RE: Kids w/ Classic Autism, PDD-NOS & Speech Delays

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blondeambition
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25 Jul 2011, 5:53 pm

Washi wrote:
blondeambition wrote:
Washi wrote:
Yesterday someone who I've been friends with since elementary school (actually as an Aspie she was the only close friend I had growing up), messaged me and asked how and when I realized my son was autistic. She has a 23 month old and confided he's been lining up his toys, won't use a spoon, only knows a few words and rarely talks, doesn't say Mom or know how to ask for a drink, if he's hungry he just stands in front of the fridge and whines, he doesn't sleep for more than 4 hours at a time, has only just learned to wave bye-bye and a few other things ... she has three other kids (one of which is ADHD) and said none of them were like this. It's been about a year since I've seen her son and he seemed bright and on track then .... I told her she has valid concerns. Thoughts?


Is she having a 24 month developmental screening/check up with her pediatrician? I would recommend her taking the child in for a check up and discussing her concerns with her pediatrician. I personally wouldn't necessarily go into the whole autism thing with her until the child is screened by a doctor.



That was basically what she was asking me, if she should bring it up to the doctor or not. I told her she should. Then she mentioned that her family was against bringing it up and that she has a new job and won't have insurance until October .... I didn't ask if she was going to put off his 2 year check til then, but if she does and if he does have valid issues she'll be missing out on some IE.


My older son's pediatrician noticed that something was up but wouldn't give the diagnosis herself. She referred me to a pediatric neurologist. I generally think that having a pediatric neurologist or child psychiatrist in charge is best.

We had some of these same insurance issues with my older son.

If she is here in the states, I would recommend that she proceed straight to an insurance agency and purchase a good individual policy for her son before she gets the developmental check up. She should not tell the agent that her son is possibly autistic--he has not been diagnosed, so she does not need to bring that up. He will probably be insured within a few days. The private insurance company will not be able to cancel the policy unless she cancels it or stops paying her premiums.

The employer's insurance will cover the child regardless.

She will be very glad to have the individual policy if the job doesn't come through after all.


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Washi
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25 Jul 2011, 6:10 pm

I'm pretty sure she can't afford to pay for any kind of insurance plan right now. Maybe she can get him on Medicaid. If she brings it up again I should probably tell her that the neurologist is who she really needs to see, a pediatrician might recommend the run around "lets wait and see" approach.



blondeambition
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25 Jul 2011, 6:35 pm

Washi wrote:
I'm pretty sure she can't afford to pay for any kind of insurance plan right now. Maybe she can get him on Medicaid. If she brings it up again I should probably tell her that the neurologist is who she really needs to see, a pediatrician might recommend the run around "lets wait and see" approach.


Considering the child's age and lack of pre-existing conditions, she will probably be able to get some sort of policy for under $ 100 per month. Even a policy with a high deductible is better than nothing because it will reduce the costs of visits to a specialist, reduce the cost of testing, etc., until she reaches the deductible. She can always cancel it when the job starts.

We saw a State Farm agent and got a policy from Assurant Health for my son with classic autism when he was 2, before he was diagnosed with anything. It turned out to be very helpful. (It would have been even more helpful if we had paid for a more expensive policy with a lower deductible.)

Her family might even help her pay for a cheap policy until she gets insurance coverage through work.

If the child is actually diagnosed with autism or the 24 month screening goes poorly, she may be unable to buy an individual policy afterwards. Rejected due to a prexisting condition. No insurance if the child is injured in a car accident, gets a disease, or anything else if her job doesn't materialize.

Medicaid may be the way to go if she can't afford anything. I don't think that you can get Medicaid, though, if you just have a cash flow problem caused by temporary loss of work. They look at both your income and your assets.

Right now my son and I are both covered by the Texas High Risk Pool, which is a government option for people with too many assets for Medicaid but no employer provided health insurance and health problems preventing purchase of an individual policy. It is a lot more expensive than getting a regular individual health insurance policy, though.


