter - I actually started this post in recognition of the fact that the approach I need to take with my son would be an overkill used on other kids, and as such my advice to other parents on WP threads may not be suitable. I had imagined it would be a pretty straightford thread, a kind of "introduction" thread.


But I think it is incredibly important to recognise the enormous spread there is - from a political point of view, too. I believe in raising public awareness of autism, but preferably in a nuanced way. Take the autism rights vs. cure autism discussions that pop up all the time: as I see it, both have valid points, it's great to be proud of autism if you are a well-functioning aspie, at the same time, families with profoundly autistic, low functioning, or really difficult children think autism is devastating.



shaggydaddy
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31 Jan 2008, 6:19 pm

I am not trying to debate either, I was attempting to point out that saying "more autistic" unless you are speaking literally meaning "More reserved from the world" (literally autistic means "attending to one's self") Somebody who has frequent interactive meltdowns, for instance is not "more autistic" than say a non-verbal person who is peacful and calm, because the non-verbal is more introverted and therefore "more autistic" in a literal sense.

But when you talk about Autistic in the sense of the brain type that puts you on the spectrum, you are speaking widely about a group of people, and not about the quality of attending to one's self.

When we use language the way it is used in this thread with "More Autistic" referring to "containing more of the negative traits associated with Autism" the language disrespects those who are autistic, low or high functioning. Somebody is an Autistic or they are not. No matter the number or magnitude of their neurological/behavioral differences from neurotypical people. Referring to Autism in a way that assumes every trait associated with Autism is a bad one de-humanizes Autistics.

I mean is an African American person "more black" if they listen to Rap music, if they get sent to prison? Not at all. Is a cubist abstract artist "more artistic" than say a realist landscape artist?

I am sorry if I came off as harsh, that is not my intention. I just want you to understand that there are people who embrace every aspect of Autism. Something more like "more Autism related challenges" would be more apropriate and would honor the parts of ourselves and our children that we value BECAUSE of the Autistic tendancy not in spite of autistic challenges.


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KimJ
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31 Jan 2008, 7:02 pm

Quote:
When we use language the way it is used in this thread with "More Autistic" referring to "containing more of the negative traits associated with Autism" the language disrespects those who are autistic, low or high functioning. Somebody is an Autistic or they are not. No matter the number or magnitude of their neurological/behavioral differences from neurotypical people. Referring to Autism in a way that assumes every trait associated with Autism is a bad one de-humanizes Autistics.


This was what I was trying to say too. My point about "quibbling" is that it's a real world problem that naturally occurs when people quantify autism. When I discuss being against biomed treatments, for instance, I am told that my son isn't "really autistic" so my opinion doesn't count. Or when I disagree with my cousin about the Cure, I'm told that my son is "better" than hers and I can't know what it's really like to have a "low functioning" autistic son or a "very autistic" son. It also affects my son's education because his special ed teacher isn't required to understand him. She's simply a babysitter to "more severe" kids.

People also use arbitrary points to define what is low functioning, high functioning, or recovered. And they do this usually for political reasons. Meaning, they define what autism based on agreement or aesthetics.

I wasn't arguing with the point of the thread either, just agreeing with Shaggydaddy's point. I've learned a lot of practical information from WP. For instance, if I really believed Asperger's was "more mild" than autism that would lead me to believe it wasn't a disability at all. I mean, if my own son barely meets disability standards, the logic follows that "more mild" wouldn't garner accomodation.



shaggydaddy
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31 Jan 2008, 7:25 pm

KimJ wrote:
For instance, if I really believed Asperger's was "more mild" than autism that would lead me to believe it wasn't a disability at all. I mean, if my own son barely meets disability standards, the logic follows that "more mild" wouldn't garner accomodation.


It's not a disability either way. Our society just happens to have catered to the negative qualities of Neurotypicals for so long that it does not feel like accommodation. Smiling/waving/nodding at a passerby, for instance is an accommodation to the inate fear of aggression and violence that NTs have, left over from a much more savage time. A smile is simply a tool that NTs use to tell each other that there is no ill will. The smile should not be necessary, but we make a reasonable effort to keep each other comfortable.

Yet even simple things like letting your autistic child spin in a circle feel like an accommodation to a "disability".

The truth is everyone deserves accommodation, even NTs ;).


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Jennyfoo
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31 Jan 2008, 11:24 pm

It depends on the day :roll:

She's 9 and is a "little professor", is argumentative and defiant with us, but a gem at school. She's not social, but gets along well with other kids and goes with the flow, preferring to play organized sports games with her friends. When she's not in school, she has no desire to see friends, preferring to just play with her animals(real and stuffed) and siblings. She has moderate sensory issues and anxiety and doesn't have noticeable stims to those who don't know her well. She fits in pretty well in the NT world and most people would never know she has HFA. Those who know her well sure know something's "off" with her. LOL! Well, those relatives who aren't AS too and in denial about themselves and her. LOL!



katrine
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01 Feb 2008, 5:28 am

shaggydaddy wrote:
I am not trying to debate either, I was attempting to point out that saying "more autistic" unless you are speaking literally meaning "More reserved from the world" (literally autistic means "attending to one's self") Somebody who has frequent interactive meltdowns, for instance is not "more autistic" than say a non-verbal person who is peacful and calm, because the non-verbal is more introverted and therefore "more autistic" in a literal sense.

