My son diagnosed yesterday PDD-NOS - GUIDANCE PLEASE

Post Reply New Topic

You will get a lot of wonderful information from people here, especially from those on the spectrum.

PDD-NOS is not so bad. I had PDD-NOS and I have been able to get married, get a salaried job, and raise a family. Sure it happened later than most, but it happens. My son is autistic but I think in time he will grow into PDD-NOS as well.

Just be very tolerant of the repetitiousness, the annoying behavior. The patterns and attention to detail can actually help a lot later in life. The only recommendation I can suggestion I can make is seeming help in yoga, meditation and martial arts... these things have helped me a lot, and I expect they will help with my son as well.

Also... probably don't expect your child to leave the nest at 18. It's a delay, though not always clear. I would never be able to live on my own, I went from my parents, to group living in college, to living with my husband. There is a certain need for routines external to yourself- meals, waking, sleeping, that you get from others- people on the spectrum need. But it will be ok in the end.

Last edited by Mage on 28 Apr 2009, 8:42 am, edited 1 time in total.

Just about to go to bed after a long day of work, and trying to find therapists, but jillmamma, I just realized I did not give you an answer! We've had his hearing tested twice. We've also had a gluten test performed as my father has just recently found that he is gluten intolerant. Those tests came back negative.

I feel a type of peace about things now. maybe it's just because I'm so bloody tired! Ask me again tomorrow and I'll probably be a hot mess!

Good night, all.

KJ,

Just wanted to say how proud I am of you and you are such a good mom! You and your little nugget always bring a smile to my face.

Sorry I'm coming in a little too late but I have a couple of things to give you. First...make sure you are able to navigate the school system. They are only there to educate your child, not provide clinical therapy (they will be VERY clear on that) so be prepared to have to fight for services. www.wrightslaw.com has a great website with some good information to help you advocate for your child. "From emotions to advocacy" is a pretty good book to get from them. It has a lot of good information. Their seminars are pretty good too.

My son has PDD-NOS and a pretty significant language disability. He is doing great now, he's 7, but he still cannot answer an open ended question. That is really hard for little guys so don't fret because your child can't do that. That is a much later skill. My son also didn't talk at all until he was 3. He was diagnosed with dysphasia and dyspraxia, and when looking up those diagnoses they symptoms are very autistic like. I spend most of my money helping him with his language, however your son doesn't seem to have the receptive problems my son has so what issue to address and how much is something that you will have to decide. You know more than anyone else.

I think PECS are wonderful for some kids. Also sign is a good idea because if you forget your PECS you don't have a communication tool, however sign you always have with you. Signing Time tapes are great. There is a website www.signingtime.com that has DVD's that teach children American Sign Language, but they are cheaper on amazon. Sign helped me communicate (since I feel his issues are more processing through the ears than anything) but PECS helped me teach him vocabulary, labeling, generalizing, organizing etc. PECS and sign may help with the echolalia, in that you will have more of a real response to your question rather than your child repeating what you say. You can use PECS many different ways. Don't be afraid to be creative You would know more than anyone how they could help your child.

This is a great website to tap into also. Just reading posts have given me more insight than any professional I have worked with or any book I have read. This is a great group of people!

One more thing to remember....don't get so engulfed in trying to help your child and forget to enjoy him. It's easy to do that, especially now when you are learning.

Welcome to Wrong Planet!

Thanks, Ting. I cannot believe you're on here! What a small (cyber)world!

and MommyJones, great advice. I'm checking out that advocacy site now!