Delaying puberty in boys with LFA
Folks, I would point out that the OP expressly is asking about DELAYING puberty, she's not talking about castration. Delaying puberty, at least as it pertains to transgendered children, is a reversible intervention and is intended to be temporary.
The question the OP has is not about preventing the child from experiencing adult sexuality, but whether it might benefit him (within the context of a child who can't care for himself) to allow time for his social/emotional development to catch up to his physical development a bit.
The question the OP has is not about preventing the child from experiencing adult sexuality, but whether it might benefit him (within the context of a child who can't care for himself) to allow time for his social/emotional development to catch up to his physical development a bit.
I didn't read that into it at all - I understood that she wanted to permanently prevent puberty. If I'm wrong I hope she rejoins the thread, as we've discussed delaying in some detail with our daughter's endo and have been reading up on it for years...
_________________
“For small creatures such as we the vastness is bearable only through love.”
―Carl Sagan
The question the OP has is not about preventing the child from experiencing adult sexuality, but whether it might benefit him (within the context of a child who can't care for himself) to allow time for his social/emotional development to catch up to his physical development a bit.
I didn't read that into it at all - I understood that she wanted to permanently prevent puberty. If I'm wrong I hope she rejoins the thread, as we've discussed delaying in some detail with our daughter's endo and have been reading up on it for years...
Why would you want to delay puberty on a HFA child ? Don't mess with nature or else...where are your ethics ? It somehow seems wrong to me to take such action on a child, just because she is autistic.
See how that comes across ? That is exactly what I have been told on this thread - that it is "somehow wrong" to want to permanently prevent puberty in an individual even when it is painfully obvious that he may never ever be able to deal with the consequences of being an adult with an adult's needs and desires. I posted in hopes of getting practical advise, and all I got were a tonne of judgmental calls about my ethics, motivations etc.
Of course, the saddest part is that the strongest condemnation came from people who are neither LFA nor are parenting a child with severe autism and in my shoes, with the worries and the fears that come with the "territory".
It must be very easy to climb on a moral high horse and dispense advise when you don't have to live that life or deal with the consequences.
Moderators, please lock this thread. It's run its course, and it's just plain hurtful to read all this continuous preaching - it's not helpful, it's hurtful, and I am pleading for this thread to be put on the shelf.
Thanks.
_________________
O villain, villain, smiling, damnèd villain!
My tables—meet it is I set it down
That one may smile, and smile, and be a villain.
At least I'm sure it may be so in "Denmark".
-- Hamlet, 1.5.113-116
HisMom, my friend, I have to say that in sum total this entire thread has been incredibly tame compared to others where I have seen similar topics were discussed in other places. I know it may not seem so when you are on the receiving end, but seriously I have seen some downright UGLY happen when talking about similar subjects.
I would like to propose a different framework of thought, which you can throw right out the window if you do not find it helpful.
This decision does bear significant moral/ethical weight, regardless of your final decision. Ignoring that is probably not wise. It may be helpful to try to refrain from taking people's objections as personal attacks, but instead allow them to provoke your thoughts instead of your defenses. I know that you recognize that a decision like this cannot be made lightly, which is why you are here asking questions. I think it is prudent to fully consider all perspectives when determining your course of action, including those that are contrary to your initial intent. In fact, if I were in your shoes, I would challenge myself to write a persuasive paper on the reasons NOT to delay puberty in boys with LFA. I have used this method more than once when I have faced a decision that may have moral/ethical implications. Sometimes it has influenced my decision, and other times it has made me even more comfortable in what I wanted to do because I knew the objections inside and out and was 100% confident that I was OK with my decision. That empowered me not to care what other people thought.
In fact, the one time that I didn't do this, I did something I wish I wouldn't have done. And it is permanent. I wish I would have vetted my thinking more in depth, because I would have made a different decision. I'm not saying that would happen to you, but trust me, it is not pleasant when it happens, because I know I only have my own...I don't know what to call it...lack of mental discipline? Mental laziness?...whatever it was that prevented me from exploring "the other side of the argument."
I also like to think of it as searching for evidence to disconfirm my hypothesis. Most people only try to find evidence to support what they already think and I think that is lazy at best and dangerous at worst.
