Page 13 of 40 [ 626 posts ]  Go to page Previous  1 ... 10, 11, 12, 13, 14, 15, 16 ... 40  Next

DW_a_mom
Veteran
Veteran

User avatar

Joined: 22 Feb 2008
Gender: Female
Posts: 13,689
Location: Northern California

25 Mar 2011, 12:43 am

Quote:
tarantella64 wrote:
Apart from sharing experiences with other grown children of AS parents on this thread, which helps us see patterns, and see that we're not alone or crazy, I'd say the idea is fairly simple: it's to communicate to AS parents, or those thinking about becoming parents, that difficulty in noticing family members' AS-related suffering seems to be common in AS, as does difficulty in accepting its reality. That stands mightily in the way of the AS parent/spouse's ability to do anything to stop hurting people they presumably love. Key in getting rid of that roadblock is shortcircuiting this scene: NT family member tells AS person he's hurt her; AS person denies that she is hurt (by attempting to prove that she isn't hurt, by making her out to be ridiculous, or by denying that it was possible for him to have hurt her), is angry and/or complains of victimization, and makes the scene about himself, not the fact that the other person is hurt and some remedy is needed.


This is exactly how I feel ... This scenario is scarily familiar to me. I have never spoken with other people about this, but you have nailed it. In the past I thought I was going crazy. I was not going crazy.


Now that you have me focused on it, my dad was a bit like that. I always thought he was intensely insecure, and that may have been part of it, but reading this has me thinking theory of mind problem. My dad certainly cared about people, and he would have given his life for us, but understanding that something bothered us when it didn't seem to him like it should bother us - that he couldn't wrap his head around. Man, I miss him though. I hope you both will be able to work through all this before you say good-bye forever. Time runs out too fast.


_________________
Mom to an amazing young adult AS son, plus an also amazing non-AS daughter. Most likely part of the "Broader Autism Phenotype" (some traits).


Louise18
Pileated woodpecker
Pileated woodpecker

User avatar

Joined: 27 Jan 2011
Age: 36
Gender: Female
Posts: 193

25 Mar 2011, 8:31 am

From my experience this "lack of theory of mind" seems to work both ways. Most people start from the position that how they would feel in a situation is how the other person would feel in a situation, and if they're wrong, it takes a long time to figure out the other person well enough to guess how they are feeling. That's true of everyone. It's just that NT's have a higher hit rate of feeling the same way.

Other people not understanding why I find things INCREDIBLY upsetting (like having my extremely high privacy needs violated) has been a problem on a daily basis all my life. And getting anyone to grasp that just because they feel a certain way doesn't mean I can is nigh on in possible a lot of the time, even among my very close friends.



Louise18
Pileated woodpecker
Pileated woodpecker

User avatar

Joined: 27 Jan 2011
Age: 36
Gender: Female
Posts: 193

25 Mar 2011, 8:39 am

ailema wrote:

. I have real difficulty in distinguishing whether my AS step-dad is 'just' a jerk, or whether it is AS that has made our relationship so difficult. This makes it hard to know what I can hold him 'accountable for' - what is 'his fault', and what I need to forgive him for (accept what cannot be changed).

Now please don't take this the wrong way. I completely get that there are good parents and bad parents, and being NT or AS may not be the deciding factor. But as my step-dad was diagnosed only very recently, this thread is hugely helpful for me and has made me rethink a lot about my childhood, and try and see what other AS parents feel about being a parent. To me, his diagnosis explains why, for example, when I told him he was hurting me he wouldn't see it. And it also seems to explain the rages, the hours-long lectures, his denial that he was shouting, his OCD-style routines, the inability to see anything from anyone else's perspective, the disciplinarian attention to routine. Or, at least, I THINK it explains these things. I have spent years being angry with my step-dad because of these things. Now I don't feel like I can be as angry because it might not be his fault ...

I have actually spoken about the diagnosis with my step-dad and for the FIRST TIME in my life he admitted that his behaviour might appear differently to me than it does to him. To me, this was a total revelation. And maybe this is why it's important to know what's going on with each other, between NTs and AS families ...

