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RE: Kids w/ Classic Autism, PDD-NOS & Speech Delays

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Wreck-Gar
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22 Sep 2011, 6:22 pm

The videos appear to be backfiring...he wants to watch them ALL THE TIME now. Last night he wouldn't go to bed and screamed for over an hour till we turned them back on for him.

This video is one of his favorites...he always wants to act it out with me. He comes up to me and says "Hey Jon Jon" (sounds like "Hey Jo Jo" though) which is my cue to start counting with him. My son even does the accent.

http://www.youtube.com/watch?v=scu9zzC5U3g

It can be annoying but at least he's being interactive!



Washi
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22 Sep 2011, 6:47 pm

Wreck-Gar wrote:
The videos appear to be backfiring...he wants to watch them ALL THE TIME now. Last night he wouldn't go to bed and screamed for over an hour till we turned them back on for him.

This video is one of his favorites...he always wants to act it out with me. He comes up to me and says "Hey Jon Jon" (sounds like "Hey Jo Jo" though) which is my cue to start counting with him. My son even does the accent.

http://www.youtube.com/watch?v=scu9zzC5U3g

It can be annoying but at least he's being interactive!


LOL, I might regret it but I'm going to show that to my son when he wakes up!



blondeambition
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22 Sep 2011, 6:53 pm

Wreck-Gar wrote:
The videos appear to be backfiring...he wants to watch them ALL THE TIME now. Last night he wouldn't go to bed and screamed for over an hour till we turned them back on for him.

This video is one of his favorites...he always wants to act it out with me. He comes up to me and says "Hey Jon Jon" (sounds like "Hey Jo Jo" though) which is my cue to start counting with him. My son even does the accent.

http://www.youtube.com/watch?v=scu9zzC5U3g

It can be annoying but at least he's being interactive!


My younger son can be like that--one of his OCD things. He was stuck on my alphabet videos on the Reading Channel for a long time. He finally got bored with them, but it took a while.

On a positive note, he is a freakishly good reader for not even being 4--He will just pick up a favorite book and read it aloud all by himself. I did not work with him on phonics at all. He learned all of it from phonics DVDs and the computer.

Thank goodness for meds for him. He still wants to do the same stuff all of the time, but he won't howl for an hour or totally freakout or anything if he is prevented from engaging in a desired activity. He can actually (with some difficulty) be redirected.

Before I got him on prescription meds to help with sleep, I put a TV with a VCR in his room and gave him Benadryl at night. He would fall asleep watching videos. My older son used to fall asleep watching videos, too.

Remember, you can download several YouTube videos at once with ByTubeD Mozilla Firefox extension, use Wondershare Platinum to convert evert thing to avi format and merge into one file, and burn it onto a DVD with Cheetah DVD burner or some other software. That way, you can play it on a DVD player in his room.

Videos have been a great teaching tool for my kids, and provide me with respite. I'm sure you and your wife will get everything worked out.


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nostromo
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23 Sep 2011, 12:20 am

Wreck-Gar wrote:
The videos appear to be backfiring...he wants to watch them ALL THE TIME now. Last night he wouldn't go to bed and screamed for over an hour till we turned them back on for him.

This video is one of his favorites...he always wants to act it out with me. He comes up to me and says "Hey Jon Jon" (sounds like "Hey Jo Jo" though) which is my cue to start counting with him. My son even does the accent.

http://www.youtube.com/watch?v=scu9zzC5U3g

It can be annoying but at least he's being interactive!

Its funny isn't it we get them a new skill or interest and all of a sudden theres more for us to do! Now that my son gets PECS he sees me come in the door, and quick as a flash hes off to the PECS folder to request Iced animal crackers or popcorn or something else hes interested in. Sometimes I'll be concentrating on doing something and this slient little hand will slide a rolled up picture in my palm. Its all good though.



Wreck-Gar
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23 Sep 2011, 2:38 am

nostromo wrote:
The lure of a big Mac is mighty powerful (for me anyway!). My little one gets highly animated at the lure of McDonalds fries; if anything could get him to do something that would be it :D


I am pretty sure my son could live off chicken McNuggets.



Wreck-Gar
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23 Sep 2011, 2:40 am

nostromo wrote:
Its funny isn't it we get them a new skill or interest and all of a sudden theres more for us to do! Now that my son gets PECS he sees me come in the door, and quick as a flash hes off to the PECS folder to request Iced animal crackers or popcorn or something else hes interested in. Sometimes I'll be concentrating on doing something and this slient little hand will slide a rolled up picture in my palm. Its all good though.


Ha ha, I was thinking the exact same thing when my son started asking for stuff.



Wreck-Gar
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24 Sep 2011, 7:42 am

My son has now started to imitate people in videos. First it was "Head, Shoulders, Knees, and Toes."

He likes this guy, too--probably because he does a lot with his hands.

http://www.youtube.com/user/d6o6p#p/c/0 ... AFSTrSNJMg



blondeambition
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25 Sep 2011, 8:58 pm

I just saw Wretches and Jabberers. This documentary is about non-verbal adults living with classic autism. The people in the movie cannot live on their own and communicate by typing. One Japanese teenager, aged 16, has written ten books and is a talented artist. Another is also a professional artist. The others are apparently supported by the government or family.

They type well, but slowly, and clearly have many difficulties with self control. They are concerned about people thinking that they are not smart and with lack of services and opportunities.

The two main men in the movie are older and grew up not knowing how to talk or type. One learned how to type in his early twenties and the other learned in his early thirties. They have some anger and frustration about not getting an education and about people's prejudices.

My boys are doing much better than everyone in the movie. However, I wanted to see the movie because I am interested in autism advocacy and wanted to understand the issues facing adults with severe autism.

The fact that the two main men in the movie didn't learn to type until adulthood--couldn't communicate their inner thoughts--was very moving. I felt that there were so many people that needed to see this movie in order to understand that yes, these people have thoughts and feelings.

Anyway, apparently you can order the movie from wretchesandjabberers.org or you can try to find one to rent or buy used on-line.

Below is a link to a trailer for the movie. I think that it has also been uploaded by someone onto YouTube in about 13 parts.

http://youtu.be/2FlIyJJRc0E


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Washi
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26 Sep 2011, 12:10 am

The youtube copies were taken down and supposedly were available elsewhere but all I could find was the trailers and some related clips ("stories from the road") I haven't watched yet on vimeo. I think my husband said it was about $4 to watch on itunes but I can't afford anything right now.



Wreck-Gar
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26 Sep 2011, 2:08 am

I will have to check out that movie.

My son did something interesting yesterday.

His obsession with numbers includes an obsession with clocks, so we tried to find videos on Youtube about clocks.

We found a version of Hickory Dickory Dock that ended with an elephant going up the clock and then smashing it. A look of horror appeared on my son's face as the clock buckled and he threw a fit when it was broken to bits under the elephant's weight.

These vidoes need warning lables!

It's worth noting that we were watching a documentary on this history channel about the Kennedy assasination the other day and he didn't flinch.



Washi
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26 Sep 2011, 2:51 am

Wreck-Gar wrote:
I will have to check out that movie.

My son did something interesting yesterday.

His obsession with numbers includes an obsession with clocks, so we tried to find videos on Youtube about clocks.

We found a version of Hickory Dickory Dock that ended with an elephant going up the clock and then smashing it. A look of horror appeared on my son's face as the clock buckled and he threw a fit when it was broken to bits under the elephant's weight.

These vidoes need warning lables!

It's worth noting that we were watching a documentary on this history channel about the Kennedy assasination the other day and he didn't flinch.


Sounds like something mine would do. Weird stuff upsets him. The first time I noticed it was when he was quite a bit younger, probably before I knew he was autistic - he was watching either old school Sesame Street or the Muppet Show, I forget which but there was a simplistic skit with a hippopotamus crossing a high-wire and the weight of him pulled the wire down, nothing else in the show elicited a response but the hippopotamus sinking down on the wire upset him terribly.



Wreck-Gar
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26 Sep 2011, 4:23 am

Washi wrote:
Sounds like something mine would do. Weird stuff upsets him. The first time I noticed it was when he was quite a bit younger, probably before I knew he was autistic - he was watching either old school Sesame Street or the Muppet Show, I forget which but there was a simplistic skit with a hippopotamus crossing a high-wire and the weight of him pulled the wire down, nothing else in the show elicited a response but the hippopotamus sinking down on the wire upset him terribly.


My son has started to act more like you described yours. Now when I ask him "What do you want?" he answers with "Music is awesome!" from that show Yo Gabba Gabba.

I remember you mentioned before that the doc gave your son a 30% chance of being able to speak normally...what's the other 70%? I imagine my son is in the same boat and it's impossible to get a straight answer out of the docs here.



blondeambition
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26 Sep 2011, 4:30 am

Washi wrote:
Wreck-Gar wrote:
I will have to check out that movie.

My son did something interesting yesterday.

His obsession with numbers includes an obsession with clocks, so we tried to find videos on Youtube about clocks.

We found a version of Hickory Dickory Dock that ended with an elephant going up the clock and then smashing it. A look of horror appeared on my son's face as the clock buckled and he threw a fit when it was broken to bits under the elephant's weight.

These vidoes need warning lables!

It's worth noting that we were watching a documentary on this history channel about the Kennedy assasination the other day and he didn't flinch.