The glorious and horrifying thing about being a parent is that ultimately, we get to decide. In the end, you are accountable for the decisions you make and it is really not anyone else's place to pass judgment (though we know they always will). That is why I think it is in your best interest, and your son's, to fully explore all sides of the picture before you make any decision. Only looking at perspectives that support your own will only give you a piece of the picture.
(disclaimer: I, personally, hold no opinion on this matter because I honestly cannot even put myself in your shoes. I don't know what I would do, and given the fact that I can't adequately imagine what it must be like, I would only be hazarding a guess, which may or may not accurately reflect what I would really do. The one thing that I have learned as being a parent is that many things I said I would do when I wasn't a parent, I don't; and many things I said I would never do, I do. Until you are faced with it, you can only guess what you would do.)
_________________
Mom to 2 exceptional atypical kids
Long BAP lineage
I would like to propose a different framework of thought, which you can throw right out the window if you do not find it helpful.
This decision does bear significant moral/ethical weight, regardless of your final decision. Ignoring that is probably not wise. It may be helpful to try to refrain from taking people's objections as personal attacks, but instead allow them to provoke your thoughts instead of your defenses. I know that you recognize that a decision like this cannot be made lightly, which is why you are here asking questions. I think it is prudent to fully consider all perspectives when determining your course of action, including those that are contrary to your initial intent. In fact, if I were in your shoes, I would challenge myself to write a persuasive paper on the reasons NOT to delay puberty in boys with LFA. I have used this method more than once when I have faced a decision that may have moral/ethical implications. Sometimes it has influenced my decision, and other times it has made me even more comfortable in what I wanted to do because I knew the objections inside and out and was 100% confident that I was OK with my decision. That empowered me not to care what other people thought.
In fact, the one time that I didn't do this, I did something I wish I wouldn't have done. And it is permanent. I wish I would have vetted my thinking more in depth, because I would have made a different decision. I'm not saying that would happen to you, but trust me, it is not pleasant when it happens, because I know I only have my own...I don't know what to call it...lack of mental discipline? Mental laziness?...whatever it was that prevented me from exploring "the other side of the argument."
I also like to think of it as searching for evidence to disconfirm my hypothesis. Most people only try to find evidence to support what they already think and I think that is lazy at best and dangerous at worst.
The glorious and horrifying thing about being a parent is that ultimately, we get to decide. In the end, you are accountable for the decisions you make and it is really not anyone else's place to pass judgment (though we know they always will). That is why I think it is in your best interest, and your son's, to fully explore all sides of the picture before you make any decision. Only looking at perspectives that support your own will only give you a piece of the picture.
(disclaimer: I, personally, hold no opinion on this matter because I honestly cannot even put myself in your shoes. I don't know what I would do, and given the fact that I can't adequately imagine what it must be like, I would only be hazarding a guess, which may or may not accurately reflect what I would really do. The one thing that I have learned as being a parent is that many things I said I would do when I wasn't a parent, I don't; and many things I said I would never do, I do. Until you are faced with it, you can only guess what you would do.)
Thanks.
_________________
O villain, villain, smiling, damnèd villain!
My tables—meet it is I set it down
That one may smile, and smile, and be a villain.
At least I'm sure it may be so in "Denmark".
-- Hamlet, 1.5.113-116
Perhaps the people at Autism Speaks would be more supportive of your point of view.
Then adopt a bunch of LFA boys and raise them through puberty and care for them beyond. Put your money where your mouth is.
_________________
O villain, villain, smiling, damnèd villain!
My tables—meet it is I set it down
That one may smile, and smile, and be a villain.
At least I'm sure it may be so in "Denmark".
-- Hamlet, 1.5.113-116
HisMom weren't you initially asking about a delay?
IMO, there is a big gulf between delay of puberty and chemical castration, even if the mechanism is the same. I can see that where things stand puberty is a frightening proposition - it's just that I think this is very far in the future and it is very likely that things will change when your son is an adult.
IMO, there is a big gulf between delay of puberty and chemical castration, even if the mechanism is the same. I can see that where things stand puberty is a frightening proposition - it's just that I think this is very far in the future and it is very likely that things will change when your son is an adult.
I do want to delay puberty to begin with, maybe until 15 (if that's possible), to give him a chance and the gift of time. I do know of kids who began to make major strides in their teenaged years and I do not want to take any irreversible action until we have exhausted every other option AND have given him time... lots and lots of time to see if things could change.