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www.freevideosforautistickids.com is my website with hundreds of links and thousands of educational videos for kids, parents and educators. Son with high-functioning classic autism, aged 7, and son with OCD/Aspergers, aged 4. I love my boys!


Last edited by blondeambition on 26 Jul 2011, 6:08 am, edited 1 time in total.

Wreck-Gar
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25 Jul 2011, 7:06 pm

Washi wrote:
And I had to pry to the get some of the most relevant info, it was only by asking I found out that he's doesn't say Mom yet ... if I hadn't I don't think she'd have realized that was something to mention.


Well, your friend did bring it up so I don't see a problem telling her to have her son checked out.



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25 Jul 2011, 7:08 pm

Washi wrote:
Wreck-Gar wrote:
Washi wrote:
I'm picturing something like the Sesame Street numbers that had eyes and a mouth. I bet my son would've carried numbers around too if he had them.


They're more like patchwork quilt numbers.

Anyway just before he went to bed my son's teddy magnadoodle broke due to overuse...good thing we have a spare!


I hope he's not attached to that particular one. When my son's special blanket (dubbed "Stinky Winky") started getting tattered and nasty we got him a spare which he rejects (this one we call "The Impostor").


He does know the difference, but he seems ok with the other one. We originally got two so the two kids wouldn't fight over them. I'll probably get another one soon, they only cost about a dollar.



nostromo
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26 Jul 2011, 11:13 pm

DazednConfused wrote:
There is a little girl at my son's playcentre that carries around a stuffed number 5 with eyes - there is a UK/BBC programme called Numberjacks that she loves and of course you can buy all the numbers as toys. I deliberately haven't shown it to my boy as he would probably go crazy for it!

My son has the number 5 numberjack!



nostromo
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26 Jul 2011, 11:24 pm

Washi wrote:
Yesterday someone who I've been friends with since elementary school (actually as an Aspie she was the only close friend I had growing up), messaged me and asked how and when I realized my son was autistic. She has a 23 month old and confided he's been lining up his toys, won't use a spoon, only knows a few words and rarely talks, doesn't say Mom or know how to ask for a drink, if he's hungry he just stands in front of the fridge and whines, he doesn't sleep for more than 4 hours at a time, has only just learned to wave bye-bye and a few other things ... she has three other kids (one of which is ADHD) and said none of them were like this. It's been about a year since I've seen her son and he seemed bright and on track then .... I told her she has valid concerns. Thoughts?

I would suggest she take the MCHAT test. The xls is the easiest to use.
http://www2.gsu.edu/~psydlr/DianaLRobin ... bsite.html
Its a screening tool with twenty three questions, six of which are classed as critical.

"A child fails the checklist when two or more critical items are failed OR when any three items are failed."

"Not all children who fail the checklist will meet criteria for a diagnosis on the autism spectrum. However, children who fail the checklist should be evaluated in more depth by the physician or referred for a developmental evaluation with a specialist."

(Notably our son scored eighteen)



Wreck-Gar
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26 Jul 2011, 11:39 pm

nostromo wrote:
DazednConfused wrote:
There is a little girl at my son's playcentre that carries around a stuffed number 5 with eyes - there is a UK/BBC programme called Numberjacks that she loves and of course you can buy all the numbers as toys. I deliberately haven't shown it to my boy as he would probably go crazy for it!

My son has the number 5 numberjack!


Just looked up the Numberjacks. Wow, this looks like my son's ideal fantasy world. I wonder if it would be worth it to introduce the show to him, thereby engaging his interests?



nostromo
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27 Jul 2011, 12:05 am

Wreck-Gar wrote:
nostromo wrote:
DazednConfused wrote:
There is a little girl at my son's playcentre that carries around a stuffed number 5 with eyes - there is a UK/BBC programme called Numberjacks that she loves and of course you can buy all the numbers as toys. I deliberately haven't shown it to my boy as he would probably go crazy for it!