Someone wrote on here, I can't remember who I'm sorry, that 'people cannot understand what they cannot emphasise with.' This is very tricky territory. Maybe it is possible to be able to see the other side ... i hope it is.


I think "fault" is a much more complicated subject than that. He is the way he is, and the fact that some of his behaviours are not a part of autism, does not mean he would have found it easy or even possible to be different. He obviously has some additional personality traits that caused those problems, which are as much a part of him as the AS traits. Just because a trait may not be part of a diagnosable "something" does not mean that someone can help it. And similarly, the AS traits are him, so they are as much "his fault" as any other traits, if you consider people's personality traits them, and the behaviour that flows from them their fault.

I also think to what extent people have rights to expect certain kind of emotional relationships is a tricky subject. Personally I accept that my family and I are not sufficiently compatible to have a relationship with each other. This hurts my mother intensely. I know that it does, and I can sometimes empathise with that feeling and think it's tragic for her that she cannot have a "normal" mother-daughter relationship with me. It doesn't change the fact that it can't happen.



DW_a_mom
Veteran
Veteran

User avatar

Joined: 22 Feb 2008
Gender: Female
Posts: 13,689
Location: Northern California

25 Mar 2011, 11:14 am

The exchange a few posts above ended up having me think a lot about my father over the past night and morning, and there was something we did that I think might help those still struggling with understanding their relationships.

We actually lost my father in pieces, since he had a stroke about 7 years before he passed away. In that moment he lost quite a bit and, in the way life can be cruel, much of what he had relied on his entire life: brain power. We came to understand so much about him in those first few months, things he had never voiced when he was "whole" and in complete control of his facilities. We learned that he was dreadfully afraid of being a burden, and we heard much about how useless he felt he had been as a father. He sank quickly into depression. So ... that Father's Day my sisters and I were trying to figure out what we might be able to do to help him out of it, to let him understand that we loved him, period. We decided to embark on a project, to write a mini book for him. Each of us would write 4 narratives, anything from a sentence to a page in length, about something he had "done right" as a father. I think I've mentioned it on this forum before, and perhaps even in this thread, because ultimately the project was more a gift to ourselves than it was to him. It was an amazing process to go through, to sit down and try to write those four pieces. We each did ours completely independently, not comparing notes, because they were intended to be personal. Some were the same; some were starkly constrasting. It created an amazing book, and changed us as daughters.

So, if you have a chance, try to write your four pieces.


_________________
Mom to an amazing young adult AS son, plus an also amazing non-AS daughter. Most likely part of the "Broader Autism Phenotype" (some traits).


cubedemon6073
Veteran
Veteran

User avatar

Joined: 7 Nov 2008
Age: 45
Gender: Male
Posts: 4,958

26 Mar 2011, 9:59 pm

I am going to complicate this up even further. I've been giving this some thought now. Tarentella is from a different culture, miniority, and country. What if there is no such thing as a neurotypical and people who are non-ASD are of different neurological configurations depending on where they originated from in their genetic history. In essence, what if we all just come in different sizes and shapes? I wish Tarentella would come back though. I would love to hear more about her country and her ethnic background. I would love to know how those in her country typically think.

I think it would be fascinating to compare different cultures of the world with their different mindsets to ASDs.



ailema
Emu Egg
Emu Egg

User avatar

Joined: 16 Mar 2011
Gender: Female
Posts: 4

30 Mar 2011, 7:50 pm

Louise18 wrote:
I think "fault" is a much more complicated subject than that. He is the way he is, and the fact that some of his behaviours are not a part of autism, does not mean he would have found it easy or even possible to be different. He obviously has some additional personality traits that caused those problems, which are as much a part of him as the AS traits. Just because a trait may not be part of a diagnosable "something" does not mean that someone can help it. And similarly, the AS traits are him, so they are as much "his fault" as any other traits, if you consider people's personality traits them, and the behaviour that flows from them their fault.


