Annie:
I was diagnosed in elementary school as "broken" (PDD-nos). I had discipline problems, yet I excelled in academics. I think I was probably on the verge of self-destructing much of the time. Slowly I learned some coping skills, including some directly from my mom. I stayed in small schools so that I could get attention when I needed it but skip subjects when that was more appropriate. (That wasn't cheap - I'm still paying for that small private college.) Despite the troubles, and the occasional major meltdown, I'm now a successful professional, married, with a child. I was re-evaluated last year and had my label changed to Aspie. This came with some additional coping strategies and therapies for adult-life.
Honestly, I think it was harder on my mother than it was on me. Deep down inside, you want your child to be happy and healthy. Any road block to that, especially a persistent one, can be very frustrating. Hang in there, be supportive of your
-Anne
ps. Dad_of_Aspie - Thanks for such a detailed story about your son. I'm glad he fond a job that fits him. Good luck with the foolish hearings. My friend went through that process about 2 years ago for a different disability. The process was really exhausting, but she won in the end.