My son has the number 5 numberjack!


Just looked up the Numberjacks. Wow, this looks like my son's ideal fantasy world. I wonder if it would be worth it to introduce the show to him, thereby engaging his interests?

Watch out for the Numbertaker, he pinches numbers and causes havoc!
Image



Washi
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27 Jul 2011, 12:47 am

nostromo wrote:
Washi wrote:
Yesterday someone who I've been friends with since elementary school (actually as an Aspie she was the only close friend I had growing up), messaged me and asked how and when I realized my son was autistic. She has a 23 month old and confided he's been lining up his toys, won't use a spoon, only knows a few words and rarely talks, doesn't say Mom or know how to ask for a drink, if he's hungry he just stands in front of the fridge and whines, he doesn't sleep for more than 4 hours at a time, has only just learned to wave bye-bye and a few other things ... she has three other kids (one of which is ADHD) and said none of them were like this. It's been about a year since I've seen her son and he seemed bright and on track then .... I told her she has valid concerns. Thoughts?

I would suggest she take the MCHAT test. The xls is the easiest to use.
http://www2.gsu.edu/~psydlr/DianaLRobin ... bsite.html
Its a screening tool with twenty three questions, six of which are classed as critical.

"A child fails the checklist when two or more critical items are failed OR when any three items are failed."

"Not all children who fail the checklist will meet criteria for a diagnosis on the autism spectrum. However, children who fail the checklist should be evaluated in more depth by the physician or referred for a developmental evaluation with a specialist."

(Notably our son scored eighteen)


I'm pretty sure she won't pass some of the critical questions ... I don't want to be the harbinger of bad news. The things she mentioned me made me think PDD-NOS though.



Washi
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27 Jul 2011, 12:51 am

nostromo wrote:
DazednConfused wrote:
There is a little girl at my son's playcentre that carries around a stuffed number 5 with eyes - there is a UK/BBC programme called Numberjacks that she loves and of course you can buy all the numbers as toys. I deliberately haven't shown it to my boy as he would probably go crazy for it!

My son has the number 5 numberjack!


I have to look into this! We're already fans of the Alphablocks I don't know how I could've missed Numberjacks.



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27 Jul 2011, 2:06 am

Washi wrote:
nostromo wrote:
DazednConfused wrote:
There is a little girl at my son's playcentre that carries around a stuffed number 5 with eyes - there is a UK/BBC programme called Numberjacks that she loves and of course you can buy all the numbers as toys. I deliberately haven't shown it to my boy as he would probably go crazy for it!

My son has the number 5 numberjack!


I have to look into this! We're already fans of the Alphablocks I don't know how I could've missed Numberjacks.


Alphablocks, eh? Sounds like something else we need to check out.



Wreck-Gar
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27 Jul 2011, 2:25 am

Washi wrote:
nostromo wrote:
DazednConfused wrote:
There is a little girl at my son's playcentre that carries around a stuffed number 5 with eyes - there is a UK/BBC programme called Numberjacks that she loves and of course you can buy all the numbers as toys. I deliberately haven't shown it to my boy as he would probably go crazy for it!

My son has the number 5 numberjack!


I have to look into this! We're already fans of the Alphablocks I don't know how I could've missed Numberjacks.


Alphablocks, eh? Sounds like something else we need to check out.



liloleme
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27 Jul 2011, 2:40 am

nostromo wrote:
Watch out for the Numbertaker, he pinches numbers and causes havoc!
Image



That guy is scary!! !



DazednConfused
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27 Jul 2011, 5:58 am

Oh, isn't he! After posting, I caved and showed my son the numberjacks games on their website. He was a bit confused by it all! We don't know the alphablocks either, must check them out.



Washi
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27 Jul 2011, 1:46 pm

The Alphablocks have really short episodes but they're great anyway, my son learned all the letter sounds from them. http://www.youtube.com/watch?v=UU4FKj0OmWs