Louise18 I totally think you're right - it sure is complicated. But if someone can't help their behaviour, then does everyone else just need to come to terms with that and accept it? Like, if someone does something that makes you hurt, and they don't realise that you're hurt, this doesn't make the hurt any less real. But it does mean that your reactions need to change - if you confront them and let them know you're hurt they still will not understand or change their behaviour accordingly. It's really difficult trying to come to grips with that. I am still interested in trying to work out some kind of relationship with my step-dad. I'm so messed up about it through that I guess I need to calm down and get on with that 'accepting' business before I can start reviewing the positive aspects ... feel like my whole childhood is being re-written or overlaid with a new story, a new lens to make sense of things ... maybe the story book idea in the future might be helpful ... I can't see my brother being into it though!



TMRitz
Emu Egg
Emu Egg

User avatar

Joined: 17 May 2011
Gender: Female
Posts: 5

20 May 2011, 12:29 pm

Am I different from other parents Oh Yes. I have my group of issues and yes the smells, sounds and mess are all issues for me and on a "bad" day can set me off. I have a hard time helping my kids with friend issues. I like everything to be logical. It is hard for me and them sometimes when I don't understand how they don't understand.

However, I also parent per child. My son needs things differently than my daughter. I remember being the alien in the family and never wanted my children to feel that way so everything is custom. That means sometimes cooking several different things for dinner. I work extra hard to understand because I always felt misunderstood. I play and make up games with my kids. I am a support that does not flatter unless it is true. I don't say you look great if you don't and I don't tell you your project is the best unless it is. When I do say it my kids know it is the truth and they never have to wonder. Can't is not allowed in our house. This is why my daughter calls it tough love because they know I love them but sometimes it is tough. We through pity parties when something really disappointing happens so they can give into the emotion, face it and learn to move on. I teach my children to "think" thru everything and still give my daughter kudos for being "good" with people. I see how not being this hurts my life. I have learned to fake it or people think I am a snob, or don't like them then don't want their kids to play with mine, etc.

It is hard for everyone to be a parent. Sometimes I think it is even harder for AS parents because we can see that we don't "get it" and in all of our intelligent we can’t fix. I just try to compensate for my areas of failure. It kills me to read how awful it is to have an AS parent and makes me wonder if I am doing enough.



doadie
Emu Egg
Emu Egg

User avatar

Joined: 28 Jul 2011
Gender: Male
Posts: 3

29 Jul 2011, 4:02 pm

Hi, I am new and trying to understand ....I (actually several of us) have figured out that my dad is an Aspie. So much is explained. But I am having a hard time. I am reading thru these posts slowly because I can only think about it a little at a time. There are some difficult things to begin to work through.

So many of you Aspie parents sound much like my dad (thank you for explaining so many things!)....and I am figuring out that I was an NT.... well trained to think like an Aspie. Is that possible? I understand both worlds but have been trained to think that NT's (I never thought in these terms before) were irrational/emotional/ brainwashable/ herdable etc. I still feel that it is fairly true that the general population can be weak minded and emotionally driven in just about everything. Yet I feel that I am a starving NT....I needed things that he felt were on a lesser plain and so I often felt stupid and guilty. The moments that I know I pleased him most were when he was teaching me math... Also, in our discussions (very mathmatical)about God... There were flickers of true understanding between us. However, I would be a captive audience for hours and hours at a time... :P

To the guy with the picture of the hyper-cube....ummmm...he is trying to write a description of God (he rejects the term "trinity") using a Hyper-sphere. Also using E. Abbot Abbott. Does this make sense to you?

I feel like I don't belong in any catagory because I feel I am both. I am trying to understand that the emotional side isn't just something that needs to be to shut off. Does anyone else feel this way? Is this common? Is there help? I need help in retraining my brain. Is there a description anywhere of the typical child of an Aspie?

Is there any way to get an Aspie to understand these things....I mean...more than just in theory? Could he ever understand that there is a side to human experience and relationship that he has not encountered and that it is not wrong to be an NT?