But when you talk about Autistic in the sense of the brain type that puts you on the spectrum, you are speaking widely about a group of people, and not about the quality of attending to one's self.

When we use language the way it is used in this thread with "More Autistic" referring to "containing more of the negative traits associated with Autism" the language disrespects those who are autistic, low or high functioning. Somebody is an Autistic or they are not. No matter the number or magnitude of their neurological/behavioral differences from neurotypical people. Referring to Autism in a way that assumes every trait associated with Autism is a bad one de-humanizes Autistics.

I mean is an African American person "more black" if they listen to Rap music, if they get sent to prison? Not at all. Is a cubist abstract artist "more artistic" than say a realist landscape artist?

I am sorry if I came off as harsh, that is not my intention. I just want you to understand that there are people who embrace every aspect of Autism. Something more like "more Autism related challenges" would be more apropriate and would honor the parts of ourselves and our children that we value BECAUSE of the Autistic tendancy not in spite of autistic challenges.


You don't come on harsh - just a little misguided. :D
I think you are confusing things by bringing the second, psychiatric, definition of "autism" into this discussion, as it is a term used today mainly when diagnosing schizophrenia.

I think there is only one good reason to diagnose a child as having an autism spectrum disorder (ASD), and that is when this disorder has a NEGATIVE impact on the child's life.

If our child has such a disorder, we as parents must change our understanding of the child, and help the child accordingly. There is no point in getting a diagnosis, if it doesn't have a POSITIVE impact on the child's life.

The negative impact varies from child to child, as so our way of helping the child must be modified. This is a very relevant point with broad practical implications. These implications, or "problems", constitute a large fraction of the threads on this forum.

If our help is good enough, we raise a kid with good self-understanding, self-esteem, and self-confidence. A child who can be proud of who he or she is. This is the aim of diagnosing these kids, and the aim of all parents, whatever diagnosis their child has, who strives to understand and aid their child.

This is an interesting discussion, but perhaps, if anyone wants to continue the debate, it should be on a thread of it's own?



NewportBeachDude
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01 Feb 2008, 12:55 pm

Katrine, I wanted to point out that you can indeed quantify how Autistic a person is. On every diagnostic test done on my kid, there were quantifiers and degrees of Autism based on a battey of things. Then, when kids move on to having the diagnosis reassessed, there's another group of quantifiers. So, there's nothing wrong with asking how Autistic a person is or how deeply effected someone is. I find these medical diagnosis more accurate in defining the severity of Autism because the acronyms HFA, LFA don't really tell much. There are parents who say their kids are HFA, but the kid is non-verbal and some parents don't consider anyone who's non-verbal HFA. See what I mean? Yet, we all use the acronyms because it's easier.

To answer your original question, my kid is HFA, gifted. He's Autistic, not Asperger. Despite him being gifted, it has taken a mountain of intervention to get him mainstreamed.



katrine
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01 Feb 2008, 1:49 pm

Thanks - could you tell the others, please :lol:



BugsMom
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01 Feb 2008, 5:59 pm

My son has Asperger's. He's very verbal and very observant. His IQ is in the normal range (97). He does very well academically and is a bit advanced in math. He has obsessive interests, and can get quite agitated when he is asked to do something that is not in his routine or comfort zone. His main sensory issue seems to be a problem with yelling/loud noises. He's not very social with other children, prefering to play alone, but he likes to talk with adults. He is in a public elementary school and splits his time between an Autism Support class and the mainstream class with an aide.



equinn
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01 Feb 2008, 6:53 pm

"always tested very well and read aloud very well, so none of the educators, or my parents really figured out my difficulty with reading. Once we switched to lecture format vs book work format I excelled in school... Most teachers attempt to explain long enough for me to get it, then expect the book to reinforce it, but I would just use their lectures alone to do all the work. "

My son to a tee and some of me too. I could pick up on the gist very well and know how to respond, do well on tests. I could always write well so I aced my subjects--did better on essay type tests and not so good on multiple choice. My son, however, does very well with comprehension, multiple choice and has superior skills in that area. He may have a photographic memory and this is how he recalls text. I have some attentional issues and don't always retain what I read. I get the gist and miss the details. He seems to get more of it--details and gist.

He gets support due to his inattentiveness. He tells me, though, that he can think about multiple things and attend to the task (school work). He thinks of his interests most of the day and picks up enough to remain at grade level.



