RE: Kids w/ Classic Autism, PDD-NOS & Speech Delays

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Washi
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13 May 2011, 1:12 pm

nostromo wrote:
Great smile on that wee chap, and nice to see Thomas or at least Percy I think it is is present too!


Percy was a gift from his uncle the previous year. The red thing on the table was a gift from my aunt. It played music and had lights and a train that ran around inside. He was absolutely fascinated by it. He's full of smiles, sometimes he uses them to manipulate though. :)



Washi
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13 May 2011, 1:29 pm

Bauhauswife wrote:
He's a doll Washi!

As far as people in your day to day life finding you here, I doubt they'd find you here. There are hundreds of Autism boards, and this one is like the Land of Oz, waaaay off the beaten path. It's not even on the first five pages in a Google search for autism message boards. I stumbled upon it. Although I'm overjoyed that I [i]did[i] find this place, I honestly never expected to find parents with small children here. :lol:


Thanks! This board isn't perfect but it's still miles above other ones I've seen. He is a doll, until you go to pick him up, then BAM! - he transforms into a bag of feral cats. :lol: Your little guy has a great smile too, a smile like that can be a real day brightener.



cyberdad
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13 May 2011, 10:53 pm

Bauhauswife wrote:
As far as people in your day to day life finding you here, I doubt they'd find you here. There are hundreds of Autism boards, and this one is like the Land of Oz, waaaay off the beaten path. It's not even on the first five pages in a Google search for autism message boards. I stumbled upon it. Although I'm overjoyed that I did find this place, I honestly never expected to find parents with small children here. :lol:


I found this board when i was searching for astronomy web sites.



cyberdad
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13 May 2011, 10:56 pm

Bauhauswife wrote:
cyberdad wrote:
Bauhauswife wrote:
but I don't really see it as bragging, when our children struggle for every achievement. No matter how small it may seem to others, it's HUGE to us!!. I prefer to see it as giving hope, not bragging. I NEED to see those posts, because there is no such thing as a small step forward. It means your child's world just got a little bit bigger, and that's a good thing.


You know some years ago I read a book called "The God of Small Things" by an Indian author named Arundhati Roy. The book itself wasn't very memorable but I never forgot the title. If there is a god then I suspect he (or she) would smile at the little things we cherish like seeing our children happy just being kids.


Having a child with special needs has definitely changed my mind about what I thought was important, what I thought had value in my life. Even though I'm concerned about Eric's future, I've learned to live in the now. He's made me slow down and appreciate all the things I was missing before he entered my life.


Eric is really delightful. My mum used to bring home some of the special kids she worked with and I met many kids with Downs at my home.

Yes there is nothing like having a special needs child to put your own life in perspective. I am relishing dropping out of the rat race to look after my daughter outside of school time. Little things are in order of magnitude more important to me now.



Bauhauswife
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15 May 2011, 6:58 am

My favorite part of the day is getting him up in the morning and seeing his little face just beaming at me, and my second favorite part of the day is putting him to bed at night, because that boy can run you ragged. :lol:



cyberdad
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15 May 2011, 7:29 am

Bauhauswife wrote:
My favorite part of the day is getting him up in the morning and seeing his little face just beaming at me, and my second favorite part of the day is putting him to bed at night, because that boy can run you ragged. :lol:

Yeah I can easily relate :)



Washi
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15 May 2011, 9:55 pm

cyberdad wrote:
Bauhauswife wrote:
My favorite part of the day is getting him up in the morning and seeing his little face just beaming at me, and my second favorite part of the day is putting him to bed at night, because that boy can run you ragged. :lol:

Yeah I can easily relate :)


Mine rarely wakes in a pleasant mood, and can be very difficult to get him sleep. 3-4-5AM are not uncommon times for him to finally go down at night. I relate to the ragged bit though!



cyberdad
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16 May 2011, 2:00 am

Washi wrote:
cyberdad wrote:
Bauhauswife wrote:
My favorite part of the day is getting him up in the morning and seeing his little face just beaming at me, and my second favorite part of the day is putting him to bed at night, because that boy can run you ragged. :lol:

Yeah I can easily relate :)


Mine rarely wakes in a pleasant mood, and can be very difficult to get him sleep. 3-4-5AM are not uncommon times for him to finally go down at night. I relate to the ragged bit though!

It's currently close to winter down under and the cold weather means my daughter gets a little bit of a cough in the mornings which means disrupted sleep. Happended this morning but luckily she survived in school.

Have to convince to go for a sports carnival in the school bus tomorrow - she hates buses, find's them claustrophobic - wish me luck!



Bauhauswife
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16 May 2011, 6:41 am

Washi wrote:
Mine rarely wakes in a pleasant mood, and can be very difficult to get him sleep. 3-4-5AM are not uncommon times for him to finally go down at night. I relate to the ragged bit though!


OMG Washi, my head would explode! You must be exhausted!! I understand a lot of kids with autism have sleep disturbances/insomnia, and I'm really glad Eric didn't pull this symptom from the hat. He's a wakeful sleeper, he'll wake up in the wee hours of the morning, but he just vocalizes and plays for about an hour and then dozes off again.

Have you talked to his Ped. about trying Melatonin? I've seen quite a few parents here recommend it for their children, even the little ones.



Bauhauswife
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16 May 2011, 6:56 am

cyberdad wrote:
It's currently close to winter down under and the cold weather means my daughter gets a little bit of a cough in the mornings which means disrupted sleep. Happended this morning but luckily she survived in school.

Have to convince to go for a sports carnival in the school bus tomorrow - she hates buses, find's them claustrophobic - wish me luck!