If that change / progress does not happen by the time he is 15, then I would want to avoid puberty altogether. That is my current thought / plan of action, given his severe autism and poor prognosis at this exact point in time.
_________________
O villain, villain, smiling, damnèd villain!
My tables—meet it is I set it down
That one may smile, and smile, and be a villain.
At least I'm sure it may be so in "Denmark".
-- Hamlet, 1.5.113-116
If that change / progress does not happen by the time he is 15, then I would want to avoid puberty altogether. That is my current thought / plan of action, given his severe autism and poor prognosis at this exact point in time.
As I understand it, kids on hormone blockers to delay puberty still grow physically. It probably wouldn't be a growth spurt like what happens with puberty but the kids still grow. So if your son did not improve and you were to pursue permanently preventing puberty, he would be the size of a 15 year old (or close to) which kind of defeats the purpose of growth attenuation treatment. And it's not like you could keep him on blockers long term without some pretty serious side effects. I think for trans kids, blockers are usually started between 10-12 years old and end when they are 16-18 years old and can start cross-hormone transition.
You mentioned that your son bolts without regard to danger. You'd still be chasing after and stopping a 15 year old boy, not someone the size of an 8 year old were you to wait on GA. If it can even be effectively done on a 15 year old. I think the youngest child was 4 years old when the treatment started and the oldest about 8.
This is not me advocating for GA treatment for your son but pointing out what waiting entails as opposed to starting now or in a year. You would still have to go through an ethics committee and I highly doubt they'd approve it given your son is not dependent on you for positioning or mobility. The bolting doesn't count as requiring assistance because he is capable of bolting. As I said before, the kids it's been approved for were completely non-ambulatory and fully dependent on their caregivers to prevent pressure sores and to go anywhere be it into the community or just from the kitchen to the living room.
The question the OP has is not about preventing the child from experiencing adult sexuality, but whether it might benefit him (within the context of a child who can't care for himself) to allow time for his social/emotional development to catch up to his physical development a bit.
I didn't read that into it at all - I understood that she wanted to permanently prevent puberty. If I'm wrong I hope she rejoins the thread, as we've discussed delaying in some detail with our daughter's endo and have been reading up on it for years...
Why would you want to delay puberty on a HFA child ? Don't mess with nature or else...where are your ethics ? It somehow seems wrong to me to take such action on a child, just because she is autistic.
Just to clarify, the delay would not be because she is on the spectrum. Our daughter is transgender & her pediatric endocrinologist has indicated she prefers to keep trans kids in sync with their age peers insofar as development goes, but if she follows another protocol she may want to go with a short course of lupron first.
_________________
“For small creatures such as we the vastness is bearable only through love.”
―Carl Sagan
IMO, there is a big gulf between delay of puberty and chemical castration, even if the mechanism is the same. I can see that where things stand puberty is a frightening proposition - it's just that I think this is very far in the future and it is very likely that things will change when your son is an adult.
I do want to delay puberty to begin with, maybe until 15 (if that's possible), to give him a chance and the gift of time. I do know of kids who began to make major strides in their teenaged years and I do not want to take any irreversible action until we have exhausted every other option AND have given him time... lots and lots of time to see if things could change.
If that change / progress does not happen by the time he is 15, then I would want to avoid puberty altogether. That is my current thought / plan of action, given his severe autism and poor prognosis at this exact point in time.
Since most boys don't hit Tanner 2 until 11-14 anyway (when blockers would be given), a delay until 15 carries little risk.
_________________
“For small creatures such as we the vastness is bearable only through love.”
―Carl Sagan
...I
am gettinga little sucpiious of the OP here - she s
Ay
sshe goingaayand then dosnt -
She call
s. For the the the
ad to be locked - she did seem toask before aboutan older girl lwho she. Now says isalright .
Maybe Ishould not ay this and she is distracred by her LFAson ,asl she says a
Nd I
am toosus
spiciou(oh
and i am typing on a wleird old mobile that's wlhy the strange slspelling punctuation layout. Here)
andshe is very stressled by it and my commens alre unjustified alnd I am sorry if that is so .
S (
Locked on OP's request.
_________________
BOLTZ 17/3 2012 - 12/11 2020
Beautiful, sweet, gentle, playful, loyal
simply the best and one of a kind
love you and miss you, dear boy
Stop the wolf kills! https://www.thepetitionsite.com/takeact ... 3091429765
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