Danielismyname
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02 Feb 2008, 6:51 am

Tortuga, I had similar troubles with reading/writing when little (grade 1); enough so that I had to be held back a grade (I repeated grade 2), queue various professional visits to determine what was "wrong" with me; IQ tested in "high", diagnosis was, 'he didn't want to do it, lazy.' I was always good with math.... My mother and teachers spent a lot of time with me, and I eventually learnt to read/write. I caught up extremely quickly over the period of a year. I also had a delay in the acquisition of speech (basic receptive and extremely basic expressive speech until 5). Our cognitive pattern is far more fragmented than "normal" people, good in one thing, bad in another.

Speaking of myself, I was the peaceful and rarely verbal child (my mother said I didn't talk much at all), well-behaved and passive; my only meltdowns/tantrums were in relation to being separated from my mother.



Mum2ASDboy
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02 Feb 2008, 8:26 am

Great topic!! ! You tell me :lol:
My son tiptoe walks, hits himself, bites himself. He dislikes affection, seems self centred, has little empathy. Delayed in speech and laungage, take us literally, loves routine. Is obessed about things and will go on and on about them (buses at the moment).
There are more things but it is late :lol:



AliceinOz
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02 Feb 2008, 8:38 am

NewportBeachDude wrote:
Katrine, I wanted to point out that you can indeed quantify how Autistic a person is. On every diagnostic test done on my kid, there were quantifiers and degrees of Autism based on a battey of things. Then, when kids move on to having the diagnosis reassessed, there's another group of quantifiers. So, there's nothing wrong with asking how Autistic a person is or how deeply effected someone is. I find these medical diagnosis more accurate in defining the severity of Autism because the acronyms HFA, LFA don't really tell much. There are parents who say their kids are HFA, but the kid is non-verbal and some parents don't consider anyone who's non-verbal HFA. See what I mean? Yet, we all use the acronyms because it's easier.

To answer your original question, my kid is HFA, gifted. He's Autistic, not Asperger. Despite him being gifted, it has taken a mountain of intervention to get him mainstreamed.


Is this some kind of competition?
I don't agree that defining the degree of autism is useful. The degree of disability is a different question and IMO more relevent.
I am an adult with HFA and find this discussion extremely distasteful - perhaps more so because it is being conducted by people off the spectrum.

Consider for a moment, if you will, how you would feel if you became aware of a discussion where the topic was how human you (specifically you) are.

And they say that people with ASD lack empathy!! !


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Mum2ASDboy
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02 Feb 2008, 9:30 am

Alice, you have a very valid point, I am just looking for answers. I have been told that my son is autistic and also that he is aspergers. To me he is the same boy he always was and I love him no matter what. To me it is not a competition, I jsut want to know one way or the other so I know the best way to help him.
No one is more or less human as anyone else.



AliceinOz
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02 Feb 2008, 9:51 am

Mum2ASDboy wrote:
Alice, you have a very valid point, I am just looking for answers. I have been told that my son is autistic and also that he is aspergers. To me he is the same boy he always was and I love him no matter what. To me it is not a competition, I jsut want to know one way or the other so I know the best way to help him.
No one is more or less human as anyone else.


Donna Williams has some interesting discussions on the difference between autism and aspergers and the issue of high vs low functioning. I have found it frustrating that some professionals lump every HFA into the Aspy category when I firmly believe that AS and HFA are quite different - but perhaps thats just me playing semantics.

Actually, if a symptom of ASD is the tendency to take things literally, then surely we should all be more careful with our words to avoid minunderstanding.

The general idea that aspergers is a part of the autism spectrum actually means that all aspies are autistic. Aspergers is a subset of the whole autism picture. (sorry if I'm rambling but its 1.40am my time).

I think people tend to like to create order out of chaos and consequently, we have a number or list points to include in diagnositic criteria, but we seem to forget that there is a great deal of individual difference. I have pondered to what extent era of birth, location, life experiences etc actually impact how well comeone copes with their 'autism'.

I also wonder, sometimes, if we limit potential by our attitudes to our ASD kids, by making them 'different' in a pathological kind of way, rather than in an interesting kind of way.


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02 Feb 2008, 10:42 am

Danielismyname wrote:
Tortuga, I had similar troubles with reading/writing when little (grade 1); enough so that I had to be held back a grade (I repeated grade 2), queue various professional visits to determine what was "wrong" with me; IQ tested in "high", diagnosis was, 'he didn't want to do it, lazy.' I was always good with math.... My mother and teachers spent a lot of time with me, and I eventually learnt to read/write. I caught up extremely quickly over the period of a year. I also had a delay in the acquisition of speech (basic receptive and extremely basic expressive speech until 5). Our cognitive pattern is far more fragmented than "normal" people, good in one thing, bad in another.

Speaking of myself, I was the peaceful and rarely verbal child (my mother said I didn't talk much at all), well-behaved and passive; my only meltdowns/tantrums were in relation to being separated from my mother.


That's very interesting to me. Thanks for sharing.