It's approaching summer here in the southern states and for us it's seasonal allergies. I need to invest in Kleenex stock. :lol:

I can't blame your daughter for her judgement of buses, they do seem claustrophobic, especially with a full load of noisy kids. I think it's the lack of air movement and the smell. Buses always reminded me of a dirty gas station. :lol:



Washi
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16 May 2011, 12:10 pm

Bauhauswife wrote:
Washi wrote:
cyberdad wrote:
It's currently close to winter down under and the cold weather means my daughter gets a little bit of a cough in the mornings which means disrupted sleep. Happended this morning but luckily she survived in school.

Have to convince to go for a sports carnival in the school bus tomorrow - she hates buses, find's them claustrophobic - wish me luck!

Bauhauswife wrote:
It's approaching summer here in the southern states and for us it's seasonal allergies. I need to invest in Kleenex stock. Laughing

I can't blame your daughter for her judgement of buses, they do seem claustrophobic, especially with a full load of noisy kids. I think it's the lack of air movement and the smell. Buses always reminded me of a dirty gas station. Laughing

Washi wrote:
Mine rarely wakes in a pleasant mood, and can be very difficult to get him sleep. 3-4-5AM are not uncommon times for him to finally go down at night. I relate to the ragged bit though!


OMG Washi, my head would explode! You must be exhausted!! I understand a lot of kids with autism have sleep disturbances/insomnia, and I'm really glad Eric didn't pull this symptom from the hat. He's a wakeful sleeper, he'll wake up in the wee hours of the morning, but he just vocalizes and plays for about an hour and then dozes off again.

Have you talked to his Ped. about trying Melatonin? I've seen quite a few parents here recommend it for their children, even the little ones.


Yes, I feel like the undead. Sometimes the sun is rising when I go to bed and it's so late all the stores are closing when I want to go out. I bought the melatonin and tried it on myself first, it didn't do anything so I never tried it on Ethan. It's most definitely allergy season here, it's the worst one I can remember too. Ethan has been to the ER twice for waking up at night once with a croup cough gasping for air and once with the conjunctiva of his eyes swelling up over his irises such to the point that it was forcing his eye to look up. (Why do these things always happen when the pediatrician is closed?) He got steroids for the breathing and they said I could double the dose of antihistamine he was on (he was already on an antihistamine when his eyes swelled). And I'm coughing, it's so bad I'm thinking of buying a face mask to wear all the time to filter out the pollen.

Good luck with the bus trip! I used to get physically ill before class trips, especially if it was someplace I really wanted to go. Sometimes I got so sick with anxiety I had to stay home. :?



nostromo
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16 May 2011, 4:50 pm

Sometimes we have trouble getting James off to sleep, like last night he was giggling and running about his room till 9:30 (What was he doing? He had a little green set square and a green nut and was holding them up next to each other and looking at them, yeah kid knows how to have fun 8O :lol: ). But normally hes down at 7:30pm, asleep by 8, then sleeps like the dead until 7am. We can go in and pick him up and move him and he won't wake. Sometimes we need to change his nappy and usually he won't even wake and if he does he just looks about a bit bleary and annoyed and then once back in bed closes his eyes and snuggles down.

Yes we are so grateful for this!



Bauhauswife
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16 May 2011, 9:40 pm

Eric has the same schedule as James. A few nights a week, he has what I call his giggle session, somewhere around 6;30-7:00 Eric paces a little circle in the living room giggling and stimming with some random object. I have no idea what's so funny, but apparently it's hilarious to him. I wonder if it isn't a way for them to decompress or release any unspent energy from the day.

Washi, maybe try the Melatonin out on your son? Like maybe just half the dose. If it works for him, maybe you won't need it for yourself.. :lol: I know I don't sleep well if my son is awake, even if he's just in there playing in his crib. I tend to stay in the shallow end of sleep until he gets quiet again. It's like my subconscious won't allow me to doze off if he's still awake.



nostromo
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16 May 2011, 10:21 pm

A popular thing here seems to be tart cherry juice which I think contains melotonin, some friends just started it last week on their two little midnight marauders, after four days they are sleeping through. Also on our first ASD parenting course there was a couple with a boy with severe sleep issues, the peadiatrician put him on something that made him a bit psychotic and didn't help, then a higher dose which didn't help either, they changed doctors and got prescribed melotonin, and problem solved. Doesn't work on all kids but seems to work on most I've heard of I think its well worth a try.



cyberdad
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17 May 2011, 2:30 am

Bauhauswife wrote:
cyberdad wrote:
I can't blame your daughter for her judgement of buses, they do seem claustrophobic, especially with a full load of noisy kids. I think it's the lack of air movement and the smell. Buses always reminded me of a dirty gas station. :lol:


Well she negotiated a day of in the morning. Looks like it was a good decision, it poured with rain today! her poor classmates had to run in the rain and wind.! !



cyberdad
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17 May 2011, 2:35 am

Bauhauswife wrote:
Washi, maybe try the Melatonin out on your son?


Individuals with autism spectrum disorders (ASD) may have lower than normal levels of melatonin. A 2008 study found that unaffected parents of individuals with ASD also have lower melatonin levels, and that the deficits were associated with low activity of the ASMT gene, which encodes the last enzyme of melatonin synthesis.[58]
Multiple small studies have demonstrated that 2 to 10 mg of melatonin may benefit children with ASD who have trouble falling asleep and/or maintaining sleep. A small 2011 randomized crossover trial found that the administration of melatonin, when compared to placebo, decreased sleep latency and increased total sleep time, but had no effect on the number of night time awakenings.[59] At this time, no guidelines exist for the use of melatonin in children with ASD.

Interesting! I'll look into this, thanks :wink: