This new Facebook meme scares the crap out of me

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DW_a_mom
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17 Dec 2012, 6:36 pm

twinplets wrote:
I cringed when they started mentioning this boy may have Aspergers. My son just did a PowerPoint presentation three weeks ago in class explaining what AS was and wasn't. He wanted to do it and he thought it went very well. He said a few kids asked questions and one said he had seen someone on TV that had it and now he understood what it was. I am waiting to see if anything gets said to him today. I really hope not.

I really appreciated the article below. Especially this quote.


"They ask me because they know I have an autistic child, and they assume that makes me an expert in dealing with emotional issues in children on the spectrum. However, my earlier responses have always been very consistent: Children in the autistic spectrum, who are treated and come from loving homes, are as pure as snow. The vast majority will grow up with moral values for themselves and for others."

Read more: http://www.foxnews.com/health/2012/12/1 ... z2FLClSfL2


That is a very good piece.


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Bombaloo
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Kailuamom
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17 Dec 2012, 8:41 pm

twinplets wrote:
. However, my earlier responses have always been very consistent: Children in the autistic spectrum, who are treated and come from loving homes, are as pure as snow.


While I am definitely for helping people get over their fears of autism, I really hate saying that people on the spectrum are any one thing...other than regular people who process stuff differently. Some good, some bad but overall just people.

My son comes from a loving home, has a heart of gold, is an absolute love AND has violent meltdowns which cause me to believe that he could hurt someone. I would hate to perpetuate the myth that if a kid has a meltdown, or says something mean, then there must be something wrong at home, its just not true.



momsparky
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17 Dec 2012, 10:24 pm

This is also true; and it's very true that while the mother who wrote this post says she isn't getting anywhere, she's clearly trying to do everything she can.

I guess the point that I really want to make, if I haven't made it yet, is that it is possible for children who are violent to get better, that many, many families struggle with violent children. This means something significant in the present, but it is not a predictor of the future.

Mass shootings are a random event that everyone struggles to make sense out of. It isn't possible to make sense of these things, but we can be sure it isn't because of the random collection of things the person is or has experienced. Nobody equates having glasses with mass shootings, but many mass shooters wore glasses.

This search to explain the inexplicable does an awful lot of harm when it lands on our community.



Washi
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17 Dec 2012, 10:43 pm

Kailuamom wrote:
twinplets wrote:
. However, my earlier responses have always been very consistent: Children in the autistic spectrum, who are treated and come from loving homes, are as pure as snow.


While I am definitely for helping people get over their fears of autism, I really hate saying that people on the spectrum are any one thing...other than regular people who process stuff differently. Some good, some bad but overall just people.

My son comes from a loving home, has a heart of gold, is an absolute love AND has violent meltdowns which cause me to believe that he could hurt someone. I would hate to perpetuate the myth that if a kid has a meltdown, or says something mean, then there must be something wrong at home, its just not true.


Thanks. That "pure as snow" statement made me cringe.



InThisTogether
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18 Dec 2012, 6:45 am

I just lost my whole dang post.

It was LONG

GRRR!

Out of time.

Will have to try again later.


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momsparky
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18 Dec 2012, 8:35 am

Yet another article, this one written by an adult who has multiple diagnoses, including AS: http://crackedmirrorinshalott.wordpress ... cary-kids/

Note the part where she talks about how people immediately react negatively if she discloses what happened in her childhood, more so than a disclosure of her diagnosis. This, in particular, is the stigma I want to address.

InThisTogether, I am so, so sorry you lost your post! I hope we'll see it soon.



Wreck-Gar
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18 Dec 2012, 9:56 am

I had one of my facebook freinds post this meme, saying that autism was a "mental illness." I corrected her and got no response...



Kailuamom
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18 Dec 2012, 10:04 am

Great link momsparky, a must read!



twinplets
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18 Dec 2012, 10:15 am

I knew that the pure as snow comment would not sit right with some people here. I still think it is valid. In terms of intentions, I think kids with autism are usually pure. They aren't out to inflict pain or be rude. They are in a situation that is uncomfortable and they can't handle it in a socially acceptable manner, but they aren't cruel to be cruel. I know several kids somewhere on the spectrum from my own family, my son's school, and the places we have gone to therapy. They all act differently. They aren't cookie cutter. I have seen them at have meltdowns and tantrums. There was always a reason why. It may not have been apparent at the time, but afterward, it was usually just a case of pinpointing a trigger. The kids I have met are some of the sweetest, most wonderful kids I know. They may beat to their own drummer, but they are very loving and I wouldn't classify any as violent. I have them in my home. I have knives in a block out on my kitchen counter. I do not worry. I think it is very important to get the message out there that violence isn't a part of being autistic. If a child is violent. There is a reason beyond autism. Everytime I have heard a story of a very out of control kid or what someone would term "scary" kid, there is more to the story. Once the details emerge, it sounds like they either have mental health issues other than autism that needs to be addressed, they have a chaotic homelife that needs to be addressed, or they have been bounced around on different meds.