Also... He doesn't know that there is a whole Aspie world out there (he is 73)..doesn't even know the term. In reading some of these articles etc... I think....well...perhaps he should know so that he would understand himself and why he feels so different. Perhaps he would feel relieved to talk to others. He is so impatient with the NT population at large. On the other hand he might just think that I have jumped on some psychological band wagon....and he might hate the idea of being catagorized and....he might be very angry. This has never seemed worthwhile...because it has always been disproportionate.

I am an adult now and have young children of my own....and I hope to pass on solid rational thinking without making them feel like they are weak for their feelings and need of others.

Thanks for listening.



DW_a_mom
Veteran
Veteran

User avatar

Joined: 22 Feb 2008
Gender: Female
Posts: 13,689
Location: Northern California

30 Jul 2011, 11:13 am

doadie wrote:
Hi, I am new and trying to understand ....I (actually several of us) have figured out that my dad is an Aspie. So much is explained. But I am having a hard time. I am reading thru these posts slowly because I can only think about it a little at a time. There are some difficult things to begin to work through.

So many of you Aspie parents sound much like my dad (thank you for explaining so many things!)....and I am figuring out that I was an NT.... well trained to think like an Aspie. Is that possible? I understand both worlds but have been trained to think that NT's (I never thought in these terms before) were irrational/emotional/ brainwashable/ herdable etc. I still feel that it is fairly true that the general population can be weak minded and emotionally driven in just about everything. Yet I feel that I am a starving NT....I needed things that he felt were on a lesser plain and so I often felt stupid and guilty. The moments that I know I pleased him most were when he was teaching me math... Also, in our discussions (very mathmatical)about God... There were flickers of true understanding between us. However, I would be a captive audience for hours and hours at a time... :P

To the guy with the picture of the hyper-cube....ummmm...he is trying to write a description of God (he rejects the term "trinity") using a Hyper-sphere. Also using E. Abbot Abbott. Does this make sense to you?

I feel like I don't belong in any catagory because I feel I am both. I am trying to understand that the emotional side isn't just something that needs to be to shut off. Does anyone else feel this way? Is this common? Is there help? I need help in retraining my brain. Is there a description anywhere of the typical child of an Aspie?

Is there any way to get an Aspie to understand these things....I mean...more than just in theory? Could he ever understand that there is a side to human experience and relationship that he has not encountered and that it is not wrong to be an NT?

Also... He doesn't know that there is a whole Aspie world out there (he is 73)..doesn't even know the term. In reading some of these articles etc... I think....well...perhaps he should know so that he would understand himself and why he feels so different. Perhaps he would feel relieved to talk to others. He is so impatient with the NT population at large. On the other hand he might just think that I have jumped on some psychological band wagon....and he might hate the idea of being catagorized and....he might be very angry. This has never seemed worthwhile...because it has always been disproportionate.

I am an adult now and have young children of my own....and I hope to pass on solid rational thinking without making them feel like they are weak for their feelings and need of others.

Thanks for listening.


You make sense.

As for what someone with AS can be taught to understand, to accept about the NT world, when it isn't natural at all to them, is still a bit of an unknown. Those of us raising AS kids are certainly trying, but that doesn't mean it gets absorbed in the manner we would ideally like. I am often surprised by the way my son chooses to integrate lessons and experience; his brain works THAT differently to me. And nothing will ever convince him that something like fashion is anything but complete ridiculousness. Well, then again, it's not like we've tried too hard there ... We can just hope that if he has an NT daughter someday he can accept that it might actually be important to her, and choose to indulge it. But I don't think we'll get further than convincing him to "indulge" something like that. It does not have enough logic to be understood.

As for talking to your father about your suspicions, it really depends. I certainly would never have mentioned it to mine; he would have been insulted, he had little concept of accepting "differences," his world was too black and white, so being told he had a medically defined condition would have felt to him like someone was saying something was "wrong" with him. Why should we need to be looking for an explanation of why he did things, unless we felt they were "wrong?". That is how he saw things, for the most part. There was a right way, and a wrong way, with little room for variable acceptable paths.