Sounds like something mine would do. Weird stuff upsets him. The first time I noticed it was when he was quite a bit younger, probably before I knew he was autistic - he was watching either old school Sesame Street or the Muppet Show, I forget which but there was a simplistic skit with a hippopotamus crossing a high-wire and the weight of him pulled the wire down, nothing else in the show elicited a response but the hippopotamus sinking down on the wire upset him terribly.


I had to hide the Elmo in Grouchland video a while back. In the video, Elmo somehow ends up in Grouchland (Oscar the Grouch's homeland). My older son would want to watch it and then turn into a weepy mess. He can be very sensitive.

I don't let my husband play violent video games in the living room in front of the kids because then my older son will have nightmares. He gets upset and cries if my husband is killed by a monster in a video game.

I am pretty sensitive myself and generally do not choose violent movies anymore even if they are good.


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www.freevideosforautistickids.com is my website with hundreds of links and thousands of educational videos for kids, parents and educators. Son with high-functioning classic autism, aged 7, and son with OCD/Aspergers, aged 4. I love my boys!


Wreck-Gar
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26 Sep 2011, 4:51 am

blondeambition wrote:
I had to hide the Elmo in Grouchland video a while back. In the video, Elmo somehow ends up in Grouchland (Oscar the Grouch's homeland). My older son would want to watch it and then turn into a weepy mess. He can be very sensitive.

I don't let my husband play violent video games in the living room in front of the kids because then my older son will have nightmares. He gets upset and cries if my husband is killed by a monster in a video game.

I am pretty sensitive myself and generally do not choose violent movies anymore even if they are good.


A lot of stuff used to freak me out when I was little. Like this Rolo commercial. There was one where one got smashed (to show the caramel) which was very traumatizing.

http://www.youtube.com/watch?v=JlXA4tS9pl8

I also got freaked out when Alice Cooper chopped his head off at the end of a song. I thought it was real.



claudia
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26 Sep 2011, 8:27 am

blondeambition wrote:
I just saw Wretches and Jabberers. This documentary is about non-verbal adults living with classic autism. The people in the movie cannot live on their own and communicate by typing. One Japanese teenager, aged 16, has written ten books and is a talented artist. Another is also a professional artist. The others are apparently supported by the government or family.

They type well, but slowly, and clearly have many difficulties with self control. They are concerned about people thinking that they are not smart and with lack of services and opportunities.

The two main men in the movie are older and grew up not knowing how to talk or type. One learned how to type in his early twenties and the other learned in his early thirties. They have some anger and frustration about not getting an education and about people's prejudices.

My boys are doing much better than everyone in the movie. However, I wanted to see the movie because I am interested in autism advocacy and wanted to understand the issues facing adults with severe autism.

The fact that the two main men in the movie didn't learn to type until adulthood--couldn't communicate their inner thoughts--was very moving. I felt that there were so many people that needed to see this movie in order to understand that yes, these people have thoughts and feelings.

Anyway, apparently you can order the movie from wretchesandjabberers.org or you can try to find one to rent or buy used on-line.

Below is a link to a trailer for the movie. I think that it has also been uploaded by someone onto YouTube in about 13 parts.

http://youtu.be/2FlIyJJRc0E


Interesting, I'm going to see it, even if I still have trouble processing spoken english...



Wreck-Gar
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26 Sep 2011, 8:33 am

blondeambition wrote:
I just saw Wretches and Jabberers. This documentary is about non-verbal adults living with classic autism. The people in the movie cannot live on their own and communicate by typing. One Japanese teenager, aged 16, has written ten books and is a talented artist. Another is also a professional artist. The others are apparently supported by the government or family.

They type well, but slowly, and clearly have many difficulties with self control. They are concerned about people thinking that they are not smart and with lack of services and opportunities.

The two main men in the movie are older and grew up not knowing how to talk or type. One learned how to type in his early twenties and the other learned in his early thirties. They have some anger and frustration about not getting an education and about people's prejudices.

My boys are doing much better than everyone in the movie. However, I wanted to see the movie because I am interested in autism advocacy and wanted to understand the issues facing adults with severe autism.

The fact that the two main men in the movie didn't learn to type until adulthood--couldn't communicate their inner thoughts--was very moving. I felt that there were so many people that needed to see this movie in order to understand that yes, these people have thoughts and feelings.

Anyway, apparently you can order the movie from wretchesandjabberers.org or you can try to find one to rent or buy used on-line.

Below is a link to a trailer for the movie. I think that it has also been uploaded by someone onto YouTube in about 13 parts.

http://youtu.be/2FlIyJJRc0E


Just watched the trailer. Saw some scenes filmed in Japan! :)

No one in that video reminded me of my son. He does not have any of those unusual movements.

But my main worry is that he will never ever learn to communicate with us in any way. He can speak. That's not the problem. He just really doesn't communicate much. :(