I am not saying this to inflame or judge anyone. I think it is an important debate that needs to be addressed. I have been there. I know my friends with kids on the spectrum have been there. I have ran across some of these people in the marriage counseling waiting room. It is hard on people. However, after all these years with autism slowly being recognized as something not so peculiar and frightening, I do not want to go backward and have people think my son is going to snap at some point because he is open about having Aspergers. I am so grateful for those that had to grow up on the spectrum without it being recognized when they were in school. Because they grew up and have spoke out and showed what they could do and become, I was able to have tons of information at my disposal. I had books to read and information on the Internet. My son is very open about this. He just gave a PowerPoint about what it is and isn't to his class. He came to me the other day and showed me a comic he started about having AS. I had no idea he was drawing that. This is a fork in the road moment. He can embrace having AS and hopefully make the road easier for kids younger than him or he can start to keep a lid on it so no one knows his big secret so they don't associate him with the propensity for violence.

Mental health care is lacking in this country. I absolutely agree that big changes need to happen in regards to that area. However, autism is a development disorder. It is not a mental health problem.



twinplets
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18 Dec 2012, 10:28 am

I hope the media keeps using these type of articles:

http://www.psychologytoday.com/blog/my- ... ass-murder



momsparky
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18 Dec 2012, 10:44 am

That's not media, twinplets - that's one of our own! John Elder Robeson is a member at WP and often posts here (his son "Cubby" who he refers to in his latest book is one of the stars of Autism Talk TV) I do like that article.



Wreck-Gar
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18 Dec 2012, 11:05 am

twinplets wrote:
I knew that the pure as snow comment would not sit right with some people here. I still think it is valid. In terms of intentions, I think kids with autism are usually pure.


I think what you mean is, autism does not make people violent/aggressive/scary.



Kailuamom
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18 Dec 2012, 11:19 am

twinplets wrote:
I knew that the pure as snow comment would not sit right with some people here. I still think it is valid. In terms of intentions, I think kids with autism are usually pure. They aren't out to inflict pain or be rude. They are in a situation that is uncomfortable and they can't handle it in a socially acceptable manner, but they aren't cruel to be cruel. I know several kids somewhere on the spectrum from my own family, my son's school, and the places we have gone to therapy. They all act differently. They aren't cookie cutter. I have seen them at have meltdowns and tantrums. There was always a reason why. It may not have been apparent at the time, but afterward, it was usually just a case of pinpointing a trigger. The kids I have met are some of the sweetest, most wonderful kids I know. They may beat to their own drummer, but they are very loving and I wouldn't classify any as violent. I have them in my home. I have knives in a block out on my kitchen counter. I do not worry. I think it is very important to get the message out there that violence isn't a part of being autistic. If a child is violent. There is a reason beyond autism. Everytime I have heard a story of a very out of control kid or what someone would term "scary" kid, there is more to the story. Once the details emerge, it sounds like they either have mental health issues other than autism that needs to be addressed, they have a chaotic homelife that needs to be addressed, or they have been bounced around on different meds.

I am not saying this to inflame or judge anyone. I think it is an important debate that needs to be addressed. I have been there. I know my friends with kids on the spectrum have been there. I have ran across some of these people in the marriage counseling waiting room. It is hard on people. However, after all these years with autism slowly being recognized as something not so peculiar and frightening, I do not want to go backward and have people think my son is going to snap at some point because he is open about having Aspergers. I am so grateful for those that had to grow up on the spectrum without it being recognized when they were in school. Because they grew up and have spoke out and showed what they could do and become, I was able to have tons of information at my disposal. I had books to read and information on the Internet. My son is very open about this. He just gave a PowerPoint about what it is and isn't to his class. He came to me the other day and showed me a comic he started about having AS. I had no idea he was drawing that. This is a fork in the road moment. He can embrace having AS and hopefully make the road easier for kids younger than him or he can start to keep a lid on it so no one knows his big secret so they don't associate him with the propensity for violence.

Mental health care is lacking in this country. I absolutely agree that big changes need to happen in regards to that area. However, autism is a development disorder. It is not a mental health problem.


Autistic kids learn stuff - just like all kids. When my DS was younger he told the truth 100% of the time. However, he figured out that no one tells the truth all the time, so he shouldn't do that anymore. He got bullied and teased about it and then figured out the social rules - he now acts pretty NT (neurotypical teenager) in that regard.