But some of our adult members do want an answer for why they are different, do need an explanation for the issues in their lives, and for them finding out about AS is life altering. Many parents realize their own AS when their kids are diagnosed; sometimes aunts, uncles and grandparents start putting pieces together from that one event, as well. There is usually a hurdle to overcome, as so many people still see autism as Rain man, but it changes with information. If you carry around a book on AS, just "something you found interesting to read," you could find your father curiously looking through it ...

I wish you luck with your journey, whatever you decide to do. And I am glad for you that you are finding answers that help you make sense of life with your family.


_________________
Mom to an amazing young adult AS son, plus an also amazing non-AS daughter. Most likely part of the "Broader Autism Phenotype" (some traits).


Mayel
Velociraptor
Velociraptor

User avatar

Joined: 30 Jul 2011
Age: 37
Gender: Female
Posts: 493

31 Jul 2011, 5:45 pm

So...I think my father has got AS but I'm not sure. I hope you can tell me if he sounds like he could possibly have AS or not.
He takes many things literal, he doesn't understand sarcasm. It seems hard for him to detect if someone is just playing a prank on him (but he likes listening to jokes nonetheless). Especially with this kind of behaviour he appears as if he was naive or "innocent".
He doesn't like his personal space invaded at all, if you move something that belongs to him to another spot he can become very upset. In this regard,...little incidents can make him explode e.g. he forgets where he's put something, incidents related to meals and food......If he's in this state of blind rage he keeps going on and on with blaming someone or asking questions over and over again, he shouts and paces with heavy steps. Say, there's a rage-scale from 1 to 5: He always goes up to 5. (But it doesn't happen often).
He also doesn't say affectionate things like "I love you" or something like that to anybody, never. He doesn't hug. He doesn't know how to give compliments and praise. It's like he can't express his love or feelings for that matter. Though that's not exactly true either; I think he just handles it very differently than most people.
He likes to receive praise though. And he loves to talk about his interests a lot, if you ask him about one of them, he seems to be happy to tell you anything about it (one of his interests revolves around european wartime history) but he'll also recite a monologue to you even when you don't ask.
And he reads all the time, when he's not working, he's reading.
He also talks to himself (especially when he's worried).
When he's sad or worried he won't say he is but you can tell by the way he looks or goes on and on about the same (sad) topic.
Also when he has an appointment with a physiscian, he'll ask me what he should say and I tell him to say how he feels or simply respond to the physician's questions but it seems as if he can't describe the way he feels physically with words well.
He's also very repetitive if that makes sense e.g. he'll randomly recall incidents of the past and ask questions about them like every week at least twice and some words or phrases he'll repeat them everyday at some time of the day.
He also checks if everythings switched off and closed when he leaves the house, he checks it like five times....(though recently he just checks them twice if he's got the opportunity but I think that's because sometimes we'll just close the door and tell him everything we'll be alright). So he really goes out the house,closes the door and 30 seconds later he'll come in again and check everything.
He seems to be extremely introverted, too. Doesn't have any friends....at least not those kind of friends you would hang out with once in a while. He never hangs out with any of his friends or talks with them on the phone. Never.
He's also sensitive to sounds especially to domestic devices like the washing machine....if it's working he's unable to enter this room and someone else has to fetch whatever he needs from this particular room.
What else....?
When I was born he wasn't at the hospital, he was working as usual although he could have assisted my birth. He's a workaholic,too but I guess it's more about routine than anything.
He probably has dyslexia...when he writes he always makes mistakes....If he has to fill out a form, he won't do it willingly since he writes very very slowly so that his handwriting is legible.
He seems very stubborn, too.....reluctant to accept someone else's point of view.

What do you think? Does that sound like AS?
At least, I can say that comparing his behaviour, or parental conduct (for that matter) with others, that doesn't look very "normal".



doadie
Emu Egg
Emu Egg

User avatar

Joined: 28 Jul 2011
Gender: Male
Posts: 3

01 Aug 2011, 6:22 pm

Thank you DW this helps!



Mayel
Velociraptor
Velociraptor

User avatar

Joined: 30 Jul 2011
Age: 37
Gender: Female
Posts: 493

02 Aug 2011, 2:40 pm

I hope I'm not being too pushy but If I am, I apologize.

So...would anybody want to answer my post? It's really something that I'm interested in to know...if that kind of behavior or traits my father shows could be AS-related or sound like something different altogether.
Thanks. :)



DW_a_mom
Veteran
Veteran

User avatar

Joined: 22 Feb 2008
Gender: Female
Posts: 13,689
Location: Northern California

02 Aug 2011, 3:00 pm

Sorry, Mayal, just haven't had time. The short version is some yes, some no, and it is actually impossible to tell from a post. I guess the question that would help direct response more; what are you looking for from your analysis? What do you hope to do with your answers?


_________________
Mom to an amazing young adult AS son, plus an also amazing non-AS daughter. Most likely part of the "Broader Autism Phenotype" (some traits).


Mayel
Velociraptor
Velociraptor

User avatar

Joined: 30 Jul 2011
Age: 37
Gender: Female
Posts: 493

02 Aug 2011, 3:29 pm

DW_a_mom wrote:
Sorry, Mayal, just haven't had time. The short version is some yes, some no, and it is actually impossible to tell from a post. I guess the question that would help direct response more; what are you looking for from your analysis? What do you hope to do with your answers?

No problem. I appreciate every response.
I'm not looking for anything in particular, it's just an analysis of things I've noticed along the years and some of those things have caused some distress but other than that are just very different from anything I've witnessed in anybody else.
Well and if I get an answer: it must not be a definite answer but a vague direction would be enough for a start,...I mean, a definite answer is probably impossible unless he would try to seek diagnosis from a professional (which is highly unlikely). So if I get some answers ....I'd be at ease and I'd probably understand him much better which can only be beneficial for everybody.
Oh well, I don't know for sure but I guess, I would like to understand him and his behavior for once and for all so that I could cope with it better,too (and not to forget all other family members). I can't really put it in words but I hope it's a little bit clearer now.



doadie
Emu Egg
Emu Egg

User avatar

Joined: 28 Jul 2011
Gender: Male
Posts: 3

02 Aug 2011, 4:50 pm

Mayel,

I am new too...so what I say may mean very little...

I agree with DW that from your list it is very hard to tell. I presume that you have done some research on Aspergers and know what some of typical traits are. Many of the things you have listed are not clearly traits..other things may be. It is difficult. Keep searching. I do understand your desire to know....I am so relieved to finally have figured it out. It just does help in understanding him...and it does take away some anger and bitterness in my heart about the times when he didn't SEEM to know me or care about me. It has made me think that he has made more of an effort than I have realized.



Mayel
Velociraptor
Velociraptor

User avatar

Joined: 30 Jul 2011
Age: 37
Gender: Female
Posts: 493

02 Aug 2011, 5:21 pm

doadie wrote:
Mayel,

I am new too...so what I say may mean very little...

I agree with DW that from your list it is very hard to tell. I presume that you have done some research on Aspergers and know what some of typical traits are. Many of the things you have listed are not clearly traits..other things may be. It is difficult. Keep searching. I do understand your desire to know....I am so relieved to finally have figured it out. It just does help in understanding him...and it does take away some anger and bitterness in my heart about the times when he didn't SEEM to know me or care about me. It has made me think that he has made more of an effort than I have realized.

Thank you for your kind comment. :)
You really do understand what I mean, that's good.
Yes, I've done some research, not only on Aspergers also on other things,too...
Based on all the things I've read I'd say it could be AS with comorbid OCD...bluntly speaking. But maybe it's something else entirely or maybe it's a weird tangle of comorbidity. I don't know.
But asking people who know this (in this case, AS) very well, may lead me to a better understanding. May it be exclusion or affirmation or something in between...doesn't matter. Any kind of information is helpful.