Pure as the driven snow is probably true while they are little and in their bubble (but aren't nt kids too?). But really, once the kids learn social rules...some aren't so pretty.

Now, violent meltdowns.......maybe you should do a WP search on meltdowns (the whole site - not just parenting) and read some of the posts from our adult members. I think you sound really misinformed when you say something else must be going on.....

What I do think is differentiated is premeditation, I don't see that at all.

My son has violent meltdowns...but he doesn't plan them and I have not heard of any autistics who do.

From what I understand, the frontal lobe finishes developing at about 25, and at that point even our delayed kids can manage impulses better. Until then it varies but it is not uncommon to struggle with meltdowns, with some being violent.

My husband and I have decided that we want to provide as safe and secure environment as possible until our son's frontal lobe is fully developed.

FYI - my son did not have violent meltdowns until he was about 9. At 13, they have almost stopped. This is partly because we manage the environment and demands placed on him and partly due to maturation. There is nothing going on at home that causes violence and I am offended that you would post such judgmental crap here.

I believe that stereotypes and generalizations will hurt our population. If you convince people that all autistics are "pure", then they meet one who's not, you are no longer credible. Your point becomes lost. In addition, I think you open up to being bullied and seen as an easy target.

I get your point that you don't want your child judged because of some young persons horrific act..I think we are all there. I think the focus needs to be that we are all individuals who should be judged based on our behavior. People's cruelty to those who are different can in fact lead people to a breaking point, so before we judge someone for being quirky, lets look at ourselves to see if we are creating an inclusive society.



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18 Dec 2012, 12:29 pm

momsparky wrote:
Yet another article, this one written by an adult who has multiple diagnoses, including AS: http://crackedmirrorinshalott.wordpress ... cary-kids/

Note the part where she talks about how people immediately react negatively if she discloses what happened in her childhood, more so than a disclosure of her diagnosis. This, in particular, is the stigma I want to address.


Really good article.

This reminds me of my own adolescence and how teachers and students would begin to stigmatize me. Yet despite me acting out (non-violently but self-destructively with outbursts), they still didn't know what was wrong or even begin to make any recommendations. I had teachers have talks with me to exercise to cure my depression, and to go and see a counselor, yet they didn't even notify my parents as far as I know yet they judged me and treated me differently because of it. When I saw the counselors, they told me to make lists to deal with my anxiety. That was it. I had to fight with my school to even be recognized that something might be wrong, after which I finally got diagnosed with AS. But I think these outbursts (and my reputation in high school) could have been saved by an early diagnosis. If only teachers knew the signs and what to do...



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18 Dec 2012, 12:31 pm

I think when there is violence, there is usually a "more" involved.

- a co-morbid
- heightened sensory issues that aren't being honored
- hormonal or chemical changes
- issues at school
- stress that isn't mitigated and going on for a long time
And so on

There is no single answer there.

I don't think all ASD kids have a "pure as snow" nature, but I think most do, and it can be hard to know where ASD ends and a co-morbid starts, or nature ends and an environmental factor kicks in. I will say that I've observed that my son is highly reactive to the world around him, and that negative behaviors can pretty much always be traced out to external input. Just that there is little point in playing a blame game on those external inputs, because most wouldn't bother anyone but him, and it isn't reasonable to expect that these inputs aren't going to happen. Our job is to learn to find them and mitigate them, and it is always going to be ab imperfect process.

In considering matters of public policy and advocacy, I feel a key observation is that resources make a difference: being able to make yourself more available to your child being super key, and being an informed, observing parent during the process. I've seen that make a huge difference in so many of our families, yet I know that not everyone can figure out how to make it work while rushing around the survival game. But we've all had periods, I think, where our kids really did need us, not experts but US, and we had to make sacrifices of our time to get through them.

In the article that started this thread, the issue of time and personal adjustment may be what it comes down to for me, what my (naturally imperfect) instincts are looking for: perhaps things could be different if she didn't "have" to get the child to point B by hour C, and didn't "have" to work that day, but could instead divert the resource of her time and personal interest to figure things out for her child. Over and over I've seen that one gesture make a world of difference, and it is so simple and yet so difficult to access in this crazy society of ours.

Of course, that means mom and/or dad have to be in a solid state of mind, too, and that can be a challenge: we all come with our own issues, don't we? So sometimes we need help, and sometimes the primary resource has to come from outside the family. But someone, sometime, has to look at the child's issues with an informed and understanding eye.


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Last edited by DW_a_mom on 18 Dec 2012, 2:21 pm, edited 1 time in total.